C Diff and CF

T

Transplantmommy

New member
I don't really know if there is any direct correlation with c-diff and CF other than the antibiotics but I can tell you that the only time that I was diagnosed with it was after transplant and it was too far gone to be treated with antibiotics or anything and was taken in for emergency on June 14, 2007 to have my colon removed. It was worse than the doctors thought and said that if it wasn't caught when it was, then I would have been dead probably within a week!!

So, let me just say....take this issue very seriously and have it treated agressively!! I had two surgeries after that one to have my small intestine attached to my rectum and then to close the ileostomy. I had the colostomy bag for a total of nine months and it was not fun!! I am just lucky that it was not permanent. Some people have it for the rest of their lives.

Edited to say: I am now on Lactobacillus three times a day for the rest of my life. It helps restore the "good bacteria" in the intestines and keep the infections away.
 
T

Transplantmommy

New member
I don't really know if there is any direct correlation with c-diff and CF other than the antibiotics but I can tell you that the only time that I was diagnosed with it was after transplant and it was too far gone to be treated with antibiotics or anything and was taken in for emergency on June 14, 2007 to have my colon removed. It was worse than the doctors thought and said that if it wasn't caught when it was, then I would have been dead probably within a week!!

So, let me just say....take this issue very seriously and have it treated agressively!! I had two surgeries after that one to have my small intestine attached to my rectum and then to close the ileostomy. I had the colostomy bag for a total of nine months and it was not fun!! I am just lucky that it was not permanent. Some people have it for the rest of their lives.

Edited to say: I am now on Lactobacillus three times a day for the rest of my life. It helps restore the "good bacteria" in the intestines and keep the infections away.
 
T

Transplantmommy

New member
I don't really know if there is any direct correlation with c-diff and CF other than the antibiotics but I can tell you that the only time that I was diagnosed with it was after transplant and it was too far gone to be treated with antibiotics or anything and was taken in for emergency on June 14, 2007 to have my colon removed. It was worse than the doctors thought and said that if it wasn't caught when it was, then I would have been dead probably within a week!!

So, let me just say....take this issue very seriously and have it treated agressively!! I had two surgeries after that one to have my small intestine attached to my rectum and then to close the ileostomy. I had the colostomy bag for a total of nine months and it was not fun!! I am just lucky that it was not permanent. Some people have it for the rest of their lives.

Edited to say: I am now on Lactobacillus three times a day for the rest of my life. It helps restore the "good bacteria" in the intestines and keep the infections away.
 
T

Transplantmommy

New member
I don't really know if there is any direct correlation with c-diff and CF other than the antibiotics but I can tell you that the only time that I was diagnosed with it was after transplant and it was too far gone to be treated with antibiotics or anything and was taken in for emergency on June 14, 2007 to have my colon removed. It was worse than the doctors thought and said that if it wasn't caught when it was, then I would have been dead probably within a week!!

So, let me just say....take this issue very seriously and have it treated agressively!! I had two surgeries after that one to have my small intestine attached to my rectum and then to close the ileostomy. I had the colostomy bag for a total of nine months and it was not fun!! I am just lucky that it was not permanent. Some people have it for the rest of their lives.

Edited to say: I am now on Lactobacillus three times a day for the rest of my life. It helps restore the "good bacteria" in the intestines and keep the infections away.
 
T

Transplantmommy

New member
I don't really know if there is any direct correlation with c-diff and CF other than the antibiotics but I can tell you that the only time that I was diagnosed with it was after transplant and it was too far gone to be treated with antibiotics or anything and was taken in for emergency on June 14, 2007 to have my colon removed. It was worse than the doctors thought and said that if it wasn't caught when it was, then I would have been dead probably within a week!!
<br />
<br />So, let me just say....take this issue very seriously and have it treated agressively!! I had two surgeries after that one to have my small intestine attached to my rectum and then to close the ileostomy. I had the colostomy bag for a total of nine months and it was not fun!! I am just lucky that it was not permanent. Some people have it for the rest of their lives.
<br />
<br />Edited to say: I am now on Lactobacillus three times a day for the rest of my life. It helps restore the "good bacteria" in the intestines and keep the infections away.
 
I

izemmom

New member
I'm surprised I missed this when you originally posted it! I hope by now she's feeling better.

C.diff is not something to be taken lightly, especially in such a little one.

Emily had it twice within 6 months when she was 12 - 18 months old. It put her in the hospital the first time.

