Better after pregnancy???

Jeana

New member
Hi all,
For the 3rd time during my pregnancy, I am back in the hospital. My FEV1 is now 46%, after getting up to 70% the last time I left the hospital. (80% before pregnancy) Is this pregnancy causing permanent damage to my lungs? If not, how long after I have the baby before my FEV1 goes back up to baseline? Several of you mentioned in other posts that the hardest part was after the birth. I adopted my first son and my health was fine. Is it the breastfeeding that keeps your health down? Maybe I shouldn't breastfeed. All I know is that I feel like this pregnancy is killing me. Don't get me wrong. After waiting 13 years to have a baby, I am so thankful, but will I ever feel better? I am 30 weeks and they plan to induce me on Feb 21 at 37 weeks.

I was only sick this time for 3 weeks before I came in and my doctor gave me a lecture on taking years off of my life for waiting. Does everyone else go in immediately when they are sick? I teach middle school and don't have tons of sick days at my disposal. I was trying to save my leave for when the baby is born, since I've already been in the hospital twice this year. Also, my husband was laid off from work, because he couldn't travel with me in the hospital, so financially I can't really quit working.

On a positive note, the baby is now 3 pounds 13 oz, which is if anything large for 30 weeks.

Thanks for any advice/input!
 

Jeana

New member
Hi all,
For the 3rd time during my pregnancy, I am back in the hospital. My FEV1 is now 46%, after getting up to 70% the last time I left the hospital. (80% before pregnancy) Is this pregnancy causing permanent damage to my lungs? If not, how long after I have the baby before my FEV1 goes back up to baseline? Several of you mentioned in other posts that the hardest part was after the birth. I adopted my first son and my health was fine. Is it the breastfeeding that keeps your health down? Maybe I shouldn't breastfeed. All I know is that I feel like this pregnancy is killing me. Don't get me wrong. After waiting 13 years to have a baby, I am so thankful, but will I ever feel better? I am 30 weeks and they plan to induce me on Feb 21 at 37 weeks.

I was only sick this time for 3 weeks before I came in and my doctor gave me a lecture on taking years off of my life for waiting. Does everyone else go in immediately when they are sick? I teach middle school and don't have tons of sick days at my disposal. I was trying to save my leave for when the baby is born, since I've already been in the hospital twice this year. Also, my husband was laid off from work, because he couldn't travel with me in the hospital, so financially I can't really quit working.

On a positive note, the baby is now 3 pounds 13 oz, which is if anything large for 30 weeks.

Thanks for any advice/input!
 

Jeana

New member
Hi all,
For the 3rd time during my pregnancy, I am back in the hospital. My FEV1 is now 46%, after getting up to 70% the last time I left the hospital. (80% before pregnancy) Is this pregnancy causing permanent damage to my lungs? If not, how long after I have the baby before my FEV1 goes back up to baseline? Several of you mentioned in other posts that the hardest part was after the birth. I adopted my first son and my health was fine. Is it the breastfeeding that keeps your health down? Maybe I shouldn't breastfeed. All I know is that I feel like this pregnancy is killing me. Don't get me wrong. After waiting 13 years to have a baby, I am so thankful, but will I ever feel better? I am 30 weeks and they plan to induce me on Feb 21 at 37 weeks.

I was only sick this time for 3 weeks before I came in and my doctor gave me a lecture on taking years off of my life for waiting. Does everyone else go in immediately when they are sick? I teach middle school and don't have tons of sick days at my disposal. I was trying to save my leave for when the baby is born, since I've already been in the hospital twice this year. Also, my husband was laid off from work, because he couldn't travel with me in the hospital, so financially I can't really quit working.

On a positive note, the baby is now 3 pounds 13 oz, which is if anything large for 30 weeks.

Thanks for any advice/input!
 

Jeana

New member
Hi all,
For the 3rd time during my pregnancy, I am back in the hospital. My FEV1 is now 46%, after getting up to 70% the last time I left the hospital. (80% before pregnancy) Is this pregnancy causing permanent damage to my lungs? If not, how long after I have the baby before my FEV1 goes back up to baseline? Several of you mentioned in other posts that the hardest part was after the birth. I adopted my first son and my health was fine. Is it the breastfeeding that keeps your health down? Maybe I shouldn't breastfeed. All I know is that I feel like this pregnancy is killing me. Don't get me wrong. After waiting 13 years to have a baby, I am so thankful, but will I ever feel better? I am 30 weeks and they plan to induce me on Feb 21 at 37 weeks.

