blindhearted
New member
I havent read the other post...
Lisa, are you sure your MIL is a retired nursing instructor? to be a nursing instructor, she doesnt seem to understand much medically. My husband is a nurse and I know they covered CF and how it is genetically passed down. Did she skip that chapter?
Now on family testing. I am the only one in my family with CF. To my knowledge only one of my extended family memebers have been tested and that was because he and his wife was over the age of 30 and it was required. he was a carrier, but his wife was not. My brother has not been tested, neither has his wife. When they had their first child, they told the doctor that I had CF, Dr told them that they did not need testing and would not test them for the CF genes because it was only a concern if the CFer was on the mother-to-be side of the family not the father-to-be. That really made me mad. My brother tried to explain it to the doctors but got fustrated. I explained to my SIL that wasnt the case. Anyone could be carriers. She understood but by then she was already pregnant. Thank goodness neither of my nieces have CF and I continue to be the only one. I have told them both that my CF clinic has offered to test them if they want and when they are ready.
Does your son go to a CF Center? As the doctor that he goes to. My doctor told me if my brother, his wife and kids wanted to be tested to "bring them in. We will test and bill the insurance." Insurance might not pay, but a $200+ dollar test is a lot cheaper than CF, I promise.
Lisa, are you sure your MIL is a retired nursing instructor? to be a nursing instructor, she doesnt seem to understand much medically. My husband is a nurse and I know they covered CF and how it is genetically passed down. Did she skip that chapter?
Now on family testing. I am the only one in my family with CF. To my knowledge only one of my extended family memebers have been tested and that was because he and his wife was over the age of 30 and it was required. he was a carrier, but his wife was not. My brother has not been tested, neither has his wife. When they had their first child, they told the doctor that I had CF, Dr told them that they did not need testing and would not test them for the CF genes because it was only a concern if the CFer was on the mother-to-be side of the family not the father-to-be. That really made me mad. My brother tried to explain it to the doctors but got fustrated. I explained to my SIL that wasnt the case. Anyone could be carriers. She understood but by then she was already pregnant. Thank goodness neither of my nieces have CF and I continue to be the only one. I have told them both that my CF clinic has offered to test them if they want and when they are ready.
Does your son go to a CF Center? As the doctor that he goes to. My doctor told me if my brother, his wife and kids wanted to be tested to "bring them in. We will test and bill the insurance." Insurance might not pay, but a $200+ dollar test is a lot cheaper than CF, I promise.