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CF and Pregnancy: It's Do-able, but it's still a high-risk proposition for many women
- Thread starter lightNlife
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wanderlost
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Odds of a Successful Pregnancy
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
Like I've said before, I'm not trying to discourage healthy women (high BMI, high FEV1, etc) from wanting to expand their families. But as someone pointed out to me, doing so requires a very attentive CF Team. There are a great many things that need to be in place in order to have a successful pregnancy, and the studies I've read all say so. </end quote></div>
Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary, and here is why:
I think CF moms are still a new enough concept that many docs have NO IDEA what to expect. With my first pregnancy, I was given the run around: I'd have to have a pulmonologist on board, I was misdiagnosed with gestational diabetes (due to a Cf doc recommendations), I was told I might not be ablew to gain enough weight to sustain (true enough here, but it didn't happen), I had multiple sonograms (for no reason other than CF) - etc.) I took it upon myself, as have other moms here, to inform myself, look at the studies, look at my own history and I declined most of the interferences that were places on me. The docs, I know, were only trying to err on the side of caution, but I think a healthy pregnancy - CFer or not - does better with as minimal interference as possible and that was NOT what I was getting. For my pregnancy and other women here I know of, Cf wasn't a factor in the pregnancy, but everyone wanted to make it a factor.
With my daughter I only saw my Cf team one time, when i was about 5 or 6 months and that was just for a regular clinic visit. Luckily, because I'd done this once before, they were more lax as were my OBs. I had absolutely no medical intervention whatsoever in the birth of my daughter - none, not even a heplock for an IV - why? well because I chose a natural birth and I knew that my Cf wasn't going to be an issue for that - but if I had listened to what the docs thought I would have been strapped down, constantly monitored with an oxygen mask on, etc.
my point here is that I try to shy away from medical interventions as much as possible as I think that for a healthy Cfer docs tend to be way too invasive based soley on the fact of Cf without actual symptomatic reasons - if that makes sense. And honeslty, if we ever go for a third babe, we are doing it at home, (maybe even unassisted!). So while I think having a Cf team on board and aware of a pregnancy can be importnat, I also think that moms-to-be need to be informed and aware for themselves outside of the standard CF medical model of care.
<div class="FTQUOTE"><begin quote>For women life myself who have had to close the door on the opportunity to bear children because of poorer health, that decision is a difficult one to make as well. I've been fortunate to have a great support system of friends, family, and even doctors, who don't give me false hope about it. Our choice is right for us based on our circumstances. Wanderlost and Caroline and others, your decision was based on the viable options for you. Irishgal, Princessjdc and even Seana's daughter still have decisions to make in this department. </end quote></div>
I think your decision was a brave and selfless one and I am very glad that you have been supported in this - I can imagine how hard it might have been emotionally, but socially as well. I admit, I have questioned my decision to have kids every now and then when mortality slaps me in the face - LIttle Debbie's death was one of those moments - the realization that yes, CF takes lives - and though I have been lucky, I might not always be. But, one good thing about having these kids is it is a super incentive for being compliant with treatments. For me, I needed that extrinsic motivator.
I know my way of thinking doesn't work for everyone - probably for a lot of people, but I think it needs to be out there to thsoe who are trying to have babies that CF doesn't have to be an issue or a hindernace in a normal healthy pregnancy, no matter what the docs might say.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
Like I've said before, I'm not trying to discourage healthy women (high BMI, high FEV1, etc) from wanting to expand their families. But as someone pointed out to me, doing so requires a very attentive CF Team. There are a great many things that need to be in place in order to have a successful pregnancy, and the studies I've read all say so. </end quote></div>
Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary, and here is why:
I think CF moms are still a new enough concept that many docs have NO IDEA what to expect. With my first pregnancy, I was given the run around: I'd have to have a pulmonologist on board, I was misdiagnosed with gestational diabetes (due to a Cf doc recommendations), I was told I might not be ablew to gain enough weight to sustain (true enough here, but it didn't happen), I had multiple sonograms (for no reason other than CF) - etc.) I took it upon myself, as have other moms here, to inform myself, look at the studies, look at my own history and I declined most of the interferences that were places on me. The docs, I know, were only trying to err on the side of caution, but I think a healthy pregnancy - CFer or not - does better with as minimal interference as possible and that was NOT what I was getting. For my pregnancy and other women here I know of, Cf wasn't a factor in the pregnancy, but everyone wanted to make it a factor.
With my daughter I only saw my Cf team one time, when i was about 5 or 6 months and that was just for a regular clinic visit. Luckily, because I'd done this once before, they were more lax as were my OBs. I had absolutely no medical intervention whatsoever in the birth of my daughter - none, not even a heplock for an IV - why? well because I chose a natural birth and I knew that my Cf wasn't going to be an issue for that - but if I had listened to what the docs thought I would have been strapped down, constantly monitored with an oxygen mask on, etc.
my point here is that I try to shy away from medical interventions as much as possible as I think that for a healthy Cfer docs tend to be way too invasive based soley on the fact of Cf without actual symptomatic reasons - if that makes sense. And honeslty, if we ever go for a third babe, we are doing it at home, (maybe even unassisted!). So while I think having a Cf team on board and aware of a pregnancy can be importnat, I also think that moms-to-be need to be informed and aware for themselves outside of the standard CF medical model of care.