I was only sick this time for 3 weeks before I came in and my doctor gave me a lecture on taking years off of my life for waiting. Does everyone else go in immediately when they are sick? I teach middle school and don't have tons of sick days at my disposal. I was trying to save my leave for when the baby is born, since I've already been in the hospital twice this year. Also, my husband was laid off from work, because he couldn't travel with me in the hospital, so financially I can't really quit working.

On a positive note, the baby is now 3 pounds 13 oz, which is if anything large for 30 weeks.

Thanks for any advice/input!
 

Jeana

New member
Hi all,
<br />For the 3rd time during my pregnancy, I am back in the hospital. My FEV1 is now 46%, after getting up to 70% the last time I left the hospital. (80% before pregnancy) Is this pregnancy causing permanent damage to my lungs? If not, how long after I have the baby before my FEV1 goes back up to baseline? Several of you mentioned in other posts that the hardest part was after the birth. I adopted my first son and my health was fine. Is it the breastfeeding that keeps your health down? Maybe I shouldn't breastfeed. All I know is that I feel like this pregnancy is killing me. Don't get me wrong. After waiting 13 years to have a baby, I am so thankful, but will I ever feel better? I am 30 weeks and they plan to induce me on Feb 21 at 37 weeks.
<br />
<br />I was only sick this time for 3 weeks before I came in and my doctor gave me a lecture on taking years off of my life for waiting. Does everyone else go in immediately when they are sick? I teach middle school and don't have tons of sick days at my disposal. I was trying to save my leave for when the baby is born, since I've already been in the hospital twice this year. Also, my husband was laid off from work, because he couldn't travel with me in the hospital, so financially I can't really quit working.
<br />
<br />On a positive note, the baby is now 3 pounds 13 oz, which is if anything large for 30 weeks.
<br />
<br />Thanks for any advice/input!
 

saveferris2009

New member
I've never been pregnant, so take that into account when you read my opinion.

It sounds like this isn't related to your pregnancy - it sounds like you're letting flare ups go without treatment for long periods of time.

Our bodies generally can't kill PA on their own (the bacteria most CFer's have in their lungs) - so some form of abx are necessary whether oral or I.V.

Waiting 3 weeks before getting treatment will most likely be causing permanent lung damage aka "taking years off your life" as your doc said. Knowing that infections won't clear up on their own, it's best to seek treatment sooner rather than waiting 3 weeks because one way or the other, treatment will be needed.

Your 3 year old son, most importantly, is counting on you to take care of yourself. It sounds like you're in a tough spot, but as you know, CF doesn't care about our life situations. It will rear its ugly head whether you have sick time or not; whether your husband works or not; etc etc.

I'll let others talk to you about being pregnant and FEV1. I know I've heard many do very well with their lungs while pregnant. But regardless, this isn't your case, and it sounds like maybe seeking treatments for exacerbation and giving yourself some more rest so you don't get sick again will help you.

best of luck.
 

saveferris2009

New member
I've never been pregnant, so take that into account when you read my opinion.

It sounds like this isn't related to your pregnancy - it sounds like you're letting flare ups go without treatment for long periods of time.

Our bodies generally can't kill PA on their own (the bacteria most CFer's have in their lungs) - so some form of abx are necessary whether oral or I.V.

Waiting 3 weeks before getting treatment will most likely be causing permanent lung damage aka "taking years off your life" as your doc said. Knowing that infections won't clear up on their own, it's best to seek treatment sooner rather than waiting 3 weeks because one way or the other, treatment will be needed.

Your 3 year old son, most importantly, is counting on you to take care of yourself. It sounds like you're in a tough spot, but as you know, CF doesn't care about our life situations. It will rear its ugly head whether you have sick time or not; whether your husband works or not; etc etc.

I'll let others talk to you about being pregnant and FEV1. I know I've heard many do very well with their lungs while pregnant. But regardless, this isn't your case, and it sounds like maybe seeking treatments for exacerbation and giving yourself some more rest so you don't get sick again will help you.

best of luck.
 

saveferris2009

New member
I've never been pregnant, so take that into account when you read my opinion.

It sounds like this isn't related to your pregnancy - it sounds like you're letting flare ups go without treatment for long periods of time.

Our bodies generally can't kill PA on their own (the bacteria most CFer's have in their lungs) - so some form of abx are necessary whether oral or I.V.

