Asythma and CF?

mom2lillian

New member
her recent exacerbation that the doctor 'just cant figure out' according to your above posts is most likely caused by the moldy environment she is livng in. Please dont wait for her next appointment call them right away and iform them of her living conditions and get advice.

Having a child with CF diagnosis is a huge learning curve and you are doing your best so hang in there.
 

mom2lillian

New member
her recent exacerbation that the doctor 'just cant figure out' according to your above posts is most likely caused by the moldy environment she is livng in. Please dont wait for her next appointment call them right away and iform them of her living conditions and get advice.

Having a child with CF diagnosis is a huge learning curve and you are doing your best so hang in there.
 

mom2lillian

New member
her recent exacerbation that the doctor 'just cant figure out' according to your above posts is most likely caused by the moldy environment she is livng in. Please dont wait for her next appointment call them right away and iform them of her living conditions and get advice.

Having a child with CF diagnosis is a huge learning curve and you are doing your best so hang in there.
 

mom2lillian

New member
her recent exacerbation that the doctor 'just cant figure out' according to your above posts is most likely caused by the moldy environment she is livng in. Please dont wait for her next appointment call them right away and iform them of her living conditions and get advice.

Having a child with CF diagnosis is a huge learning curve and you are doing your best so hang in there.
 

mom2lillian

New member
her recent exacerbation that the doctor 'just cant figure out' according to your above posts is most likely caused by the moldy environment she is livng in. Please dont wait for her next appointment call them right away and iform them of her living conditions and get advice.

Having a child with CF diagnosis is a huge learning curve and you are doing your best so hang in there.
 

mom2lillian

New member
her recent exacerbation that the doctor 'just cant figure out' according to your above posts is most likely caused by the moldy environment she is livng in. Please dont wait for her next appointment call them right away and iform them of her living conditions and get advice.

Having a child with CF diagnosis is a huge learning curve and you are doing your best so hang in there.
 

amber682

New member
My 2 year old son has "a large asthma component" to his CF, according to his CF doctor, along with the staph and stenotrophomonas he always cultures. We have added a an inhaled coticosteroid (QVAR) to his daily meds. I believe lots of CFers have some degree of asthma. They also switched his albuterol to duoneb. Just this last visit I asked the doctor how they can tell when it's the CF bugs acting up or the asthma. They said the CF stuff usually responds to antibiotics, while asthma responds to prednisone and albuterol. Any allergies can exacerbate the asthma symptoms. My son has seasonal allergies this time of year, so he also takes an allergy med, and we increase his inhaler (from 2 puffs to 3). Don't stress about it if the doctors say she does have asthma, it's very common. I just asked about this in the adults section this week, and a lot of people replied that they are on meds for asthma as well.

I would be sure to mention the mold issue to the CF team. I'm not sure how much of a mold problem you have, but keep Alyssa out of that/those rooms (and yourself as well!). Maybe stick an air purifier with a HEPA filter in that room to help suck up the mold spores and help prevent them from spreading around the house. (But don't use it in other rooms later!) Keep the windows closed in there so the breeze doesn't blow spores around. I had a little mold problem in my bathroom last year which involved removing some wall and a cabinet. I kept a dehumidifier in there to try to keep it dry.

I actually cried right there in the doctors office when they first said my son has asthma, I hated to have to add ANOTHER med. If you need to cry, then cry, it can relieve some of that stress. Just keep in mind it's fairly common, and can be controlled with asthma/allergy meds. And she may grow out of it anyway!

I just wanted to add the link to that thread in case you wanted to read it.

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=20064&enterthread=y">http://forums.cysticfibrosis.c...id=20064&enterthread=y</a>

Also, I just re-read your thread about the mold. Obviously the un-used room isn't as much of a problem, but how would you keep your daughter and yourself out of the bathroom? I would talk to the social worker at your CF center, maybe they can help with this issue.
 

amber682

New member
My 2 year old son has "a large asthma component" to his CF, according to his CF doctor, along with the staph and stenotrophomonas he always cultures. We have added a an inhaled coticosteroid (QVAR) to his daily meds. I believe lots of CFers have some degree of asthma. They also switched his albuterol to duoneb. Just this last visit I asked the doctor how they can tell when it's the CF bugs acting up or the asthma. They said the CF stuff usually responds to antibiotics, while asthma responds to prednisone and albuterol. Any allergies can exacerbate the asthma symptoms. My son has seasonal allergies this time of year, so he also takes an allergy med, and we increase his inhaler (from 2 puffs to 3). Don't stress about it if the doctors say she does have asthma, it's very common. I just asked about this in the adults section this week, and a lot of people replied that they are on meds for asthma as well.