<div class="FTQUOTE"><begin quote>For women life myself who have had to close the door on the opportunity to bear children because of poorer health, that decision is a difficult one to make as well. I've been fortunate to have a great support system of friends, family, and even doctors, who don't give me false hope about it. Our choice is right for us based on our circumstances. Wanderlost and Caroline and others, your decision was based on the viable options for you. Irishgal, Princessjdc and even Seana's daughter still have decisions to make in this department. </end quote></div>
I think your decision was a brave and selfless one and I am very glad that you have been supported in this - I can imagine how hard it might have been emotionally, but socially as well. I admit, I have questioned my decision to have kids every now and then when mortality slaps me in the face - LIttle Debbie's death was one of those moments - the realization that yes, CF takes lives - and though I have been lucky, I might not always be. But, one good thing about having these kids is it is a super incentive for being compliant with treatments. For me, I needed that extrinsic motivator.
I know my way of thinking doesn't work for everyone - probably for a lot of people, but I think it needs to be out there to thsoe who are trying to have babies that CF doesn't have to be an issue or a hindernace in a normal healthy pregnancy, no matter what the docs might say.
wanderlost
New member
Odds of a Successful Pregnancy
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
Like I've said before, I'm not trying to discourage healthy women (high BMI, high FEV1, etc) from wanting to expand their families. But as someone pointed out to me, doing so requires a very attentive CF Team. There are a great many things that need to be in place in order to have a successful pregnancy, and the studies I've read all say so. </end quote></div>
Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary, and here is why:
I think CF moms are still a new enough concept that many docs have NO IDEA what to expect. With my first pregnancy, I was given the run around: I'd have to have a pulmonologist on board, I was misdiagnosed with gestational diabetes (due to a Cf doc recommendations), I was told I might not be ablew to gain enough weight to sustain (true enough here, but it didn't happen), I had multiple sonograms (for no reason other than CF) - etc.) I took it upon myself, as have other moms here, to inform myself, look at the studies, look at my own history and I declined most of the interferences that were places on me. The docs, I know, were only trying to err on the side of caution, but I think a healthy pregnancy - CFer or not - does better with as minimal interference as possible and that was NOT what I was getting. For my pregnancy and other women here I know of, Cf wasn't a factor in the pregnancy, but everyone wanted to make it a factor.
With my daughter I only saw my Cf team one time, when i was about 5 or 6 months and that was just for a regular clinic visit. Luckily, because I'd done this once before, they were more lax as were my OBs. I had absolutely no medical intervention whatsoever in the birth of my daughter - none, not even a heplock for an IV - why? well because I chose a natural birth and I knew that my Cf wasn't going to be an issue for that - but if I had listened to what the docs thought I would have been strapped down, constantly monitored with an oxygen mask on, etc.
my point here is that I try to shy away from medical interventions as much as possible as I think that for a healthy Cfer docs tend to be way too invasive based soley on the fact of Cf without actual symptomatic reasons - if that makes sense. And honeslty, if we ever go for a third babe, we are doing it at home, (maybe even unassisted!). So while I think having a Cf team on board and aware of a pregnancy can be importnat, I also think that moms-to-be need to be informed and aware for themselves outside of the standard CF medical model of care.
<div class="FTQUOTE"><begin quote>For women life myself who have had to close the door on the opportunity to bear children because of poorer health, that decision is a difficult one to make as well. I've been fortunate to have a great support system of friends, family, and even doctors, who don't give me false hope about it. Our choice is right for us based on our circumstances. Wanderlost and Caroline and others, your decision was based on the viable options for you. Irishgal, Princessjdc and even Seana's daughter still have decisions to make in this department. </end quote></div>
I think your decision was a brave and selfless one and I am very glad that you have been supported in this - I can imagine how hard it might have been emotionally, but socially as well. I admit, I have questioned my decision to have kids every now and then when mortality slaps me in the face - LIttle Debbie's death was one of those moments - the realization that yes, CF takes lives - and though I have been lucky, I might not always be. But, one good thing about having these kids is it is a super incentive for being compliant with treatments. For me, I needed that extrinsic motivator.
I know my way of thinking doesn't work for everyone - probably for a lot of people, but I think it needs to be out there to thsoe who are trying to have babies that CF doesn't have to be an issue or a hindernace in a normal healthy pregnancy, no matter what the docs might say.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
Like I've said before, I'm not trying to discourage healthy women (high BMI, high FEV1, etc) from wanting to expand their families. But as someone pointed out to me, doing so requires a very attentive CF Team. There are a great many things that need to be in place in order to have a successful pregnancy, and the studies I've read all say so. </end quote></div>
Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary, and here is why:
I think CF moms are still a new enough concept that many docs have NO IDEA what to expect. With my first pregnancy, I was given the run around: I'd have to have a pulmonologist on board, I was misdiagnosed with gestational diabetes (due to a Cf doc recommendations), I was told I might not be ablew to gain enough weight to sustain (true enough here, but it didn't happen), I had multiple sonograms (for no reason other than CF) - etc.) I took it upon myself, as have other moms here, to inform myself, look at the studies, look at my own history and I declined most of the interferences that were places on me. The docs, I know, were only trying to err on the side of caution, but I think a healthy pregnancy - CFer or not - does better with as minimal interference as possible and that was NOT what I was getting. For my pregnancy and other women here I know of, Cf wasn't a factor in the pregnancy, but everyone wanted to make it a factor.