Waiting 3 weeks before getting treatment will most likely be causing permanent lung damage aka "taking years off your life" as your doc said. Knowing that infections won't clear up on their own, it's best to seek treatment sooner rather than waiting 3 weeks because one way or the other, treatment will be needed.

Your 3 year old son, most importantly, is counting on you to take care of yourself. It sounds like you're in a tough spot, but as you know, CF doesn't care about our life situations. It will rear its ugly head whether you have sick time or not; whether your husband works or not; etc etc.

I'll let others talk to you about being pregnant and FEV1. I know I've heard many do very well with their lungs while pregnant. But regardless, this isn't your case, and it sounds like maybe seeking treatments for exacerbation and giving yourself some more rest so you don't get sick again will help you.

best of luck.
 

saveferris2009

New member
I've never been pregnant, so take that into account when you read my opinion.

It sounds like this isn't related to your pregnancy - it sounds like you're letting flare ups go without treatment for long periods of time.

Our bodies generally can't kill PA on their own (the bacteria most CFer's have in their lungs) - so some form of abx are necessary whether oral or I.V.

Waiting 3 weeks before getting treatment will most likely be causing permanent lung damage aka "taking years off your life" as your doc said. Knowing that infections won't clear up on their own, it's best to seek treatment sooner rather than waiting 3 weeks because one way or the other, treatment will be needed.

Your 3 year old son, most importantly, is counting on you to take care of yourself. It sounds like you're in a tough spot, but as you know, CF doesn't care about our life situations. It will rear its ugly head whether you have sick time or not; whether your husband works or not; etc etc.

I'll let others talk to you about being pregnant and FEV1. I know I've heard many do very well with their lungs while pregnant. But regardless, this isn't your case, and it sounds like maybe seeking treatments for exacerbation and giving yourself some more rest so you don't get sick again will help you.

best of luck.
 

saveferris2009

New member
I've never been pregnant, so take that into account when you read my opinion.
<br />
<br />It sounds like this isn't related to your pregnancy - it sounds like you're letting flare ups go without treatment for long periods of time.
<br />
<br />Our bodies generally can't kill PA on their own (the bacteria most CFer's have in their lungs) - so some form of abx are necessary whether oral or I.V.
<br />
<br />Waiting 3 weeks before getting treatment will most likely be causing permanent lung damage aka "taking years off your life" as your doc said. Knowing that infections won't clear up on their own, it's best to seek treatment sooner rather than waiting 3 weeks because one way or the other, treatment will be needed.
<br />
<br />Your 3 year old son, most importantly, is counting on you to take care of yourself. It sounds like you're in a tough spot, but as you know, CF doesn't care about our life situations. It will rear its ugly head whether you have sick time or not; whether your husband works or not; etc etc.
<br />
<br />I'll let others talk to you about being pregnant and FEV1. I know I've heard many do very well with their lungs while pregnant. But regardless, this isn't your case, and it sounds like maybe seeking treatments for exacerbation and giving yourself some more rest so you don't get sick again will help you.
<br />
<br />best of luck.
 

rubyroselee

New member
Hi Jeana,

That's hard...especially when you're trying to work and take care of a toddler too. Are you losing sleep or really stressed lately? I mean, I can imagine that you're feeling a burden being the breadwinner at this point and worrying about making sure things are taken care of at home. Maybe all that is just wearing on your body and that's why you're finding yourself on IVs again.

But maybe this will make you feel better, but I always wait when I feel sick to call the doctor or take antibiotics. I do this because sometimes I actually feel better on my own in a couple weeks without taking any extra antibiotics/IVs and just continuing on my tobi cycles.

But I will say that pregnancy can definitely take a toll on the body and my doctor said that a CF women does not the ideal body for a pregnancy. The course is unpredictable and you never know how it will affect you individually. But I do know that it is difficult after the baby is born. That was the hardest thing I've ever had to do in my life.

Not only is your body healing from the labor, but you also have a crying baby who has many needs around the clock. I remember being incredibly sore from labor and I was so exhausted. And that was just with my labor being incredibly short and sweet. I was fatigued from the end of the labor and lack of sleep that I think just carried over and continued after the baby was born. My 2nd baby was colicky and difficult. I didn't sleep much at all in the first 3 months. I had a cold that lingered for 2 weeks because my body was so worn down. My PFTs dropped almost 30% and my weight went down 20 lbs from pre-pregnancy. I tried to breastfeed but I stopped after 4 days because he wouldn't latch. I'm glad I stopped because it would've definitely been too much for me.