I would be sure to mention the mold issue to the CF team. I'm not sure how much of a mold problem you have, but keep Alyssa out of that/those rooms (and yourself as well!). Maybe stick an air purifier with a HEPA filter in that room to help suck up the mold spores and help prevent them from spreading around the house. (But don't use it in other rooms later!) Keep the windows closed in there so the breeze doesn't blow spores around. I had a little mold problem in my bathroom last year which involved removing some wall and a cabinet. I kept a dehumidifier in there to try to keep it dry.

I actually cried right there in the doctors office when they first said my son has asthma, I hated to have to add ANOTHER med. If you need to cry, then cry, it can relieve some of that stress. Just keep in mind it's fairly common, and can be controlled with asthma/allergy meds. And she may grow out of it anyway!

I just wanted to add the link to that thread in case you wanted to read it.

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=20064&enterthread=y">http://forums.cysticfibrosis.c...id=20064&enterthread=y</a>

Also, I just re-read your thread about the mold. Obviously the un-used room isn't as much of a problem, but how would you keep your daughter and yourself out of the bathroom? I would talk to the social worker at your CF center, maybe they can help with this issue.
 

amber682

New member
My 2 year old son has "a large asthma component" to his CF, according to his CF doctor, along with the staph and stenotrophomonas he always cultures. We have added a an inhaled coticosteroid (QVAR) to his daily meds. I believe lots of CFers have some degree of asthma. They also switched his albuterol to duoneb. Just this last visit I asked the doctor how they can tell when it's the CF bugs acting up or the asthma. They said the CF stuff usually responds to antibiotics, while asthma responds to prednisone and albuterol. Any allergies can exacerbate the asthma symptoms. My son has seasonal allergies this time of year, so he also takes an allergy med, and we increase his inhaler (from 2 puffs to 3). Don't stress about it if the doctors say she does have asthma, it's very common. I just asked about this in the adults section this week, and a lot of people replied that they are on meds for asthma as well.

I would be sure to mention the mold issue to the CF team. I'm not sure how much of a mold problem you have, but keep Alyssa out of that/those rooms (and yourself as well!). Maybe stick an air purifier with a HEPA filter in that room to help suck up the mold spores and help prevent them from spreading around the house. (But don't use it in other rooms later!) Keep the windows closed in there so the breeze doesn't blow spores around. I had a little mold problem in my bathroom last year which involved removing some wall and a cabinet. I kept a dehumidifier in there to try to keep it dry.

I actually cried right there in the doctors office when they first said my son has asthma, I hated to have to add ANOTHER med. If you need to cry, then cry, it can relieve some of that stress. Just keep in mind it's fairly common, and can be controlled with asthma/allergy meds. And she may grow out of it anyway!

I just wanted to add the link to that thread in case you wanted to read it.

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=20064&enterthread=y">http://forums.cysticfibrosis.c...id=20064&enterthread=y</a>

Also, I just re-read your thread about the mold. Obviously the un-used room isn't as much of a problem, but how would you keep your daughter and yourself out of the bathroom? I would talk to the social worker at your CF center, maybe they can help with this issue.
 

amber682

New member
My 2 year old son has "a large asthma component" to his CF, according to his CF doctor, along with the staph and stenotrophomonas he always cultures. We have added a an inhaled coticosteroid (QVAR) to his daily meds. I believe lots of CFers have some degree of asthma. They also switched his albuterol to duoneb. Just this last visit I asked the doctor how they can tell when it's the CF bugs acting up or the asthma. They said the CF stuff usually responds to antibiotics, while asthma responds to prednisone and albuterol. Any allergies can exacerbate the asthma symptoms. My son has seasonal allergies this time of year, so he also takes an allergy med, and we increase his inhaler (from 2 puffs to 3). Don't stress about it if the doctors say she does have asthma, it's very common. I just asked about this in the adults section this week, and a lot of people replied that they are on meds for asthma as well.

I would be sure to mention the mold issue to the CF team. I'm not sure how much of a mold problem you have, but keep Alyssa out of that/those rooms (and yourself as well!). Maybe stick an air purifier with a HEPA filter in that room to help suck up the mold spores and help prevent them from spreading around the house. (But don't use it in other rooms later!) Keep the windows closed in there so the breeze doesn't blow spores around. I had a little mold problem in my bathroom last year which involved removing some wall and a cabinet. I kept a dehumidifier in there to try to keep it dry.