With my daughter I only saw my Cf team one time, when i was about 5 or 6 months and that was just for a regular clinic visit. Luckily, because I'd done this once before, they were more lax as were my OBs. I had absolutely no medical intervention whatsoever in the birth of my daughter - none, not even a heplock for an IV - why? well because I chose a natural birth and I knew that my Cf wasn't going to be an issue for that - but if I had listened to what the docs thought I would have been strapped down, constantly monitored with an oxygen mask on, etc.
my point here is that I try to shy away from medical interventions as much as possible as I think that for a healthy Cfer docs tend to be way too invasive based soley on the fact of Cf without actual symptomatic reasons - if that makes sense. And honeslty, if we ever go for a third babe, we are doing it at home, (maybe even unassisted!). So while I think having a Cf team on board and aware of a pregnancy can be importnat, I also think that moms-to-be need to be informed and aware for themselves outside of the standard CF medical model of care.
<div class="FTQUOTE"><begin quote>For women life myself who have had to close the door on the opportunity to bear children because of poorer health, that decision is a difficult one to make as well. I've been fortunate to have a great support system of friends, family, and even doctors, who don't give me false hope about it. Our choice is right for us based on our circumstances. Wanderlost and Caroline and others, your decision was based on the viable options for you. Irishgal, Princessjdc and even Seana's daughter still have decisions to make in this department. </end quote></div>
I think your decision was a brave and selfless one and I am very glad that you have been supported in this - I can imagine how hard it might have been emotionally, but socially as well. I admit, I have questioned my decision to have kids every now and then when mortality slaps me in the face - LIttle Debbie's death was one of those moments - the realization that yes, CF takes lives - and though I have been lucky, I might not always be. But, one good thing about having these kids is it is a super incentive for being compliant with treatments. For me, I needed that extrinsic motivator.
I know my way of thinking doesn't work for everyone - probably for a lot of people, but I think it needs to be out there to thsoe who are trying to have babies that CF doesn't have to be an issue or a hindernace in a normal healthy pregnancy, no matter what the docs might say.
wanderlost
New member
Odds of a Successful Pregnancy
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
Like I've said before, I'm not trying to discourage healthy women (high BMI, high FEV1, etc) from wanting to expand their families. But as someone pointed out to me, doing so requires a very attentive CF Team. There are a great many things that need to be in place in order to have a successful pregnancy, and the studies I've read all say so. </end quote></div>
Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary, and here is why:
I think CF moms are still a new enough concept that many docs have NO IDEA what to expect. With my first pregnancy, I was given the run around: I'd have to have a pulmonologist on board, I was misdiagnosed with gestational diabetes (due to a Cf doc recommendations), I was told I might not be ablew to gain enough weight to sustain (true enough here, but it didn't happen), I had multiple sonograms (for no reason other than CF) - etc.) I took it upon myself, as have other moms here, to inform myself, look at the studies, look at my own history and I declined most of the interferences that were places on me. The docs, I know, were only trying to err on the side of caution, but I think a healthy pregnancy - CFer or not - does better with as minimal interference as possible and that was NOT what I was getting. For my pregnancy and other women here I know of, Cf wasn't a factor in the pregnancy, but everyone wanted to make it a factor.
With my daughter I only saw my Cf team one time, when i was about 5 or 6 months and that was just for a regular clinic visit. Luckily, because I'd done this once before, they were more lax as were my OBs. I had absolutely no medical intervention whatsoever in the birth of my daughter - none, not even a heplock for an IV - why? well because I chose a natural birth and I knew that my Cf wasn't going to be an issue for that - but if I had listened to what the docs thought I would have been strapped down, constantly monitored with an oxygen mask on, etc.
my point here is that I try to shy away from medical interventions as much as possible as I think that for a healthy Cfer docs tend to be way too invasive based soley on the fact of Cf without actual symptomatic reasons - if that makes sense. And honeslty, if we ever go for a third babe, we are doing it at home, (maybe even unassisted!). So while I think having a Cf team on board and aware of a pregnancy can be importnat, I also think that moms-to-be need to be informed and aware for themselves outside of the standard CF medical model of care.
<div class="FTQUOTE"><begin quote>For women life myself who have had to close the door on the opportunity to bear children because of poorer health, that decision is a difficult one to make as well. I've been fortunate to have a great support system of friends, family, and even doctors, who don't give me false hope about it. Our choice is right for us based on our circumstances. Wanderlost and Caroline and others, your decision was based on the viable options for you. Irishgal, Princessjdc and even Seana's daughter still have decisions to make in this department. </end quote></div>
I think your decision was a brave and selfless one and I am very glad that you have been supported in this - I can imagine how hard it might have been emotionally, but socially as well. I admit, I have questioned my decision to have kids every now and then when mortality slaps me in the face - LIttle Debbie's death was one of those moments - the realization that yes, CF takes lives - and though I have been lucky, I might not always be. But, one good thing about having these kids is it is a super incentive for being compliant with treatments. For me, I needed that extrinsic motivator.
