(This thread was origianlly started in the 'Newly Diagnosed' section by MUMMY if you want to read from the beginning. I thought I'd move it here cuz she really needs some support and or advice and I know more people will see it here. She is from Africa and they have no CF doc.)
This was her last post:
Baby vomitted and choked again. Started gasping and managed to reach her to hospital on time.
She had severe pneumonia and was on antibiotics via IV for 8 days.
they taught me how to suction her lungs and asked me to do it at least 3 times a day!!! Is that normal????? Suctioning, i mean.... does anyone do that???
Was just settling into that routine and she choked again after vomitting..... in ICU again.
The doctors are pushing us to do a tracheostomy........ i cant see any CF people having done that on the net!
Please can s/one tell me if suctioning is normal?? And is tracheostomy a solution????
i really need help, as they are working on her on a trial and error basis!!!
--- for her reflux i give her omeprazole... 1/6th of a capsule.... may be i need to increase that???
This was her last post:
Baby vomitted and choked again. Started gasping and managed to reach her to hospital on time.
She had severe pneumonia and was on antibiotics via IV for 8 days.
they taught me how to suction her lungs and asked me to do it at least 3 times a day!!! Is that normal????? Suctioning, i mean.... does anyone do that???
Was just settling into that routine and she choked again after vomitting..... in ICU again.
The doctors are pushing us to do a tracheostomy........ i cant see any CF people having done that on the net!
Please can s/one tell me if suctioning is normal?? And is tracheostomy a solution????
i really need help, as they are working on her on a trial and error basis!!!
--- for her reflux i give her omeprazole... 1/6th of a capsule.... may be i need to increase that???