Any CF runners?

[ngunning]

I'm so new to CF and this blog that it's really exciting to find other adult CFers who run!

I'm 37 and was just fully diagnosed. But, I have been a serious, competitive runner my whole life. I ran for a Division I college - -and have continued to run and race even now.

I really feel as if running and athletics have kept my CF from taking over my body - - and anytime in my life when I haven't kept up with working out, particularly running, I find that I am SO much more susceptible to getting ill - and getting very ill very quickly.

And I think if you can't run, walking is just as beneficial!

I do sometimes suffer from this: if i go for a hard run, particularly after not having run for awhile, then for the rest of that day or night I run a low-grade fever, have chills, nausea, and weird bowel/digestive discomfort. Some of you have mentioned this, too - and many of you have also referred to something called a PFT??? Having literally been officially diagnosed this week - -what is a PFT? and has anyone else experienced this sort of "sickness" after working out?? what could it be?

 

[ngunning]

I'm so new to CF and this blog that it's really exciting to find other adult CFers who run!

I'm 37 and was just fully diagnosed. But, I have been a serious, competitive runner my whole life. I ran for a Division I college - -and have continued to run and race even now.

I really feel as if running and athletics have kept my CF from taking over my body - - and anytime in my life when I haven't kept up with working out, particularly running, I find that I am SO much more susceptible to getting ill - and getting very ill very quickly.

And I think if you can't run, walking is just as beneficial!

I do sometimes suffer from this: if i go for a hard run, particularly after not having run for awhile, then for the rest of that day or night I run a low-grade fever, have chills, nausea, and weird bowel/digestive discomfort. Some of you have mentioned this, too - and many of you have also referred to something called a PFT??? Having literally been officially diagnosed this week - -what is a PFT? and has anyone else experienced this sort of "sickness" after working out?? what could it be?

 

[CowTown]

Hi NGunning,

Well, hello! 37 and just diagnosed. Amazing. I see that happening here on this site more and more, with people getting diagnosed later in life. I guess it's good that you have been diagnosed so you can start on the medications needed, but I'm so sorry to hear you've been diagnosed.

I felt the same way as you when I first found this site and people who were so active. I was surprised actually, and didn't figure a lot of people with CF worked out or were ever active. I was very wrong.

You're obviously doing pretty well, congrats on that. PFTs are Pulmonary Function Tests and they measure your lung function on a scale of 1-100%. 100% being a "normal" person's lung function. Maybe you haven't gotten this test done yet, but you will eventually in order to see how your lungs are doing. (Fyi, mine are 46%)

I imagine the questions will just begin for you, so come back here to get all the answers you are looking for. Many people on this site are extremely helpful. I was diagnosed when I was 1 yr old, found this site over 1 year ago, and have learned tremendous amounts from this site.

Good luck and like always, keep up that running! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[CowTown]

Hi NGunning,

Well, hello! 37 and just diagnosed. Amazing. I see that happening here on this site more and more, with people getting diagnosed later in life. I guess it's good that you have been diagnosed so you can start on the medications needed, but I'm so sorry to hear you've been diagnosed.

I felt the same way as you when I first found this site and people who were so active. I was surprised actually, and didn't figure a lot of people with CF worked out or were ever active. I was very wrong.

You're obviously doing pretty well, congrats on that. PFTs are Pulmonary Function Tests and they measure your lung function on a scale of 1-100%. 100% being a "normal" person's lung function. Maybe you haven't gotten this test done yet, but you will eventually in order to see how your lungs are doing. (Fyi, mine are 46%)

I imagine the questions will just begin for you, so come back here to get all the answers you are looking for. Many people on this site are extremely helpful. I was diagnosed when I was 1 yr old, found this site over 1 year ago, and have learned tremendous amounts from this site.

Good luck and like always, keep up that running! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[CowTown]

Hi NGunning,

Well, hello! 37 and just diagnosed. Amazing. I see that happening here on this site more and more, with people getting diagnosed later in life. I guess it's good that you have been diagnosed so you can start on the medications needed, but I'm so sorry to hear you've been diagnosed.

I felt the same way as you when I first found this site and people who were so active. I was surprised actually, and didn't figure a lot of people with CF worked out or were ever active. I was very wrong.

You're obviously doing pretty well, congrats on that. PFTs are Pulmonary Function Tests and they measure your lung function on a scale of 1-100%. 100% being a "normal" person's lung function. Maybe you haven't gotten this test done yet, but you will eventually in order to see how your lungs are doing. (Fyi, mine are 46%)

I imagine the questions will just begin for you, so come back here to get all the answers you are looking for. Many people on this site are extremely helpful. I was diagnosed when I was 1 yr old, found this site over 1 year ago, and have learned tremendous amounts from this site.

Good luck and like always, keep up that running! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[jerry]

i believe running OUTSIDE is much better than treadmills inside. I can clear my lungs better out in the fresh air... the same goes for biking

GET OUTSIDE!!!

JERRY
50 fitting CF into my life...

 

[jerry]

i believe running OUTSIDE is much better than treadmills inside. I can clear my lungs better out in the fresh air... the same goes for biking

GET OUTSIDE!!!

JERRY
50 fitting CF into my life...

 

[jerry]

i believe running OUTSIDE is much better than treadmills inside. I can clear my lungs better out in the fresh air... the same goes for biking

GET OUTSIDE!!!

JERRY
50 fitting CF into my life...

 

[jerry]

YES I run and it is the BEST!! I prefer OUTDOORS and actually never run INDOORS.