I know my way of thinking doesn't work for everyone - probably for a lot of people, but I think it needs to be out there to thsoe who are trying to have babies that CF doesn't have to be an issue or a hindernace in a normal healthy pregnancy, no matter what the docs might say.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
Like I've said before, I'm not trying to discourage healthy women (high BMI, high FEV1, etc) from wanting to expand their families. But as someone pointed out to me, doing so requires a very attentive CF Team. There are a great many things that need to be in place in order to have a successful pregnancy, and the studies I've read all say so. </end quote></div>
Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary, and here is why:
I think CF moms are still a new enough concept that many docs have NO IDEA what to expect. With my first pregnancy, I was given the run around: I'd have to have a pulmonologist on board, I was misdiagnosed with gestational diabetes (due to a Cf doc recommendations), I was told I might not be ablew to gain enough weight to sustain (true enough here, but it didn't happen), I had multiple sonograms (for no reason other than CF) - etc.) I took it upon myself, as have other moms here, to inform myself, look at the studies, look at my own history and I declined most of the interferences that were places on me. The docs, I know, were only trying to err on the side of caution, but I think a healthy pregnancy - CFer or not - does better with as minimal interference as possible and that was NOT what I was getting. For my pregnancy and other women here I know of, Cf wasn't a factor in the pregnancy, but everyone wanted to make it a factor.
With my daughter I only saw my Cf team one time, when i was about 5 or 6 months and that was just for a regular clinic visit. Luckily, because I'd done this once before, they were more lax as were my OBs. I had absolutely no medical intervention whatsoever in the birth of my daughter - none, not even a heplock for an IV - why? well because I chose a natural birth and I knew that my Cf wasn't going to be an issue for that - but if I had listened to what the docs thought I would have been strapped down, constantly monitored with an oxygen mask on, etc.
my point here is that I try to shy away from medical interventions as much as possible as I think that for a healthy Cfer docs tend to be way too invasive based soley on the fact of Cf without actual symptomatic reasons - if that makes sense. And honeslty, if we ever go for a third babe, we are doing it at home, (maybe even unassisted!). So while I think having a Cf team on board and aware of a pregnancy can be importnat, I also think that moms-to-be need to be informed and aware for themselves outside of the standard CF medical model of care.
<div class="FTQUOTE"><begin quote>For women life myself who have had to close the door on the opportunity to bear children because of poorer health, that decision is a difficult one to make as well. I've been fortunate to have a great support system of friends, family, and even doctors, who don't give me false hope about it. Our choice is right for us based on our circumstances. Wanderlost and Caroline and others, your decision was based on the viable options for you. Irishgal, Princessjdc and even Seana's daughter still have decisions to make in this department. </end quote></div>
I think your decision was a brave and selfless one and I am very glad that you have been supported in this - I can imagine how hard it might have been emotionally, but socially as well. I admit, I have questioned my decision to have kids every now and then when mortality slaps me in the face - LIttle Debbie's death was one of those moments - the realization that yes, CF takes lives - and though I have been lucky, I might not always be. But, one good thing about having these kids is it is a super incentive for being compliant with treatments. For me, I needed that extrinsic motivator.
I know my way of thinking doesn't work for everyone - probably for a lot of people, but I think it needs to be out there to thsoe who are trying to have babies that CF doesn't have to be an issue or a hindernace in a normal healthy pregnancy, no matter what the docs might say.
wanderlost
New member
Odds of a Successful Pregnancy
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
Like I've said before, I'm not trying to discourage healthy women (high BMI, high FEV1, etc) from wanting to expand their families. But as someone pointed out to me, doing so requires a very attentive CF Team. There are a great many things that need to be in place in order to have a successful pregnancy, and the studies I've read all say so. </end quote>
Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary, and here is why:
I think CF moms are still a new enough concept that many docs have NO IDEA what to expect. With my first pregnancy, I was given the run around: I'd have to have a pulmonologist on board, I was misdiagnosed with gestational diabetes (due to a Cf doc recommendations), I was told I might not be ablew to gain enough weight to sustain (true enough here, but it didn't happen), I had multiple sonograms (for no reason other than CF) - etc.) I took it upon myself, as have other moms here, to inform myself, look at the studies, look at my own history and I declined most of the interferences that were places on me. The docs, I know, were only trying to err on the side of caution, but I think a healthy pregnancy - CFer or not - does better with as minimal interference as possible and that was NOT what I was getting. For my pregnancy and other women here I know of, Cf wasn't a factor in the pregnancy, but everyone wanted to make it a factor.
