can't sleep, can't breathe

J

Jane

Digital opinion leader
Vicki, if I remember correctly, you are in Massachusetts? Let me know if there anything I can do for you. I'm sure I'm not that far away.

You will feel so much better on oxygen, I hope you are able to start soon! I can't imagine having a toddler when you feel so lousy. Thinking of you!
 
J

Jane

Digital opinion leader
Vicki, if I remember correctly, you are in Massachusetts? Let me know if there anything I can do for you. I'm sure I'm not that far away.

You will feel so much better on oxygen, I hope you are able to start soon! I can't imagine having a toddler when you feel so lousy. Thinking of you!
 
J

Jane

Digital opinion leader
Vicki, if I remember correctly, you are in Massachusetts? Let me know if there anything I can do for you. I'm sure I'm not that far away.

You will feel so much better on oxygen, I hope you are able to start soon! I can't imagine having a toddler when you feel so lousy. Thinking of you!
 
J

Jane

Digital opinion leader
Vicki, if I remember correctly, you are in Massachusetts? Let me know if there anything I can do for you. I'm sure I'm not that far away.

You will feel so much better on oxygen, I hope you are able to start soon! I can't imagine having a toddler when you feel so lousy. Thinking of you!
 
M

mum2kj

New member
The magic recliner goes under your mattress and it is remote controlled. It could propably go on top of the mattress as well.

whatever is more comfortable <img src="i/expressions/face-icon-small-smile.gif" border="0">

I hope you get to feeling heapz better soon!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.globalshopdirect.com.au
">http://www.globalshopdirect.com.au
</a>
scroll down to the magic recliner.

You can google "magic recliner" for the best American price.
 
M

mum2kj

New member
The magic recliner goes under your mattress and it is remote controlled. It could propably go on top of the mattress as well.

whatever is more comfortable <img src="i/expressions/face-icon-small-smile.gif" border="0">

I hope you get to feeling heapz better soon!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.globalshopdirect.com.au
">http://www.globalshopdirect.com.au
</a>
scroll down to the magic recliner.

You can google "magic recliner" for the best American price.
 
M

mum2kj

New member
The magic recliner goes under your mattress and it is remote controlled. It could propably go on top of the mattress as well.

whatever is more comfortable <img src="i/expressions/face-icon-small-smile.gif" border="0">

I hope you get to feeling heapz better soon!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.globalshopdirect.com.au
">http://www.globalshopdirect.com.au
</a>
scroll down to the magic recliner.

You can google "magic recliner" for the best American price.
 
M

mum2kj

New member
The magic recliner goes under your mattress and it is remote controlled. It could propably go on top of the mattress as well.

whatever is more comfortable <img src="i/expressions/face-icon-small-smile.gif" border="0">

I hope you get to feeling heapz better soon!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.globalshopdirect.com.au
">http://www.globalshopdirect.com.au
</a>
scroll down to the magic recliner.

You can google "magic recliner" for the best American price.
 
M

mum2kj

New member
The magic recliner goes under your mattress and it is remote controlled. It could propably go on top of the mattress as well.

whatever is more comfortable <img src="i/expressions/face-icon-small-smile.gif" border="0">

I hope you get to feeling heapz better soon!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.globalshopdirect.com.au
">http://www.globalshopdirect.com.au
</a>
scroll down to the magic recliner.

You can google "magic recliner" for the best American price.
 
M

mum2kj

New member
The magic recliner goes under your mattress and it is remote controlled. It could propably go on top of the mattress as well.

whatever is more comfortable <img src="i/expressions/face-icon-small-smile.gif" border="0">

I hope you get to feeling heapz better soon!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.globalshopdirect.com.au
">http://www.globalshopdirect.com.au
</a>
scroll down to the magic recliner.

You can google "magic recliner" for the best American price.
 
C

coltsfan715

New member
Hey there Vicki,

I am so incredibly sorry that you are suffering the way you are. I hope that your docs are able to assist you with getting the O2 cause I think at this point it will help you tremendously to at least get some rest.

I had a VERY hard time with sleeping before I got transplanted and a horrible time with trying to sleep before I started using O2. I was constantly in a panic and as soon as I would lay down I was out of breath. I found that it helped me to get into bed in stages. I would sit on the bed first and just SIT there for several minutes - anywhere frow 5-10 minutes. For whatever reason the act of sitting and then laying would wear me out - if I did not stop inbetween and catch my breath. After sitting for several minutes and calming myself down I would lay down the rest of the way. I would have to concentrate on slowing my breathing down A LOT. I would normally take about 10-20 minutes to really relax before I was able to fall asleep.

