occupyjapan
New member
Hello all. Just joined the forums, and thought I'd ask a quick question that's been on my mind.
A little background first to introduce myself (I'd do this in the welcome thread, but since I'm posting this thread anyway, I may as well do it here):
I am a 23 year old male with Cystic Fibrosis (Delta F508 mutation). I was diagnosed when I was 4 from a sweat test. I've never really had many lung problems with my CF (I didn't even culture any bugs in my sputum until I was 17 or so!).
Currently, I have MRSA and PA in my lungs, but they don't seem to be doing much of anything. My weight is beyond stable (I could stand to lose a good bit of weight, actually!), my last PFT result was 120% of predicted overall with an FEV1 of over 100. I've never been hospitalized except for a bout of pneumonia my entire family caught (and had to be hospitalized for!) back in 2005. I quickly recovered from that with no long term effects. I also have very mild Bronchiectasis which wasn't even diagnosed until I was 20 or so.
I'm currently on Pulmazyme, inhaled Tobi, oral Ciprofloxacin and
oral Guaiphenesin (it's an OTC expectorate that works WONDERS for me; it makes it incredibly easy to evacuate mucous). And I'm thriving like crazy! <img src="">
<i>Anyway</i>, I was actually curious since I couldn't find the information online: how much mucous does the average person with CF produce in a day? I know this can vary from day to day and there isn't really an "average" CF case. But just... on average, I guess. I can sorta remember, as a kid, my doctor at the time saying something like 1 cup a day or something, but that really seemed excessive since I've never really coughed tons of junk out and if I had tons of mucous in my lungs, my lung functions surely wouldn't be nearly as good.
What are your experiences with how much overall mucous you produce in a 24 hour period?
Thanks all!
A little background first to introduce myself (I'd do this in the welcome thread, but since I'm posting this thread anyway, I may as well do it here):
I am a 23 year old male with Cystic Fibrosis (Delta F508 mutation). I was diagnosed when I was 4 from a sweat test. I've never really had many lung problems with my CF (I didn't even culture any bugs in my sputum until I was 17 or so!).
Currently, I have MRSA and PA in my lungs, but they don't seem to be doing much of anything. My weight is beyond stable (I could stand to lose a good bit of weight, actually!), my last PFT result was 120% of predicted overall with an FEV1 of over 100. I've never been hospitalized except for a bout of pneumonia my entire family caught (and had to be hospitalized for!) back in 2005. I quickly recovered from that with no long term effects. I also have very mild Bronchiectasis which wasn't even diagnosed until I was 20 or so.
I'm currently on Pulmazyme, inhaled Tobi, oral Ciprofloxacin and
oral Guaiphenesin (it's an OTC expectorate that works WONDERS for me; it makes it incredibly easy to evacuate mucous). And I'm thriving like crazy! <img src="">
<i>Anyway</i>, I was actually curious since I couldn't find the information online: how much mucous does the average person with CF produce in a day? I know this can vary from day to day and there isn't really an "average" CF case. But just... on average, I guess. I can sorta remember, as a kid, my doctor at the time saying something like 1 cup a day or something, but that really seemed excessive since I've never really coughed tons of junk out and if I had tons of mucous in my lungs, my lung functions surely wouldn't be nearly as good.
What are your experiences with how much overall mucous you produce in a 24 hour period?
Thanks all!