With my daughter I only saw my Cf team one time, when i was about 5 or 6 months and that was just for a regular clinic visit. Luckily, because I'd done this once before, they were more lax as were my OBs. I had absolutely no medical intervention whatsoever in the birth of my daughter - none, not even a heplock for an IV - why? well because I chose a natural birth and I knew that my Cf wasn't going to be an issue for that - but if I had listened to what the docs thought I would have been strapped down, constantly monitored with an oxygen mask on, etc.
my point here is that I try to shy away from medical interventions as much as possible as I think that for a healthy Cfer docs tend to be way too invasive based soley on the fact of Cf without actual symptomatic reasons - if that makes sense. And honeslty, if we ever go for a third babe, we are doing it at home, (maybe even unassisted!). So while I think having a Cf team on board and aware of a pregnancy can be importnat, I also think that moms-to-be need to be informed and aware for themselves outside of the standard CF medical model of care.
<div class="FTQUOTE"><begin quote>For women life myself who have had to close the door on the opportunity to bear children because of poorer health, that decision is a difficult one to make as well. I've been fortunate to have a great support system of friends, family, and even doctors, who don't give me false hope about it. Our choice is right for us based on our circumstances. Wanderlost and Caroline and others, your decision was based on the viable options for you. Irishgal, Princessjdc and even Seana's daughter still have decisions to make in this department. </end quote>
I think your decision was a brave and selfless one and I am very glad that you have been supported in this - I can imagine how hard it might have been emotionally, but socially as well. I admit, I have questioned my decision to have kids every now and then when mortality slaps me in the face - LIttle Debbie's death was one of those moments - the realization that yes, CF takes lives - and though I have been lucky, I might not always be. But, one good thing about having these kids is it is a super incentive for being compliant with treatments. For me, I needed that extrinsic motivator.
I know my way of thinking doesn't work for everyone - probably for a lot of people, but I think it needs to be out there to thsoe who are trying to have babies that CF doesn't have to be an issue or a hindernace in a normal healthy pregnancy, no matter what the docs might say.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
Like I've said before, I'm not trying to discourage healthy women (high BMI, high FEV1, etc) from wanting to expand their families. But as someone pointed out to me, doing so requires a very attentive CF Team. There are a great many things that need to be in place in order to have a successful pregnancy, and the studies I've read all say so. </end quote>
Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary, and here is why:
I think CF moms are still a new enough concept that many docs have NO IDEA what to expect. With my first pregnancy, I was given the run around: I'd have to have a pulmonologist on board, I was misdiagnosed with gestational diabetes (due to a Cf doc recommendations), I was told I might not be ablew to gain enough weight to sustain (true enough here, but it didn't happen), I had multiple sonograms (for no reason other than CF) - etc.) I took it upon myself, as have other moms here, to inform myself, look at the studies, look at my own history and I declined most of the interferences that were places on me. The docs, I know, were only trying to err on the side of caution, but I think a healthy pregnancy - CFer or not - does better with as minimal interference as possible and that was NOT what I was getting. For my pregnancy and other women here I know of, Cf wasn't a factor in the pregnancy, but everyone wanted to make it a factor.
With my daughter I only saw my Cf team one time, when i was about 5 or 6 months and that was just for a regular clinic visit. Luckily, because I'd done this once before, they were more lax as were my OBs. I had absolutely no medical intervention whatsoever in the birth of my daughter - none, not even a heplock for an IV - why? well because I chose a natural birth and I knew that my Cf wasn't going to be an issue for that - but if I had listened to what the docs thought I would have been strapped down, constantly monitored with an oxygen mask on, etc.
my point here is that I try to shy away from medical interventions as much as possible as I think that for a healthy Cfer docs tend to be way too invasive based soley on the fact of Cf without actual symptomatic reasons - if that makes sense. And honeslty, if we ever go for a third babe, we are doing it at home, (maybe even unassisted!). So while I think having a Cf team on board and aware of a pregnancy can be importnat, I also think that moms-to-be need to be informed and aware for themselves outside of the standard CF medical model of care.
<div class="FTQUOTE"><begin quote>For women life myself who have had to close the door on the opportunity to bear children because of poorer health, that decision is a difficult one to make as well. I've been fortunate to have a great support system of friends, family, and even doctors, who don't give me false hope about it. Our choice is right for us based on our circumstances. Wanderlost and Caroline and others, your decision was based on the viable options for you. Irishgal, Princessjdc and even Seana's daughter still have decisions to make in this department. </end quote>
I think your decision was a brave and selfless one and I am very glad that you have been supported in this - I can imagine how hard it might have been emotionally, but socially as well. I admit, I have questioned my decision to have kids every now and then when mortality slaps me in the face - LIttle Debbie's death was one of those moments - the realization that yes, CF takes lives - and though I have been lucky, I might not always be. But, one good thing about having these kids is it is a super incentive for being compliant with treatments. For me, I needed that extrinsic motivator.