I was NEVER able to really sleep elevated - unless I was sick and in the hospital - the automatic beds made reclining or sitting up very easy to achieve. I slept on either side up until the day of transplant. I would even end up on my stomach on occasion. I had NOT been able to sleep on my back flat in years before transplant. I honestly can not recall when I slept on my back last - before Tx.

I tried the pillows in an A formation as well and THAT was very effective in helping me. It was conforting and also provided JUST enough elevation without being TOO noticeable and this annoying. Also something that you may want to think about is the covers. I noticed that I had a harder time sleeping when I would pull the covers near my face. If I slept with the covers under my arms and away from my neck I slept mroe soundly. It was a claustrophobia thing for me 0 the lack of O2 and the feelings of suffocation made the covers a problem for me. Also trying to make sure I stayed cool - like Joanne said - keeping a fan going to circulate the air and such. That really helped me too.

I will say though the shortness of breath was alleviated the most with the laying down in stages and trying to NOT move until I was asleep once I was in bed. It was NOT fun to sleep that way but I was at the very least able to sleep.

I hope that you are able to get some answers from your doc and that you are able to get O2 to use at home - you do NOT need to suffer this way. I know that anxiety of sleeping without O2 and needing it - it is horrible and trust me you WILL feel a difference when you start using it IF the O2 is the problem. I noticed a difference the very first night when I started using the O2. It was incredible to me the change.

I will be thinking of you,
Lindsey
 
C

coltsfan715

New member
Hey there Vicki,

I am so incredibly sorry that you are suffering the way you are. I hope that your docs are able to assist you with getting the O2 cause I think at this point it will help you tremendously to at least get some rest.

I had a VERY hard time with sleeping before I got transplanted and a horrible time with trying to sleep before I started using O2. I was constantly in a panic and as soon as I would lay down I was out of breath. I found that it helped me to get into bed in stages. I would sit on the bed first and just SIT there for several minutes - anywhere frow 5-10 minutes. For whatever reason the act of sitting and then laying would wear me out - if I did not stop inbetween and catch my breath. After sitting for several minutes and calming myself down I would lay down the rest of the way. I would have to concentrate on slowing my breathing down A LOT. I would normally take about 10-20 minutes to really relax before I was able to fall asleep.

I was NEVER able to really sleep elevated - unless I was sick and in the hospital - the automatic beds made reclining or sitting up very easy to achieve. I slept on either side up until the day of transplant. I would even end up on my stomach on occasion. I had NOT been able to sleep on my back flat in years before transplant. I honestly can not recall when I slept on my back last - before Tx.

I tried the pillows in an A formation as well and THAT was very effective in helping me. It was conforting and also provided JUST enough elevation without being TOO noticeable and this annoying. Also something that you may want to think about is the covers. I noticed that I had a harder time sleeping when I would pull the covers near my face. If I slept with the covers under my arms and away from my neck I slept mroe soundly. It was a claustrophobia thing for me 0 the lack of O2 and the feelings of suffocation made the covers a problem for me. Also trying to make sure I stayed cool - like Joanne said - keeping a fan going to circulate the air and such. That really helped me too.

I will say though the shortness of breath was alleviated the most with the laying down in stages and trying to NOT move until I was asleep once I was in bed. It was NOT fun to sleep that way but I was at the very least able to sleep.

I hope that you are able to get some answers from your doc and that you are able to get O2 to use at home - you do NOT need to suffer this way. I know that anxiety of sleeping without O2 and needing it - it is horrible and trust me you WILL feel a difference when you start using it IF the O2 is the problem. I noticed a difference the very first night when I started using the O2. It was incredible to me the change.

I will be thinking of you,
Lindsey
 
C

coltsfan715

New member
Hey there Vicki,

I am so incredibly sorry that you are suffering the way you are. I hope that your docs are able to assist you with getting the O2 cause I think at this point it will help you tremendously to at least get some rest.

I had a VERY hard time with sleeping before I got transplanted and a horrible time with trying to sleep before I started using O2. I was constantly in a panic and as soon as I would lay down I was out of breath. I found that it helped me to get into bed in stages. I would sit on the bed first and just SIT there for several minutes - anywhere frow 5-10 minutes. For whatever reason the act of sitting and then laying would wear me out - if I did not stop inbetween and catch my breath. After sitting for several minutes and calming myself down I would lay down the rest of the way. I would have to concentrate on slowing my breathing down A LOT. I would normally take about 10-20 minutes to really relax before I was able to fall asleep.

