At my Breaking Point

[Ratatosk]

Oh, I'm so sorry your husband is giving you grief about it. When DS was an infant DH yelled at me as if I was one of those crazy munchausen by proxy moms "You just WANT him to be sick." I was later vindicated when unfortunately, I was right.

At least the testing has commenced, so you'll know soon. And I'm sure you've learned a lot in dealing with medical staff, not to just sit back and accept what they tell you.

 

[Ratatosk]

Oh, I'm so sorry your husband is giving you grief about it. When DS was an infant DH yelled at me as if I was one of those crazy munchausen by proxy moms "You just WANT him to be sick." I was later vindicated when unfortunately, I was right.

At least the testing has commenced, so you'll know soon. And I'm sure you've learned a lot in dealing with medical staff, not to just sit back and accept what they tell you.

 

[Ratatosk]

Oh, I'm so sorry your husband is giving you grief about it. When DS was an infant DH yelled at me as if I was one of those crazy munchausen by proxy moms "You just WANT him to be sick." I was later vindicated when unfortunately, I was right.

At least the testing has commenced, so you'll know soon. And I'm sure you've learned a lot in dealing with medical staff, not to just sit back and accept what they tell you.

 

[Ratatosk]

Oh, I'm so sorry your husband is giving you grief about it. When DS was an infant DH yelled at me as if I was one of those crazy munchausen by proxy moms "You just WANT him to be sick." I was later vindicated when unfortunately, I was right.

At least the testing has commenced, so you'll know soon. And I'm sure you've learned a lot in dealing with medical staff, not to just sit back and accept what they tell you.

 

[Ratatosk]

Oh, I'm so sorry your husband is giving you grief about it. When DS was an infant DH yelled at me as if I was one of those crazy munchausen by proxy moms "You just WANT him to be sick." I was later vindicated when unfortunately, I was right.

At least the testing has commenced, so you'll know soon. And I'm sure you've learned a lot in dealing with medical staff, not to just sit back and accept what they tell you.

 

[Ratatosk]

Oh, I'm so sorry your husband is giving you grief about it. When DS was an infant DH yelled at me as if I was one of those crazy munchausen by proxy moms "You just WANT him to be sick." I was later vindicated when unfortunately, I was right.

At least the testing has commenced, so you'll know soon. And I'm sure you've learned a lot in dealing with medical staff, not to just sit back and accept what they tell you.

 

[julie]

I'm sorry you are going through this, and that DH is acting this way. It doesn't excuse his behavior, but it *seems* to me that he is scared and just wants his son to be healthy. Maybe talking to him when you've both calmed down and getting down to his level (i.e. I know you just want our son to be healthy and I can understand how frustrating this is for you, and you are entitled to your feelings and opinions, but please also have respect for mine and my need for answers about this situation...) will help.

the reason why they don't generally do the Ambry full test right of the bat is that most insurance companies don't cover it without a pre-authorization and it costs a few thousand (yes thousand, not hundred) more. So it usually has to be justified.

Please do keep us posted and as hard as it's going to be, stand your ground until you get some answers.

 

[julie]

I'm sorry you are going through this, and that DH is acting this way. It doesn't excuse his behavior, but it *seems* to me that he is scared and just wants his son to be healthy. Maybe talking to him when you've both calmed down and getting down to his level (i.e. I know you just want our son to be healthy and I can understand how frustrating this is for you, and you are entitled to your feelings and opinions, but please also have respect for mine and my need for answers about this situation...) will help.

the reason why they don't generally do the Ambry full test right of the bat is that most insurance companies don't cover it without a pre-authorization and it costs a few thousand (yes thousand, not hundred) more. So it usually has to be justified.

Please do keep us posted and as hard as it's going to be, stand your ground until you get some answers.

 

[julie]

I'm sorry you are going through this, and that DH is acting this way. It doesn't excuse his behavior, but it *seems* to me that he is scared and just wants his son to be healthy. Maybe talking to him when you've both calmed down and getting down to his level (i.e. I know you just want our son to be healthy and I can understand how frustrating this is for you, and you are entitled to your feelings and opinions, but please also have respect for mine and my need for answers about this situation...) will help.

the reason why they don't generally do the Ambry full test right of the bat is that most insurance companies don't cover it without a pre-authorization and it costs a few thousand (yes thousand, not hundred) more. So it usually has to be justified.

Please do keep us posted and as hard as it's going to be, stand your ground until you get some answers.

 

[julie]

I'm sorry you are going through this, and that DH is acting this way. It doesn't excuse his behavior, but it *seems* to me that he is scared and just wants his son to be healthy. Maybe talking to him when you've both calmed down and getting down to his level (i.e. I know you just want our son to be healthy and I can understand how frustrating this is for you, and you are entitled to your feelings and opinions, but please also have respect for mine and my need for answers about this situation...) will help.

the reason why they don't generally do the Ambry full test right of the bat is that most insurance companies don't cover it without a pre-authorization and it costs a few thousand (yes thousand, not hundred) more. So it usually has to be justified.

Please do keep us posted and as hard as it's going to be, stand your ground until you get some answers.

