Bedtime in Hospital--??

sdelorenzo · Dec 1, 2008

I am the same way. I ask for drs orders for no cpt, vitals, etc. from 9pm-6am. The drs look at me like I am crazy and so do the nurses, but it only makes sense and they reluctantly have agreed. It is sometimes hard to locate the respiratory therapist by 8pm so they can start the treatment, but I try my best. I have asked the dr if I could put on the vest, do the inhaled drugs so my child to get to sleep on time if I can't find them by 8pm, but I have been told no. You would think if I could handle it at home, I could handle it in the hospital.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf

sdelorenzo · Dec 1, 2008

I am the same way. I ask for drs orders for no cpt, vitals, etc. from 9pm-6am. The drs look at me like I am crazy and so do the nurses, but it only makes sense and they reluctantly have agreed. It is sometimes hard to locate the respiratory therapist by 8pm so they can start the treatment, but I try my best. I have asked the dr if I could put on the vest, do the inhaled drugs so my child to get to sleep on time if I can't find them by 8pm, but I have been told no. You would think if I could handle it at home, I could handle it in the hospital.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf

sdelorenzo · Dec 1, 2008

I am the same way. I ask for drs orders for no cpt, vitals, etc. from 9pm-6am. The drs look at me like I am crazy and so do the nurses, but it only makes sense and they reluctantly have agreed. It is sometimes hard to locate the respiratory therapist by 8pm so they can start the treatment, but I try my best. I have asked the dr if I could put on the vest, do the inhaled drugs so my child to get to sleep on time if I can't find them by 8pm, but I have been told no. You would think if I could handle it at home, I could handle it in the hospital.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf

sdelorenzo · Dec 1, 2008

I am the same way. I ask for drs orders for no cpt, vitals, etc. from 9pm-6am. The drs look at me like I am crazy and so do the nurses, but it only makes sense and they reluctantly have agreed. It is sometimes hard to locate the respiratory therapist by 8pm so they can start the treatment, but I try my best. I have asked the dr if I could put on the vest, do the inhaled drugs so my child to get to sleep on time if I can't find them by 8pm, but I have been told no. You would think if I could handle it at home, I could handle it in the hospital.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf

sdelorenzo · Dec 1, 2008

I am the same way. I ask for drs orders for no cpt, vitals, etc. from 9pm-6am. The drs look at me like I am crazy and so do the nurses, but it only makes sense and they reluctantly have agreed. It is sometimes hard to locate the respiratory therapist by 8pm so they can start the treatment, but I try my best. I have asked the dr if I could put on the vest, do the inhaled drugs so my child to get to sleep on time if I can't find them by 8pm, but I have been told no. You would think if I could handle it at home, I could handle it in the hospital.
<br />Sharon, mom of Sophia, 7 and Jack, 5 both with cf

Mommafirst · Dec 1, 2008

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sdelorenzo</b></i>

I am the same way. I ask for drs orders for no cpt, vitals, etc. from 9pm-6am. The drs look at me like I am crazy and so do the nurses, but it only makes sense and they reluctantly have agreed. It is sometimes hard to locate the respiratory therapist by 8pm so they can start the treatment, but I try my best. I have asked the dr if I could put on the vest, do the inhaled drugs so my child to get to sleep on time if I can't find them by 8pm, but I have been told no. You would think if I could handle it at home, I could handle it in the hospital.

Sharon, mom of Sophia, 7 and Jack, 5 both with cf</end quote></div>

I can't believe they tell you no. That's nuts!! Who knows better than us parents who do the therapies at home ALL the time!!! Luckily, unless there are a slew of CF patients in-patient, they will bring us the vest and let us run it on schedule so I don't have to wait for the RT. And currently my dd only uses an inhaler, so I don't have to wait on RT for aerosals. I'm sure things will get exciting <img src="i/expressions/face-icon-small-disgusted.gif" border="0"> when that happens.

Mommafirst · Dec 1, 2008

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sdelorenzo</b></i>

I am the same way. I ask for drs orders for no cpt, vitals, etc. from 9pm-6am. The drs look at me like I am crazy and so do the nurses, but it only makes sense and they reluctantly have agreed. It is sometimes hard to locate the respiratory therapist by 8pm so they can start the treatment, but I try my best. I have asked the dr if I could put on the vest, do the inhaled drugs so my child to get to sleep on time if I can't find them by 8pm, but I have been told no. You would think if I could handle it at home, I could handle it in the hospital.

Sharon, mom of Sophia, 7 and Jack, 5 both with cf</end quote></div>

I can't believe they tell you no. That's nuts!! Who knows better than us parents who do the therapies at home ALL the time!!! Luckily, unless there are a slew of CF patients in-patient, they will bring us the vest and let us run it on schedule so I don't have to wait for the RT. And currently my dd only uses an inhaler, so I don't have to wait on RT for aerosals. I'm sure things will get exciting <img src="i/expressions/face-icon-small-disgusted.gif" border="0"> when that happens.

