Bowel cancer and CF

L

lilaonholiday

New member
Sorry my last message didn't send I don't think.
<br />I would like to thank-you both for such kind and supportive words. Really makes a difference to know that there are people out there who care so much.
<br />Yesterday I spent most of the day crying and feeling pretty much devastated at the thought of telling my daughter the latest prognosis.
<br />Today I shared the news. She is so brave and wonderful. It breaks my heart to think of the sad look in her eyes. However the way that she handled the news made it far easier for me than I had imagined. I realise it is probably the case that she is hiding some of her feelings, or possibly unsure of how to express the emotions she could be having. It's also a lot to take in, and might not seem 'real' at the moment. I'm still having those moments. We are very close and can talk about whatever really, so she knows I'm always here. She is close to other family members too. Counselling has been offered by the hospital, but she said no way.
<br />Love to all here and thanks again. Karen
 
L

lilaonholiday

New member
Sorry my last message didn't send I don't think.
I would like to thank-you both for such kind and supportive words. Really makes a difference to know that there are people out there who care so much.
Yesterday I spent most of the day crying and feeling pretty much devastated at the thought of telling my daughter the latest prognosis.
Today I shared the news. She is so brave and wonderful. It breaks my heart to think of the sad look in her eyes. However the way that she handled the news made it far easier for me than I had imagined. I realise it is probably the case that she is hiding some of her feelings, or possibly unsure of how to express the emotions she could be having. It's also a lot to take in, and might not seem 'real' at the moment. I'm still having those moments. We are very close and can talk about whatever really, so she knows I'm always here. She is close to other family members too. Counselling has been offered by the hospital, but she said no way.
Love to all here and thanks again. Karen
 
L

lilaonholiday

New member
Sorry my last message didn't send I don't think.
I would like to thank-you both for such kind and supportive words. Really makes a difference to know that there are people out there who care so much.
Yesterday I spent most of the day crying and feeling pretty much devastated at the thought of telling my daughter the latest prognosis.
Today I shared the news. She is so brave and wonderful. It breaks my heart to think of the sad look in her eyes. However the way that she handled the news made it far easier for me than I had imagined. I realise it is probably the case that she is hiding some of her feelings, or possibly unsure of how to express the emotions she could be having. It's also a lot to take in, and might not seem 'real' at the moment. I'm still having those moments. We are very close and can talk about whatever really, so she knows I'm always here. She is close to other family members too. Counselling has been offered by the hospital, but she said no way.
Love to all here and thanks again. Karen
 
L

lilaonholiday

New member
Sorry my last message didn't send I don't think.
<br />I would like to thank-you both for such kind and supportive words. Really makes a difference to know that there are people out there who care so much.
<br />Yesterday I spent most of the day crying and feeling pretty much devastated at the thought of telling my daughter the latest prognosis.
<br />Today I shared the news. She is so brave and wonderful. It breaks my heart to think of the sad look in her eyes. However the way that she handled the news made it far easier for me than I had imagined. I realise it is probably the case that she is hiding some of her feelings, or possibly unsure of how to express the emotions she could be having. It's also a lot to take in, and might not seem 'real' at the moment. I'm still having those moments. We are very close and can talk about whatever really, so she knows I'm always here. She is close to other family members too. Counselling has been offered by the hospital, but she said no way.
<br />Love to all here and thanks again. Karen
 
L

lilaonholiday

New member
Thanks JennifersHope and Lilywing. My last 2 messages haven't posted, so hope this one does. Your words of comfort and support are so much appreciated at this time. My daughter is now fully aware of the situation. She's being so strong. She's back in school and has started her GCSE courses. I'm still trying to decide whether or not to chemo. I'm worried I won't get through it due to the risks of further infection. I'm taking high doses of curcumin, milk thistle and lots of dried apricot kernals. I'm thinking of trying Gerson Therapy. It's a bit like the diet mentioned above in one of the posts, with lots of fresh juices (13 a day). Wouldn't work with the chemo though, as it's an intensive detox. It appeals more than chemo but no scientific proof that it could extend my life. Could be a lot of hard work and not produce any results. Also not sure how it would work with CF and needing lots of calories. I need to probably read more about it and talk to a practitioner before making a choice.
 