I have her on an over the counter pro-biotic and I also really push foods that are naturally high in active cultures. She loves her yogurt and yogurt drink. (Thank goodness they make the DORA ones! lol)

As others have said, I don't think there's necessarily a connection between Cf and C.diff, except that Cfer's in general use more anti-biotics than the general population. I remember reading a D.diff support fourm when Em had it the first time. It seems that some of the members there never really got rid of it. Thank goodness Emily hasn't had any issues with it in a long time.

I have an agreement with our CF doc and our pediatrician that when ever Em goes on oral abx the automatically call in a scrip for Flagyl to be "on file" in case I need it (that way there is no delay in getting it) and they call in the orders for a stool culture just in case. Since we set this up I haven't had to use either option, but I feel better having it in place!
 
I

izemmom

New member
I'm surprised I missed this when you originally posted it! I hope by now she's feeling better.

C.diff is not something to be taken lightly, especially in such a little one.

Emily had it twice within 6 months when she was 12 - 18 months old. It put her in the hospital the first time.

I have her on an over the counter pro-biotic and I also really push foods that are naturally high in active cultures. She loves her yogurt and yogurt drink. (Thank goodness they make the DORA ones! lol)

As others have said, I don't think there's necessarily a connection between Cf and C.diff, except that Cfer's in general use more anti-biotics than the general population. I remember reading a D.diff support fourm when Em had it the first time. It seems that some of the members there never really got rid of it. Thank goodness Emily hasn't had any issues with it in a long time.

I have an agreement with our CF doc and our pediatrician that when ever Em goes on oral abx the automatically call in a scrip for Flagyl to be "on file" in case I need it (that way there is no delay in getting it) and they call in the orders for a stool culture just in case. Since we set this up I haven't had to use either option, but I feel better having it in place!
 
I

izemmom

New member
I'm surprised I missed this when you originally posted it! I hope by now she's feeling better.

C.diff is not something to be taken lightly, especially in such a little one.

Emily had it twice within 6 months when she was 12 - 18 months old. It put her in the hospital the first time.

I have her on an over the counter pro-biotic and I also really push foods that are naturally high in active cultures. She loves her yogurt and yogurt drink. (Thank goodness they make the DORA ones! lol)

As others have said, I don't think there's necessarily a connection between Cf and C.diff, except that Cfer's in general use more anti-biotics than the general population. I remember reading a D.diff support fourm when Em had it the first time. It seems that some of the members there never really got rid of it. Thank goodness Emily hasn't had any issues with it in a long time.

I have an agreement with our CF doc and our pediatrician that when ever Em goes on oral abx the automatically call in a scrip for Flagyl to be "on file" in case I need it (that way there is no delay in getting it) and they call in the orders for a stool culture just in case. Since we set this up I haven't had to use either option, but I feel better having it in place!
 
I

izemmom

New member
I'm surprised I missed this when you originally posted it! I hope by now she's feeling better.

C.diff is not something to be taken lightly, especially in such a little one.

Emily had it twice within 6 months when she was 12 - 18 months old. It put her in the hospital the first time.

I have her on an over the counter pro-biotic and I also really push foods that are naturally high in active cultures. She loves her yogurt and yogurt drink. (Thank goodness they make the DORA ones! lol)

As others have said, I don't think there's necessarily a connection between Cf and C.diff, except that Cfer's in general use more anti-biotics than the general population. I remember reading a D.diff support fourm when Em had it the first time. It seems that some of the members there never really got rid of it. Thank goodness Emily hasn't had any issues with it in a long time.

I have an agreement with our CF doc and our pediatrician that when ever Em goes on oral abx the automatically call in a scrip for Flagyl to be "on file" in case I need it (that way there is no delay in getting it) and they call in the orders for a stool culture just in case. Since we set this up I haven't had to use either option, but I feel better having it in place!
 
I

izemmom

New member
I'm surprised I missed this when you originally posted it! I hope by now she's feeling better.
<br />
<br />C.diff is not something to be taken lightly, especially in such a little one.
<br />
<br />Emily had it twice within 6 months when she was 12 - 18 months old. It put her in the hospital the first time.
<br />
<br />I have her on an over the counter pro-biotic and I also really push foods that are naturally high in active cultures. She loves her yogurt and yogurt drink. (Thank goodness they make the DORA ones! lol)
<br />
<br />As others have said, I don't think there's necessarily a connection between Cf and C.diff, except that Cfer's in general use more anti-biotics than the general population. I remember reading a D.diff support fourm when Em had it the first time. It seems that some of the members there never really got rid of it. Thank goodness Emily hasn't had any issues with it in a long time.
<br />
<br />I have an agreement with our CF doc and our pediatrician that when ever Em goes on oral abx the automatically call in a scrip for Flagyl to be "on file" in case I need it (that way there is no delay in getting it) and they call in the orders for a stool culture just in case. Since we set this up I haven't had to use either option, but I feel better having it in place!
 