But I will say now that with the baby being 5 months old now, life is 100 times better. The first 3 months were very hard but now life is normal and routine. The boys are on a schedule and I'm pretty much getting decent sleep now. I'm eating good and I feel great. My PFTs were back up to normal at 3 months post-partum and my weight is even higher than it was pre-pregnancy (hello McDonalds!).

But with that being said, that is just MY experience. I know many girls on here have breastfed successfully. It just wasn't right for me. But I do hope that your PFTs will return to normal once the pregnancy is done. Hopefully your husband is a good support for you and he can pick up the slack when you're tired and need help.

Good luck and keep us updated.
 

rubyroselee

New member
Hi Jeana,

That's hard...especially when you're trying to work and take care of a toddler too. Are you losing sleep or really stressed lately? I mean, I can imagine that you're feeling a burden being the breadwinner at this point and worrying about making sure things are taken care of at home. Maybe all that is just wearing on your body and that's why you're finding yourself on IVs again.

But maybe this will make you feel better, but I always wait when I feel sick to call the doctor or take antibiotics. I do this because sometimes I actually feel better on my own in a couple weeks without taking any extra antibiotics/IVs and just continuing on my tobi cycles.

But I will say that pregnancy can definitely take a toll on the body and my doctor said that a CF women does not the ideal body for a pregnancy. The course is unpredictable and you never know how it will affect you individually. But I do know that it is difficult after the baby is born. That was the hardest thing I've ever had to do in my life.

Not only is your body healing from the labor, but you also have a crying baby who has many needs around the clock. I remember being incredibly sore from labor and I was so exhausted. And that was just with my labor being incredibly short and sweet. I was fatigued from the end of the labor and lack of sleep that I think just carried over and continued after the baby was born. My 2nd baby was colicky and difficult. I didn't sleep much at all in the first 3 months. I had a cold that lingered for 2 weeks because my body was so worn down. My PFTs dropped almost 30% and my weight went down 20 lbs from pre-pregnancy. I tried to breastfeed but I stopped after 4 days because he wouldn't latch. I'm glad I stopped because it would've definitely been too much for me.

But I will say now that with the baby being 5 months old now, life is 100 times better. The first 3 months were very hard but now life is normal and routine. The boys are on a schedule and I'm pretty much getting decent sleep now. I'm eating good and I feel great. My PFTs were back up to normal at 3 months post-partum and my weight is even higher than it was pre-pregnancy (hello McDonalds!).

But with that being said, that is just MY experience. I know many girls on here have breastfed successfully. It just wasn't right for me. But I do hope that your PFTs will return to normal once the pregnancy is done. Hopefully your husband is a good support for you and he can pick up the slack when you're tired and need help.

Good luck and keep us updated.
 

rubyroselee

New member
Hi Jeana,

That's hard...especially when you're trying to work and take care of a toddler too. Are you losing sleep or really stressed lately? I mean, I can imagine that you're feeling a burden being the breadwinner at this point and worrying about making sure things are taken care of at home. Maybe all that is just wearing on your body and that's why you're finding yourself on IVs again.

But maybe this will make you feel better, but I always wait when I feel sick to call the doctor or take antibiotics. I do this because sometimes I actually feel better on my own in a couple weeks without taking any extra antibiotics/IVs and just continuing on my tobi cycles.

But I will say that pregnancy can definitely take a toll on the body and my doctor said that a CF women does not the ideal body for a pregnancy. The course is unpredictable and you never know how it will affect you individually. But I do know that it is difficult after the baby is born. That was the hardest thing I've ever had to do in my life.

Not only is your body healing from the labor, but you also have a crying baby who has many needs around the clock. I remember being incredibly sore from labor and I was so exhausted. And that was just with my labor being incredibly short and sweet. I was fatigued from the end of the labor and lack of sleep that I think just carried over and continued after the baby was born. My 2nd baby was colicky and difficult. I didn't sleep much at all in the first 3 months. I had a cold that lingered for 2 weeks because my body was so worn down. My PFTs dropped almost 30% and my weight went down 20 lbs from pre-pregnancy. I tried to breastfeed but I stopped after 4 days because he wouldn't latch. I'm glad I stopped because it would've definitely been too much for me.

