Cepacia

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LouLou

New member
Great post Lauren. All of you with cepacia and living life give me so much encouragement for a wonderful life even with cf...hopefully sans cepacia.

My husband is in big pharmaceutical development. He went to a lecture the other day by a big wig chemist who's main molecule he was discussing fights b. cepacia. Dh has was so excited to come home and tell me about it and that the guy actually mentioned it being vicous for those with cystic fibrosis.

Keep up the good fight. I'm rooting for you all. I'll post more on it if I hear more and when it becomes public.
 
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LouLou

New member
Great post Lauren. All of you with cepacia and living life give me so much encouragement for a wonderful life even with cf...hopefully sans cepacia.

My husband is in big pharmaceutical development. He went to a lecture the other day by a big wig chemist who's main molecule he was discussing fights b. cepacia. Dh has was so excited to come home and tell me about it and that the guy actually mentioned it being vicous for those with cystic fibrosis.

Keep up the good fight. I'm rooting for you all. I'll post more on it if I hear more and when it becomes public.
 
L

LouLou

New member
Great post Lauren. All of you with cepacia and living life give me so much encouragement for a wonderful life even with cf...hopefully sans cepacia.

My husband is in big pharmaceutical development. He went to a lecture the other day by a big wig chemist who's main molecule he was discussing fights b. cepacia. Dh has was so excited to come home and tell me about it and that the guy actually mentioned it being vicous for those with cystic fibrosis.

Keep up the good fight. I'm rooting for you all. I'll post more on it if I hear more and when it becomes public.
 
L

LouLou

New member
Great post Lauren. All of you with cepacia and living life give me so much encouragement for a wonderful life even with cf...hopefully sans cepacia.

My husband is in big pharmaceutical development. He went to a lecture the other day by a big wig chemist who's main molecule he was discussing fights b. cepacia. Dh has was so excited to come home and tell me about it and that the guy actually mentioned it being vicous for those with cystic fibrosis.

Keep up the good fight. I'm rooting for you all. I'll post more on it if I hear more and when it becomes public.
 
L

LouLou

New member
Great post Lauren. All of you with cepacia and living life give me so much encouragement for a wonderful life even with cf...hopefully sans cepacia.

My husband is in big pharmaceutical development. He went to a lecture the other day by a big wig chemist who's main molecule he was discussing fights b. cepacia. Dh has was so excited to come home and tell me about it and that the guy actually mentioned it being vicous for those with cystic fibrosis.

Keep up the good fight. I'm rooting for you all. I'll post more on it if I hear more and when it becomes public.
 
L

LouLou

New member
Great post Lauren. All of you with cepacia and living life give me so much encouragement for a wonderful life even with cf...hopefully sans cepacia.

My husband is in big pharmaceutical development. He went to a lecture the other day by a big wig chemist who's main molecule he was discussing fights b. cepacia. Dh has was so excited to come home and tell me about it and that the guy actually mentioned it being vicous for those with cystic fibrosis.

Keep up the good fight. I'm rooting for you all. I'll post more on it if I hear more and when it becomes public.
 
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JustDucky

New member
I am not sure where I got my cepacia, probably in a hospital setting. I have had it for over 2 years now. It can be a real pain and very hard to bounce back from but the key is to catch it in time, when you start to feel run down and get the treatment started quickly. Being compliant is also important along with a fighting attitude. It can be disheartening when you just know that a hospitalization is on the horizon, but on the flipside, it also means that once the therapy is over, you will feel better. My last stint in the hospital was for two months, I had complications. It was supposed to be 3 weeks of IV's but that wasn't in the cards.I When I finally did go home, I was weak but felt alot better. I got through all of that with the help of my family, friends and my cyberfriends. I give everyone of you kudos for the fight you put up every day, cepacia or no cepacia. Hugs to all, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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JustDucky

New member
I am not sure where I got my cepacia, probably in a hospital setting. I have had it for over 2 years now. It can be a real pain and very hard to bounce back from but the key is to catch it in time, when you start to feel run down and get the treatment started quickly. Being compliant is also important along with a fighting attitude. It can be disheartening when you just know that a hospitalization is on the horizon, but on the flipside, it also means that once the therapy is over, you will feel better. My last stint in the hospital was for two months, I had complications. It was supposed to be 3 weeks of IV's but that wasn't in the cards.I When I finally did go home, I was weak but felt alot better. I got through all of that with the help of my family, friends and my cyberfriends. I give everyone of you kudos for the fight you put up every day, cepacia or no cepacia. Hugs to all, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

