Carrier Testing for Relatives

[js7881]

Wow, it's been awhile since I've been on here.

Anyway, my family as well as mu husbands have been ignorant to anythign and everthing we;ve told them about CF. I can only trust my mom and aunt to watch her. When we take her over my in laws house they give her all kinds of food with out pills and then she is sick later. So, my sister in-law is pregnant with her second child. When we found out Alayna had CF we made sure to tell everyone so they could get tested. Well, my sister in-law thinks she is the most intelligent person in the world (WHATEVER) and kept telling me and my husband her doctor tested her. Well, he didn't with her first child. So, when she went in for her quad screening they were asking family history and she told them Alayna had CF so they wanted to test her. Even though she said she already had it done. Well most people know they don;t test for CF unless given a reason. Guess what.....she is a carrier and so is my nephew. It just goes to show how stupid some people are....<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[js7881]

Wow, it's been awhile since I've been on here.

Anyway, my family as well as mu husbands have been ignorant to anythign and everthing we;ve told them about CF. I can only trust my mom and aunt to watch her. When we take her over my in laws house they give her all kinds of food with out pills and then she is sick later. So, my sister in-law is pregnant with her second child. When we found out Alayna had CF we made sure to tell everyone so they could get tested. Well, my sister in-law thinks she is the most intelligent person in the world (WHATEVER) and kept telling me and my husband her doctor tested her. Well, he didn't with her first child. So, when she went in for her quad screening they were asking family history and she told them Alayna had CF so they wanted to test her. Even though she said she already had it done. Well most people know they don;t test for CF unless given a reason. Guess what.....she is a carrier and so is my nephew. It just goes to show how stupid some people are....<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[js7881]

Wow, it's been awhile since I've been on here.

Anyway, my family as well as mu husbands have been ignorant to anythign and everthing we;ve told them about CF. I can only trust my mom and aunt to watch her. When we take her over my in laws house they give her all kinds of food with out pills and then she is sick later. So, my sister in-law is pregnant with her second child. When we found out Alayna had CF we made sure to tell everyone so they could get tested. Well, my sister in-law thinks she is the most intelligent person in the world (WHATEVER) and kept telling me and my husband her doctor tested her. Well, he didn't with her first child. So, when she went in for her quad screening they were asking family history and she told them Alayna had CF so they wanted to test her. Even though she said she already had it done. Well most people know they don;t test for CF unless given a reason. Guess what.....she is a carrier and so is my nephew. It just goes to show how stupid some people are....<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[julie]

I've only read through a few responses, but here would be my second response Lisa, to the email you sent one of the CTC physicians.

"thank you for taking the time to educate me about a genetic disease that my son has, and that I've quite thuroughly (SP? no time for spell checker, LOL) educated myself about. I understand CF is a genetic disease. I undestand the probabilities of having a CF child based on the carrier status of the parents. I understand HOW CF, or one CF mutaiton is passed from generation to generation. Therefore, let me make this perfectly clear to you. When we have another CF diagnois in the family, and believe me there will be one, I will ensure that you and your office are held 100% liable for refusing to see and test our family members. I will ensure that you are responsible for the medical bills for this child, and I assure you that if the pregnancy is complicated because of the CF, that you are responsible for those bills too.

Thank you for your time, I am no longer interested in having any of my family members tested. We are much better off playing a "russian roulete" (sp?) game and taking our chances with our current family history of CF, although mark my words, I will hold you liable when the next CF diagnosis comes".

I just hate idiots, so that would be my response. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm so cheery today, lol

 

[julie]

I've only read through a few responses, but here would be my second response Lisa, to the email you sent one of the CTC physicians.

"thank you for taking the time to educate me about a genetic disease that my son has, and that I've quite thuroughly (SP? no time for spell checker, LOL) educated myself about. I understand CF is a genetic disease. I undestand the probabilities of having a CF child based on the carrier status of the parents. I understand HOW CF, or one CF mutaiton is passed from generation to generation. Therefore, let me make this perfectly clear to you. When we have another CF diagnois in the family, and believe me there will be one, I will ensure that you and your office are held 100% liable for refusing to see and test our family members. I will ensure that you are responsible for the medical bills for this child, and I assure you that if the pregnancy is complicated because of the CF, that you are responsible for those bills too.

Thank you for your time, I am no longer interested in having any of my family members tested. We are much better off playing a "russian roulete" (sp?) game and taking our chances with our current family history of CF, although mark my words, I will hold you liable when the next CF diagnosis comes".

I just hate idiots, so that would be my response. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm so cheery today, lol

 

[julie]

I've only read through a few responses, but here would be my second response Lisa, to the email you sent one of the CTC physicians.

"thank you for taking the time to educate me about a genetic disease that my son has, and that I've quite thuroughly (SP? no time for spell checker, LOL) educated myself about. I understand CF is a genetic disease. I undestand the probabilities of having a CF child based on the carrier status of the parents. I understand HOW CF, or one CF mutaiton is passed from generation to generation. Therefore, let me make this perfectly clear to you. When we have another CF diagnois in the family, and believe me there will be one, I will ensure that you and your office are held 100% liable for refusing to see and test our family members. I will ensure that you are responsible for the medical bills for this child, and I assure you that if the pregnancy is complicated because of the CF, that you are responsible for those bills too.

Thank you for your time, I am no longer interested in having any of my family members tested. We are much better off playing a "russian roulete" (sp?) game and taking our chances with our current family history of CF, although mark my words, I will hold you liable when the next CF diagnosis comes".

I just hate idiots, so that would be my response. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm so cheery today, lol