But I will say now that with the baby being 5 months old now, life is 100 times better. The first 3 months were very hard but now life is normal and routine. The boys are on a schedule and I'm pretty much getting decent sleep now. I'm eating good and I feel great. My PFTs were back up to normal at 3 months post-partum and my weight is even higher than it was pre-pregnancy (hello McDonalds!).

But with that being said, that is just MY experience. I know many girls on here have breastfed successfully. It just wasn't right for me. But I do hope that your PFTs will return to normal once the pregnancy is done. Hopefully your husband is a good support for you and he can pick up the slack when you're tired and need help.

Good luck and keep us updated.
 

rubyroselee

New member
Hi Jeana,

That's hard...especially when you're trying to work and take care of a toddler too. Are you losing sleep or really stressed lately? I mean, I can imagine that you're feeling a burden being the breadwinner at this point and worrying about making sure things are taken care of at home. Maybe all that is just wearing on your body and that's why you're finding yourself on IVs again.

But maybe this will make you feel better, but I always wait when I feel sick to call the doctor or take antibiotics. I do this because sometimes I actually feel better on my own in a couple weeks without taking any extra antibiotics/IVs and just continuing on my tobi cycles.

But I will say that pregnancy can definitely take a toll on the body and my doctor said that a CF women does not the ideal body for a pregnancy. The course is unpredictable and you never know how it will affect you individually. But I do know that it is difficult after the baby is born. That was the hardest thing I've ever had to do in my life.

Not only is your body healing from the labor, but you also have a crying baby who has many needs around the clock. I remember being incredibly sore from labor and I was so exhausted. And that was just with my labor being incredibly short and sweet. I was fatigued from the end of the labor and lack of sleep that I think just carried over and continued after the baby was born. My 2nd baby was colicky and difficult. I didn't sleep much at all in the first 3 months. I had a cold that lingered for 2 weeks because my body was so worn down. My PFTs dropped almost 30% and my weight went down 20 lbs from pre-pregnancy. I tried to breastfeed but I stopped after 4 days because he wouldn't latch. I'm glad I stopped because it would've definitely been too much for me.

But I will say now that with the baby being 5 months old now, life is 100 times better. The first 3 months were very hard but now life is normal and routine. The boys are on a schedule and I'm pretty much getting decent sleep now. I'm eating good and I feel great. My PFTs were back up to normal at 3 months post-partum and my weight is even higher than it was pre-pregnancy (hello McDonalds!).

But with that being said, that is just MY experience. I know many girls on here have breastfed successfully. It just wasn't right for me. But I do hope that your PFTs will return to normal once the pregnancy is done. Hopefully your husband is a good support for you and he can pick up the slack when you're tired and need help.

Good luck and keep us updated.
 

rubyroselee

New member
Hi Jeana,
<br />
<br />That's hard...especially when you're trying to work and take care of a toddler too. Are you losing sleep or really stressed lately? I mean, I can imagine that you're feeling a burden being the breadwinner at this point and worrying about making sure things are taken care of at home. Maybe all that is just wearing on your body and that's why you're finding yourself on IVs again.
<br />
<br />But maybe this will make you feel better, but I always wait when I feel sick to call the doctor or take antibiotics. I do this because sometimes I actually feel better on my own in a couple weeks without taking any extra antibiotics/IVs and just continuing on my tobi cycles.
<br />
<br />But I will say that pregnancy can definitely take a toll on the body and my doctor said that a CF women does not the ideal body for a pregnancy. The course is unpredictable and you never know how it will affect you individually. But I do know that it is difficult after the baby is born. That was the hardest thing I've ever had to do in my life.
<br />
<br />Not only is your body healing from the labor, but you also have a crying baby who has many needs around the clock. I remember being incredibly sore from labor and I was so exhausted. And that was just with my labor being incredibly short and sweet. I was fatigued from the end of the labor and lack of sleep that I think just carried over and continued after the baby was born. My 2nd baby was colicky and difficult. I didn't sleep much at all in the first 3 months. I had a cold that lingered for 2 weeks because my body was so worn down. My PFTs dropped almost 30% and my weight went down 20 lbs from pre-pregnancy. I tried to breastfeed but I stopped after 4 days because he wouldn't latch. I'm glad I stopped because it would've definitely been too much for me.
<br />
<br />But I will say now that with the baby being 5 months old now, life is 100 times better. The first 3 months were very hard but now life is normal and routine. The boys are on a schedule and I'm pretty much getting decent sleep now. I'm eating good and I feel great. My PFTs were back up to normal at 3 months post-partum and my weight is even higher than it was pre-pregnancy (hello McDonalds!).
<br />
<br />But with that being said, that is just MY experience. I know many girls on here have breastfed successfully. It just wasn't right for me. But I do hope that your PFTs will return to normal once the pregnancy is done. Hopefully your husband is a good support for you and he can pick up the slack when you're tired and need help.
<br />
<br />Good luck and keep us updated.
 

