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CF AND DAMAGED KIDNEYS (scared)
- Thread starter anonymous
- Start date
Hi Kylie
Yes, i ll do dialysis at home every night for 8 hours.Next Monday i ll go to the hospital for a surgery and to learn (me and my family) how we will make the dialysis.
The good think is after this i can eat everything i want .But i can't drink over 1,8 lit water per day.
And i have to be carefull with my cf, to protect myself from infections so to be ready for tx in May (if God helps...)
Bye and thanks
Olympus
Yes, i ll do dialysis at home every night for 8 hours.Next Monday i ll go to the hospital for a surgery and to learn (me and my family) how we will make the dialysis.
The good think is after this i can eat everything i want .But i can't drink over 1,8 lit water per day.
And i have to be carefull with my cf, to protect myself from infections so to be ready for tx in May (if God helps...)
Bye and thanks
Olympus
HI Dave
I am sorry,but i don't know how i can help you.
I don't know if creatin as powder can damage your kidneys.I don't know for sure if my kidneys are damaged because of medication.High creatin levels are a sign of kidneys failure.
Ask your doctor for sure.
Thank you and good luck
Olympus
28 y/o with cf and kidneys failure.
I am sorry,but i don't know how i can help you.
I don't know if creatin as powder can damage your kidneys.I don't know for sure if my kidneys are damaged because of medication.High creatin levels are a sign of kidneys failure.
Ask your doctor for sure.
Thank you and good luck
Olympus
28 y/o with cf and kidneys failure.
HI
I read a lot about curcumin in this forum and i found from a company named "vitacost" a curcumin 900 mg.I didn't get them yet.I want to ask in this forum any sugestions. I am desperate because of my cf and kidneys condition.But i am afraid taking them. i don't know if there are side effects especialy with my kidneys problem. I asked my doctor but he told me "let me see, bring me the curcumin here and etc"
Thanks
Olympus
I read a lot about curcumin in this forum and i found from a company named "vitacost" a curcumin 900 mg.I didn't get them yet.I want to ask in this forum any sugestions. I am desperate because of my cf and kidneys condition.But i am afraid taking them. i don't know if there are side effects especialy with my kidneys problem. I asked my doctor but he told me "let me see, bring me the curcumin here and etc"
Thanks
Olympus
Hi Kylie
Thanks for the advice.
I am in hospital right now.Today i ll do a surgery for preparation.And from tomorrow i will begin bood dialysis.It's a new method and i will be able to do it at home.
I am a scared a bit.The good news is that both of my parents can donate me a kidney.Now the doctors make tests to my grandmother and grandfather.
I ll sent you my news every day.
It's a big help for me to now that i can share my problems with somebody else who can feel my situation.
thak you and good luck to all of us
Olympus
Thanks for the advice.
I am in hospital right now.Today i ll do a surgery for preparation.And from tomorrow i will begin bood dialysis.It's a new method and i will be able to do it at home.
I am a scared a bit.The good news is that both of my parents can donate me a kidney.Now the doctors make tests to my grandmother and grandfather.
I ll sent you my news every day.
It's a big help for me to now that i can share my problems with somebody else who can feel my situation.
thak you and good luck to all of us
Olympus
Hi
I am still in hospital.I did yeaterday this operation(did it twice ,because the first time didn't work.Lucky me)
I began blood dialysis right away and today i ll do a lot of tests .
<b>today i have my birthday.(lucky me birthday in hospital) I am 29 years old now</b>
The doctors said they i am the first CFer in Greece with kidneys failure.Once again lucky.
To be continued.....
God bless all of us
Olympus
I am still in hospital.I did yeaterday this operation(did it twice ,because the first time didn't work.Lucky me)
I began blood dialysis right away and today i ll do a lot of tests .
<b>today i have my birthday.(lucky me birthday in hospital) I am 29 years old now</b>
The doctors said they i am the first CFer in Greece with kidneys failure.Once again lucky.
To be continued.....
God bless all of us
Olympus
Hi ...
I am still in hospital, but i am feeling a lot better right now.My clinical condition look's better. I am runing tests for osteoporosis.I ll begin adek's vitamin , allready taking mycomist and the doctors will try to have me in the better condition to be ready for my kidneys tx next May.My mother is the donator.
I want to be optimist, and that everything will be just fine for me.Like a greek sunshine!!<img src="i/expressions/sun.gif" border="0">
Thank you everybody in this forum and let god help all of us
I am still in hospital, but i am feeling a lot better right now.My clinical condition look's better. I am runing tests for osteoporosis.I ll begin adek's vitamin , allready taking mycomist and the doctors will try to have me in the better condition to be ready for my kidneys tx next May.My mother is the donator.
