Anyone have sometimes where you just cant get feeling better

Asexyblond23

New member
Well I am not on anything new, havent been in well I cant remember how long. I am going to ask them to look up my last culture when I call in tomm. Maybe cipro and augmentin just arent what is needed right now. They have used cipro for the past 2 years. I know its the best for what I have but maybe they can switch it up some. Its just enough to drive me crazy I cant feel like I can get well and stay well. I hate feeling like this.
 

AnD

New member
I had a spell like that every fall/winter, then it started into spring, then year round- it was my allergies getting worse and aggravating things. So allergy meds (Singulair made a big big difference in my sinus problems, plus Chlortrimacon) combined with Advair have helped alot, though not totally fixed the fall/winter icks. (I also found out I was allergic to feathers- what was I sleeping under? A goosedown comforter. I still miss it <img src=""> <img src=""> .)
 

AnD

New member
I had a spell like that every fall/winter, then it started into spring, then year round- it was my allergies getting worse and aggravating things. So allergy meds (Singulair made a big big difference in my sinus problems, plus Chlortrimacon) combined with Advair have helped alot, though not totally fixed the fall/winter icks. (I also found out I was allergic to feathers- what was I sleeping under? A goosedown comforter. I still miss it <img src=""> <img src=""> .)
 

AnD

New member
I had a spell like that every fall/winter, then it started into spring, then year round- it was my allergies getting worse and aggravating things. So allergy meds (Singulair made a big big difference in my sinus problems, plus Chlortrimacon) combined with Advair have helped alot, though not totally fixed the fall/winter icks. (I also found out I was allergic to feathers- what was I sleeping under? A goosedown comforter. I still miss it <img src=""> <img src=""> .)
 

lightNlife

New member
My doc has said that sometimes we CFers just have a "bad year". This has been my bad year. In the last 8 months, I've been in the hospital 5 times, each stay lasting a minimum of 8 days.

But take heart! Even though it sometimes takes awhile to hit upon the perfect combination of meds, combined with an adequate amount of rest, just enough exercise, and a therapy schedule that works, the world will be in technicolor once again. With that in mind, I'm happy to report that I'm FINALLY on the upswing of my long ordeal of trying to figure out how to stop being sick and tired of being sick and tired.

Hang in there. It can be a long road sometimes, but you're not blazing a completely new trail. It's frustrating and exhausting at times, but you've got doctors and friends and other supportive people who are all willing to do what it takes to get you back on track. Just remember to be patient with yourself, and take it easy whenever you can.
 

lightNlife

New member
My doc has said that sometimes we CFers just have a "bad year". This has been my bad year. In the last 8 months, I've been in the hospital 5 times, each stay lasting a minimum of 8 days.

But take heart! Even though it sometimes takes awhile to hit upon the perfect combination of meds, combined with an adequate amount of rest, just enough exercise, and a therapy schedule that works, the world will be in technicolor once again. With that in mind, I'm happy to report that I'm FINALLY on the upswing of my long ordeal of trying to figure out how to stop being sick and tired of being sick and tired.

Hang in there. It can be a long road sometimes, but you're not blazing a completely new trail. It's frustrating and exhausting at times, but you've got doctors and friends and other supportive people who are all willing to do what it takes to get you back on track. Just remember to be patient with yourself, and take it easy whenever you can.
 

lightNlife

New member
My doc has said that sometimes we CFers just have a "bad year". This has been my bad year. In the last 8 months, I've been in the hospital 5 times, each stay lasting a minimum of 8 days.

But take heart! Even though it sometimes takes awhile to hit upon the perfect combination of meds, combined with an adequate amount of rest, just enough exercise, and a therapy schedule that works, the world will be in technicolor once again. With that in mind, I'm happy to report that I'm FINALLY on the upswing of my long ordeal of trying to figure out how to stop being sick and tired of being sick and tired.

Hang in there. It can be a long road sometimes, but you're not blazing a completely new trail. It's frustrating and exhausting at times, but you've got doctors and friends and other supportive people who are all willing to do what it takes to get you back on track. Just remember to be patient with yourself, and take it easy whenever you can.
 

kybert

New member
ive been like that alisha. from about september to december i was on iv's 4 times. since december ive been on cipro 3 times. i felt kinda good at the start of the year so i thought my bad run was all over but it wasnt to be. you just have to keep plodding along.
 

kybert

New member
ive been like that alisha. from about september to december i was on iv's 4 times. since december ive been on cipro 3 times. i felt kinda good at the start of the year so i thought my bad run was all over but it wasnt to be. you just have to keep plodding along.
 

kybert

New member
ive been like that alisha. from about september to december i was on iv's 4 times. since december ive been on cipro 3 times. i felt kinda good at the start of the year so i thought my bad run was all over but it wasnt to be. you just have to keep plodding along.
 

clinging2faith

New member
44yrs of going through it, though Im sort of lucky to a point, my lung disease is not as bad as the gastro one from cf too.