I actually cried right there in the doctors office when they first said my son has asthma, I hated to have to add ANOTHER med. If you need to cry, then cry, it can relieve some of that stress. Just keep in mind it's fairly common, and can be controlled with asthma/allergy meds. And she may grow out of it anyway!

I just wanted to add the link to that thread in case you wanted to read it.

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=20064&enterthread=y">http://forums.cysticfibrosis.c...id=20064&enterthread=y</a>

Also, I just re-read your thread about the mold. Obviously the un-used room isn't as much of a problem, but how would you keep your daughter and yourself out of the bathroom? I would talk to the social worker at your CF center, maybe they can help with this issue.
 

amber682

New member
My 2 year old son has "a large asthma component" to his CF, according to his CF doctor, along with the staph and stenotrophomonas he always cultures. We have added a an inhaled coticosteroid (QVAR) to his daily meds. I believe lots of CFers have some degree of asthma. They also switched his albuterol to duoneb. Just this last visit I asked the doctor how they can tell when it's the CF bugs acting up or the asthma. They said the CF stuff usually responds to antibiotics, while asthma responds to prednisone and albuterol. Any allergies can exacerbate the asthma symptoms. My son has seasonal allergies this time of year, so he also takes an allergy med, and we increase his inhaler (from 2 puffs to 3). Don't stress about it if the doctors say she does have asthma, it's very common. I just asked about this in the adults section this week, and a lot of people replied that they are on meds for asthma as well.

I would be sure to mention the mold issue to the CF team. I'm not sure how much of a mold problem you have, but keep Alyssa out of that/those rooms (and yourself as well!). Maybe stick an air purifier with a HEPA filter in that room to help suck up the mold spores and help prevent them from spreading around the house. (But don't use it in other rooms later!) Keep the windows closed in there so the breeze doesn't blow spores around. I had a little mold problem in my bathroom last year which involved removing some wall and a cabinet. I kept a dehumidifier in there to try to keep it dry.

I actually cried right there in the doctors office when they first said my son has asthma, I hated to have to add ANOTHER med. If you need to cry, then cry, it can relieve some of that stress. Just keep in mind it's fairly common, and can be controlled with asthma/allergy meds. And she may grow out of it anyway!

I just wanted to add the link to that thread in case you wanted to read it.

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=20064&enterthread=y">http://forums.cysticfibrosis.c...id=20064&enterthread=y</a>

Also, I just re-read your thread about the mold. Obviously the un-used room isn't as much of a problem, but how would you keep your daughter and yourself out of the bathroom? I would talk to the social worker at your CF center, maybe they can help with this issue.
 

amber682

New member
My 2 year old son has "a large asthma component" to his CF, according to his CF doctor, along with the staph and stenotrophomonas he always cultures. We have added a an inhaled coticosteroid (QVAR) to his daily meds. I believe lots of CFers have some degree of asthma. They also switched his albuterol to duoneb. Just this last visit I asked the doctor how they can tell when it's the CF bugs acting up or the asthma. They said the CF stuff usually responds to antibiotics, while asthma responds to prednisone and albuterol. Any allergies can exacerbate the asthma symptoms. My son has seasonal allergies this time of year, so he also takes an allergy med, and we increase his inhaler (from 2 puffs to 3). Don't stress about it if the doctors say she does have asthma, it's very common. I just asked about this in the adults section this week, and a lot of people replied that they are on meds for asthma as well.

I would be sure to mention the mold issue to the CF team. I'm not sure how much of a mold problem you have, but keep Alyssa out of that/those rooms (and yourself as well!). Maybe stick an air purifier with a HEPA filter in that room to help suck up the mold spores and help prevent them from spreading around the house. (But don't use it in other rooms later!) Keep the windows closed in there so the breeze doesn't blow spores around. I had a little mold problem in my bathroom last year which involved removing some wall and a cabinet. I kept a dehumidifier in there to try to keep it dry.

I actually cried right there in the doctors office when they first said my son has asthma, I hated to have to add ANOTHER med. If you need to cry, then cry, it can relieve some of that stress. Just keep in mind it's fairly common, and can be controlled with asthma/allergy meds. And she may grow out of it anyway!

I just wanted to add the link to that thread in case you wanted to read it.