K

Kristen

New member
Wow Patti, that sounds awful!

Sarah, I hope your daughter is feeling better now! The only time I had C. diff was when my doctor put me on 60 days of Cipro the first time I cultured PA. It took months for me to be diagnosed - I first ignored it, then I went to the health center at my university (I was in grad school at the time) because I thought it was not CF related - they said it was IBS and put me on some meds that didn't work. Then my CF doctor (who I don't see anymore) told me I must be pancreatic insufficient (yes, the same doc who <i>prescribed </i>me the cipro!) I did not believe him and went to my PCP for a second opinion - he ran a bunch of tests on me and found out it was C diff.

I've suffered from IBS since then, and it was 6 years ago! It has gotten better over time, thankfully, but, like others have said, it's definitely not something to be taken lightly!
 
K

Kristen

New member
Wow Patti, that sounds awful!

Sarah, I hope your daughter is feeling better now! The only time I had C. diff was when my doctor put me on 60 days of Cipro the first time I cultured PA. It took months for me to be diagnosed - I first ignored it, then I went to the health center at my university (I was in grad school at the time) because I thought it was not CF related - they said it was IBS and put me on some meds that didn't work. Then my CF doctor (who I don't see anymore) told me I must be pancreatic insufficient (yes, the same doc who <i>prescribed </i>me the cipro!) I did not believe him and went to my PCP for a second opinion - he ran a bunch of tests on me and found out it was C diff.

I've suffered from IBS since then, and it was 6 years ago! It has gotten better over time, thankfully, but, like others have said, it's definitely not something to be taken lightly!
 
K

Kristen

New member
Wow Patti, that sounds awful!

Sarah, I hope your daughter is feeling better now! The only time I had C. diff was when my doctor put me on 60 days of Cipro the first time I cultured PA. It took months for me to be diagnosed - I first ignored it, then I went to the health center at my university (I was in grad school at the time) because I thought it was not CF related - they said it was IBS and put me on some meds that didn't work. Then my CF doctor (who I don't see anymore) told me I must be pancreatic insufficient (yes, the same doc who <i>prescribed </i>me the cipro!) I did not believe him and went to my PCP for a second opinion - he ran a bunch of tests on me and found out it was C diff.

I've suffered from IBS since then, and it was 6 years ago! It has gotten better over time, thankfully, but, like others have said, it's definitely not something to be taken lightly!
 
K

Kristen

New member
Wow Patti, that sounds awful!

Sarah, I hope your daughter is feeling better now! The only time I had C. diff was when my doctor put me on 60 days of Cipro the first time I cultured PA. It took months for me to be diagnosed - I first ignored it, then I went to the health center at my university (I was in grad school at the time) because I thought it was not CF related - they said it was IBS and put me on some meds that didn't work. Then my CF doctor (who I don't see anymore) told me I must be pancreatic insufficient (yes, the same doc who <i>prescribed </i>me the cipro!) I did not believe him and went to my PCP for a second opinion - he ran a bunch of tests on me and found out it was C diff.

I've suffered from IBS since then, and it was 6 years ago! It has gotten better over time, thankfully, but, like others have said, it's definitely not something to be taken lightly!
 
K

Kristen

New member
Wow Patti, that sounds awful!
<br />
<br />Sarah, I hope your daughter is feeling better now! The only time I had C. diff was when my doctor put me on 60 days of Cipro the first time I cultured PA. It took months for me to be diagnosed - I first ignored it, then I went to the health center at my university (I was in grad school at the time) because I thought it was not CF related - they said it was IBS and put me on some meds that didn't work. Then my CF doctor (who I don't see anymore) told me I must be pancreatic insufficient (yes, the same doc who <i>prescribed </i>me the cipro!) I did not believe him and went to my PCP for a second opinion - he ran a bunch of tests on me and found out it was C diff.
<br />
<br />I've suffered from IBS since then, and it was 6 years ago! It has gotten better over time, thankfully, but, like others have said, it's definitely not something to be taken lightly!
 
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