Blood test results from TX eval

Skye · May 17, 2008

Piper.....well girl I think you need a break! I agree with you that the emotional roller coaster of coming to grips with being evaluated is quite enough. It is very emotional and very difficult....so you are not losing your mind! I think I would try to concentrate on that 97% and get the test as soon as you can to relieve your mind. Remember they are looking in every "nook and cranny" to find any potential problems and they are bound to want to look further with some of the testing they do. I did not have your situation; but, I will share that when I had my heart cath done, during the bubble study before they found some unusual things. I was freaked freaked, more because of the way they handled it. I found out I have a congenital heart thingie and had to wait a few days to find out that would not interfere with tx and that it was repairable and not a big deal. It was all-consuming though when it initially happened because the whole thing is so darn overwhelming!!! I don't tell you that to freak you out about the heart cath, I think that was very unusual! I just wanted to share with you that probably all who get evaluated get called about more testing for one issue or another. Hope this helps.

Karen

Skye · May 17, 2008

Piper.....well girl I think you need a break! I agree with you that the emotional roller coaster of coming to grips with being evaluated is quite enough. It is very emotional and very difficult....so you are not losing your mind! I think I would try to concentrate on that 97% and get the test as soon as you can to relieve your mind. Remember they are looking in every "nook and cranny" to find any potential problems and they are bound to want to look further with some of the testing they do. I did not have your situation; but, I will share that when I had my heart cath done, during the bubble study before they found some unusual things. I was freaked freaked, more because of the way they handled it. I found out I have a congenital heart thingie and had to wait a few days to find out that would not interfere with tx and that it was repairable and not a big deal. It was all-consuming though when it initially happened because the whole thing is so darn overwhelming!!! I don't tell you that to freak you out about the heart cath, I think that was very unusual! I just wanted to share with you that probably all who get evaluated get called about more testing for one issue or another. Hope this helps.

Karen

Skye · May 17, 2008

Piper.....well girl I think you need a break! I agree with you that the emotional roller coaster of coming to grips with being evaluated is quite enough. It is very emotional and very difficult....so you are not losing your mind! I think I would try to concentrate on that 97% and get the test as soon as you can to relieve your mind. Remember they are looking in every "nook and cranny" to find any potential problems and they are bound to want to look further with some of the testing they do. I did not have your situation; but, I will share that when I had my heart cath done, during the bubble study before they found some unusual things. I was freaked freaked, more because of the way they handled it. I found out I have a congenital heart thingie and had to wait a few days to find out that would not interfere with tx and that it was repairable and not a big deal. It was all-consuming though when it initially happened because the whole thing is so darn overwhelming!!! I don't tell you that to freak you out about the heart cath, I think that was very unusual! I just wanted to share with you that probably all who get evaluated get called about more testing for one issue or another. Hope this helps.

Karen

Skye · May 17, 2008

Piper.....well girl I think you need a break! I agree with you that the emotional roller coaster of coming to grips with being evaluated is quite enough. It is very emotional and very difficult....so you are not losing your mind! I think I would try to concentrate on that 97% and get the test as soon as you can to relieve your mind. Remember they are looking in every "nook and cranny" to find any potential problems and they are bound to want to look further with some of the testing they do. I did not have your situation; but, I will share that when I had my heart cath done, during the bubble study before they found some unusual things. I was freaked freaked, more because of the way they handled it. I found out I have a congenital heart thingie and had to wait a few days to find out that would not interfere with tx and that it was repairable and not a big deal. It was all-consuming though when it initially happened because the whole thing is so darn overwhelming!!! I don't tell you that to freak you out about the heart cath, I think that was very unusual! I just wanted to share with you that probably all who get evaluated get called about more testing for one issue or another. Hope this helps.

Karen

Skye · May 17, 2008

Piper.....well girl I think you need a break! I agree with you that the emotional roller coaster of coming to grips with being evaluated is quite enough. It is very emotional and very difficult....so you are not losing your mind! I think I would try to concentrate on that 97% and get the test as soon as you can to relieve your mind. Remember they are looking in every "nook and cranny" to find any potential problems and they are bound to want to look further with some of the testing they do. I did not have your situation; but, I will share that when I had my heart cath done, during the bubble study before they found some unusual things. I was freaked freaked, more because of the way they handled it. I found out I have a congenital heart thingie and had to wait a few days to find out that would not interfere with tx and that it was repairable and not a big deal. It was all-consuming though when it initially happened because the whole thing is so darn overwhelming!!! I don't tell you that to freak you out about the heart cath, I think that was very unusual! I just wanted to share with you that probably all who get evaluated get called about more testing for one issue or another. Hope this helps.
 