JustDucky

New member
I am not sure where I got my cepacia, probably in a hospital setting. I have had it for over 2 years now. It can be a real pain and very hard to bounce back from but the key is to catch it in time, when you start to feel run down and get the treatment started quickly. Being compliant is also important along with a fighting attitude. It can be disheartening when you just know that a hospitalization is on the horizon, but on the flipside, it also means that once the therapy is over, you will feel better. My last stint in the hospital was for two months, I had complications. It was supposed to be 3 weeks of IV's but that wasn't in the cards.I When I finally did go home, I was weak but felt alot better. I got through all of that with the help of my family, friends and my cyberfriends. I give everyone of you kudos for the fight you put up every day, cepacia or no cepacia. Hugs to all, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

JustDucky

New member
I am not sure where I got my cepacia, probably in a hospital setting. I have had it for over 2 years now. It can be a real pain and very hard to bounce back from but the key is to catch it in time, when you start to feel run down and get the treatment started quickly. Being compliant is also important along with a fighting attitude. It can be disheartening when you just know that a hospitalization is on the horizon, but on the flipside, it also means that once the therapy is over, you will feel better. My last stint in the hospital was for two months, I had complications. It was supposed to be 3 weeks of IV's but that wasn't in the cards.I When I finally did go home, I was weak but felt alot better. I got through all of that with the help of my family, friends and my cyberfriends. I give everyone of you kudos for the fight you put up every day, cepacia or no cepacia. Hugs to all, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

JustDucky

New member
I am not sure where I got my cepacia, probably in a hospital setting. I have had it for over 2 years now. It can be a real pain and very hard to bounce back from but the key is to catch it in time, when you start to feel run down and get the treatment started quickly. Being compliant is also important along with a fighting attitude. It can be disheartening when you just know that a hospitalization is on the horizon, but on the flipside, it also means that once the therapy is over, you will feel better. My last stint in the hospital was for two months, I had complications. It was supposed to be 3 weeks of IV's but that wasn't in the cards.I When I finally did go home, I was weak but felt alot better. I got through all of that with the help of my family, friends and my cyberfriends. I give everyone of you kudos for the fight you put up every day, cepacia or no cepacia. Hugs to all, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

JustDucky

New member
I am not sure where I got my cepacia, probably in a hospital setting. I have had it for over 2 years now. It can be a real pain and very hard to bounce back from but the key is to catch it in time, when you start to feel run down and get the treatment started quickly. Being compliant is also important along with a fighting attitude. It can be disheartening when you just know that a hospitalization is on the horizon, but on the flipside, it also means that once the therapy is over, you will feel better. My last stint in the hospital was for two months, I had complications. It was supposed to be 3 weeks of IV's but that wasn't in the cards.I When I finally did go home, I was weak but felt alot better. I got through all of that with the help of my family, friends and my cyberfriends. I give everyone of you kudos for the fight you put up every day, cepacia or no cepacia. Hugs to all, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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fourkidsmom

New member
You know cepecia scares the sh*t out of me. My now 6 yr old son cultured the worst (#3) when he was ONLY 4. I often wonder if that means he won't be around to see alot of things, I try not to think about it. But when he does get sick we have a very agressive Cf team and we know he will be going in. I too don't know where he got it, probably the hospital, like the pseudo. My little guy always takes the hardest way for everything though. He never gets a freakin break that is what makes him who he is today. You just need to do the best you can and live one day at a time, none of us know how long we really have here. You guys all keep up the fight and give me the inspiration I need to keep fighting this freaking CF with my son! I hate CF........

Fourkidsmom
 
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fourkidsmom

New member
You know cepecia scares the sh*t out of me. My now 6 yr old son cultured the worst (#3) when he was ONLY 4. I often wonder if that means he won't be around to see alot of things, I try not to think about it. But when he does get sick we have a very agressive Cf team and we know he will be going in. I too don't know where he got it, probably the hospital, like the pseudo. My little guy always takes the hardest way for everything though. He never gets a freakin break that is what makes him who he is today. You just need to do the best you can and live one day at a time, none of us know how long we really have here. You guys all keep up the fight and give me the inspiration I need to keep fighting this freaking CF with my son! I hate CF........

Fourkidsmom
 
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