L

lilaonholiday

New member
Thanks JennifersHope and Lilywing. My last 2 messages haven't posted, so hope this one does. Your words of comfort and support are so much appreciated at this time. My daughter is now fully aware of the situation. She's being so strong. She's back in school and has started her GCSE courses. I'm still trying to decide whether or not to chemo. I'm worried I won't get through it due to the risks of further infection. I'm taking high doses of curcumin, milk thistle and lots of dried apricot kernals. I'm thinking of trying Gerson Therapy. It's a bit like the diet mentioned above in one of the posts, with lots of fresh juices (13 a day). Wouldn't work with the chemo though, as it's an intensive detox. It appeals more than chemo but no scientific proof that it could extend my life. Could be a lot of hard work and not produce any results. Also not sure how it would work with CF and needing lots of calories. I need to probably read more about it and talk to a practitioner before making a choice.
 
L

lilaonholiday

New member
Thanks JennifersHope and Lilywing. My last 2 messages haven't posted, so hope this one does. Your words of comfort and support are so much appreciated at this time. My daughter is now fully aware of the situation. She's being so strong. She's back in school and has started her GCSE courses. I'm still trying to decide whether or not to chemo. I'm worried I won't get through it due to the risks of further infection. I'm taking high doses of curcumin, milk thistle and lots of dried apricot kernals. I'm thinking of trying Gerson Therapy. It's a bit like the diet mentioned above in one of the posts, with lots of fresh juices (13 a day). Wouldn't work with the chemo though, as it's an intensive detox. It appeals more than chemo but no scientific proof that it could extend my life. Could be a lot of hard work and not produce any results. Also not sure how it would work with CF and needing lots of calories. I need to probably read more about it and talk to a practitioner before making a choice.
 
P

PinkPigg

New member
Hey Jennifer. I saw your post above. Could you tell me the name of the doctor and CF care center doing the research on the correlation between CF and colon cancer? Since my diagnosis, I'm becoming aware of more people with this issue. I think no one has noticed a correlation until now because we are finally living long enough to develop the cancer...ah the joys of CF <img src="i/expressions/face-icon-small-smile.gif" border="0">

I'd like to find out where things are on this issue in terms of research and the CFF's position regarding early screening etc. It seems to me that early screenings would be a good idea and I'm wanting to get the ball rolling as an advocate for that.

Thanks for any info you can provide.

Peace,

Steph

P.S. I also sent you a PM but figured I'd post here too in case you don't get notified of PMs.
 
P

PinkPigg

New member
Hey Jennifer. I saw your post above. Could you tell me the name of the doctor and CF care center doing the research on the correlation between CF and colon cancer? Since my diagnosis, I'm becoming aware of more people with this issue. I think no one has noticed a correlation until now because we are finally living long enough to develop the cancer...ah the joys of CF <img src="i/expressions/face-icon-small-smile.gif" border="0">

I'd like to find out where things are on this issue in terms of research and the CFF's position regarding early screening etc. It seems to me that early screenings would be a good idea and I'm wanting to get the ball rolling as an advocate for that.

Thanks for any info you can provide.

Peace,

Steph

P.S. I also sent you a PM but figured I'd post here too in case you don't get notified of PMs.
 
P

PinkPigg

New member
Hey Jennifer. I saw your post above. Could you tell me the name of the doctor and CF care center doing the research on the correlation between CF and colon cancer? Since my diagnosis, I'm becoming aware of more people with this issue. I think no one has noticed a correlation until now because we are finally living long enough to develop the cancer...ah the joys of CF <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />I'd like to find out where things are on this issue in terms of research and the CFF's position regarding early screening etc. It seems to me that early screenings would be a good idea and I'm wanting to get the ball rolling as an advocate for that.
<br />
<br />Thanks for any info you can provide.
<br />
<br />Peace,
<br />
<br />Steph
<br />
<br />P.S. I also sent you a PM but figured I'd post here too in case you don't get notified of PMs.
 
