Carrier Testing for Relatives

blindhearted

New member
I havent read the other post...

Lisa, are you sure your MIL is a retired nursing instructor? to be a nursing instructor, she doesnt seem to understand much medically. My husband is a nurse and I know they covered CF and how it is genetically passed down. Did she skip that chapter?

Now on family testing. I am the only one in my family with CF. To my knowledge only one of my extended family memebers have been tested and that was because he and his wife was over the age of 30 and it was required. he was a carrier, but his wife was not. My brother has not been tested, neither has his wife. When they had their first child, they told the doctor that I had CF, Dr told them that they did not need testing and would not test them for the CF genes because it was only a concern if the CFer was on the mother-to-be side of the family not the father-to-be. That really made me mad. My brother tried to explain it to the doctors but got fustrated. I explained to my SIL that wasnt the case. Anyone could be carriers. She understood but by then she was already pregnant. Thank goodness neither of my nieces have CF and I continue to be the only one. I have told them both that my CF clinic has offered to test them if they want and when they are ready.

Does your son go to a CF Center? As the doctor that he goes to. My doctor told me if my brother, his wife and kids wanted to be tested to "bring them in. We will test and bill the insurance." Insurance might not pay, but a $200+ dollar test is a lot cheaper than CF, I promise.
 

blindhearted

New member
I havent read the other post...

Lisa, are you sure your MIL is a retired nursing instructor? to be a nursing instructor, she doesnt seem to understand much medically. My husband is a nurse and I know they covered CF and how it is genetically passed down. Did she skip that chapter?

Now on family testing. I am the only one in my family with CF. To my knowledge only one of my extended family memebers have been tested and that was because he and his wife was over the age of 30 and it was required. he was a carrier, but his wife was not. My brother has not been tested, neither has his wife. When they had their first child, they told the doctor that I had CF, Dr told them that they did not need testing and would not test them for the CF genes because it was only a concern if the CFer was on the mother-to-be side of the family not the father-to-be. That really made me mad. My brother tried to explain it to the doctors but got fustrated. I explained to my SIL that wasnt the case. Anyone could be carriers. She understood but by then she was already pregnant. Thank goodness neither of my nieces have CF and I continue to be the only one. I have told them both that my CF clinic has offered to test them if they want and when they are ready.

Does your son go to a CF Center? As the doctor that he goes to. My doctor told me if my brother, his wife and kids wanted to be tested to "bring them in. We will test and bill the insurance." Insurance might not pay, but a $200+ dollar test is a lot cheaper than CF, I promise.
 

blindhearted

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>

My sister's doctor advised her to get testing for her kids "off the record" at an independent lab - said he wouldn't even chart that she asked about CF testing. What do you make of that?</end quote></div>

"off the record"....can he do that? why would you want it off the record? only thing I can think of is if it isnt recorded then the insurance company cant charge for the testing. But I doubt that the testing is free.
 

blindhearted

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>

My sister's doctor advised her to get testing for her kids "off the record" at an independent lab - said he wouldn't even chart that she asked about CF testing. What do you make of that?</end quote></div>

"off the record"....can he do that? why would you want it off the record? only thing I can think of is if it isnt recorded then the insurance company cant charge for the testing. But I doubt that the testing is free.
 

blindhearted

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>

My sister's doctor advised her to get testing for her kids "off the record" at an independent lab - said he wouldn't even chart that she asked about CF testing. What do you make of that?</end quote></div>

"off the record"....can he do that? why would you want it off the record? only thing I can think of is if it isnt recorded then the insurance company cant charge for the testing. But I doubt that the testing is free.
 

Ratatosk

Administrator
Staff member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>blindhearted</b></i>

I havent read the other post...


Lisa, are you sure your MIL is a retired nursing instructor? to be a nursing instructor, she doesnt seem to understand much medically. My husband is a nurse and I know they covered CF and how it is genetically passed down. Did she skip that chapter?
.</end quote></div>

She was an RN, alum of the same university I attended, she worked for about 20 years in both a TB ward and a dialysis unit in denver. Got her master's and went on to teach. I went to her retirement party. Just think she's hellbent on blaming her husband's side of the family, whom she kinda thinks is too country and beneath her <img src="i/expressions/face-icon-small-smile.gif" border="0"> Plus, sometimes, I suspect she's a little bit insane <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Ratatosk

Administrator
Staff member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>blindhearted</b></i>

I havent read the other post...