I was NEVER able to really sleep elevated - unless I was sick and in the hospital - the automatic beds made reclining or sitting up very easy to achieve. I slept on either side up until the day of transplant. I would even end up on my stomach on occasion. I had NOT been able to sleep on my back flat in years before transplant. I honestly can not recall when I slept on my back last - before Tx.

I tried the pillows in an A formation as well and THAT was very effective in helping me. It was conforting and also provided JUST enough elevation without being TOO noticeable and this annoying. Also something that you may want to think about is the covers. I noticed that I had a harder time sleeping when I would pull the covers near my face. If I slept with the covers under my arms and away from my neck I slept mroe soundly. It was a claustrophobia thing for me 0 the lack of O2 and the feelings of suffocation made the covers a problem for me. Also trying to make sure I stayed cool - like Joanne said - keeping a fan going to circulate the air and such. That really helped me too.

I will say though the shortness of breath was alleviated the most with the laying down in stages and trying to NOT move until I was asleep once I was in bed. It was NOT fun to sleep that way but I was at the very least able to sleep.

I hope that you are able to get some answers from your doc and that you are able to get O2 to use at home - you do NOT need to suffer this way. I know that anxiety of sleeping without O2 and needing it - it is horrible and trust me you WILL feel a difference when you start using it IF the O2 is the problem. I noticed a difference the very first night when I started using the O2. It was incredible to me the change.

I will be thinking of you,
Lindsey
 
C

coltsfan715

New member
Hey there Vicki,

I am so incredibly sorry that you are suffering the way you are. I hope that your docs are able to assist you with getting the O2 cause I think at this point it will help you tremendously to at least get some rest.

I had a VERY hard time with sleeping before I got transplanted and a horrible time with trying to sleep before I started using O2. I was constantly in a panic and as soon as I would lay down I was out of breath. I found that it helped me to get into bed in stages. I would sit on the bed first and just SIT there for several minutes - anywhere frow 5-10 minutes. For whatever reason the act of sitting and then laying would wear me out - if I did not stop inbetween and catch my breath. After sitting for several minutes and calming myself down I would lay down the rest of the way. I would have to concentrate on slowing my breathing down A LOT. I would normally take about 10-20 minutes to really relax before I was able to fall asleep.

I was NEVER able to really sleep elevated - unless I was sick and in the hospital - the automatic beds made reclining or sitting up very easy to achieve. I slept on either side up until the day of transplant. I would even end up on my stomach on occasion. I had NOT been able to sleep on my back flat in years before transplant. I honestly can not recall when I slept on my back last - before Tx.

I tried the pillows in an A formation as well and THAT was very effective in helping me. It was conforting and also provided JUST enough elevation without being TOO noticeable and this annoying. Also something that you may want to think about is the covers. I noticed that I had a harder time sleeping when I would pull the covers near my face. If I slept with the covers under my arms and away from my neck I slept mroe soundly. It was a claustrophobia thing for me 0 the lack of O2 and the feelings of suffocation made the covers a problem for me. Also trying to make sure I stayed cool - like Joanne said - keeping a fan going to circulate the air and such. That really helped me too.

I will say though the shortness of breath was alleviated the most with the laying down in stages and trying to NOT move until I was asleep once I was in bed. It was NOT fun to sleep that way but I was at the very least able to sleep.

I hope that you are able to get some answers from your doc and that you are able to get O2 to use at home - you do NOT need to suffer this way. I know that anxiety of sleeping without O2 and needing it - it is horrible and trust me you WILL feel a difference when you start using it IF the O2 is the problem. I noticed a difference the very first night when I started using the O2. It was incredible to me the change.

I will be thinking of you,
Lindsey
 
C

coltsfan715

New member
Hey there Vicki,

I am so incredibly sorry that you are suffering the way you are. I hope that your docs are able to assist you with getting the O2 cause I think at this point it will help you tremendously to at least get some rest.

I had a VERY hard time with sleeping before I got transplanted and a horrible time with trying to sleep before I started using O2. I was constantly in a panic and as soon as I would lay down I was out of breath. I found that it helped me to get into bed in stages. I would sit on the bed first and just SIT there for several minutes - anywhere frow 5-10 minutes. For whatever reason the act of sitting and then laying would wear me out - if I did not stop inbetween and catch my breath. After sitting for several minutes and calming myself down I would lay down the rest of the way. I would have to concentrate on slowing my breathing down A LOT. I would normally take about 10-20 minutes to really relax before I was able to fall asleep.