Transplantmommy

New member
It's hard for me to say whether the pregnancy really did anything to my lungs. I went into the pregnancy already needing a transplant. I had an FEV1 of 40% when I found out that I was pregnant. I carried the baby for 33 weeks and at the end of it all, I had only lost 3% of my FEV1. But then, I continued to decline from there and was listed for the transplant in August 2006.

Overall, you really just need to make sure that you get to the doctor when you feel like you are starting to get sick. I went to my CF doc and high risk OBGYN about every 2 weeks throughout the whole pregnancy. I think that is the main reason that I stayed fairly healthy even though my lungs were really crappy.

As for the breast feeding, I had been told that I couldn't do it because of the meds that I was on and that it would take too many nutrients away from me. I was fine with that and Brady did great on formula.

Good luck to you.
 

Transplantmommy

New member
It's hard for me to say whether the pregnancy really did anything to my lungs. I went into the pregnancy already needing a transplant. I had an FEV1 of 40% when I found out that I was pregnant. I carried the baby for 33 weeks and at the end of it all, I had only lost 3% of my FEV1. But then, I continued to decline from there and was listed for the transplant in August 2006.

Overall, you really just need to make sure that you get to the doctor when you feel like you are starting to get sick. I went to my CF doc and high risk OBGYN about every 2 weeks throughout the whole pregnancy. I think that is the main reason that I stayed fairly healthy even though my lungs were really crappy.

As for the breast feeding, I had been told that I couldn't do it because of the meds that I was on and that it would take too many nutrients away from me. I was fine with that and Brady did great on formula.

Good luck to you.
 

Transplantmommy

New member
It's hard for me to say whether the pregnancy really did anything to my lungs. I went into the pregnancy already needing a transplant. I had an FEV1 of 40% when I found out that I was pregnant. I carried the baby for 33 weeks and at the end of it all, I had only lost 3% of my FEV1. But then, I continued to decline from there and was listed for the transplant in August 2006.

Overall, you really just need to make sure that you get to the doctor when you feel like you are starting to get sick. I went to my CF doc and high risk OBGYN about every 2 weeks throughout the whole pregnancy. I think that is the main reason that I stayed fairly healthy even though my lungs were really crappy.

As for the breast feeding, I had been told that I couldn't do it because of the meds that I was on and that it would take too many nutrients away from me. I was fine with that and Brady did great on formula.

Good luck to you.
 

Transplantmommy

New member
It's hard for me to say whether the pregnancy really did anything to my lungs. I went into the pregnancy already needing a transplant. I had an FEV1 of 40% when I found out that I was pregnant. I carried the baby for 33 weeks and at the end of it all, I had only lost 3% of my FEV1. But then, I continued to decline from there and was listed for the transplant in August 2006.

Overall, you really just need to make sure that you get to the doctor when you feel like you are starting to get sick. I went to my CF doc and high risk OBGYN about every 2 weeks throughout the whole pregnancy. I think that is the main reason that I stayed fairly healthy even though my lungs were really crappy.

As for the breast feeding, I had been told that I couldn't do it because of the meds that I was on and that it would take too many nutrients away from me. I was fine with that and Brady did great on formula.

Good luck to you.
 

Transplantmommy

New member
It's hard for me to say whether the pregnancy really did anything to my lungs. I went into the pregnancy already needing a transplant. I had an FEV1 of 40% when I found out that I was pregnant. I carried the baby for 33 weeks and at the end of it all, I had only lost 3% of my FEV1. But then, I continued to decline from there and was listed for the transplant in August 2006.
<br />
<br />Overall, you really just need to make sure that you get to the doctor when you feel like you are starting to get sick. I went to my CF doc and high risk OBGYN about every 2 weeks throughout the whole pregnancy. I think that is the main reason that I stayed fairly healthy even though my lungs were really crappy.
<br />
<br />As for the breast feeding, I had been told that I couldn't do it because of the meds that I was on and that it would take too many nutrients away from me. I was fine with that and Brady did great on formula.
<br />
<br />Good luck to you.
 
Top