 Karen

shamrock · May 17, 2008

Hi, just to let you know, I tested positive for hepatitis C at my tx eval too. It took forever to get the results the second time around, but they came back as negative. They said it was a rogue/false positive.

I really worried about mine too. But they said, liklihood I would be ill (aside from the CF side of things of course!) if I actually did have it which was some consolation while I waited.

I'm sure you'll be fine <img src="i/expressions/face-icon-small-smile.gif" border="0">

shamrock · May 17, 2008

Hi, just to let you know, I tested positive for hepatitis C at my tx eval too. It took forever to get the results the second time around, but they came back as negative. They said it was a rogue/false positive.

I really worried about mine too. But they said, liklihood I would be ill (aside from the CF side of things of course!) if I actually did have it which was some consolation while I waited.

I'm sure you'll be fine <img src="i/expressions/face-icon-small-smile.gif" border="0">

shamrock · May 17, 2008

Hi, just to let you know, I tested positive for hepatitis C at my tx eval too. It took forever to get the results the second time around, but they came back as negative. They said it was a rogue/false positive.

I really worried about mine too. But they said, liklihood I would be ill (aside from the CF side of things of course!) if I actually did have it which was some consolation while I waited.

I'm sure you'll be fine <img src="i/expressions/face-icon-small-smile.gif" border="0">

shamrock · May 17, 2008

Hi, just to let you know, I tested positive for hepatitis C at my tx eval too. It took forever to get the results the second time around, but they came back as negative. They said it was a rogue/false positive.

I really worried about mine too. But they said, liklihood I would be ill (aside from the CF side of things of course!) if I actually did have it which was some consolation while I waited.

I'm sure you'll be fine <img src="i/expressions/face-icon-small-smile.gif" border="0">

shamrock · May 17, 2008

Hi, just to let you know, I tested positive for hepatitis C at my tx eval too. It took forever to get the results the second time around, but they came back as negative. They said it was a rogue/false positive.
 
 I really worried about mine too. But they said, liklihood I would be ill (aside from the CF side of things of course!) if I actually did have it which was some consolation while I waited.
 
 I'm sure you'll be fine <img src="i/expressions/face-icon-small-smile.gif" border="0">

Breezy · May 17, 2008

Same thing happened to me! If you ever gotten a blood transfusion, or blood by product transfusion (like I get monthly) there's a chance that it's THAT blood that could have been exposed to it.

I have markers in my blood showing i've been exposed to it, not that I have it, and the doc assured me that it's nothing to worry about at all.

I hoep you feel better!

Breezy · May 17, 2008

Same thing happened to me! If you ever gotten a blood transfusion, or blood by product transfusion (like I get monthly) there's a chance that it's THAT blood that could have been exposed to it.

I have markers in my blood showing i've been exposed to it, not that I have it, and the doc assured me that it's nothing to worry about at all.

I hoep you feel better!

Breezy · May 17, 2008

Same thing happened to me! If you ever gotten a blood transfusion, or blood by product transfusion (like I get monthly) there's a chance that it's THAT blood that could have been exposed to it.

I have markers in my blood showing i've been exposed to it, not that I have it, and the doc assured me that it's nothing to worry about at all.

I hoep you feel better!

Breezy · May 17, 2008

Same thing happened to me! If you ever gotten a blood transfusion, or blood by product transfusion (like I get monthly) there's a chance that it's THAT blood that could have been exposed to it.

I have markers in my blood showing i've been exposed to it, not that I have it, and the doc assured me that it's nothing to worry about at all.

I hoep you feel better!

Breezy · May 17, 2008

Same thing happened to me! If you ever gotten a blood transfusion, or blood by product transfusion (like I get monthly) there's a chance that it's THAT blood that could have been exposed to it.
 
 I have markers in my blood showing i've been exposed to it, not that I have it, and the doc assured me that it's nothing to worry about at all.
 
 I hoep you feel better!

shamrock · May 17, 2008