Ifeel for you. I know exactly where you are. I am up and down a lot lately. sometimes its hard to get out of bed or think of anyting else specially after the cough reminds you of it every day.

This week I started getting proactive about my getting better. Last week my favorite person in the world died and i was down and out, but her last words to me "dont give up, you keep up with the struggle you live for your grandson soon to be born" THAT STUCK IN MY MIND. So I started getting more positive specially with alot of the support from some very nice people here. Last week I didnt want to do meds. This week Im putting myself back on them. GOT TWO MONTHS to shape up so I am good to welcome my new grandson in April!

That is keeping me going.
You have to find something to distract yourself with. (I know, I should follow my own advice eveyr day). I find that making scrapbooks are good thing to do. Though I get tired.

I wish there was more to say that would make it all go away, but what I can concieve is that we who suffer the greatest end up rewarded heavier too, perhaps not on earth, but when we go meet our Heavenly FAther.

You are more than welcome to contact me if you want to talk more. I am fed up to the max about cf I know that much. but I gotta put up with it. And sometimes it takes miracles but they do happen.

Ask God to help you, pray to Jesus that he can do anything you ask Him, (I will ask HIm to help me gain the weight i need=8 lbs) and you ask for a break form this bout of cf flare ups.

God Bless You
 

clinging2faith

New member
44yrs of going through it, though Im sort of lucky to a point, my lung disease is not as bad as the gastro one from cf too.

Ifeel for you. I know exactly where you are. I am up and down a lot lately. sometimes its hard to get out of bed or think of anyting else specially after the cough reminds you of it every day.

This week I started getting proactive about my getting better. Last week my favorite person in the world died and i was down and out, but her last words to me "dont give up, you keep up with the struggle you live for your grandson soon to be born" THAT STUCK IN MY MIND. So I started getting more positive specially with alot of the support from some very nice people here. Last week I didnt want to do meds. This week Im putting myself back on them. GOT TWO MONTHS to shape up so I am good to welcome my new grandson in April!

That is keeping me going.
You have to find something to distract yourself with. (I know, I should follow my own advice eveyr day). I find that making scrapbooks are good thing to do. Though I get tired.

I wish there was more to say that would make it all go away, but what I can concieve is that we who suffer the greatest end up rewarded heavier too, perhaps not on earth, but when we go meet our Heavenly FAther.

You are more than welcome to contact me if you want to talk more. I am fed up to the max about cf I know that much. but I gotta put up with it. And sometimes it takes miracles but they do happen.

Ask God to help you, pray to Jesus that he can do anything you ask Him, (I will ask HIm to help me gain the weight i need=8 lbs) and you ask for a break form this bout of cf flare ups.

God Bless You
 

clinging2faith

New member
44yrs of going through it, though Im sort of lucky to a point, my lung disease is not as bad as the gastro one from cf too.

Ifeel for you. I know exactly where you are. I am up and down a lot lately. sometimes its hard to get out of bed or think of anyting else specially after the cough reminds you of it every day.

This week I started getting proactive about my getting better. Last week my favorite person in the world died and i was down and out, but her last words to me "dont give up, you keep up with the struggle you live for your grandson soon to be born" THAT STUCK IN MY MIND. So I started getting more positive specially with alot of the support from some very nice people here. Last week I didnt want to do meds. This week Im putting myself back on them. GOT TWO MONTHS to shape up so I am good to welcome my new grandson in April!

That is keeping me going.
You have to find something to distract yourself with. (I know, I should follow my own advice eveyr day). I find that making scrapbooks are good thing to do. Though I get tired.

I wish there was more to say that would make it all go away, but what I can concieve is that we who suffer the greatest end up rewarded heavier too, perhaps not on earth, but when we go meet our Heavenly FAther.

You are more than welcome to contact me if you want to talk more. I am fed up to the max about cf I know that much. but I gotta put up with it. And sometimes it takes miracles but they do happen.

Ask God to help you, pray to Jesus that he can do anything you ask Him, (I will ask HIm to help me gain the weight i need=8 lbs) and you ask for a break form this bout of cf flare ups.

God Bless You
 

clinging2faith

New member
44yrs of going through it, though Im sort of lucky to a point, my lung disease is not as bad as the gastro one from cf too.

Ifeel for you. I know exactly where you are. I am up and down a lot lately. sometimes its hard to get out of bed or think of anyting else specially after the cough reminds you of it every day.

This week I started getting proactive about my getting better. Last week my favorite person in the world died and i was down and out, but her last words to me "dont give up, you keep up with the struggle you live for your grandson soon to be born" THAT STUCK IN MY MIND. So I started getting more positive specially with alot of the support from some very nice people here. Last week I didnt want to do meds. This week Im putting myself back on them. GOT TWO MONTHS to shape up so I am good to welcome my new grandson in April!