Mommafirst · Dec 1, 2008

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sdelorenzo</b></i>

I am the same way. I ask for drs orders for no cpt, vitals, etc. from 9pm-6am. The drs look at me like I am crazy and so do the nurses, but it only makes sense and they reluctantly have agreed. It is sometimes hard to locate the respiratory therapist by 8pm so they can start the treatment, but I try my best. I have asked the dr if I could put on the vest, do the inhaled drugs so my child to get to sleep on time if I can't find them by 8pm, but I have been told no. You would think if I could handle it at home, I could handle it in the hospital.

Sharon, mom of Sophia, 7 and Jack, 5 both with cf</end quote></div>

I can't believe they tell you no. That's nuts!! Who knows better than us parents who do the therapies at home ALL the time!!! Luckily, unless there are a slew of CF patients in-patient, they will bring us the vest and let us run it on schedule so I don't have to wait for the RT. And currently my dd only uses an inhaler, so I don't have to wait on RT for aerosals. I'm sure things will get exciting <img src="i/expressions/face-icon-small-disgusted.gif" border="0"> when that happens.

Mommafirst · Dec 1, 2008

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sdelorenzo</b></i>

I am the same way. I ask for drs orders for no cpt, vitals, etc. from 9pm-6am. The drs look at me like I am crazy and so do the nurses, but it only makes sense and they reluctantly have agreed. It is sometimes hard to locate the respiratory therapist by 8pm so they can start the treatment, but I try my best. I have asked the dr if I could put on the vest, do the inhaled drugs so my child to get to sleep on time if I can't find them by 8pm, but I have been told no. You would think if I could handle it at home, I could handle it in the hospital.

Sharon, mom of Sophia, 7 and Jack, 5 both with cf</end quote>

I can't believe they tell you no. That's nuts!! Who knows better than us parents who do the therapies at home ALL the time!!! Luckily, unless there are a slew of CF patients in-patient, they will bring us the vest and let us run it on schedule so I don't have to wait for the RT. And currently my dd only uses an inhaler, so I don't have to wait on RT for aerosals. I'm sure things will get exciting <img src="i/expressions/face-icon-small-disgusted.gif" border="0"> when that happens.

Mommafirst · Dec 1, 2008

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sdelorenzo</b></i>
<br />
<br />I am the same way. I ask for drs orders for no cpt, vitals, etc. from 9pm-6am. The drs look at me like I am crazy and so do the nurses, but it only makes sense and they reluctantly have agreed. It is sometimes hard to locate the respiratory therapist by 8pm so they can start the treatment, but I try my best. I have asked the dr if I could put on the vest, do the inhaled drugs so my child to get to sleep on time if I can't find them by 8pm, but I have been told no. You would think if I could handle it at home, I could handle it in the hospital.
<br />
<br />Sharon, mom of Sophia, 7 and Jack, 5 both with cf</end quote>
<br />
<br />I can't believe they tell you no. That's nuts!! Who knows better than us parents who do the therapies at home ALL the time!!! Luckily, unless there are a slew of CF patients in-patient, they will bring us the vest and let us run it on schedule so I don't have to wait for the RT. And currently my dd only uses an inhaler, so I don't have to wait on RT for aerosals. I'm sure things will get exciting <img src="i/expressions/face-icon-small-disgusted.gif" border="0"> when that happens.
<br />

Ratatosk · Dec 1, 2008

When DS was in the NICU shortly after he was born, we were fortunate in that our primary nurse was an advocate. DS was on a strict CPT and feeding schedule and she coordinated things so DS would get enough sleep.

We also learned how to do CPT ourselves and made sure we had the meds, so we could do it and not have to be at the mercy of the RT's schedule.

Ratatosk · Dec 1, 2008

When DS was in the NICU shortly after he was born, we were fortunate in that our primary nurse was an advocate. DS was on a strict CPT and feeding schedule and she coordinated things so DS would get enough sleep.

We also learned how to do CPT ourselves and made sure we had the meds, so we could do it and not have to be at the mercy of the RT's schedule.

Ratatosk · Dec 1, 2008

When DS was in the NICU shortly after he was born, we were fortunate in that our primary nurse was an advocate. DS was on a strict CPT and feeding schedule and she coordinated things so DS would get enough sleep.

We also learned how to do CPT ourselves and made sure we had the meds, so we could do it and not have to be at the mercy of the RT's schedule.

Ratatosk · Dec 1, 2008

When DS was in the NICU shortly after he was born, we were fortunate in that our primary nurse was an advocate. DS was on a strict CPT and feeding schedule and she coordinated things so DS would get enough sleep.

We also learned how to do CPT ourselves and made sure we had the meds, so we could do it and not have to be at the mercy of the RT's schedule.

Ratatosk · Dec 1, 2008

When DS was in the NICU shortly after he was born, we were fortunate in that our primary nurse was an advocate. DS was on a strict CPT and feeding schedule and she coordinated things so DS would get enough sleep.
<br />
<br />We also learned how to do CPT ourselves and made sure we had the meds, so we could do it and not have to be at the mercy of the RT's schedule.

shea14 · Dec 1, 2008