I know my way of thinking doesn't work for everyone - probably for a lot of people, but I think it needs to be out there to thsoe who are trying to have babies that CF doesn't have to be an issue or a hindernace in a normal healthy pregnancy, no matter what the docs might say.
wanderlost
New member
Odds of a Successful Pregnancy
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
Like I've said before, I'm not trying to discourage healthy women (high BMI, high FEV1, etc) from wanting to expand their families. But as someone pointed out to me, doing so requires a very attentive CF Team. There are a great many things that need to be in place in order to have a successful pregnancy, and the studies I've read all say so. </end quote>
Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary, and here is why:
I think CF moms are still a new enough concept that many docs have NO IDEA what to expect. With my first pregnancy, I was given the run around: I'd have to have a pulmonologist on board, I was misdiagnosed with gestational diabetes (due to a Cf doc recommendations), I was told I might not be ablew to gain enough weight to sustain (true enough here, but it didn't happen), I had multiple sonograms (for no reason other than CF) - etc.) I took it upon myself, as have other moms here, to inform myself, look at the studies, look at my own history and I declined most of the interferences that were places on me. The docs, I know, were only trying to err on the side of caution, but I think a healthy pregnancy - CFer or not - does better with as minimal interference as possible and that was NOT what I was getting. For my pregnancy and other women here I know of, Cf wasn't a factor in the pregnancy, but everyone wanted to make it a factor.
With my daughter I only saw my Cf team one time, when i was about 5 or 6 months and that was just for a regular clinic visit. Luckily, because I'd done this once before, they were more lax as were my OBs. I had absolutely no medical intervention whatsoever in the birth of my daughter - none, not even a heplock for an IV - why? well because I chose a natural birth and I knew that my Cf wasn't going to be an issue for that - but if I had listened to what the docs thought I would have been strapped down, constantly monitored with an oxygen mask on, etc.
my point here is that I try to shy away from medical interventions as much as possible as I think that for a healthy Cfer docs tend to be way too invasive based soley on the fact of Cf without actual symptomatic reasons - if that makes sense. And honeslty, if we ever go for a third babe, we are doing it at home, (maybe even unassisted!). So while I think having a Cf team on board and aware of a pregnancy can be importnat, I also think that moms-to-be need to be informed and aware for themselves outside of the standard CF medical model of care.
<div class="FTQUOTE"><begin quote>For women life myself who have had to close the door on the opportunity to bear children because of poorer health, that decision is a difficult one to make as well. I've been fortunate to have a great support system of friends, family, and even doctors, who don't give me false hope about it. Our choice is right for us based on our circumstances. Wanderlost and Caroline and others, your decision was based on the viable options for you. Irishgal, Princessjdc and even Seana's daughter still have decisions to make in this department. </end quote>
I think your decision was a brave and selfless one and I am very glad that you have been supported in this - I can imagine how hard it might have been emotionally, but socially as well. I admit, I have questioned my decision to have kids every now and then when mortality slaps me in the face - LIttle Debbie's death was one of those moments - the realization that yes, CF takes lives - and though I have been lucky, I might not always be. But, one good thing about having these kids is it is a super incentive for being compliant with treatments. For me, I needed that extrinsic motivator.
I know my way of thinking doesn't work for everyone - probably for a lot of people, but I think it needs to be out there to thsoe who are trying to have babies that CF doesn't have to be an issue or a hindernace in a normal healthy pregnancy, no matter what the docs might say.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
Like I've said before, I'm not trying to discourage healthy women (high BMI, high FEV1, etc) from wanting to expand their families. But as someone pointed out to me, doing so requires a very attentive CF Team. There are a great many things that need to be in place in order to have a successful pregnancy, and the studies I've read all say so. </end quote>
Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary, and here is why:
I think CF moms are still a new enough concept that many docs have NO IDEA what to expect. With my first pregnancy, I was given the run around: I'd have to have a pulmonologist on board, I was misdiagnosed with gestational diabetes (due to a Cf doc recommendations), I was told I might not be ablew to gain enough weight to sustain (true enough here, but it didn't happen), I had multiple sonograms (for no reason other than CF) - etc.) I took it upon myself, as have other moms here, to inform myself, look at the studies, look at my own history and I declined most of the interferences that were places on me. The docs, I know, were only trying to err on the side of caution, but I think a healthy pregnancy - CFer or not - does better with as minimal interference as possible and that was NOT what I was getting. For my pregnancy and other women here I know of, Cf wasn't a factor in the pregnancy, but everyone wanted to make it a factor.
With my daughter I only saw my Cf team one time, when i was about 5 or 6 months and that was just for a regular clinic visit. Luckily, because I'd done this once before, they were more lax as were my OBs. I had absolutely no medical intervention whatsoever in the birth of my daughter - none, not even a heplock for an IV - why? well because I chose a natural birth and I knew that my Cf wasn't going to be an issue for that - but if I had listened to what the docs thought I would have been strapped down, constantly monitored with an oxygen mask on, etc.
my point here is that I try to shy away from medical interventions as much as possible as I think that for a healthy Cfer docs tend to be way too invasive based soley on the fact of Cf without actual symptomatic reasons - if that makes sense. And honeslty, if we ever go for a third babe, we are doing it at home, (maybe even unassisted!). So while I think having a Cf team on board and aware of a pregnancy can be importnat, I also think that moms-to-be need to be informed and aware for themselves outside of the standard CF medical model of care.
