I know you have had a lot of responses, but just want to add a little. . ..
I had 50% FEV1 for YEARS!!!! No joke. I was in the 50's all through my late teen/early 20's. I started taking 7% hypertonic saline and they went back up to like 62% but like I said I sat around 50% for like 5 years and I had CEPACIA the whole time (supposed to be resistant). In fact, most doctors predictions are usually a little pessimistic, but I think they have to be "real". Maybe they are too 'real' sometimes.
Also I have had my share of Doctors resort to the "scare tactic" to try to get us CF patients to be more diligent or whatever. Believe me, Lung Transplant is probably many, many years down the road for you. <img src="i/expressions/face-icon-small-smile.gif" border="0"> For what my opinion is worth anyways~ Good Luck. . .I do agree with get away if you need to, and also just live your life the way you want to!
I had 50% FEV1 for YEARS!!!! No joke. I was in the 50's all through my late teen/early 20's. I started taking 7% hypertonic saline and they went back up to like 62% but like I said I sat around 50% for like 5 years and I had CEPACIA the whole time (supposed to be resistant). In fact, most doctors predictions are usually a little pessimistic, but I think they have to be "real". Maybe they are too 'real' sometimes.
Also I have had my share of Doctors resort to the "scare tactic" to try to get us CF patients to be more diligent or whatever. Believe me, Lung Transplant is probably many, many years down the road for you. <img src="i/expressions/face-icon-small-smile.gif" border="0"> For what my opinion is worth anyways~ Good Luck. . .I do agree with get away if you need to, and also just live your life the way you want to!