Carriers Having Babies

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alabamamom

New member
Nancy, I was almost in your shoes too. I got pregnant again when my daughter was a year old, but miscarried- that was before I had undergone my testing and found out I was a carrier. Now I have an IUD- Paraguard, but like one of you said, I kind of wish I was one of the 1 % who have an oops baby with it! Growing up, my older sister had CF, so I know way too much about it, what the kids go through, etc. But then I think, yeah but my sister was born in 1976- medicine now is so much better. When she was diagnosed at around 4, dr.s thought she wouldn't make it to grade school, but she lived to 29. kids born now will have it so much better,that i'm sure of. <img src="i/expressions/face-icon-small-smile.gif" border="0">
BTW, you all have very cute kids!
 
A

alabamamom

New member
Nancy, I was almost in your shoes too. I got pregnant again when my daughter was a year old, but miscarried- that was before I had undergone my testing and found out I was a carrier. Now I have an IUD- Paraguard, but like one of you said, I kind of wish I was one of the 1 % who have an oops baby with it! Growing up, my older sister had CF, so I know way too much about it, what the kids go through, etc. But then I think, yeah but my sister was born in 1976- medicine now is so much better. When she was diagnosed at around 4, dr.s thought she wouldn't make it to grade school, but she lived to 29. kids born now will have it so much better,that i'm sure of. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />BTW, you all have very cute kids!
 
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petnurse

New member
I probably should not even answer this post, but felt you may want to hear another side.
We have a son with CF and we are likely going to have another...hopefully wihout CF but we will love and care for them just the same. I have been soul searching for quite some time. I have spoken to MANY parents of multiple children with CF, and many Cfers. While that ultimately did not make our decision, it was nice to get different POVs. I do not know how religious you are, but I asked God for an answer. I am not going to get into that story here (you can message me if you are interested), but I did indeed receive my first ever "answer" to my questions as I saw it. We have many reasons for deciding to do this, but we will be banking the cord blood this time...for all of our children. Who knows where CF research will lead us in that dept (Totally not the reason for having another before anyone jumps in on me). Good luck to you and as everyone here has said..it is a truly personal decision that only you can make. :)
 
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petnurse

New member
I probably should not even answer this post, but felt you may want to hear another side.
We have a son with CF and we are likely going to have another...hopefully wihout CF but we will love and care for them just the same. I have been soul searching for quite some time. I have spoken to MANY parents of multiple children with CF, and many Cfers. While that ultimately did not make our decision, it was nice to get different POVs. I do not know how religious you are, but I asked God for an answer. I am not going to get into that story here (you can message me if you are interested), but I did indeed receive my first ever "answer" to my questions as I saw it. We have many reasons for deciding to do this, but we will be banking the cord blood this time...for all of our children. Who knows where CF research will lead us in that dept (Totally not the reason for having another before anyone jumps in on me). Good luck to you and as everyone here has said..it is a truly personal decision that only you can make. :)
 
P

petnurse

New member
I probably should not even answer this post, but felt you may want to hear another side.
<br />We have a son with CF and we are likely going to have another...hopefully wihout CF but we will love and care for them just the same. I have been soul searching for quite some time. I have spoken to MANY parents of multiple children with CF, and many Cfers. While that ultimately did not make our decision, it was nice to get different POVs. I do not know how religious you are, but I asked God for an answer. I am not going to get into that story here (you can message me if you are interested), but I did indeed receive my first ever "answer" to my questions as I saw it. We have many reasons for deciding to do this, but we will be banking the cord blood this time...for all of our children. Who knows where CF research will lead us in that dept (Totally not the reason for having another before anyone jumps in on me). Good luck to you and as everyone here has said..it is a truly personal decision that only you can make. :)
 
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Lilliansmom

New member
We have 2 who have been dx with atypical cf, although we did not know that was the case when I was pg. he 2nd time. They were dx together when they were 5 and 3. DD was a very sick baby, who spent most of her first year in the hospital, coded numerous times, but we were told, without a doubt she did not have cf, she just had pancretic insufficiency and unrelated respitory issues. She had 3 normal sweat tests, and our doctor did not do the Ambry test until our son started having a lot of the same symptoms.

I can honestly say that I have no idea what we would have decided, if she had been dx before I got pg with twins. Good luck with your decidion.
 
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Lilliansmom

New member
We have 2 who have been dx with atypical cf, although we did not know that was the case when I was pg. he 2nd time. They were dx together when they were 5 and 3. DD was a very sick baby, who spent most of her first year in the hospital, coded numerous times, but we were told, without a doubt she did not have cf, she just had pancretic insufficiency and unrelated respitory issues. She had 3 normal sweat tests, and our doctor did not do the Ambry test until our son started having a lot of the same symptoms.

I can honestly say that I have no idea what we would have decided, if she had been dx before I got pg with twins. Good luck with your decidion.
 
L

Lilliansmom

New member
We have 2 who have been dx with atypical cf, although we did not know that was the case when I was pg. he 2nd time. They were dx together when they were 5 and 3. DD was a very sick baby, who spent most of her first year in the hospital, coded numerous times, but we were told, without a doubt she did not have cf, she just had pancretic insufficiency and unrelated respitory issues. She had 3 normal sweat tests, and our doctor did not do the Ambry test until our son started having a lot of the same symptoms.
<br />
<br />I can honestly say that I have no idea what we would have decided, if she had been dx before I got pg with twins. Good luck with your decidion.
 
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Lilliansmom

New member
We have 2 who have been dx with atypical cf, although we did not know that was the case when I was pg. he 2nd time. They were dx together when they were 5 and 3. DD was a very sick baby, who spent most of her first year in the hospital, coded numerous times, but we were told, without a doubt she did not have cf, she just had pancretic insufficiency and unrelated respitory issues. She had 3 normal sweat tests, and our doctor did not do the Ambry test until our son started having a lot of the same symptoms.

I can honestly say that I have no idea what we would have decided, if she had been dx before I got pg with twins. Good luck with your decidion.
 
L

Lilliansmom

New member
We have 2 who have been dx with atypical cf, although we did not know that was the case when I was pg. he 2nd time. They were dx together when they were 5 and 3. DD was a very sick baby, who spent most of her first year in the hospital, coded numerous times, but we were told, without a doubt she did not have cf, she just had pancretic insufficiency and unrelated respitory issues. She had 3 normal sweat tests, and our doctor did not do the Ambry test until our son started having a lot of the same symptoms.

I can honestly say that I have no idea what we would have decided, if she had been dx before I got pg with twins. Good luck with your decidion.
 
L

Lilliansmom

New member
We have 2 who have been dx with atypical cf, although we did not know that was the case when I was pg. he 2nd time. They were dx together when they were 5 and 3. DD was a very sick baby, who spent most of her first year in the hospital, coded numerous times, but we were told, without a doubt she did not have cf, she just had pancretic insufficiency and unrelated respitory issues. She had 3 normal sweat tests, and our doctor did not do the Ambry test until our son started having a lot of the same symptoms.
<br />
<br />I can honestly say that I have no idea what we would have decided, if she had been dx before I got pg with twins. Good luck with your decidion.
 
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