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=20064&enterthread=y">http://forums.cysticfibrosis.c...id=20064&enterthread=y</a>

Also, I just re-read your thread about the mold. Obviously the un-used room isn't as much of a problem, but how would you keep your daughter and yourself out of the bathroom? I would talk to the social worker at your CF center, maybe they can help with this issue.
 
L

luke

Guest
asthma is a term that is thrown around way to frequently. It is hard to diagnose in a child that age age and normally is done by symptoms. The hard part is the symptoms can just be CF. You said that every cold she has goes to her chest so they think it is asthma, but that sounds like CF to me??? As for allergies vs asthma, hyperactive aiways due to allergies is very common and I don't think that should be labeled as asthma either. Anyway, I can assure you that everyone on this site whezzes occasionaly due to our CF and has nothing to do with the "disease" of called asthma.
 
L

luke

Guest
asthma is a term that is thrown around way to frequently. It is hard to diagnose in a child that age age and normally is done by symptoms. The hard part is the symptoms can just be CF. You said that every cold she has goes to her chest so they think it is asthma, but that sounds like CF to me??? As for allergies vs asthma, hyperactive aiways due to allergies is very common and I don't think that should be labeled as asthma either. Anyway, I can assure you that everyone on this site whezzes occasionaly due to our CF and has nothing to do with the "disease" of called asthma.
 
L

luke

Guest
asthma is a term that is thrown around way to frequently. It is hard to diagnose in a child that age age and normally is done by symptoms. The hard part is the symptoms can just be CF. You said that every cold she has goes to her chest so they think it is asthma, but that sounds like CF to me??? As for allergies vs asthma, hyperactive aiways due to allergies is very common and I don't think that should be labeled as asthma either. Anyway, I can assure you that everyone on this site whezzes occasionaly due to our CF and has nothing to do with the "disease" of called asthma.
 
L

luke

Guest
asthma is a term that is thrown around way to frequently. It is hard to diagnose in a child that age age and normally is done by symptoms. The hard part is the symptoms can just be CF. You said that every cold she has goes to her chest so they think it is asthma, but that sounds like CF to me??? As for allergies vs asthma, hyperactive aiways due to allergies is very common and I don't think that should be labeled as asthma either. Anyway, I can assure you that everyone on this site whezzes occasionaly due to our CF and has nothing to do with the "disease" of called asthma.
 
L

luke

Guest
asthma is a term that is thrown around way to frequently. It is hard to diagnose in a child that age age and normally is done by symptoms. The hard part is the symptoms can just be CF. You said that every cold she has goes to her chest so they think it is asthma, but that sounds like CF to me??? As for allergies vs asthma, hyperactive aiways due to allergies is very common and I don't think that should be labeled as asthma either. Anyway, I can assure you that everyone on this site whezzes occasionaly due to our CF and has nothing to do with the "disease" of called asthma.
 
L

luke

Guest
asthma is a term that is thrown around way to frequently. It is hard to diagnose in a child that age age and normally is done by symptoms. The hard part is the symptoms can just be CF. You said that every cold she has goes to her chest so they think it is asthma, but that sounds like CF to me??? As for allergies vs asthma, hyperactive aiways due to allergies is very common and I don't think that should be labeled as asthma either. Anyway, I can assure you that everyone on this site whezzes occasionaly due to our CF and has nothing to do with the "disease" of called asthma.
 

RUSSELLCREW

New member
They really should test Alyssa for allergies. I know that Marahsyn has them and was wheezy quite a bit till we put her in liquid Claritin. It had really changed how she sleeps and breathes esp at night.
Good luck and follow your intution. You are her mom and know her best. If you don't succeed the first time, keep pushing, trying and talking to your doctor. I know that the doctors that I worked for appreciated pro-active parents<img src="i/expressions/face-icon-small-smile.gif" border="0">

<img src="i/expressions/heart.gif" border="0"> <img src="i/expressions/sun.gif" border="0">
 

RUSSELLCREW

New member
They really should test Alyssa for allergies. I know that Marahsyn has them and was wheezy quite a bit till we put her in liquid Claritin. It had really changed how she sleeps and breathes esp at night.
Good luck and follow your intution. You are her mom and know her best. If you don't succeed the first time, keep pushing, trying and talking to your doctor. I know that the doctors that I worked for appreciated pro-active parents<img src="i/expressions/face-icon-small-smile.gif" border="0">

<img src="i/expressions/heart.gif" border="0"> <img src="i/expressions/sun.gif" border="0">
 
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