Lisa, are you sure your MIL is a retired nursing instructor? to be a nursing instructor, she doesnt seem to understand much medically. My husband is a nurse and I know they covered CF and how it is genetically passed down. Did she skip that chapter?
.</end quote></div>

She was an RN, alum of the same university I attended, she worked for about 20 years in both a TB ward and a dialysis unit in denver. Got her master's and went on to teach. I went to her retirement party. Just think she's hellbent on blaming her husband's side of the family, whom she kinda thinks is too country and beneath her <img src="i/expressions/face-icon-small-smile.gif" border="0"> Plus, sometimes, I suspect she's a little bit insane <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Ratatosk

Administrator
Staff member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>blindhearted</b></i>

I havent read the other post...


Lisa, are you sure your MIL is a retired nursing instructor? to be a nursing instructor, she doesnt seem to understand much medically. My husband is a nurse and I know they covered CF and how it is genetically passed down. Did she skip that chapter?
.</end quote></div>

She was an RN, alum of the same university I attended, she worked for about 20 years in both a TB ward and a dialysis unit in denver. Got her master's and went on to teach. I went to her retirement party. Just think she's hellbent on blaming her husband's side of the family, whom she kinda thinks is too country and beneath her <img src="i/expressions/face-icon-small-smile.gif" border="0"> Plus, sometimes, I suspect she's a little bit insane <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

blindhearted

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

...Just think she's hellbent on blaming her husband's side of the family, whom she kinda thinks is too country and beneath her <img src="i/expressions/face-icon-small-smile.gif" border="0"> Plus, sometimes, I suspect she's a little bit insane <img src="i/expressions/face-icon-small-smile.gif" border="0"></end quote></div>

Ahh...makes a little more sense. I still think she might have skipped that chapter. <img src="i/expressions/face-icon-small-wink.gif" border="0"> Either way good luck with her and the situation. Try not to slap her...or at least not too hard. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

blindhearted

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

...Just think she's hellbent on blaming her husband's side of the family, whom she kinda thinks is too country and beneath her <img src="i/expressions/face-icon-small-smile.gif" border="0"> Plus, sometimes, I suspect she's a little bit insane <img src="i/expressions/face-icon-small-smile.gif" border="0"></end quote></div>

Ahh...makes a little more sense. I still think she might have skipped that chapter. <img src="i/expressions/face-icon-small-wink.gif" border="0"> Either way good luck with her and the situation. Try not to slap her...or at least not too hard. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

blindhearted

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

...Just think she's hellbent on blaming her husband's side of the family, whom she kinda thinks is too country and beneath her <img src="i/expressions/face-icon-small-smile.gif" border="0"> Plus, sometimes, I suspect she's a little bit insane <img src="i/expressions/face-icon-small-smile.gif" border="0"></end quote></div>

Ahh...makes a little more sense. I still think she might have skipped that chapter. <img src="i/expressions/face-icon-small-wink.gif" border="0"> Either way good luck with her and the situation. Try not to slap her...or at least not too hard. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

ktsmom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>blindhearted</b></i>

My brother has not been tested, neither has his wife. When they had their first child, they told the doctor that I had CF, Dr told them that they did not need testing and would not test them for the CF genes because it was only a concern if the CFer was on the mother-to-be side of the family not the father-to-be.</end quote></div>

Just about blew my soda out of my nose on that one, I swear.

I'm really glad your nieces are in the clear.
 

ktsmom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>blindhearted</b></i>

My brother has not been tested, neither has his wife. When they had their first child, they told the doctor that I had CF, Dr told them that they did not need testing and would not test them for the CF genes because it was only a concern if the CFer was on the mother-to-be side of the family not the father-to-be.</end quote></div>

Just about blew my soda out of my nose on that one, I swear.

