Cepacia

K

KrazyKat

New member
I also culture strain 2 (Multivorans) for about the last three years (had never been tested properly for it before then so we are not sure exactly when i got it). FEV1 around 52%.
 
K

KrazyKat

New member
I also culture strain 2 (Multivorans) for about the last three years (had never been tested properly for it before then so we are not sure exactly when i got it). FEV1 around 52%.
 
K

KrazyKat

New member
I also culture strain 2 (Multivorans) for about the last three years (had never been tested properly for it before then so we are not sure exactly when i got it). FEV1 around 52%.
 
K

KrazyKat

New member
I also culture strain 2 (Multivorans) for about the last three years (had never been tested properly for it before then so we are not sure exactly when i got it). FEV1 around 52%.
 
K

KrazyKat

New member
I also culture strain 2 (Multivorans) for about the last three years (had never been tested properly for it before then so we are not sure exactly when i got it). FEV1 around 52%.
 
M

momtoCory

New member
Cory has culture Cepacia for the last 5 years
He has Genomovar III (Cenocepacia)
His FEV1 is currently around 22%. That is 1 week out of the hospital and still on IV's
Going for transplant evaluation on Set. 2nd
 
M

momtoCory

New member
Cory has culture Cepacia for the last 5 years
He has Genomovar III (Cenocepacia)
His FEV1 is currently around 22%. That is 1 week out of the hospital and still on IV's
Going for transplant evaluation on Set. 2nd
 
M

momtoCory

New member
Cory has culture Cepacia for the last 5 years
He has Genomovar III (Cenocepacia)
His FEV1 is currently around 22%. That is 1 week out of the hospital and still on IV's
Going for transplant evaluation on Set. 2nd
 
M

momtoCory

New member
Cory has culture Cepacia for the last 5 years
He has Genomovar III (Cenocepacia)
His FEV1 is currently around 22%. That is 1 week out of the hospital and still on IV's
Going for transplant evaluation on Set. 2nd
 
M

momtoCory

New member
Cory has culture Cepacia for the last 5 years
<br />He has Genomovar III (Cenocepacia)
<br />His FEV1 is currently around 22%. That is 1 week out of the hospital and still on IV's
<br />Going for transplant evaluation on Set. 2nd
 
M

mysterygrl19

New member
I just started culturing B. Cepacia this year. A few months ago the dr told me that it is now pan-resistant and became that way in one months time.
My FEV1 is 50-ish, this stuff is kicking my butt at the moment!
Heather 19 w/cf and CFRD
 
M

mysterygrl19

New member
I just started culturing B. Cepacia this year. A few months ago the dr told me that it is now pan-resistant and became that way in one months time.
My FEV1 is 50-ish, this stuff is kicking my butt at the moment!
Heather 19 w/cf and CFRD
 
M

mysterygrl19

New member
I just started culturing B. Cepacia this year. A few months ago the dr told me that it is now pan-resistant and became that way in one months time.
My FEV1 is 50-ish, this stuff is kicking my butt at the moment!
Heather 19 w/cf and CFRD
 
M

mysterygrl19

New member
I just started culturing B. Cepacia this year. A few months ago the dr told me that it is now pan-resistant and became that way in one months time.
My FEV1 is 50-ish, this stuff is kicking my butt at the moment!
Heather 19 w/cf and CFRD
 
M

mysterygrl19

New member
I just started culturing B. Cepacia this year. A few months ago the dr told me that it is now pan-resistant and became that way in one months time.
<br />My FEV1 is 50-ish, this stuff is kicking my butt at the moment!
<br />Heather 19 w/cf and CFRD
 
W

winifredmary

New member
I have multivorans....have had it for about 28 years!!! My fev has been lousy lately....about 35. My cepacia was sensitive to bactrim....which i am allergic to. I was just desensitized to bactrim during my last cleanout, stayed on it for about 5 weeks, and, lo and behold....the damned cepacia isn't sensitive to it anymore. Go figure!!!

Laurie 41 w/cf cfrd,etc...
 
W

winifredmary

New member
I have multivorans....have had it for about 28 years!!! My fev has been lousy lately....about 35. My cepacia was sensitive to bactrim....which i am allergic to. I was just desensitized to bactrim during my last cleanout, stayed on it for about 5 weeks, and, lo and behold....the damned cepacia isn't sensitive to it anymore. Go figure!!!

Laurie 41 w/cf cfrd,etc...
 
W

winifredmary

New member
I have multivorans....have had it for about 28 years!!! My fev has been lousy lately....about 35. My cepacia was sensitive to bactrim....which i am allergic to. I was just desensitized to bactrim during my last cleanout, stayed on it for about 5 weeks, and, lo and behold....the damned cepacia isn't sensitive to it anymore. Go figure!!!

Laurie 41 w/cf cfrd,etc...
 
W

winifredmary

New member
I have multivorans....have had it for about 28 years!!! My fev has been lousy lately....about 35. My cepacia was sensitive to bactrim....which i am allergic to. I was just desensitized to bactrim during my last cleanout, stayed on it for about 5 weeks, and, lo and behold....the damned cepacia isn't sensitive to it anymore. Go figure!!!

Laurie 41 w/cf cfrd,etc...
 
W

winifredmary

New member
I have multivorans....have had it for about 28 years!!! My fev has been lousy lately....about 35. My cepacia was sensitive to bactrim....which i am allergic to. I was just desensitized to bactrim during my last cleanout, stayed on it for about 5 weeks, and, lo and behold....the damned cepacia isn't sensitive to it anymore. Go figure!!!
<br />
<br />Laurie 41 w/cf cfrd,etc...
<br />
 
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