Awww Sweety!
With any chronic illness its so easy to get swept up into the "woe is me" moments. If you have goals, dreams & it seems like they wont be reached it can be depressing. Sometimes they wont be, but that shouldnt make you feel bad that the ultimate goal wasnt reached. Sometimes just the journey in striving for that goal is an accomplishment.
So many people cant/wont/dont take the first step in striving for their dream and that is where the true sadness is.
By no means am I saying that some days with CF dont suck. I have had my moments (days, weeks, months....havent worked up to years yet <img src="i/expressions/face-icon-small-tongue.gif" border="0">)
It sort of reminds me of my vision of what a miracle is. Some people ask for miracles with specific results in mind (like a cure for CF, more $$ etc) where I usually see a miracle as a relief in the stress or situation (easing of an infection or a decrease in the cost of gasoline to run our cars).
For most of my life I didnt do treatments. I did go into the hospital, do my thing, come out & go on with life (again without doing treatments) until the next time.
This continued even while I was pregant & until my daughter was 1 1/2. Then I got sooo sick, had to quit work, had home iv's for the first time etc. It was quite a reality shock that I said....DAMN CF is kicking my ass! (excuse my langauge).
Even THEN I was as compliant as I should have been because once I started feeling better I thought I was immortal once again.
I am paying for that ignorance, denial & non compliance now. Do I hate my life? Hell no! Do I wish it was easier...Often!
Do I have my happy days? Yes Do I have my depressed days? Yes
I just take one day at a time which helps me to achieve a lot more without as much disappointment.
Does any of this make sense? LOL
This is a good spot to be. We actually understand what you are going through!!!
With any chronic illness its so easy to get swept up into the "woe is me" moments. If you have goals, dreams & it seems like they wont be reached it can be depressing. Sometimes they wont be, but that shouldnt make you feel bad that the ultimate goal wasnt reached. Sometimes just the journey in striving for that goal is an accomplishment.
So many people cant/wont/dont take the first step in striving for their dream and that is where the true sadness is.
By no means am I saying that some days with CF dont suck. I have had my moments (days, weeks, months....havent worked up to years yet <img src="i/expressions/face-icon-small-tongue.gif" border="0">)
It sort of reminds me of my vision of what a miracle is. Some people ask for miracles with specific results in mind (like a cure for CF, more $$ etc) where I usually see a miracle as a relief in the stress or situation (easing of an infection or a decrease in the cost of gasoline to run our cars).
For most of my life I didnt do treatments. I did go into the hospital, do my thing, come out & go on with life (again without doing treatments) until the next time.
This continued even while I was pregant & until my daughter was 1 1/2. Then I got sooo sick, had to quit work, had home iv's for the first time etc. It was quite a reality shock that I said....DAMN CF is kicking my ass! (excuse my langauge).
Even THEN I was as compliant as I should have been because once I started feeling better I thought I was immortal once again.
I am paying for that ignorance, denial & non compliance now. Do I hate my life? Hell no! Do I wish it was easier...Often!
Do I have my happy days? Yes Do I have my depressed days? Yes
I just take one day at a time which helps me to achieve a lot more without as much disappointment.
Does any of this make sense? LOL
This is a good spot to be. We actually understand what you are going through!!!