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Can I ask a favor? Med. question
- Thread starter julie
- Start date
our daughter has albuteral in the morning with CPT and then TOBI 28 days on
then ADEKs with breakfast + 2 enzymes
snack + 1 enzyme
lunch + 2 enzymes
snack +1 enzyme
dinner + 2 enzymes
albuteral + pulmozyme then CPT then TOBI 28 days on
and when she is really sick she adds pulmocort (sp??) with the albuteral
Julie - where do you get your time and energy to keep up your work and commitment? I don't know much about you, but I think you work a full time job....although you don't have any kids (yet <img src="i/expressions/face-icon-small-smile.gif" border="0"> you seem to devote the remaining part of your day to this forum...thanks! Just make sure you make time for Mark <img src="i/expressions/face-icon-small-smile.gif" border="0">
TKK<img src="i/expressions/rose.gif" border="0">
then ADEKs with breakfast + 2 enzymes
snack + 1 enzyme
lunch + 2 enzymes
snack +1 enzyme
dinner + 2 enzymes
albuteral + pulmozyme then CPT then TOBI 28 days on
and when she is really sick she adds pulmocort (sp??) with the albuteral
Julie - where do you get your time and energy to keep up your work and commitment? I don't know much about you, but I think you work a full time job....although you don't have any kids (yet <img src="i/expressions/face-icon-small-smile.gif" border="0"> you seem to devote the remaining part of your day to this forum...thanks! Just make sure you make time for Mark <img src="i/expressions/face-icon-small-smile.gif" border="0">
TKK<img src="i/expressions/rose.gif" border="0">
our daughter has albuteral in the morning with CPT and then TOBI 28 days on
then ADEKs with breakfast + 2 enzymes
snack + 1 enzyme
lunch + 2 enzymes
snack +1 enzyme
dinner + 2 enzymes
albuteral + pulmozyme then CPT then TOBI 28 days on
and when she is really sick she adds pulmocort (sp??) with the albuteral
Julie - where do you get your time and energy to keep up your work and commitment? I don't know much about you, but I think you work a full time job....although you don't have any kids (yet <img src="i/expressions/face-icon-small-smile.gif" border="0"> you seem to devote the remaining part of your day to this forum...thanks! Just make sure you make time for Mark <img src="i/expressions/face-icon-small-smile.gif" border="0">
TKK<img src="i/expressions/rose.gif" border="0">
then ADEKs with breakfast + 2 enzymes
snack + 1 enzyme
lunch + 2 enzymes
snack +1 enzyme
dinner + 2 enzymes
albuteral + pulmozyme then CPT then TOBI 28 days on
and when she is really sick she adds pulmocort (sp??) with the albuteral
Julie - where do you get your time and energy to keep up your work and commitment? I don't know much about you, but I think you work a full time job....although you don't have any kids (yet <img src="i/expressions/face-icon-small-smile.gif" border="0"> you seem to devote the remaining part of your day to this forum...thanks! Just make sure you make time for Mark <img src="i/expressions/face-icon-small-smile.gif" border="0">
TKK<img src="i/expressions/rose.gif" border="0">
TKK, I usually do all my online stuff when I get home from work and mark is still doing his homework downstairs. It gives him some more time to finish up his studies without me bugging him and I get some time to wind down upstairs. Then we have dinner and watch TV, and go to bed. We do get quality time together but he also has a lot of homework so I "stay away" otherwise I distract him, talk his ear off and waste 2 hours of his homework time <img src="i/expressions/face-icon-small-smile.gif" border="0">.
I do work a "full time" job, I'm in the military (not all to happy about that right now but it's turning around) but these last few weeks they've sent me home early because Mark and I just moved up here, I was in limbo about going onto the ship and they really haven't had a job for me, so I've had some extra time at home. it's been nice but I have to Make sure I don't distract Mark from his homework. This kind of cuts into mark's school time (since he does online at home) so I spend a bit more time upstairs on the computer.
Thanks for your nice words, Many on this site have helped me out numerous times... I'm just trying to gather information that might further help everyone out-although I don't have an exact plan yet.
Take care,
Julie (wife to Mark 25 w/CF) At parents house and not logged in
I do work a "full time" job, I'm in the military (not all to happy about that right now but it's turning around) but these last few weeks they've sent me home early because Mark and I just moved up here, I was in limbo about going onto the ship and they really haven't had a job for me, so I've had some extra time at home. it's been nice but I have to Make sure I don't distract Mark from his homework. This kind of cuts into mark's school time (since he does online at home) so I spend a bit more time upstairs on the computer.