That is keeping me going.
You have to find something to distract yourself with. (I know, I should follow my own advice eveyr day). I find that making scrapbooks are good thing to do. Though I get tired.

I wish there was more to say that would make it all go away, but what I can concieve is that we who suffer the greatest end up rewarded heavier too, perhaps not on earth, but when we go meet our Heavenly FAther.

You are more than welcome to contact me if you want to talk more. I am fed up to the max about cf I know that much. but I gotta put up with it. And sometimes it takes miracles but they do happen.

Ask God to help you, pray to Jesus that he can do anything you ask Him, (I will ask HIm to help me gain the weight i need=8 lbs) and you ask for a break form this bout of cf flare ups.

God Bless You
 

clinging2faith

New member
44yrs of going through it, though Im sort of lucky to a point, my lung disease is not as bad as the gastro one from cf too.

Ifeel for you. I know exactly where you are. I am up and down a lot lately. sometimes its hard to get out of bed or think of anyting else specially after the cough reminds you of it every day.

This week I started getting proactive about my getting better. Last week my favorite person in the world died and i was down and out, but her last words to me "dont give up, you keep up with the struggle you live for your grandson soon to be born" THAT STUCK IN MY MIND. So I started getting more positive specially with alot of the support from some very nice people here. Last week I didnt want to do meds. This week Im putting myself back on them. GOT TWO MONTHS to shape up so I am good to welcome my new grandson in April!

That is keeping me going.
You have to find something to distract yourself with. (I know, I should follow my own advice eveyr day). I find that making scrapbooks are good thing to do. Though I get tired.

I wish there was more to say that would make it all go away, but what I can concieve is that we who suffer the greatest end up rewarded heavier too, perhaps not on earth, but when we go meet our Heavenly FAther.

You are more than welcome to contact me if you want to talk more. I am fed up to the max about cf I know that much. but I gotta put up with it. And sometimes it takes miracles but they do happen.

Ask God to help you, pray to Jesus that he can do anything you ask Him, (I will ask HIm to help me gain the weight i need=8 lbs) and you ask for a break form this bout of cf flare ups.

God Bless You
 

clinging2faith

New member
44yrs of going through it, though Im sort of lucky to a point, my lung disease is not as bad as the gastro one from cf too.

Ifeel for you. I know exactly where you are. I am up and down a lot lately. sometimes its hard to get out of bed or think of anyting else specially after the cough reminds you of it every day.

This week I started getting proactive about my getting better. Last week my favorite person in the world died and i was down and out, but her last words to me "dont give up, you keep up with the struggle you live for your grandson soon to be born" THAT STUCK IN MY MIND. So I started getting more positive specially with alot of the support from some very nice people here. Last week I didnt want to do meds. This week Im putting myself back on them. GOT TWO MONTHS to shape up so I am good to welcome my new grandson in April!

That is keeping me going.
You have to find something to distract yourself with. (I know, I should follow my own advice eveyr day). I find that making scrapbooks are good thing to do. Though I get tired.

I wish there was more to say that would make it all go away, but what I can concieve is that we who suffer the greatest end up rewarded heavier too, perhaps not on earth, but when we go meet our Heavenly FAther.

You are more than welcome to contact me if you want to talk more. I am fed up to the max about cf I know that much. but I gotta put up with it. And sometimes it takes miracles but they do happen.

Ask God to help you, pray to Jesus that he can do anything you ask Him, (I will ask HIm to help me gain the weight i need=8 lbs) and you ask for a break form this bout of cf flare ups.

God Bless You
 

clinging2faith

New member
44yrs of going through it, though Im sort of lucky to a point, my lung disease is not as bad as the gastro one from cf too.

Ifeel for you. I know exactly where you are. I am up and down a lot lately. sometimes its hard to get out of bed or think of anyting else specially after the cough reminds you of it every day.

This week I started getting proactive about my getting better. Last week my favorite person in the world died and i was down and out, but her last words to me "dont give up, you keep up with the struggle you live for your grandson soon to be born" THAT STUCK IN MY MIND. So I started getting more positive specially with alot of the support from some very nice people here. Last week I didnt want to do meds. This week Im putting myself back on them. GOT TWO MONTHS to shape up so I am good to welcome my new grandson in April!

That is keeping me going.
You have to find something to distract yourself with. (I know, I should follow my own advice eveyr day). I find that making scrapbooks are good thing to do. Though I get tired.

I wish there was more to say that would make it all go away, but what I can concieve is that we who suffer the greatest end up rewarded heavier too, perhaps not on earth, but when we go meet our Heavenly FAther.

You are more than welcome to contact me if you want to talk more. I am fed up to the max about cf I know that much. but I gotta put up with it. And sometimes it takes miracles but they do happen.

Ask God to help you, pray to Jesus that he can do anything you ask Him, (I will ask HIm to help me gain the weight i need=8 lbs) and you ask for a break form this bout of cf flare ups.

God Bless You
 
Top