M

mconvento

New member
<P>Hi Lila, </P>
<P>We also have a wonderful friend who was recently diagnosed with bowel cancer. She writes a very honest (and inspiring) blog with her twin sister. You might want to check it out: <A href="http://www.thepoweroftwomovie.com/category/ana-isa/">http://www.thepoweroftwomovie.com/category/ana-isa/</A></P>
<P>I'll keep you in my warm thoughts and prayers too! </P>
<P>Mary</P>
<P> </P>
 
M

mconvento

New member
<P>Hi Lila, </P>
<P>We also havea wonderful friend who was recently diagnosed with bowel cancer.Shewrites a very honest (and inspiring) blog with her twin sister.You might want tocheck it out: <A href="http://www.thepoweroftwomovie.com/category/ana-isa/">http://www.thepoweroftwomovie.com/category/ana-isa/</A></P>
<P>I'llkeep you in my warm thoughts and prayers too! </P>
<P>Mary</P>
<P></P>
 
M

mconvento

New member
<P><BR>Hi Lila, </P>
<P>We also havea wonderful friend who was recently diagnosed with bowel cancer.Shewrites a very honest (and inspiring) blog with her twin sister.You might want tocheck it out: <A href="http://www.thepoweroftwomovie.com/category/ana-isa/">http://www.thepoweroftwomovie.com/category/ana-isa/</A></P>
<P>I'llkeep you in my warm thoughts and prayers too! </P>
<P>Mary</P>
<P></P>
 
A

amstenzel

New member
hi i just saw your post. I am 39 and just got diagnosed with small bowel adenocarcinoma ... how are you? Surviving the chemo ? I just started. Are you post transplant? I am 11 years.  I would love to email. I'm from california: <A href="mailto:amstenzel@gmail.com">amstenzel@gmail.com</A>. THanks...
 
A

amstenzel

New member
hi i just saw your post. I am 39 and just got diagnosed with small bowel adenocarcinoma ... how are you? Surviving the chemo ? I just started. Are you post transplant? I am 11 years. I would love to email. I'm from california: <A href="mailto:amstenzel@gmail.com">amstenzel@gmail.com</A>. THanks...
 
A

amstenzel

New member
<BR>hi i just saw your post. I am 39 and just got diagnosed with small bowel adenocarcinoma ... how are you? Surviving the chemo ? I just started. Are you post transplant? I am 11 years. I would love to email. I'm from california: <A href="mailto:amstenzel@gmail.com">amstenzel@gmail.com</A>. THanks...
 
S

sunflower

New member
<P>I am so sorry to hear you have bowel cancer and  I will add you in my prayers. I can't imagine what your going through but I believe it must be so hard for you. </P>
<P>Please talk to your Dr. to find out what stage your cancer is at before dismissing chemo. I know someone who had bowel cancer they where 76 yrs old now they didn't have CF but, they are still living today ten years on. Please take care and so sorry for you. I hope everything goes well for you. </P>
<P> </P>
<P>Sunflower</P>
<P>___________</P>
<P>Asthma/ABPA</P>
<P>Psuedmonas</P>
<P>Bronchi</P>
<P>40yrs old</P>
<P>DF508-P67L</P>
 
S

sunflower

New member
<P>I am so sorry to hear you have bowel cancer and I will add you in my prayers. I can't imagine what your going through but I believe itmust be so hard for you. </P>
<P>Please talk to your Dr. to find out what stage your cancer is at before dismissing chemo. I know someone who had bowel cancer they where 76 yrs old now they didn't have CF but, they are still living today ten years on. Please take care and so sorry for you. I hope everything goes well for you. </P>
<P></P>
<P>Sunflower</P>
<P>___________</P>
<P>Asthma/ABPA</P>
<P>Psuedmonas</P>
<P>Bronchi</P>
<P>40yrs old</P>
<P>DF508-P67L</P>
 
S

sunflower

New member
<P><BR>I am so sorry to hear you have bowel cancer and I will add you in my prayers. I can't imagine what your going through but I believe itmust be so hard for you. </P>
<P>Please talk to your Dr. to find out what stage your cancer is at before dismissing chemo. I know someone who had bowel cancer they where 76 yrs old now they didn't have CF but, they are still living today ten years on. Please take care and so sorry for you. I hope everything goes well for you. </P>
<P></P>
<P>Sunflower</P>
<P>___________</P>
<P>Asthma/ABPA</P>
<P>Psuedmonas</P>
<P>Bronchi</P>
<P>40yrs old</P>
<P>DF508-P67L</P>
 
B

beleache

New member
Hi Karen,<div><br></div><div>  I dont have anything to add, I just wanted to send you some good vibes, thoughts , prayers & {{{hugs}}} </div><div><br></div><div> Take care & God Bless you  <3  joni</div>
 
You must log in or register to reply here.
Top