 

[julie]

I'm sorry you are going through this, and that DH is acting this way. It doesn't excuse his behavior, but it *seems* to me that he is scared and just wants his son to be healthy. Maybe talking to him when you've both calmed down and getting down to his level (i.e. I know you just want our son to be healthy and I can understand how frustrating this is for you, and you are entitled to your feelings and opinions, but please also have respect for mine and my need for answers about this situation...) will help.

the reason why they don't generally do the Ambry full test right of the bat is that most insurance companies don't cover it without a pre-authorization and it costs a few thousand (yes thousand, not hundred) more. So it usually has to be justified.

Please do keep us posted and as hard as it's going to be, stand your ground until you get some answers.

 

[julie]

I'm sorry you are going through this, and that DH is acting this way. It doesn't excuse his behavior, but it *seems* to me that he is scared and just wants his son to be healthy. Maybe talking to him when you've both calmed down and getting down to his level (i.e. I know you just want our son to be healthy and I can understand how frustrating this is for you, and you are entitled to your feelings and opinions, but please also have respect for mine and my need for answers about this situation...) will help.

the reason why they don't generally do the Ambry full test right of the bat is that most insurance companies don't cover it without a pre-authorization and it costs a few thousand (yes thousand, not hundred) more. So it usually has to be justified.

Please do keep us posted and as hard as it's going to be, stand your ground until you get some answers.

 

[momja]

Ok, thanks for all your responses. I'm trying to reach DH at work but I can't get a hold of him.

A Genetic counselor from Children's called and explained why they do the testing the way they do. And if a elevated sweat test comes up the doctor can then authorize further testing. She was very helpful and understanding of all my neurotic questions and concerns.

Now for the waiting game.....

Sweat test and nutritionist on the 29th.

 

[momja]

Ok, thanks for all your responses. I'm trying to reach DH at work but I can't get a hold of him.

A Genetic counselor from Children's called and explained why they do the testing the way they do. And if a elevated sweat test comes up the doctor can then authorize further testing. She was very helpful and understanding of all my neurotic questions and concerns.

Now for the waiting game.....

Sweat test and nutritionist on the 29th.

 

[momja]

Ok, thanks for all your responses. I'm trying to reach DH at work but I can't get a hold of him.

A Genetic counselor from Children's called and explained why they do the testing the way they do. And if a elevated sweat test comes up the doctor can then authorize further testing. She was very helpful and understanding of all my neurotic questions and concerns.

Now for the waiting game.....

Sweat test and nutritionist on the 29th.

 

[momja]

Ok, thanks for all your responses. I'm trying to reach DH at work but I can't get a hold of him.

A Genetic counselor from Children's called and explained why they do the testing the way they do. And if a elevated sweat test comes up the doctor can then authorize further testing. She was very helpful and understanding of all my neurotic questions and concerns.

Now for the waiting game.....

Sweat test and nutritionist on the 29th.

 

[momja]

Ok, thanks for all your responses. I'm trying to reach DH at work but I can't get a hold of him.

A Genetic counselor from Children's called and explained why they do the testing the way they do. And if a elevated sweat test comes up the doctor can then authorize further testing. She was very helpful and understanding of all my neurotic questions and concerns.

Now for the waiting game.....

Sweat test and nutritionist on the 29th.

 

[momja]

Ok, thanks for all your responses. I'm trying to reach DH at work but I can't get a hold of him.

A Genetic counselor from Children's called and explained why they do the testing the way they do. And if a elevated sweat test comes up the doctor can then authorize further testing. She was very helpful and understanding of all my neurotic questions and concerns.

Now for the waiting game.....

Sweat test and nutritionist on the 29th.

 

[clawson5104]

Sorry ur getting so much crap.....this whole process sucks. my DS would do good and then get sick again. but the whole time he was doing good....everybody would say.....see there's nothing wrong.....just a bug....blah blah blah. even my ped said "i've never seen u like this with ur other 3 boys, i have always trusted ur motherly instincts, but i really think this time....u should just stop trying to find [U something wrong with him." DH was very skinny, and sick alot as a kid.....so it was "normal". "just like his dad" good thing i'm hard headed. DH never gave me too much grief like his family. he just said maybe he is like him, but wont hurt to check. he got grouchy a few times, then admitted he was scared. I think u should go with ur instincts, moms know when something just isn't right. stick to ur guns.... and maybe explain to DH testing is better than never knowing......the earlier u find out (any diagnosis) the better, early treatment can save DS ALOT of pain, and discomfort later. and give him better quality of life. good luck and God Bless!

 

[clawson5104]

Sorry ur getting so much crap.....this whole process sucks. my DS would do good and then get sick again. but the whole time he was doing good....everybody would say.....see there's nothing wrong.....just a bug....blah blah blah. even my ped said "i've never seen u like this with ur other 3 boys, i have always trusted ur motherly instincts, but i really think this time....u should just stop trying to find [U something wrong with him." DH was very skinny, and sick alot as a kid.....so it was "normal". "just like his dad" good thing i'm hard headed. DH never gave me too much grief like his family. he just said maybe he is like him, but wont hurt to check. he got grouchy a few times, then admitted he was scared. I think u should go with ur instincts, moms know when something just isn't right. stick to ur guns.... and maybe explain to DH testing is better than never knowing......the earlier u find out (any diagnosis) the better, early treatment can save DS ALOT of pain, and discomfort later. and give him better quality of life. good luck and God Bless!