<div class="FTQUOTE"><begin quote>For women life myself who have had to close the door on the opportunity to bear children because of poorer health, that decision is a difficult one to make as well. I've been fortunate to have a great support system of friends, family, and even doctors, who don't give me false hope about it. Our choice is right for us based on our circumstances. Wanderlost and Caroline and others, your decision was based on the viable options for you. Irishgal, Princessjdc and even Seana's daughter still have decisions to make in this department. </end quote>
I think your decision was a brave and selfless one and I am very glad that you have been supported in this - I can imagine how hard it might have been emotionally, but socially as well. I admit, I have questioned my decision to have kids every now and then when mortality slaps me in the face - LIttle Debbie's death was one of those moments - the realization that yes, CF takes lives - and though I have been lucky, I might not always be. But, one good thing about having these kids is it is a super incentive for being compliant with treatments. For me, I needed that extrinsic motivator.
I know my way of thinking doesn't work for everyone - probably for a lot of people, but I think it needs to be out there to thsoe who are trying to have babies that CF doesn't have to be an issue or a hindernace in a normal healthy pregnancy, no matter what the docs might say.
lightNlife
New member
Odds of a Successful Pregnancy
<div class="FTQUOTE"><begin quote>Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary,</end quote></div>
This is an excellent point that you bring up. You're right that there are some CF docs who have no clue about how to deal with the pregnancy thing. I've always been seen by top notch CF Care Teams, so it's easy for me to forget that some people don't have the most cutting edge info and treatments at their disposal.
When I got pregnant (as the result of sexual assault) I asked my docs to lay it on the line for me and tell me what it would take to get me through the pregnancy safely. I had a LONG list of questions in my journal that they answered for me. Even though I was not in good health at the time, my CF Team was committed to making sure that I was as safe as possible. I know their motivation was not to have a successful CF pregnancy on their records, but to make sure that I was not further harmed by being pregnant--afterall, being assaulted was already harmful enough.
CF or no CF, when it comes to pregnancy, timing is everything. It's just more of an issue for CFers. Women who are in a mild enough stage of CF, like your situation have the good fortune to be able to seize the opportunity to become pregnant. But still, do so wisely.
Health is only one part of that opportunity though. I don't think it is wise for women who are not in a committed (i.e. married) relationship to aim to get pregnant just to take advantage of their good health. There are SO many factors that should be considered. I don't want to get into the moral and social ramifications of any of that here though--I simply don't have the stamina for the heated discussion I know would follow.
Long story short, you're right, Wanderlost. An attentive CF team is not a requirement. However, for those who may teeter on the edge of mild and moderate disease progression, having an attentive and knowlegable CF Team or other healthcare specialist familiar with high-risk pregnancies, is just one piece of the overall picture.
<div class="FTQUOTE"><begin quote>Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary,</end quote></div>
This is an excellent point that you bring up. You're right that there are some CF docs who have no clue about how to deal with the pregnancy thing. I've always been seen by top notch CF Care Teams, so it's easy for me to forget that some people don't have the most cutting edge info and treatments at their disposal.
When I got pregnant (as the result of sexual assault) I asked my docs to lay it on the line for me and tell me what it would take to get me through the pregnancy safely. I had a LONG list of questions in my journal that they answered for me. Even though I was not in good health at the time, my CF Team was committed to making sure that I was as safe as possible. I know their motivation was not to have a successful CF pregnancy on their records, but to make sure that I was not further harmed by being pregnant--afterall, being assaulted was already harmful enough.
CF or no CF, when it comes to pregnancy, timing is everything. It's just more of an issue for CFers. Women who are in a mild enough stage of CF, like your situation have the good fortune to be able to seize the opportunity to become pregnant. But still, do so wisely.
Health is only one part of that opportunity though. I don't think it is wise for women who are not in a committed (i.e. married) relationship to aim to get pregnant just to take advantage of their good health. There are SO many factors that should be considered. I don't want to get into the moral and social ramifications of any of that here though--I simply don't have the stamina for the heated discussion I know would follow.
Long story short, you're right, Wanderlost. An attentive CF team is not a requirement. However, for those who may teeter on the edge of mild and moderate disease progression, having an attentive and knowlegable CF Team or other healthcare specialist familiar with high-risk pregnancies, is just one piece of the overall picture.
lightNlife
New member
Odds of a Successful Pregnancy
<div class="FTQUOTE"><begin quote>Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary,</end quote></div>
This is an excellent point that you bring up. You're right that there are some CF docs who have no clue about how to deal with the pregnancy thing. I've always been seen by top notch CF Care Teams, so it's easy for me to forget that some people don't have the most cutting edge info and treatments at their disposal.
When I got pregnant (as the result of sexual assault) I asked my docs to lay it on the line for me and tell me what it would take to get me through the pregnancy safely. I had a LONG list of questions in my journal that they answered for me. Even though I was not in good health at the time, my CF Team was committed to making sure that I was as safe as possible. I know their motivation was not to have a successful CF pregnancy on their records, but to make sure that I was not further harmed by being pregnant--afterall, being assaulted was already harmful enough.
