Are you hopeful?

K

ktsmom

New member
As the designated optimist of the family, I am hopeful enough to carry my husband, my cf'er, and her sister through the daily ups and downs of our lives. I just don't think we could make it through otherwise.

I save my despair and hope<b><i>less</i></b>ness for you guys here on the boards. <img src="i/expressions/face-icon-small-tongue.gif" border="0"> Lucky you! But you all seem to get it that we HAVE to be hopeful, yet also resigned to the possibility of a more pessimistic outcome.

Better and more effective treatments - yes, I do allow myself to see that possibility. But If I let my optimism go unchecked I'm afraid I'll become less compliant in treatments. At least that is how I feel personally.

I do agree I was more excited about VX-770 than I've been about anything since Katy's diagnosis. And the hope that I feel from that has given me a very needed boost for my Great Strides efforts.
 
K

ktsmom

New member
As the designated optimist of the family, I am hopeful enough to carry my husband, my cf'er, and her sister through the daily ups and downs of our lives. I just don't think we could make it through otherwise.

I save my despair and hope<b><i>less</i></b>ness for you guys here on the boards. <img src="i/expressions/face-icon-small-tongue.gif" border="0"> Lucky you! But you all seem to get it that we HAVE to be hopeful, yet also resigned to the possibility of a more pessimistic outcome.

Better and more effective treatments - yes, I do allow myself to see that possibility. But If I let my optimism go unchecked I'm afraid I'll become less compliant in treatments. At least that is how I feel personally.

I do agree I was more excited about VX-770 than I've been about anything since Katy's diagnosis. And the hope that I feel from that has given me a very needed boost for my Great Strides efforts.
 
K

ktsmom

New member
As the designated optimist of the family, I am hopeful enough to carry my husband, my cf'er, and her sister through the daily ups and downs of our lives. I just don't think we could make it through otherwise.

I save my despair and hope<b><i>less</i></b>ness for you guys here on the boards. <img src="i/expressions/face-icon-small-tongue.gif" border="0"> Lucky you! But you all seem to get it that we HAVE to be hopeful, yet also resigned to the possibility of a more pessimistic outcome.

Better and more effective treatments - yes, I do allow myself to see that possibility. But If I let my optimism go unchecked I'm afraid I'll become less compliant in treatments. At least that is how I feel personally.

I do agree I was more excited about VX-770 than I've been about anything since Katy's diagnosis. And the hope that I feel from that has given me a very needed boost for my Great Strides efforts.
 
K

ktsmom

New member
As the designated optimist of the family, I am hopeful enough to carry my husband, my cf'er, and her sister through the daily ups and downs of our lives. I just don't think we could make it through otherwise.

I save my despair and hope<b><i>less</i></b>ness for you guys here on the boards. <img src="i/expressions/face-icon-small-tongue.gif" border="0"> Lucky you! But you all seem to get it that we HAVE to be hopeful, yet also resigned to the possibility of a more pessimistic outcome.

Better and more effective treatments - yes, I do allow myself to see that possibility. But If I let my optimism go unchecked I'm afraid I'll become less compliant in treatments. At least that is how I feel personally.

I do agree I was more excited about VX-770 than I've been about anything since Katy's diagnosis. And the hope that I feel from that has given me a very needed boost for my Great Strides efforts.
 
K

ktsmom

New member
As the designated optimist of the family, I am hopeful enough to carry my husband, my cf'er, and her sister through the daily ups and downs of our lives. I just don't think we could make it through otherwise.
<br />
<br />I save my despair and hope<b><i>less</i></b>ness for you guys here on the boards. <img src="i/expressions/face-icon-small-tongue.gif" border="0"> Lucky you! But you all seem to get it that we HAVE to be hopeful, yet also resigned to the possibility of a more pessimistic outcome.
<br />
<br />Better and more effective treatments - yes, I do allow myself to see that possibility. But If I let my optimism go unchecked I'm afraid I'll become less compliant in treatments. At least that is how I feel personally.
<br />
<br />I do agree I was more excited about VX-770 than I've been about anything since Katy's diagnosis. And the hope that I feel from that has given me a very needed boost for my Great Strides efforts.
 
M

MargaritaChic

New member
I guess I thought there would be a bit more optimism. hmmm... am I alone?

I don't know how/if an actual cure will be found for CF. But I do believe drugs like PTC124 and VX-770 COULD be the closest thing to a cure for ALOT of people with CF.

I know that PTC124 would only potentially help a limited amount of people with nonsense mutations. My daughter happens to have one of those gene mutations.

I also know that VX-770 is for certain mutations. But Delta F508 is the most common mutation, so the people who may benifit from it would be much larger.
 
M

MargaritaChic

New member
I guess I thought there would be a bit more optimism. hmmm... am I alone?

I don't know how/if an actual cure will be found for CF. But I do believe drugs like PTC124 and VX-770 COULD be the closest thing to a cure for ALOT of people with CF.