I want to be optimist, and that everything will be just fine for me.Like a greek sunshine!!<img src="i/expressions/sun.gif" border="0">
Thank you everybody in this forum and let god help all of us
Hi everybody..
after 10 days in Hospital i had my answers.The reason for my kidneys problem was wrong and strong medication for cf.They didn't told me more details but that's wat the doctors said.
I got pseudomonas from the hospital.
i gain 3,5 kg from the blood dialydis(sugar in it)
i am tired from the 10 days in the hospital
after 10 days in Hospital i had my answers.The reason for my kidneys problem was wrong and strong medication for cf.They didn't told me more details but that's wat the doctors said.
I got pseudomonas from the hospital.
i gain 3,5 kg from the blood dialydis(sugar in it)
i am tired from the 10 days in the hospital
<b>Text</b>Hi
i feel lonely in this problem of mine.As i can see only i have cf and kidneys failure.I never had diabetes.
I sent another mail asking if anybody else had kidneys transplant...but i had no answer
My doctors told me that we are ready for kidney tx next summer ( if i ll have a "good" winter with the less problems)
How dangerous can be this for me?
Do i have other options?
Can we do something better?
I have a lot of questions with no answer.I need second opinions.It's hard for me to "walk alone a road totaly unknown to me"
I am still in hospital....
i feel lonely in this problem of mine.As i can see only i have cf and kidneys failure.I never had diabetes.
I sent another mail asking if anybody else had kidneys transplant...but i had no answer
My doctors told me that we are ready for kidney tx next summer ( if i ll have a "good" winter with the less problems)
How dangerous can be this for me?
Do i have other options?
Can we do something better?
I have a lot of questions with no answer.I need second opinions.It's hard for me to "walk alone a road totaly unknown to me"
I am still in hospital....
The hospital post a message in the official hospital's site asking for help around the world.They never had any CF patient with kidney's failure.
I am very scared.....
I must believe in a miracle....
Thank you everybody.This is my last e-mail posted because i believe that this forum is the best way to take a CFer courage to go on in life.
My story is a sad one.
I have been all my life a happy face,smiling and trying to live day after day with love( that is the way i ll try to live and after this...)
Thank you everybody who respond on my e-mails
and good luck to all of you
wishing the best for all
with love from Greece
Olympus
I am very scared.....
I must believe in a miracle....
Thank you everybody.This is my last e-mail posted because i believe that this forum is the best way to take a CFer courage to go on in life.
My story is a sad one.
I have been all my life a happy face,smiling and trying to live day after day with love( that is the way i ll try to live and after this...)
Thank you everybody who respond on my e-mails
and good luck to all of you
wishing the best for all
with love from Greece
Olympus
Olympus,
Living with CF, we all have our good & bad days emotionally. It's OK to have a bad day. The key for me is to tell myself to buck up & try to stay positive. This is just my belief, but I know that God has His plan for me & my worrying isn't going to change that, I just try to trust in Him. It's easy for me to say that now, down the road as things may worsten, I may not be so trusting, who knows? Again, this is just my belief & I'm entitled to it, I'm not trying to stir up controversy there, but I can tell from your emails, Olympus that I think you have the same faith. I can also tell that you try to be a positive person too, which is good. You'll pull thru this.<img src="i/expressions/face-icon-small-smile.gif" border="0">
Hang in there. I wish I knew someone who had had a kidney tx that I could have respond to your email. I read about people (non CFers) in newspapers, etc & as far as I know they do OK afterwards.
We're all pulling/praying for you. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Living with CF, we all have our good & bad days emotionally. It's OK to have a bad day. The key for me is to tell myself to buck up & try to stay positive. This is just my belief, but I know that God has His plan for me & my worrying isn't going to change that, I just try to trust in Him. It's easy for me to say that now, down the road as things may worsten, I may not be so trusting, who knows? Again, this is just my belief & I'm entitled to it, I'm not trying to stir up controversy there, but I can tell from your emails, Olympus that I think you have the same faith. I can also tell that you try to be a positive person too, which is good. You'll pull thru this.<img src="i/expressions/face-icon-small-smile.gif" border="0">
Hang in there. I wish I knew someone who had had a kidney tx that I could have respond to your email. I read about people (non CFers) in newspapers, etc & as far as I know they do OK afterwards.
We're all pulling/praying for you. <img src="i/expressions/face-icon-small-smile.gif" border="0">