At my Breaking Point

[clawson5104]

Sorry ur getting so much crap.....this whole process sucks. my DS would do good and then get sick again. but the whole time he was doing good....everybody would say.....see there's nothing wrong.....just a bug....blah blah blah. even my ped said "i've never seen u like this with ur other 3 boys, i have always trusted ur motherly instincts, but i really think this time....u should just stop trying to find [U something wrong with him." DH was very skinny, and sick alot as a kid.....so it was "normal". "just like his dad" good thing i'm hard headed. DH never gave me too much grief like his family. he just said maybe he is like him, but wont hurt to check. he got grouchy a few times, then admitted he was scared. I think u should go with ur instincts, moms know when something just isn't right. stick to ur guns.... and maybe explain to DH testing is better than never knowing......the earlier u find out (any diagnosis) the better, early treatment can save DS ALOT of pain, and discomfort later. and give him better quality of life. good luck and God Bless!

 

[clawson5104]

Sorry ur getting so much crap.....this whole process sucks. my DS would do good and then get sick again. but the whole time he was doing good....everybody would say.....see there's nothing wrong.....just a bug....blah blah blah. even my ped said "i've never seen u like this with ur other 3 boys, i have always trusted ur motherly instincts, but i really think this time....u should just stop trying to find [U something wrong with him." DH was very skinny, and sick alot as a kid.....so it was "normal". "just like his dad" good thing i'm hard headed. DH never gave me too much grief like his family. he just said maybe he is like him, but wont hurt to check. he got grouchy a few times, then admitted he was scared. I think u should go with ur instincts, moms know when something just isn't right. stick to ur guns.... and maybe explain to DH testing is better than never knowing......the earlier u find out (any diagnosis) the better, early treatment can save DS ALOT of pain, and discomfort later. and give him better quality of life. good luck and God Bless!

 

[clawson5104]

Sorry ur getting so much crap.....this whole process sucks. my DS would do good and then get sick again. but the whole time he was doing good....everybody would say.....see there's nothing wrong.....just a bug....blah blah blah. even my ped said "i've never seen u like this with ur other 3 boys, i have always trusted ur motherly instincts, but i really think this time....u should just stop trying to find [U something wrong with him." DH was very skinny, and sick alot as a kid.....so it was "normal". "just like his dad" good thing i'm hard headed. DH never gave me too much grief like his family. he just said maybe he is like him, but wont hurt to check. he got grouchy a few times, then admitted he was scared. I think u should go with ur instincts, moms know when something just isn't right. stick to ur guns.... and maybe explain to DH testing is better than never knowing......the earlier u find out (any diagnosis) the better, early treatment can save DS ALOT of pain, and discomfort later. and give him better quality of life. good luck and God Bless!

 

[clawson5104]

Sorry ur getting so much crap.....this whole process sucks. my DS would do good and then get sick again. but the whole time he was doing good....everybody would say.....see there's nothing wrong.....just a bug....blah blah blah. even my ped said "i've never seen u like this with ur other 3 boys, i have always trusted ur motherly instincts, but i really think this time....u should just stop trying to find [U something wrong with him." DH was very skinny, and sick alot as a kid.....so it was "normal". "just like his dad" good thing i'm hard headed. DH never gave me too much grief like his family. he just said maybe he is like him, but wont hurt to check. he got grouchy a few times, then admitted he was scared. I think u should go with ur instincts, moms know when something just isn't right. stick to ur guns.... and maybe explain to DH testing is better than never knowing......the earlier u find out (any diagnosis) the better, early treatment can save DS ALOT of pain, and discomfort later. and give him better quality of life. good luck and God Bless!

 

[ktsmom]

I truly hope you can get DH on your side. I had lots of people write off my concerns - DH (at times), my family, medical professionals, you name it. So you need some support from the father of this child!

As was mentioned - so what is the worst that can happen? You can rule out CF for sure and then move on to the next possbility.

Hang in there!

 

[ktsmom]

I truly hope you can get DH on your side. I had lots of people write off my concerns - DH (at times), my family, medical professionals, you name it. So you need some support from the father of this child!

As was mentioned - so what is the worst that can happen? You can rule out CF for sure and then move on to the next possbility.

Hang in there!

 

[ktsmom]

I truly hope you can get DH on your side. I had lots of people write off my concerns - DH (at times), my family, medical professionals, you name it. So you need some support from the father of this child!

As was mentioned - so what is the worst that can happen? You can rule out CF for sure and then move on to the next possbility.

Hang in there!

 

[ktsmom]

I truly hope you can get DH on your side. I had lots of people write off my concerns - DH (at times), my family, medical professionals, you name it. So you need some support from the father of this child!

As was mentioned - so what is the worst that can happen? You can rule out CF for sure and then move on to the next possbility.

Hang in there!

 

[ktsmom]

I truly hope you can get DH on your side. I had lots of people write off my concerns - DH (at times), my family, medical professionals, you name it. So you need some support from the father of this child!