It's good to train with a heart rate monitor and also good to check your oxygen sats with aa pulse oximeter every so often to make sure your sats are over 90%

jerry
50 with cf

 

[jerry]

YES I run and it is the BEST!! I prefer OUTDOORS and actually never run INDOORS.

It's good to train with a heart rate monitor and also good to check your oxygen sats with aa pulse oximeter every so often to make sure your sats are over 90%

jerry
50 with cf

 

[jerry]

YES I run and it is the BEST!! I prefer OUTDOORS and actually never run INDOORS.

It's good to train with a heart rate monitor and also good to check your oxygen sats with aa pulse oximeter every so often to make sure your sats are over 90%

jerry
50 with cf

 

[lmattaway]

I recently joined this forum and I'm so glad to see that there are other CF runners. I did cross country for a little bit during high school and although I often came in last (I'm more the tortoise than the hare) I came away from that realizing how beneficial running was not only for my lungs but also for my digestive system. I kept up running for the next few years, into college, running about 3 miles 4 times a week. Then my junior year of college I decided I wanted to run the Chicago Marathon. So all summer before my senior year I trained (eating massive amounts of power bars and downing tons of salt tablets b/c I was running in a hot, humid east coast summer). In October 2003 I'm proud to say that I completed the Chicago Marathon in 4:28:48! It's been almost 4 years and I not at that level of training anymore b/c of an injured knee, but I will always make an effort to keep running. It's the best thing I can do for my lungs. (plus, the nano iPod and nike chip is a great workout combo)

 

[lmattaway]

I recently joined this forum and I'm so glad to see that there are other CF runners. I did cross country for a little bit during high school and although I often came in last (I'm more the tortoise than the hare) I came away from that realizing how beneficial running was not only for my lungs but also for my digestive system. I kept up running for the next few years, into college, running about 3 miles 4 times a week. Then my junior year of college I decided I wanted to run the Chicago Marathon. So all summer before my senior year I trained (eating massive amounts of power bars and downing tons of salt tablets b/c I was running in a hot, humid east coast summer). In October 2003 I'm proud to say that I completed the Chicago Marathon in 4:28:48! It's been almost 4 years and I not at that level of training anymore b/c of an injured knee, but I will always make an effort to keep running. It's the best thing I can do for my lungs. (plus, the nano iPod and nike chip is a great workout combo)

 

[lmattaway]

I recently joined this forum and I'm so glad to see that there are other CF runners. I did cross country for a little bit during high school and although I often came in last (I'm more the tortoise than the hare) I came away from that realizing how beneficial running was not only for my lungs but also for my digestive system. I kept up running for the next few years, into college, running about 3 miles 4 times a week. Then my junior year of college I decided I wanted to run the Chicago Marathon. So all summer before my senior year I trained (eating massive amounts of power bars and downing tons of salt tablets b/c I was running in a hot, humid east coast summer). In October 2003 I'm proud to say that I completed the Chicago Marathon in 4:28:48! It's been almost 4 years and I not at that level of training anymore b/c of an injured knee, but I will always make an effort to keep running. It's the best thing I can do for my lungs. (plus, the nano iPod and nike chip is a great workout combo)

 

[lmattaway]

I recently joined this forum and I'm so glad to see that there are other CF runners. I did cross country for a little bit during high school and although I often came in last (I'm more the tortoise than the hare) I came away from that realizing how beneficial running was not only for my lungs but also for my digestive system. I kept up running for the next few years, into college, running about 3 miles 4 times a week. Then my junior year of college I decided I wanted to run the Chicago Marathon. So all summer before my senior year I trained (eating massive amounts of power bars and downing tons of salt tablets b/c I was running in a hot, humid east coast summer). In October 2003 I'm proud to say that I completed the Chicago Marathon in 4:28:48! It's been almost 4 years and I not at that level of training anymore b/c of an injured knee, but I will always make an effort to keep running. It's the best thing I can do for my lungs. (plus, the nano iPod and nike chip is a great workout combo)

 

[lmattaway]

I recently joined this forum and I'm so glad to see that there are other CF runners. I did cross country for a little bit during high school and although I often came in last (I'm more the tortoise than the hare) I came away from that realizing how beneficial running was not only for my lungs but also for my digestive system. I kept up running for the next few years, into college, running about 3 miles 4 times a week. Then my junior year of college I decided I wanted to run the Chicago Marathon. So all summer before my senior year I trained (eating massive amounts of power bars and downing tons of salt tablets b/c I was running in a hot, humid east coast summer). In October 2003 I'm proud to say that I completed the Chicago Marathon in 4:28:48! It's been almost 4 years and I not at that level of training anymore b/c of an injured knee, but I will always make an effort to keep running. It's the best thing I can do for my lungs. (plus, the nano iPod and nike chip is a great workout combo)

 

[lmattaway]

I recently joined this forum and I'm so glad to see that there are other CF runners. I did cross country for a little bit during high school and although I often came in last (I'm more the tortoise than the hare) I came away from that realizing how beneficial running was not only for my lungs but also for my digestive system. I kept up running for the next few years, into college, running about 3 miles 4 times a week. Then my junior year of college I decided I wanted to run the Chicago Marathon. So all summer before my senior year I trained (eating massive amounts of power bars and downing tons of salt tablets b/c I was running in a hot, humid east coast summer). In October 2003 I'm proud to say that I completed the Chicago Marathon in 4:28:48! It's been almost 4 years and I not at that level of training anymore b/c of an injured knee, but I will always make an effort to keep running. It's the best thing I can do for my lungs. (plus, the nano iPod and nike chip is a great workout combo)