Appetite loss and Ear sensitivity...an issue or a case of being 2?

SadiesMom

New member
I'm not sure if this is just a Sadie being a 2 year old issue or a CF thing, but it's definitely a new development. Lately Sadie's appetite has been less than. She's never hungry and getting her to eat has been a challenge. She usually has a good appetite but the last few weeks it's been almost a battle to get her to eat even her favorite foods. Also, she's been covering her ears a lot, but she just had her CF clinic check up and her 2 year visit and they checked her ears at both and no ear infection, so I'm at a loss as to what, if anything, is bothering her. I thought maybe it was loud sounds, and sometimes it might be, but sometimes there's nothing loud even happening. She's taking prevacid; the did just up her to two times a day on that and started her on .1ml of vitamin D (about a month ago). Two days ago they added singular into the mix, but all her other meds are the same. She does pulmozyme once in the morning, 2ml vitamax, 1ml poly-vi-sol, 5ml of zyrtec. Do any of these medications have appetite loss or ear symptoms as side effects? I have a call in to the doctor too, but you all are always so helpful and knowledgeable that I thought I might throw it out there.
 

SadiesMom

New member
I'm not sure if this is just a Sadie being a 2 year old issue or a CF thing, but it's definitely a new development. Lately Sadie's appetite has been less than. She's never hungry and getting her to eat has been a challenge. She usually has a good appetite but the last few weeks it's been almost a battle to get her to eat even her favorite foods. Also, she's been covering her ears a lot, but she just had her CF clinic check up and her 2 year visit and they checked her ears at both and no ear infection, so I'm at a loss as to what, if anything, is bothering her. I thought maybe it was loud sounds, and sometimes it might be, but sometimes there's nothing loud even happening. She's taking prevacid; the did just up her to two times a day on that and started her on .1ml of vitamin D (about a month ago). Two days ago they added singular into the mix, but all her other meds are the same. She does pulmozyme once in the morning, 2ml vitamax, 1ml poly-vi-sol, 5ml of zyrtec. Do any of these medications have appetite loss or ear symptoms as side effects? I have a call in to the doctor too, but you all are always so helpful and knowledgeable that I thought I might throw it out there.
 

SadiesMom

New member
I'm not sure if this is just a Sadie being a 2 year old issue or a CF thing, but it's definitely a new development. Lately Sadie's appetite has been less than. She's never hungry and getting her to eat has been a challenge. She usually has a good appetite but the last few weeks it's been almost a battle to get her to eat even her favorite foods. Also, she's been covering her ears a lot, but she just had her CF clinic check up and her 2 year visit and they checked her ears at both and no ear infection, so I'm at a loss as to what, if anything, is bothering her. I thought maybe it was loud sounds, and sometimes it might be, but sometimes there's nothing loud even happening. She's taking prevacid; the did just up her to two times a day on that and started her on .1ml of vitamin D (about a month ago). Two days ago they added singular into the mix, but all her other meds are the same. She does pulmozyme once in the morning, 2ml vitamax, 1ml poly-vi-sol, 5ml of zyrtec. Do any of these medications have appetite loss or ear symptoms as side effects? I have a call in to the doctor too, but you all are always so helpful and knowledgeable that I thought I might throw it out there.
 

Ratatosk

Administrator
Staff member
When DS appetite decreased, it usually meant he was getting an ear infection. And it always seemed as if we'd JUST had a clinic appointment. He never got a fever right away -- he just wouldn't eat much, sometimes slept a little longer than usual, little fussy, sometimes his respirations while sleeping were faster. IMO, call the doctor.
 

Ratatosk

Administrator
Staff member
When DS appetite decreased, it usually meant he was getting an ear infection. And it always seemed as if we'd JUST had a clinic appointment. He never got a fever right away -- he just wouldn't eat much, sometimes slept a little longer than usual, little fussy, sometimes his respirations while sleeping were faster. IMO, call the doctor.
 