As was mentioned - so what is the worst that can happen? You can rule out CF for sure and then move on to the next possbility.

Hang in there!

 

[ktsmom]

I truly hope you can get DH on your side. I had lots of people write off my concerns - DH (at times), my family, medical professionals, you name it. So you need some support from the father of this child!

As was mentioned - so what is the worst that can happen? You can rule out CF for sure and then move on to the next possbility.

Hang in there!

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>momja</b></i>

And if a elevated sweat test comes up the doctor can then authorize further testing. </end quote></div>

Be careful... many people with CF do not have elevated sweat testing.

Ask them why the doc can't authorize genetic testing? He's not paying for it.

I would keep pushing if I were you..... there's no reason to wait.

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>momja</b></i>

And if a elevated sweat test comes up the doctor can then authorize further testing. </end quote></div>

Be careful... many people with CF do not have elevated sweat testing.

Ask them why the doc can't authorize genetic testing? He's not paying for it.

I would keep pushing if I were you..... there's no reason to wait.

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>momja</b></i>

And if a elevated sweat test comes up the doctor can then authorize further testing. </end quote></div>

Be careful... many people with CF do not have elevated sweat testing.

Ask them why the doc can't authorize genetic testing? He's not paying for it.

I would keep pushing if I were you..... there's no reason to wait.

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>momja</b></i>

And if a elevated sweat test comes up the doctor can then authorize further testing. </end quote></div>

Be careful... many people with CF do not have elevated sweat testing.

Ask them why the doc can't authorize genetic testing? He's not paying for it.

I would keep pushing if I were you..... there's no reason to wait.

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>momja</b></i>

And if a elevated sweat test comes up the doctor can then authorize further testing. </end quote>

Be careful... many people with CF do not have elevated sweat testing.

Ask them why the doc can't authorize genetic testing? He's not paying for it.

I would keep pushing if I were you..... there's no reason to wait.

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>momja</b></i>

And if a elevated sweat test comes up the doctor can then authorize further testing. </end quote>

Be careful... many people with CF do not have elevated sweat testing.

Ask them why the doc can't authorize genetic testing? He's not paying for it.

I would keep pushing if I were you..... there's no reason to wait.

 

[consmom]

Hi, just to say my son's Dad was like youre husband, when it came back positive he still had a very hard time with the diagnosis, we went through the whole nine yards of blame, denial etc.etc.
YOU know your child better than anyone,trust your gut and believe me the arguments with the insurance companies are great stress relievers!
Yes it would be great to have support from the father but unfortunately some of us do not have an ideal situation and have to go it alone.
I do not know what insurance you have but I know that if it is like ours the best way to fight them is with a social worker, they are great advocates and if they are any good will know all the ins and outs. You may want to check out the CF Pharmacy, they have a legal hot line. I have used them in the past and they have given me great advice and pushed me in a direction that I would not have thought about.

 

[consmom]

Hi, just to say my son's Dad was like youre husband, when it came back positive he still had a very hard time with the diagnosis, we went through the whole nine yards of blame, denial etc.etc.
YOU know your child better than anyone,trust your gut and believe me the arguments with the insurance companies are great stress relievers!
Yes it would be great to have support from the father but unfortunately some of us do not have an ideal situation and have to go it alone.
I do not know what insurance you have but I know that if it is like ours the best way to fight them is with a social worker, they are great advocates and if they are any good will know all the ins and outs. You may want to check out the CF Pharmacy, they have a legal hot line. I have used them in the past and they have given me great advice and pushed me in a direction that I would not have thought about.

 

[consmom]

Hi, just to say my son's Dad was like youre husband, when it came back positive he still had a very hard time with the diagnosis, we went through the whole nine yards of blame, denial etc.etc.
YOU know your child better than anyone,trust your gut and believe me the arguments with the insurance companies are great stress relievers!
Yes it would be great to have support from the father but unfortunately some of us do not have an ideal situation and have to go it alone.
I do not know what insurance you have but I know that if it is like ours the best way to fight them is with a social worker, they are great advocates and if they are any good will know all the ins and outs. You may want to check out the CF Pharmacy, they have a legal hot line. I have used them in the past and they have given me great advice and pushed me in a direction that I would not have thought about.

 

[consmom]

Hi, just to say my son's Dad was like youre husband, when it came back positive he still had a very hard time with the diagnosis, we went through the whole nine yards of blame, denial etc.etc.
YOU know your child better than anyone,trust your gut and believe me the arguments with the insurance companies are great stress relievers!
Yes it would be great to have support from the father but unfortunately some of us do not have an ideal situation and have to go it alone.
I do not know what insurance you have but I know that if it is like ours the best way to fight them is with a social worker, they are great advocates and if they are any good will know all the ins and outs. You may want to check out the CF Pharmacy, they have a legal hot line. I have used them in the past and they have given me great advice and pushed me in a direction that I would not have thought about.