Cayston - Altera

kelliemarie

New member
I alternate with Cayston and Tobi like you, but sorry this might sound weird, but from what I understand you use the altera neb to do 1/2 of the vial of tobi? Can you do that like does it nebulize correctly?
 

kelliemarie

New member
I alternate with Cayston and Tobi like you, but sorry this might sound weird, but from what I understand you use the altera neb to do 1/2 of the vial of tobi? Can you do that like does it nebulize correctly?
 

kelliemarie

New member
I alternate with Cayston and Tobi like you, but sorry this might sound weird, but from what I understand you use the altera neb to do 1/2 of the vial of tobi? Can you do that like does it nebulize correctly?
 
What I've done is store the new altera nebs until I have 3 (one for each session of the day). Then I replace the 3 I already had so that I know they're all the same "age". You can recycle the white parts of the nebs, but not the blue ones when you're done with them. I feel like my meds create so much trash that the more I can recycle, the better.
 
What I've done is store the new altera nebs until I have 3 (one for each session of the day). Then I replace the 3 I already had so that I know they're all the same "age". You can recycle the white parts of the nebs, but not the blue ones when you're done with them. I feel like my meds create so much trash that the more I can recycle, the better.
 
What I've done is store the new altera nebs until I have 3 (one for each session of the day). Then I replace the 3 I already had so that I know they're all the same "age". You can recycle the white parts of the nebs, but not the blue ones when you're done with them. I feel like my meds create so much trash that the more I can recycle, the better.
 
M

MCGrad2006

Guest
This is really good information! I just received my last dose of open label AZLI and will soon be getting it through the pharmacy. I do not use the Altera (Eflow) for other drugs because I am technically still in the trail. But if I am able to get new neb heads each month (if they still work) I can use them for my other treatments.

Which pharmacy sends new pieces every time? It sounds like not everyone gets that benefit. Pleas let me know!

Glad you are all 'enjoying' and hopefully benefiting from your Cayston!!
 
M

MCGrad2006

Guest
This is really good information! I just received my last dose of open label AZLI and will soon be getting it through the pharmacy. I do not use the Altera (Eflow) for other drugs because I am technically still in the trail. But if I am able to get new neb heads each month (if they still work) I can use them for my other treatments.

Which pharmacy sends new pieces every time? It sounds like not everyone gets that benefit. Pleas let me know!

Glad you are all 'enjoying' and hopefully benefiting from your Cayston!!
 
M

MCGrad2006

Guest
This is really good information! I just received my last dose of open label AZLI and will soon be getting it through the pharmacy. I do not use the Altera (Eflow) for other drugs because I am technically still in the trail. But if I am able to get new neb heads each month (if they still work) I can use them for my other treatments.
<br />
<br />Which pharmacy sends new pieces every time? It sounds like not everyone gets that benefit. Pleas let me know!
<br />
<br />Glad you are all 'enjoying' and hopefully benefiting from your Cayston!!
 

BaylorCrew07

New member
@Caitlin - I get mine from CF Services; they send a new altera neb & head with each package of Cayston. I guess I'll keep the old ones - would be nice to have for when I travel...maybe I'll get enough to where I won't have to sterilize at all for a couple days, lol. No need to keep them all out while at home though (in my opinion at least; but my kitchen is small) <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

BaylorCrew07

New member
@Caitlin - I get mine from CF Services; they send a new altera neb & head with each package of Cayston. I guess I'll keep the old ones - would be nice to have for when I travel...maybe I'll get enough to where I won't have to sterilize at all for a couple days, lol. No need to keep them all out while at home though (in my opinion at least; but my kitchen is small) <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

BaylorCrew07

New member
@Caitlin - I get mine from CF Services; they send a new altera neb & head with each package of Cayston. I guess I'll keep the old ones - would be nice to have for when I travel...maybe I'll get enough to where I won't have to sterilize at all for a couple days, lol. No need to keep them all out while at home though (in my opinion at least; but my kitchen is small) <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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