Ratatosk

Administrator
Staff member
When DS appetite decreased, it usually meant he was getting an ear infection. And it always seemed as if we'd JUST had a clinic appointment. He never got a fever right away -- he just wouldn't eat much, sometimes slept a little longer than usual, little fussy, sometimes his respirations while sleeping were faster. IMO, call the doctor.
 

mom2owen

New member
It sounds like the Singulair was added too recently to be part of the problem but my ds had a horrible time with that drug. He became really agitated and annoyed with everything and he was not at all hungry when he was on it. A study came out at about the same time saying that these were side effects that needed to be added to their list. We took him off of it and he went back to his sweet self again. Just wanted to share that in case the timing might fit. Good luck! Two year old are tricky regardless of health issues <img src="i/expressions/face-icon-small-wink.gif" border="0"> It can be so hard to figure out what is wrong!
 

mom2owen

New member
It sounds like the Singulair was added too recently to be part of the problem but my ds had a horrible time with that drug. He became really agitated and annoyed with everything and he was not at all hungry when he was on it. A study came out at about the same time saying that these were side effects that needed to be added to their list. We took him off of it and he went back to his sweet self again. Just wanted to share that in case the timing might fit. Good luck! Two year old are tricky regardless of health issues <img src="i/expressions/face-icon-small-wink.gif" border="0"> It can be so hard to figure out what is wrong!
 

mom2owen

New member
It sounds like the Singulair was added too recently to be part of the problem but my ds had a horrible time with that drug. He became really agitated and annoyed with everything and he was not at all hungry when he was on it. A study came out at about the same time saying that these were side effects that needed to be added to their list. We took him off of it and he went back to his sweet self again. Just wanted to share that in case the timing might fit. Good luck! Two year old are tricky regardless of health issues <img src="i/expressions/face-icon-small-wink.gif" border="0"> It can be so hard to figure out what is wrong!
 
S

sdelorenzo

Guest
Interesting about the side effects of singular. I can't even remember why they are prescribed it anyway.
Sharon, mom of Sophia, 9 and Jack, 7 both with cf, Grant, 2 and Paige 5 months both without cf
 
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sdelorenzo

Guest
Interesting about the side effects of singular. I can't even remember why they are prescribed it anyway.
Sharon, mom of Sophia, 9 and Jack, 7 both with cf, Grant, 2 and Paige 5 months both without cf
 
S

sdelorenzo

Guest
Interesting about the side effects of singular. I can't even remember why they are prescribed it anyway.
<br />Sharon, mom of Sophia, 9 and Jack, 7 both with cf, Grant, 2 and Paige 5 months both without cf
 

SadiesMom

New member
Thank you for the heads up about the singulair. I will keep an eye on her; they gave it to her for allergies. She just started it though, so I don't know if that is it.

I called the doctor, but they are terrible about calling me back, so who knows when I will hear anything. It started a little after they upped her prevacid from once a day to twice a day. I think it might be that, I was reading that it does have a side effect of ringing in the ears in a small percentage of people. She was also saying her belly hurt and her hands hurt.
 

SadiesMom

New member
Thank you for the heads up about the singulair. I will keep an eye on her; they gave it to her for allergies. She just started it though, so I don't know if that is it.

I called the doctor, but they are terrible about calling me back, so who knows when I will hear anything. It started a little after they upped her prevacid from once a day to twice a day. I think it might be that, I was reading that it does have a side effect of ringing in the ears in a small percentage of people. She was also saying her belly hurt and her hands hurt.
 

SadiesMom

New member
Thank you for the heads up about the singulair. I will keep an eye on her; they gave it to her for allergies. She just started it though, so I don't know if that is it.
<br />
<br />I called the doctor, but they are terrible about calling me back, so who knows when I will hear anything. It started a little after they upped her prevacid from once a day to twice a day. I think it might be that, I was reading that it does have a side effect of ringing in the ears in a small percentage of people. She was also saying her belly hurt and her hands hurt.
 
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