Can two people with cf date?

lelliellie

New member
II've always been told that it's a really bad idea :S And if you had kids and your baby had CF then you could give it all sorts of infections before it's even born
 

lelliellie

New member
II've always been told that it's a really bad idea :S And if you had kids and your baby had CF then you could give it all sorts of infections before it's even born
 

lelliellie

New member
II've always been told that it's a really bad idea :S And if you had kids and your baby had CF then you could give it all sorts of infections before it's even born
 
J

JenniferRose65

Guest
I've always been confused by this- especially that episode of Grey's Anatomy.
But what about family members that have CF? I know plenty of families that have 2 or 3 children with CF, or mothers/fathers with CF that have children with CF- why (aside from the obvious) is this any different?
I'm the only one in my family with CF so I don't know what the family dynamic is like with multiple CFers in the same house, but I've always been curious
 
J

JenniferRose65

Guest
I've always been confused by this- especially that episode of Grey's Anatomy.
But what about family members that have CF? I know plenty of families that have 2 or 3 children with CF, or mothers/fathers with CF that have children with CF- why (aside from the obvious) is this any different?
I'm the only one in my family with CF so I don't know what the family dynamic is like with multiple CFers in the same house, but I've always been curious
 
J

JenniferRose65

Guest
I've always been confused by this- especially that episode of Grey's Anatomy.
<br />But what about family members that have CF? I know plenty of families that have 2 or 3 children with CF, or mothers/fathers with CF that have children with CF- why (aside from the obvious) is this any different?
<br />I'm the only one in my family with CF so I don't know what the family dynamic is like with multiple CFers in the same house, but I've always been curious
 

seleven

New member
I have a little brother with CF and we have lived together forever. We both grow different bugs and have different treatment plans as his cf is more severe than mine. When we were younger we usually would grow bugs at the same time and be put on antibiotics usually around the same times, but as we got older it changed, and now we hardly ever are on meds at the same time. We have contact as any siblings would and neither of us has fallen seriously ill. I obviously would do anything for him not to have CF, but its nice to have someone there who can relate to you and someone who you know will always understand and support you. And, always a back up source of enzymes! haha.
I think this situation is a tough one and I think it ultimately just comes down to the fact that you have to live your life to its fullest. Yes, its important to be safe and protect yourself but if the person you love has cf too, you may be willing to put in that extra effort that it will take to be together
 

seleven

New member
I have a little brother with CF and we have lived together forever. We both grow different bugs and have different treatment plans as his cf is more severe than mine. When we were younger we usually would grow bugs at the same time and be put on antibiotics usually around the same times, but as we got older it changed, and now we hardly ever are on meds at the same time. We have contact as any siblings would and neither of us has fallen seriously ill. I obviously would do anything for him not to have CF, but its nice to have someone there who can relate to you and someone who you know will always understand and support you. And, always a back up source of enzymes! haha.
I think this situation is a tough one and I think it ultimately just comes down to the fact that you have to live your life to its fullest. Yes, its important to be safe and protect yourself but if the person you love has cf too, you may be willing to put in that extra effort that it will take to be together
 

seleven

New member
I have a little brother with CF and we have lived together forever. We both grow different bugs and have different treatment plans as his cf is more severe than mine. When we were younger we usually would grow bugs at the same time and be put on antibiotics usually around the same times, but as we got older it changed, and now we hardly ever are on meds at the same time. We have contact as any siblings would and neither of us has fallen seriously ill. I obviously would do anything for him not to have CF, but its nice to have someone there who can relate to you and someone who you know will always understand and support you. And, always a back up source of enzymes! haha.
<br />I think this situation is a tough one and I think it ultimately just comes down to the fact that you have to live your life to its fullest. Yes, its important to be safe and protect yourself but if the person you love has cf too, you may be willing to put in that extra effort that it will take to be together
 
P

patrish22

Guest
I always wondered about this myself. I had 3 kids in the house with CF. When they were in peds., I was always arguing with the head doc of our clinic because he said I should have them wear masks! Are you kidding me?! Life was tough enough on them and we felt it was important to try to have some sense of normalcy. Both my daughters grew pseudomonus, but it wasn"t until recently that my son started to grow it, (and they haven't lived together in 7 years!) So go figure. I always say that this is a crap shoot disease. They are now in their 20's. My 1 daughter passed away a few months ago, (lungs did not get to her in time) and the other two are married to non-Cf'ers. My daughter and son-in-law don't want children, not because of CF, this is just their choice, my son and daughter-in-law hope to some day. I had so many mixed feelings about the CF episode on Grey's Anatomy.  I do wonder how the transplant centers feel on this subject? Would they give a transplant to a couple who both have CF? Anyway, I feel this is a personal choice. I would love to hear from any CF couples who may be out there and get their opinions.
 
