Aztreanam, anyone???

Philipians4four · Jun 14, 2008

I recently started taking Aztreanam instead of the Tobi treatments. It hasn't been a month yet, and I can't quite judge how well it's working myself. But it is sooooo long! And STICKY! and it hardly comes out of my PARI neb, so I could be sittingthere for an hour doing just ONE treatment. Plus, it's a mix-it-yourself deal. Basically, it is a lot of work, a lot of time, and I wonder how much better this stuff really is than Tobi? And does everyone who uses it have the same issues? Am I alone here? Suggestions, please! Comments, please!

Ugh.

Joy 19yrs w/ CF, TX hopeful

Philipians4four · Jun 14, 2008

I recently started taking Aztreanam instead of the Tobi treatments. It hasn't been a month yet, and I can't quite judge how well it's working myself. But it is sooooo long! And STICKY! and it hardly comes out of my PARI neb, so I could be sittingthere for an hour doing just ONE treatment. Plus, it's a mix-it-yourself deal. Basically, it is a lot of work, a lot of time, and I wonder how much better this stuff really is than Tobi? And does everyone who uses it have the same issues? Am I alone here? Suggestions, please! Comments, please!

Ugh.

Joy 19yrs w/ CF, TX hopeful

Philipians4four · Jun 14, 2008

I recently started taking Aztreanam instead of the Tobi treatments. It hasn't been a month yet, and I can't quite judge how well it's working myself. But it is sooooo long! And STICKY! and it hardly comes out of my PARI neb, so I could be sittingthere for an hour doing just ONE treatment. Plus, it's a mix-it-yourself deal. Basically, it is a lot of work, a lot of time, and I wonder how much better this stuff really is than Tobi? And does everyone who uses it have the same issues? Am I alone here? Suggestions, please! Comments, please!

Ugh.

Joy 19yrs w/ CF, TX hopeful

Philipians4four · Jun 14, 2008

I recently started taking Aztreanam instead of the Tobi treatments. It hasn't been a month yet, and I can't quite judge how well it's working myself. But it is sooooo long! And STICKY! and it hardly comes out of my PARI neb, so I could be sittingthere for an hour doing just ONE treatment. Plus, it's a mix-it-yourself deal. Basically, it is a lot of work, a lot of time, and I wonder how much better this stuff really is than Tobi? And does everyone who uses it have the same issues? Am I alone here? Suggestions, please! Comments, please!

Ugh.

Joy 19yrs w/ CF, TX hopeful

Philipians4four · Jun 14, 2008

I recently started taking Aztreanam instead of the Tobi treatments. It hasn't been a month yet, and I can't quite judge how well it's working myself. But it is sooooo long! And STICKY! and it hardly comes out of my PARI neb, so I could be sittingthere for an hour doing just ONE treatment. Plus, it's a mix-it-yourself deal. Basically, it is a lot of work, a lot of time, and I wonder how much better this stuff really is than Tobi? And does everyone who uses it have the same issues? Am I alone here? Suggestions, please! Comments, please!
 
 Ugh.
 
 Joy 19yrs w/ CF, TX hopeful

tara · Jun 14, 2008

I've been inhaling the IV form of Aztreonam for 4 years now. I love it. It stinks, it's sticky and yes, it does take awhile, but here's what I do. I reconstitute 1 gram with 3mL sterile water. Then when you pull it out of the vial it is 4mL of solution. It takes me about 20 minutes in my Pari LC Plus, and toward the end, it does get so sticky, sometimes it get stuck, that's when I know it's done. I always wash that neb immediately because it's such sticky stuff.

Hang in there Joy. I prefer Aztreonam over TOBI. Personally I cannot tolerate TOBI anymore, so I alternate inhaled Aztreonam (IV) with inhaled Ceftaz (IV) every two weeks. 2 weeks on one, 2 weeks on another, no "off" month.

tara · Jun 14, 2008

I've been inhaling the IV form of Aztreonam for 4 years now. I love it. It stinks, it's sticky and yes, it does take awhile, but here's what I do. I reconstitute 1 gram with 3mL sterile water. Then when you pull it out of the vial it is 4mL of solution. It takes me about 20 minutes in my Pari LC Plus, and toward the end, it does get so sticky, sometimes it get stuck, that's when I know it's done. I always wash that neb immediately because it's such sticky stuff.

