Cayston!

G

Giggles

New member
i Cayston!

I have been on for several plus months now and at first I thought it was MAGIC, I felt so great the first two rounds. But now just feel just good and/or normal. I did however just go through an extreme drop of my PFT lowest in like forever and so the Cayston did NOT ward off any major sickness. But I like it better than Tobi which I was on FOREVER so I like the change up. Did not raise PFT's or eliminate Pseudo. Just seems to keep me feeling good but nothing extreme.
 
L

LouLou

New member
i Cayston!

I've been on it for 8 months many of which I had to start IVs at the end or w/i days of finishing. Anyone also culture MRSA? Not sure Cayston can be taken without also taking something for MRSA.
 
L

LouLou

New member
i Cayston!

I've been on it for 8 months many of which I had to start IVs at the end or w/i days of finishing. Anyone also culture MRSA? Not sure Cayston can be taken without also taking something for MRSA.
 
L

LouLou

New member
i Cayston!

I've been on it for 8 months many of which I had to start IVs at the end or w/i days of finishing. Anyone also culture MRSA? Not sure Cayston can be taken without also taking something for MRSA.
 
J

Jeana

New member
i Cayston!

Lauren,
I am on Cayston for PA and have MRSA. I am not currently taking anything for the MRSA. I was taking Septra DS, but then started to get small variant colonies, so my doctor took me off.
 
J

Jeana

New member
i Cayston!

Lauren,
I am on Cayston for PA and have MRSA. I am not currently taking anything for the MRSA. I was taking Septra DS, but then started to get small variant colonies, so my doctor took me off.
 
J

Jeana

New member
i Cayston!

Lauren,
<br />I am on Cayston for PA and have MRSA. I am not currently taking anything for the MRSA. I was taking Septra DS, but then started to get small variant colonies, so my doctor took me off.
 
S

static

New member
i Cayston!

I just got Cayston and am encouraged by some of your positive experiences with it. I absolutely could not STAND the Tobi because it plugged my ears and made me have a "foggy" head. Hopefully this will be better, after all I can deal with pulmozyme, azithromycin, exc. just fine.

I have also had MRSA since I was like 16 and there is currently not much treatment for it. It is either Zyvox (which I am allergic to) or IV Vanco. It sucks because that is basically all I ever culture besides the rare Pseudomonas. My doctors seem to think my MRSA is crowding out the other bacteria on the culture allowing the other stuff to slip by undetected. I guess I'll find out if their right pretty soon.
 
S

static

New member
i Cayston!

I just got Cayston and am encouraged by some of your positive experiences with it. I absolutely could not STAND the Tobi because it plugged my ears and made me have a "foggy" head. Hopefully this will be better, after all I can deal with pulmozyme, azithromycin, exc. just fine.

I have also had MRSA since I was like 16 and there is currently not much treatment for it. It is either Zyvox (which I am allergic to) or IV Vanco. It sucks because that is basically all I ever culture besides the rare Pseudomonas. My doctors seem to think my MRSA is crowding out the other bacteria on the culture allowing the other stuff to slip by undetected. I guess I'll find out if their right pretty soon.
 
S

static

New member
i Cayston!

I just got Cayston and am encouraged by some of your positive experiences with it. I absolutely could not STAND the Tobi because it plugged my ears and made me have a "foggy" head. Hopefully this will be better, after all I can deal with pulmozyme, azithromycin, exc. just fine.
<br />
<br />I have also had MRSA since I was like 16 and there is currently not much treatment for it. It is either Zyvox (which I am allergic to) or IV Vanco. It sucks because that is basically all I ever culture besides the rare Pseudomonas. My doctors seem to think my MRSA is crowding out the other bacteria on the culture allowing the other stuff to slip by undetected. I guess I'll find out if their right pretty soon.
 
A

Alyssaaaaxo

Guest
Thanks for all the input! I haven't really noticed anything other than an increased cough and shortness of breath. I also just got really sick so I went back on Tobi which is like my miracle drug so I might try another round after I finish this round of Tobi.
 
A

Alyssaaaaxo

Guest
Thanks for all the input! I haven't really noticed anything other than an increased cough and shortness of breath. I also just got really sick so I went back on Tobi which is like my miracle drug so I might try another round after I finish this round of Tobi.
 
A

Alyssaaaaxo

Guest
Thanks for all the input! I haven't really noticed anything other than an increased cough and shortness of breath. I also just got really sick so I went back on Tobi which is like my miracle drug so I might try another round after I finish this round of Tobi.
 
S

SeeEff

Guest
Hi, Alyssaaaaxo.

I've been using CAYSTON for a couple months.
TOBI one month, CAYSTON the next, and round and round and round...........

It's so funny when I went to my appointment, my doctor asks:
"So do you like CAYSTON?"
I cracked up.
"Yes, I LOVE it. So much fun and tasty too!"

But seriously, it's fine. You inhale it 3 times a day - it takes 5-10 minutes.
Sometimes I am tight or wheezing after it & have to take extra hits off my inhaler.
It's just one more thing, you know?
As for benefits? I'm not sure. I haven't really noticed anything different in my health since using it but my health hasn't declined. So maybe it is helping.
 
S

SeeEff

Guest
Hi, Alyssaaaaxo.

I've been using CAYSTON for a couple months.
TOBI one month, CAYSTON the next, and round and round and round...........

It's so funny when I went to my appointment, my doctor asks:
"So do you like CAYSTON?"
I cracked up.
"Yes, I LOVE it. So much fun and tasty too!"

But seriously, it's fine. You inhale it 3 times a day - it takes 5-10 minutes.
Sometimes I am tight or wheezing after it & have to take extra hits off my inhaler.
It's just one more thing, you know?
As for benefits? I'm not sure. I haven't really noticed anything different in my health since using it but my health hasn't declined. So maybe it is helping.
 
S

SeeEff

Guest
Hi, Alyssaaaaxo.
<br />
<br />I've been using CAYSTON for a couple months.
<br />TOBI one month, CAYSTON the next, and round and round and round...........
<br />
<br />It's so funny when I went to my appointment, my doctor asks:
<br />"So do you like CAYSTON?"
<br />I cracked up.
<br />"Yes, I LOVE it. So much fun and tasty too!"
<br />
<br />But seriously, it's fine. You inhale it 3 times a day - it takes 5-10 minutes.
<br />Sometimes I am tight or wheezing after it & have to take extra hits off my inhaler.
<br />It's just one more thing, you know?
<br />As for benefits? I'm not sure. I haven't really noticed anything different in my health since using it but my health hasn't declined. So maybe it is helping.
 
W

Wingnatic

New member
My 26 year old son did the clinical study for Cayston and started on it about a month after it became available . Shortly after beginning the study at home he had improved and told his doctors he would not want to go back to Tobi (which he hasn't ) See the '' New Drugs '' thread
 
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