blech, cough's back

[TestifyToLove]

Except Loulou, as I have shared before, this is NOT all M has ever known. We've had him for 18 months. The birthhome did NOTHING for his CF and the fosterhome did only the minimum to not have CPS come after her for medical neglect as well.

So, for M, yes, he is a little lost boy who does not understand why his forever home requires all of these treatments and therapies. He is still searching for the key to make us stop, because he does know a life without care. And, he's not intelligent enough to piece together that this regiment is precisely why he can now breath when he was blue around the edges and struggling for air when he came home.

 

[TestifyToLove]

Except Loulou, as I have shared before, this is NOT all M has ever known. We've had him for 18 months. The birthhome did NOTHING for his CF and the fosterhome did only the minimum to not have CPS come after her for medical neglect as well.

So, for M, yes, he is a little lost boy who does not understand why his forever home requires all of these treatments and therapies. He is still searching for the key to make us stop, because he does know a life without care. And, he's not intelligent enough to piece together that this regiment is precisely why he can now breath when he was blue around the edges and struggling for air when he came home.

 

[TestifyToLove]

Except Loulou, as I have shared before, this is NOT all M has ever known. We've had him for 18 months. The birthhome did NOTHING for his CF and the fosterhome did only the minimum to not have CPS come after her for medical neglect as well.

So, for M, yes, he is a little lost boy who does not understand why his forever home requires all of these treatments and therapies. He is still searching for the key to make us stop, because he does know a life without care. And, he's not intelligent enough to piece together that this regiment is precisely why he can now breath when he was blue around the edges and struggling for air when he came home.

 

[TestifyToLove]

Except Loulou, as I have shared before, this is NOT all M has ever known. We've had him for 18 months. The birthhome did NOTHING for his CF and the fosterhome did only the minimum to not have CPS come after her for medical neglect as well.

So, for M, yes, he is a little lost boy who does not understand why his forever home requires all of these treatments and therapies. He is still searching for the key to make us stop, because he does know a life without care. And, he's not intelligent enough to piece together that this regiment is precisely why he can now breath when he was blue around the edges and struggling for air when he came home.

 

[TestifyToLove]

Except Loulou, as I have shared before, this is NOT all M has ever known. We've had him for 18 months. The birthhome did NOTHING for his CF and the fosterhome did only the minimum to not have CPS come after her for medical neglect as well.
<br />
<br />So, for M, yes, he is a little lost boy who does not understand why his forever home requires all of these treatments and therapies. He is still searching for the key to make us stop, because he does know a life without care. And, he's not intelligent enough to piece together that this regiment is precisely why he can now breath when he was blue around the edges and struggling for air when he came home.

 

[dasjsmum]

My daughter (wcf) actually is an occupational therapist who works in a large school for children with autism. It is her passion.

She also set up a special room at church which she ran for the parent's of a child with autism (who's other son happens to be my 13 yr olds BF) and other children with special needs, so that they(the family) could spend the morning at church together, being fully aware of the issues surounding having a child with autism.

I am sorry you are struggling ttl. I hope you have support systems in place to assist you. Are you also a member of an autism forum? I know that I have investigated the diabetes side of things to educate myself and find others who understand the issues I face.

It is true that I cannot understand the issues you have with cf and autism. Likewise, you do not understand the issues we face with diabetes and cf (which incidently has the capacity to impact terribly on my child's life expectancy when coupled with cf). The hope I have is that the vertex drug willhold my son's cf and we will only have to deal with his diabetes.

I know we have had difficulties in the past. lets put that aside. We are all here to support each other. I feel for you and hope all goes well. The last thing I want to do is add to your stress okay <img src="">

 

[dasjsmum]

My daughter (wcf) actually is an occupational therapist who works in a large school for children with autism. It is her passion.

She also set up a special room at church which she ran for the parent's of a child with autism (who's other son happens to be my 13 yr olds BF) and other children with special needs, so that they(the family) could spend the morning at church together, being fully aware of the issues surounding having a child with autism.

I am sorry you are struggling ttl. I hope you have support systems in place to assist you. Are you also a member of an autism forum? I know that I have investigated the diabetes side of things to educate myself and find others who understand the issues I face.

It is true that I cannot understand the issues you have with cf and autism. Likewise, you do not understand the issues we face with diabetes and cf (which incidently has the capacity to impact terribly on my child's life expectancy when coupled with cf). The hope I have is that the vertex drug willhold my son's cf and we will only have to deal with his diabetes.

I know we have had difficulties in the past. lets put that aside. We are all here to support each other. I feel for you and hope all goes well. The last thing I want to do is add to your stress okay <img src="">

 

[dasjsmum]

My daughter (wcf) actually is an occupational therapist who works in a large school for children with autism. It is her passion.

She also set up a special room at church which she ran for the parent's of a child with autism (who's other son happens to be my 13 yr olds BF) and other children with special needs, so that they(the family) could spend the morning at church together, being fully aware of the issues surounding having a child with autism.

I am sorry you are struggling ttl. I hope you have support systems in place to assist you. Are you also a member of an autism forum? I know that I have investigated the diabetes side of things to educate myself and find others who understand the issues I face.

It is true that I cannot understand the issues you have with cf and autism. Likewise, you do not understand the issues we face with diabetes and cf (which incidently has the capacity to impact terribly on my child's life expectancy when coupled with cf). The hope I have is that the vertex drug willhold my son's cf and we will only have to deal with his diabetes.

I know we have had difficulties in the past. lets put that aside. We are all here to support each other. I feel for you and hope all goes well. The last thing I want to do is add to your stress okay <img src="">

 

[dasjsmum]

My daughter (wcf) actually is an occupational therapist who works in a large school for children with autism. It is her passion.

She also set up a special room at church which she ran for the parent's of a child with autism (who's other son happens to be my 13 yr olds BF) and other children with special needs, so that they(the family) could spend the morning at church together, being fully aware of the issues surounding having a child with autism.

I am sorry you are struggling ttl. I hope you have support systems in place to assist you. Are you also a member of an autism forum? I know that I have investigated the diabetes side of things to educate myself and find others who understand the issues I face.

It is true that I cannot understand the issues you have with cf and autism. Likewise, you do not understand the issues we face with diabetes and cf (which incidently has the capacity to impact terribly on my child's life expectancy when coupled with cf). The hope I have is that the vertex drug willhold my son's cf and we will only have to deal with his diabetes.

I know we have had difficulties in the past. lets put that aside. We are all here to support each other. I feel for you and hope all goes well. The last thing I want to do is add to your stress okay <img src="">

 

[dasjsmum]

My daughter (wcf) actually is an occupational therapist who works in a large school for children with autism. It is her passion.
<br />
<br />She also set up a special room at church which she ran for the parent's of a child with autism (who's other son happens to be my 13 yr olds BF) and other children with special needs, so that they(the family) could spend the morning at church together, being fully aware of the issues surounding having a child with autism.
<br />
<br />I am sorry you are struggling ttl. I hope you have support systems in place to assist you. Are you also a member of an autism forum? I know that I have investigated the diabetes side of things to educate myself and find others who understand the issues I face.
<br />
<br />It is true that I cannot understand the issues you have with cf and autism. Likewise, you do not understand the issues we face with diabetes and cf (which incidently has the capacity to impact terribly on my child's life expectancy when coupled with cf). The hope I have is that the vertex drug willhold my son's cf and we will only have to deal with his diabetes.
<br />
<br />I know we have had difficulties in the past. lets put that aside. We are all here to support each other. I feel for you and hope all goes well. The last thing I want to do is add to your stress okay <img src="">