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patrish22

Guest
I always wondered about this myself. I had 3 kids in the house with CF. When they were in peds., I was always arguing with the head doc of our clinic because he said I should have themwear masks! Are you kidding me?! Life was tough enough on them and we felt it was important to try to have some sense of normalcy. Both my daughters grew pseudomonus, but it wasn"t until recently that my son started to grow it, (and they haven't lived together in 7 years!) So go figure.I always say that this is a crap shoot disease. They are now in their 20's. My 1 daughter passed away a few months ago, (lungs did not get to her in time)and the other two are married to non-Cf'ers. My daughter and son-in-law don't want children, not because of CF, this is justtheir choice, my son and daughter-in-law hope to some day.I had so many mixed feelings about the CF episode on Grey's Anatomy. I do wonder how the transplant centers feel on this subject? Would they give a transplant to a couple who both have CF? Anyway, I feel this is a personal choice. I would love to hear from any CF couples who may be out there and get their opinions.
 
P

patrish22

Guest
<BR>I always wondered about this myself. I had 3 kids in the house with CF. When they were in peds., I was always arguing with the head doc of our clinic because he said I should have themwear masks! Are you kidding me?! Life was tough enough on them and we felt it was important to try to have some sense of normalcy. Both my daughters grew pseudomonus, but it wasn"t until recently that my son started to grow it, (and they haven't lived together in 7 years!) So go figure.I always say that this is a crap shoot disease. They are now in their 20's. My 1 daughter passed away a few months ago, (lungs did not get to her in time)and the other two are married to non-Cf'ers. My daughter and son-in-law don't want children, not because of CF, this is justtheir choice, my son and daughter-in-law hope to some day.I had so many mixed feelings about the CF episode on Grey's Anatomy. I do wonder how the transplant centers feel on this subject? Would they give a transplant to a couple who both have CF? Anyway, I feel this is a personal choice. I would love to hear from any CF couples who may be out there and get their opinions.
 
T

tammykrumrey

Guest
It is risky, because you will share bacteria. But, my nephew w/ CF met a very sweet girl (via Facebook) also w/CF. They connected through Skype, and talked for months upon months and felt that they were just made for each other. She moved 8 hours away from her home to live with him and they were just married last month. YES, they do share bacteria! They knew in advance what each other had. They were completely honest with one another, and yet made the adult choice to still meet. They were deeply in love and CF just wasn't going to stop them.

I am not saying that it is something that I recommend. But I know that my nephew and his bride are so much in love and I don't think there are any regrets. BTW, both are in the hospital at this time and both have very poor FEV1.

Once again, not recommended, but not sure you can help who you fall in love with. I must say that the wedding ws the most emotional one I have ever been to. There was not a dry eye in the room<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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tammykrumrey

Guest
It is risky, because you will share bacteria. But, my nephew w/ CF met a very sweet girl (via Facebook) also w/CF. They connected through Skype, and talked for months upon months and felt that they were just made for each other. She moved 8 hours away from her home to live with him and they were just married last month. YES, they do share bacteria! They knew in advance what each other had. They were completely honest with one another, and yet made the adult choice to still meet. They were deeply in love and CF just wasn't going to stop them.

I am not saying that it is something that I recommend. But I know that my nephew and his bride are so much in love and I don't think there are any regrets. BTW, both are in the hospital at this time and both have very poor FEV1.

Once again, not recommended, but not sure you can help who you fall in love with. I must say that the wedding ws the most emotional one I have ever been to. There was not a dry eye in the room<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
T

tammykrumrey

Guest
It is risky, because you will share bacteria. But, my nephew w/ CF met a very sweet girl (via Facebook) also w/CF. They connected through Skype, and talked for months upon months and felt that they were just made for each other. She moved 8 hours away from her home to live with him and they were just married last month. YES, they do share bacteria! They knew in advance what each other had. They were completely honest with one another, and yet made the adult choice to still meet. They were deeply in love and CF just wasn't going to stop them.
<br />
<br />I am not saying that it is something that I recommend. But I know that my nephew and his bride are so much in love and I don't think there are any regrets. BTW, both are in the hospital at this time and both have very poor FEV1.
<br />
<br />Once again, not recommended, but not sure you can help who you fall in love with. I must say that the wedding ws the most emotional one I have ever been to. There was not a dry eye in the room<img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
 

joyca23

New member
I'm aware of the risks of dating a cf-er but I have to say, I did. We both knew the risks and that we could get sicker but like someone said before, if you love someone you just want to be with that person.
We've been together for almost three years and we both didn't got any sicker.
So I guess I can say that it is possible but you both have to know what risks you're taking and be willing to take them.
 
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