I'm really glad your nieces are in the clear.
 

ktsmom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>blindhearted</b></i>

My brother has not been tested, neither has his wife. When they had their first child, they told the doctor that I had CF, Dr told them that they did not need testing and would not test them for the CF genes because it was only a concern if the CFer was on the mother-to-be side of the family not the father-to-be.</end quote></div>

Just about blew my soda out of my nose on that one, I swear.

I'm really glad your nieces are in the clear.
 

AnD

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>

My sister's doctor advised her to get testing for her kids "off the record" at an independent lab - said he wouldn't even chart that she asked about CF testing. What do you make of that?</end quote></div>

It probably has to do with being cautious about "genetic discrimination" that has been rumored around in some think tanks as being a possiblility <img src="i/expressions/face-icon-small-wink.gif" border="0"> . Theoreticly <img src="i/expressions/face-icon-small-wink.gif" border="0"> , it could cause a person to have higher insurance premiums, or have other issues come up in the future regarding medical issues. Just sounds a bit overcautious, I think, but who knows?
 

AnD

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>

My sister's doctor advised her to get testing for her kids "off the record" at an independent lab - said he wouldn't even chart that she asked about CF testing. What do you make of that?</end quote></div>

It probably has to do with being cautious about "genetic discrimination" that has been rumored around in some think tanks as being a possiblility <img src="i/expressions/face-icon-small-wink.gif" border="0"> . Theoreticly <img src="i/expressions/face-icon-small-wink.gif" border="0"> , it could cause a person to have higher insurance premiums, or have other issues come up in the future regarding medical issues. Just sounds a bit overcautious, I think, but who knows?
 

AnD

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>

My sister's doctor advised her to get testing for her kids "off the record" at an independent lab - said he wouldn't even chart that she asked about CF testing. What do you make of that?</end quote></div>

It probably has to do with being cautious about "genetic discrimination" that has been rumored around in some think tanks as being a possiblility <img src="i/expressions/face-icon-small-wink.gif" border="0"> . Theoreticly <img src="i/expressions/face-icon-small-wink.gif" border="0"> , it could cause a person to have higher insurance premiums, or have other issues come up in the future regarding medical issues. Just sounds a bit overcautious, I think, but who knows?
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnD</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>



My sister's doctor advised her to get testing for her kids "off the record" at an independent lab - said he wouldn't even chart that she asked about CF testing. What do you make of that?</end quote></div>



It probably has to do with being cautious about "genetic discrimination" that has been rumored around in some think tanks as being a possiblility <img src="i/expressions/face-icon-small-wink.gif" border="0"> . Theoreticly <img src="i/expressions/face-icon-small-wink.gif" border="0"> , it could cause a person to have higher insurance premiums, or have other issues come up in the future regarding medical issues. Just sounds a bit overcautious, I think, but who knows?</end quote></div>

I dont think this line of thinking is too far off base. As more health issues are identified I thik it will get more difficult.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnD</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>



My sister's doctor advised her to get testing for her kids "off the record" at an independent lab - said he wouldn't even chart that she asked about CF testing. What do you make of that?</end quote></div>



It probably has to do with being cautious about "genetic discrimination" that has been rumored around in some think tanks as being a possiblility <img src="i/expressions/face-icon-small-wink.gif" border="0"> . Theoreticly <img src="i/expressions/face-icon-small-wink.gif" border="0"> , it could cause a person to have higher insurance premiums, or have other issues come up in the future regarding medical issues. Just sounds a bit overcautious, I think, but who knows?</end quote></div>

I dont think this line of thinking is too far off base. As more health issues are identified I thik it will get more difficult.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnD</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>



My sister's doctor advised her to get testing for her kids "off the record" at an independent lab - said he wouldn't even chart that she asked about CF testing. What do you make of that?</end quote></div>



It probably has to do with being cautious about "genetic discrimination" that has been rumored around in some think tanks as being a possiblility <img src="i/expressions/face-icon-small-wink.gif" border="0"> . Theoreticly <img src="i/expressions/face-icon-small-wink.gif" border="0"> , it could cause a person to have higher insurance premiums, or have other issues come up in the future regarding medical issues. Just sounds a bit overcautious, I think, but who knows?</end quote></div>

I dont think this line of thinking is too far off base. As more health issues are identified I thik it will get more difficult.
 
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