I was NEVER able to really sleep elevated - unless I was sick and in the hospital - the automatic beds made reclining or sitting up very easy to achieve. I slept on either side up until the day of transplant. I would even end up on my stomach on occasion. I had NOT been able to sleep on my back flat in years before transplant. I honestly can not recall when I slept on my back last - before Tx.

I tried the pillows in an A formation as well and THAT was very effective in helping me. It was conforting and also provided JUST enough elevation without being TOO noticeable and this annoying. Also something that you may want to think about is the covers. I noticed that I had a harder time sleeping when I would pull the covers near my face. If I slept with the covers under my arms and away from my neck I slept mroe soundly. It was a claustrophobia thing for me 0 the lack of O2 and the feelings of suffocation made the covers a problem for me. Also trying to make sure I stayed cool - like Joanne said - keeping a fan going to circulate the air and such. That really helped me too.

I will say though the shortness of breath was alleviated the most with the laying down in stages and trying to NOT move until I was asleep once I was in bed. It was NOT fun to sleep that way but I was at the very least able to sleep.

I hope that you are able to get some answers from your doc and that you are able to get O2 to use at home - you do NOT need to suffer this way. I know that anxiety of sleeping without O2 and needing it - it is horrible and trust me you WILL feel a difference when you start using it IF the O2 is the problem. I noticed a difference the very first night when I started using the O2. It was incredible to me the change.

I will be thinking of you,
Lindsey
 
C

coltsfan715

New member
Hey there Vicki,

I am so incredibly sorry that you are suffering the way you are. I hope that your docs are able to assist you with getting the O2 cause I think at this point it will help you tremendously to at least get some rest.

I had a VERY hard time with sleeping before I got transplanted and a horrible time with trying to sleep before I started using O2. I was constantly in a panic and as soon as I would lay down I was out of breath. I found that it helped me to get into bed in stages. I would sit on the bed first and just SIT there for several minutes - anywhere frow 5-10 minutes. For whatever reason the act of sitting and then laying would wear me out - if I did not stop inbetween and catch my breath. After sitting for several minutes and calming myself down I would lay down the rest of the way. I would have to concentrate on slowing my breathing down A LOT. I would normally take about 10-20 minutes to really relax before I was able to fall asleep.

I was NEVER able to really sleep elevated - unless I was sick and in the hospital - the automatic beds made reclining or sitting up very easy to achieve. I slept on either side up until the day of transplant. I would even end up on my stomach on occasion. I had NOT been able to sleep on my back flat in years before transplant. I honestly can not recall when I slept on my back last - before Tx.

I tried the pillows in an A formation as well and THAT was very effective in helping me. It was conforting and also provided JUST enough elevation without being TOO noticeable and this annoying. Also something that you may want to think about is the covers. I noticed that I had a harder time sleeping when I would pull the covers near my face. If I slept with the covers under my arms and away from my neck I slept mroe soundly. It was a claustrophobia thing for me 0 the lack of O2 and the feelings of suffocation made the covers a problem for me. Also trying to make sure I stayed cool - like Joanne said - keeping a fan going to circulate the air and such. That really helped me too.

I will say though the shortness of breath was alleviated the most with the laying down in stages and trying to NOT move until I was asleep once I was in bed. It was NOT fun to sleep that way but I was at the very least able to sleep.

I hope that you are able to get some answers from your doc and that you are able to get O2 to use at home - you do NOT need to suffer this way. I know that anxiety of sleeping without O2 and needing it - it is horrible and trust me you WILL feel a difference when you start using it IF the O2 is the problem. I noticed a difference the very first night when I started using the O2. It was incredible to me the change.

I will be thinking of you,
Lindsey
 
J

Jem

New member
I just want to say that I hope getting O2 will give you better sleep and give you more energy and that I hope you do not have to wait much longer for your transplant. Keeping you in prayer.
 
J

Jem

New member
I just want to say that I hope getting O2 will give you better sleep and give you more energy and that I hope you do not have to wait much longer for your transplant. Keeping you in prayer.
 
J

Jem

New member
I just want to say that I hope getting O2 will give you better sleep and give you more energy and that I hope you do not have to wait much longer for your transplant. Keeping you in prayer.
 
J

Jem

New member
I just want to say that I hope getting O2 will give you better sleep and give you more energy and that I hope you do not have to wait much longer for your transplant. Keeping you in prayer.
 
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