I know that PTC124 would only potentially help a limited amount of people with nonsense mutations. My daughter happens to have one of those gene mutations.

I also know that VX-770 is for certain mutations. But Delta F508 is the most common mutation, so the people who may benifit from it would be much larger.
 
M

MargaritaChic

New member
I guess I thought there would be a bit more optimism. hmmm... am I alone?

I don't know how/if an actual cure will be found for CF. But I do believe drugs like PTC124 and VX-770 COULD be the closest thing to a cure for ALOT of people with CF.

I know that PTC124 would only potentially help a limited amount of people with nonsense mutations. My daughter happens to have one of those gene mutations.

I also know that VX-770 is for certain mutations. But Delta F508 is the most common mutation, so the people who may benifit from it would be much larger.
 
M

MargaritaChic

New member
I guess I thought there would be a bit more optimism. hmmm... am I alone?

I don't know how/if an actual cure will be found for CF. But I do believe drugs like PTC124 and VX-770 COULD be the closest thing to a cure for ALOT of people with CF.

I know that PTC124 would only potentially help a limited amount of people with nonsense mutations. My daughter happens to have one of those gene mutations.

I also know that VX-770 is for certain mutations. But Delta F508 is the most common mutation, so the people who may benifit from it would be much larger.
 
M

MargaritaChic

New member
I guess I thought there would be a bit more optimism. hmmm... am I alone?
<br />
<br />I don't know how/if an actual cure will be found for CF. But I do believe drugs like PTC124 and VX-770 COULD be the closest thing to a cure for ALOT of people with CF.
<br />
<br />I know that PTC124 would only potentially help a limited amount of people with nonsense mutations. My daughter happens to have one of those gene mutations.
<br />
<br />I also know that VX-770 is for certain mutations. But Delta F508 is the most common mutation, so the people who may benifit from it would be much larger.
<br />
 
K

kaylasdad

New member
No Marla you are not alone. My daughters cf doc said that he knows that before he retires they will have a cure, and he has 20 years left. and he also said that he is very excited with all the new treatments and drugs .

All I know is if I stop believing that one day they will find a cure , I don't think I could handle dealing with Kaylas cf. Hope is all we have.
 
K

kaylasdad

New member
No Marla you are not alone. My daughters cf doc said that he knows that before he retires they will have a cure, and he has 20 years left. and he also said that he is very excited with all the new treatments and drugs .

All I know is if I stop believing that one day they will find a cure , I don't think I could handle dealing with Kaylas cf. Hope is all we have.
 
K

kaylasdad

New member
No Marla you are not alone. My daughters cf doc said that he knows that before he retires they will have a cure, and he has 20 years left. and he also said that he is very excited with all the new treatments and drugs .

All I know is if I stop believing that one day they will find a cure , I don't think I could handle dealing with Kaylas cf. Hope is all we have.
 
K

kaylasdad

New member
No Marla you are not alone. My daughters cf doc said that he knows that before he retires they will have a cure, and he has 20 years left. and he also said that he is very excited with all the new treatments and drugs .

All I know is if I stop believing that one day they will find a cure , I don't think I could handle dealing with Kaylas cf. Hope is all we have.
 
K

kaylasdad

New member
No Marla you are not alone. My daughters cf doc said that he knows that before he retires they will have a cure, and he has 20 years left. and he also said that he is very excited with all the new treatments and drugs .
<br />
<br />All I know is if I stop believing that one day they will find a cure , I don't think I could handle dealing with Kaylas cf. Hope is all we have.
 
L

leelumlm

New member
I am hopeful, and I do honestly believe that there will be a cure. I guess reading all of the other responses that I may just be silly to think that there will be a cure in the near future. A lot of time I feel that that hope is the only thing that keeps me from falling to pieces.




Mother to Amazing Mason 3 W/CF
 
L

leelumlm

New member
I am hopeful, and I do honestly believe that there will be a cure. I guess reading all of the other responses that I may just be silly to think that there will be a cure in the near future. A lot of time I feel that that hope is the only thing that keeps me from falling to pieces.




Mother to Amazing Mason 3 W/CF
 
L

leelumlm

New member
I am hopeful, and I do honestly believe that there will be a cure. I guess reading all of the other responses that I may just be silly to think that there will be a cure in the near future. A lot of time I feel that that hope is the only thing that keeps me from falling to pieces.




Mother to Amazing Mason 3 W/CF
 
L

leelumlm

New member
I am hopeful, and I do honestly believe that there will be a cure. I guess reading all of the other responses that I may just be silly to think that there will be a cure in the near future. A lot of time I feel that that hope is the only thing that keeps me from falling to pieces.




Mother to Amazing Mason 3 W/CF
 
L

leelumlm

New member
I am hopeful, and I do honestly believe that there will be a cure. I guess reading all of the other responses that I may just be silly to think that there will be a cure in the near future. A lot of time I feel that that hope is the only thing that keeps me from falling to pieces.
<br />
<br />
<br />
<br />
<br />Mother to Amazing Mason 3 W/CF
 
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