Thanks for your nice words, Many on this site have helped me out numerous times... I'm just trying to gather information that might further help everyone out-although I don't have an exact plan yet.
Take care,
Julie (wife to Mark 25 w/CF) At parents house and not logged in
TKK, I usually do all my online stuff when I get home from work and mark is still doing his homework downstairs. It gives him some more time to finish up his studies without me bugging him and I get some time to wind down upstairs. Then we have dinner and watch TV, and go to bed. We do get quality time together but he also has a lot of homework so I "stay away" otherwise I distract him, talk his ear off and waste 2 hours of his homework time <img src="i/expressions/face-icon-small-smile.gif" border="0">.
I do work a "full time" job, I'm in the military (not all to happy about that right now but it's turning around) but these last few weeks they've sent me home early because Mark and I just moved up here, I was in limbo about going onto the ship and they really haven't had a job for me, so I've had some extra time at home. it's been nice but I have to Make sure I don't distract Mark from his homework. This kind of cuts into mark's school time (since he does online at home) so I spend a bit more time upstairs on the computer.
Thanks for your nice words, Many on this site have helped me out numerous times... I'm just trying to gather information that might further help everyone out-although I don't have an exact plan yet.
Take care,
Julie (wife to Mark 25 w/CF) At parents house and not logged in
I do work a "full time" job, I'm in the military (not all to happy about that right now but it's turning around) but these last few weeks they've sent me home early because Mark and I just moved up here, I was in limbo about going onto the ship and they really haven't had a job for me, so I've had some extra time at home. it's been nice but I have to Make sure I don't distract Mark from his homework. This kind of cuts into mark's school time (since he does online at home) so I spend a bit more time upstairs on the computer.
Thanks for your nice words, Many on this site have helped me out numerous times... I'm just trying to gather information that might further help everyone out-although I don't have an exact plan yet.
Take care,
Julie (wife to Mark 25 w/CF) At parents house and not logged in
Haileysmommy
New member
Hailey takes:
Ultrase- 5/meal 3-4/snack
ADEK's- 2ml/day
Albuterol inhaler- 2puffs 2xday and as needed
Flovent 44- 2 puffs 2xday
Miralax- 1capfull daily
Omnicef- 1tsp 3xday
Albuterol neb- as needed
Ultrase- 5/meal 3-4/snack
ADEK's- 2ml/day
Albuterol inhaler- 2puffs 2xday and as needed
Flovent 44- 2 puffs 2xday
Miralax- 1capfull daily
Omnicef- 1tsp 3xday
Albuterol neb- as needed
Haileysmommy
New member
Hailey takes:
Ultrase- 5/meal 3-4/snack
ADEK's- 2ml/day
Albuterol inhaler- 2puffs 2xday and as needed
Flovent 44- 2 puffs 2xday
Miralax- 1capfull daily
Omnicef- 1tsp 3xday
Albuterol neb- as needed
Ultrase- 5/meal 3-4/snack
ADEK's- 2ml/day
Albuterol inhaler- 2puffs 2xday and as needed
Flovent 44- 2 puffs 2xday
Miralax- 1capfull daily
Omnicef- 1tsp 3xday
Albuterol neb- as needed
my daughter takes:
pulmozyme 1 per day for CF
albuteral as needed (maybe 1 or 2 times a month) for CF/asthma
flovent 2 times per day for CF/asthma
Levbid 2 times a day for intestinal spasm
Nexium 1 per day for acid reflux and bleeding stomach lining
Nuvaring 3 weeks in for birth control
pulmozyme 1 per day for CF
albuteral as needed (maybe 1 or 2 times a month) for CF/asthma
flovent 2 times per day for CF/asthma
Levbid 2 times a day for intestinal spasm
Nexium 1 per day for acid reflux and bleeding stomach lining
Nuvaring 3 weeks in for birth control
my daughter takes:
pulmozyme 1 per day for CF
albuteral as needed (maybe 1 or 2 times a month) for CF/asthma
flovent 2 times per day for CF/asthma
Levbid 2 times a day for intestinal spasm
Nexium 1 per day for acid reflux and bleeding stomach lining
Nuvaring 3 weeks in for birth control
pulmozyme 1 per day for CF
albuteral as needed (maybe 1 or 2 times a month) for CF/asthma
flovent 2 times per day for CF/asthma
Levbid 2 times a day for intestinal spasm
Nexium 1 per day for acid reflux and bleeding stomach lining
Nuvaring 3 weeks in for birth control