Hang in there Joy. I prefer Aztreonam over TOBI. Personally I cannot tolerate TOBI anymore, so I alternate inhaled Aztreonam (IV) with inhaled Ceftaz (IV) every two weeks. 2 weeks on one, 2 weeks on another, no "off" month.

tara · Jun 14, 2008

I've been inhaling the IV form of Aztreonam for 4 years now. I love it. It stinks, it's sticky and yes, it does take awhile, but here's what I do. I reconstitute 1 gram with 3mL sterile water. Then when you pull it out of the vial it is 4mL of solution. It takes me about 20 minutes in my Pari LC Plus, and toward the end, it does get so sticky, sometimes it get stuck, that's when I know it's done. I always wash that neb immediately because it's such sticky stuff.

Hang in there Joy. I prefer Aztreonam over TOBI. Personally I cannot tolerate TOBI anymore, so I alternate inhaled Aztreonam (IV) with inhaled Ceftaz (IV) every two weeks. 2 weeks on one, 2 weeks on another, no "off" month.

tara · Jun 14, 2008

I've been inhaling the IV form of Aztreonam for 4 years now. I love it. It stinks, it's sticky and yes, it does take awhile, but here's what I do. I reconstitute 1 gram with 3mL sterile water. Then when you pull it out of the vial it is 4mL of solution. It takes me about 20 minutes in my Pari LC Plus, and toward the end, it does get so sticky, sometimes it get stuck, that's when I know it's done. I always wash that neb immediately because it's such sticky stuff.

Hang in there Joy. I prefer Aztreonam over TOBI. Personally I cannot tolerate TOBI anymore, so I alternate inhaled Aztreonam (IV) with inhaled Ceftaz (IV) every two weeks. 2 weeks on one, 2 weeks on another, no "off" month.

tara · Jun 14, 2008

I've been inhaling the IV form of Aztreonam for 4 years now. I love it. It stinks, it's sticky and yes, it does take awhile, but here's what I do. I reconstitute 1 gram with 3mL sterile water. Then when you pull it out of the vial it is 4mL of solution. It takes me about 20 minutes in my Pari LC Plus, and toward the end, it does get so sticky, sometimes it get stuck, that's when I know it's done. I always wash that neb immediately because it's such sticky stuff.
 
 Hang in there Joy. I prefer Aztreonam over TOBI. Personally I cannot tolerate TOBI anymore, so I alternate inhaled Aztreonam (IV) with inhaled Ceftaz (IV) every two weeks. 2 weeks on one, 2 weeks on another, no "off" month.

Philipians4four · Jun 14, 2008

Thanks Tara! I'll keep hangin in there and give it another chance. Last night my Aztreanam got so stuck after two minutes, I washed it out, filled it with new and tried again. Then the new one got stuck so I tried using a whole new nebulizer, but it STILL got stuck. So since I wasn't getting the treatment anyway I decided to give into temptation and threw it across the room out of frustration. HAHA! But today I'll try the 3mL. See how it works out.

Thanks!
Joy

Philipians4four · Jun 14, 2008

Thanks Tara! I'll keep hangin in there and give it another chance. Last night my Aztreanam got so stuck after two minutes, I washed it out, filled it with new and tried again. Then the new one got stuck so I tried using a whole new nebulizer, but it STILL got stuck. So since I wasn't getting the treatment anyway I decided to give into temptation and threw it across the room out of frustration. HAHA! But today I'll try the 3mL. See how it works out.

Thanks!
Joy

Philipians4four · Jun 14, 2008

Thanks Tara! I'll keep hangin in there and give it another chance. Last night my Aztreanam got so stuck after two minutes, I washed it out, filled it with new and tried again. Then the new one got stuck so I tried using a whole new nebulizer, but it STILL got stuck. So since I wasn't getting the treatment anyway I decided to give into temptation and threw it across the room out of frustration. HAHA! But today I'll try the 3mL. See how it works out.

Thanks!
Joy

Philipians4four · Jun 14, 2008

Thanks Tara! I'll keep hangin in there and give it another chance. Last night my Aztreanam got so stuck after two minutes, I washed it out, filled it with new and tried again. Then the new one got stuck so I tried using a whole new nebulizer, but it STILL got stuck. So since I wasn't getting the treatment anyway I decided to give into temptation and threw it across the room out of frustration. HAHA! But today I'll try the 3mL. See how it works out.

Thanks!
Joy

Philipians4four · Jun 14, 2008

Thanks Tara! I'll keep hangin in there and give it another chance. Last night my Aztreanam got so stuck after two minutes, I washed it out, filled it with new and tried again. Then the new one got stuck so I tried using a whole new nebulizer, but it STILL got stuck. So since I wasn't getting the treatment anyway I decided to give into temptation and threw it across the room out of frustration. HAHA! But today I'll try the 3mL. See how it works out.
 
 Thanks!
 Joy

NoExcuses · Jun 15, 2008