CF or no CF, when it comes to pregnancy, timing is everything. It's just more of an issue for CFers. Women who are in a mild enough stage of CF, like your situation have the good fortune to be able to seize the opportunity to become pregnant. But still, do so wisely.
Health is only one part of that opportunity though. I don't think it is wise for women who are not in a committed (i.e. married) relationship to aim to get pregnant just to take advantage of their good health. There are SO many factors that should be considered. I don't want to get into the moral and social ramifications of any of that here though--I simply don't have the stamina for the heated discussion I know would follow.
Long story short, you're right, Wanderlost. An attentive CF team is not a requirement. However, for those who may teeter on the edge of mild and moderate disease progression, having an attentive and knowlegable CF Team or other healthcare specialist familiar with high-risk pregnancies, is just one piece of the overall picture.
<div class="FTQUOTE"><begin quote>Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary,</end quote></div>
This is an excellent point that you bring up. You're right that there are some CF docs who have no clue about how to deal with the pregnancy thing. I've always been seen by top notch CF Care Teams, so it's easy for me to forget that some people don't have the most cutting edge info and treatments at their disposal.
When I got pregnant (as the result of sexual assault) I asked my docs to lay it on the line for me and tell me what it would take to get me through the pregnancy safely. I had a LONG list of questions in my journal that they answered for me. Even though I was not in good health at the time, my CF Team was committed to making sure that I was as safe as possible. I know their motivation was not to have a successful CF pregnancy on their records, but to make sure that I was not further harmed by being pregnant--afterall, being assaulted was already harmful enough.
CF or no CF, when it comes to pregnancy, timing is everything. It's just more of an issue for CFers. Women who are in a mild enough stage of CF, like your situation have the good fortune to be able to seize the opportunity to become pregnant. But still, do so wisely.
Health is only one part of that opportunity though. I don't think it is wise for women who are not in a committed (i.e. married) relationship to aim to get pregnant just to take advantage of their good health. There are SO many factors that should be considered. I don't want to get into the moral and social ramifications of any of that here though--I simply don't have the stamina for the heated discussion I know would follow.
Long story short, you're right, Wanderlost. An attentive CF team is not a requirement. However, for those who may teeter on the edge of mild and moderate disease progression, having an attentive and knowlegable CF Team or other healthcare specialist familiar with high-risk pregnancies, is just one piece of the overall picture.
lightNlife
New member
Odds of a Successful Pregnancy
<div class="FTQUOTE"><begin quote>Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary,</end quote></div>
This is an excellent point that you bring up. You're right that there are some CF docs who have no clue about how to deal with the pregnancy thing. I've always been seen by top notch CF Care Teams, so it's easy for me to forget that some people don't have the most cutting edge info and treatments at their disposal.
When I got pregnant (as the result of sexual assault) I asked my docs to lay it on the line for me and tell me what it would take to get me through the pregnancy safely. I had a LONG list of questions in my journal that they answered for me. Even though I was not in good health at the time, my CF Team was committed to making sure that I was as safe as possible. I know their motivation was not to have a successful CF pregnancy on their records, but to make sure that I was not further harmed by being pregnant--afterall, being assaulted was already harmful enough.
CF or no CF, when it comes to pregnancy, timing is everything. It's just more of an issue for CFers. Women who are in a mild enough stage of CF, like your situation have the good fortune to be able to seize the opportunity to become pregnant. But still, do so wisely.
Health is only one part of that opportunity though. I don't think it is wise for women who are not in a committed (i.e. married) relationship to aim to get pregnant just to take advantage of their good health. There are SO many factors that should be considered. I don't want to get into the moral and social ramifications of any of that here though--I simply don't have the stamina for the heated discussion I know would follow.
Long story short, you're right, Wanderlost. An attentive CF team is not a requirement. However, for those who may teeter on the edge of mild and moderate disease progression, having an attentive and knowlegable CF Team or other healthcare specialist familiar with high-risk pregnancies, is just one piece of the overall picture.
<div class="FTQUOTE"><begin quote>Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary,</end quote></div>
This is an excellent point that you bring up. You're right that there are some CF docs who have no clue about how to deal with the pregnancy thing. I've always been seen by top notch CF Care Teams, so it's easy for me to forget that some people don't have the most cutting edge info and treatments at their disposal.
When I got pregnant (as the result of sexual assault) I asked my docs to lay it on the line for me and tell me what it would take to get me through the pregnancy safely. I had a LONG list of questions in my journal that they answered for me. Even though I was not in good health at the time, my CF Team was committed to making sure that I was as safe as possible. I know their motivation was not to have a successful CF pregnancy on their records, but to make sure that I was not further harmed by being pregnant--afterall, being assaulted was already harmful enough.
CF or no CF, when it comes to pregnancy, timing is everything. It's just more of an issue for CFers. Women who are in a mild enough stage of CF, like your situation have the good fortune to be able to seize the opportunity to become pregnant. But still, do so wisely.
Health is only one part of that opportunity though. I don't think it is wise for women who are not in a committed (i.e. married) relationship to aim to get pregnant just to take advantage of their good health. There are SO many factors that should be considered. I don't want to get into the moral and social ramifications of any of that here though--I simply don't have the stamina for the heated discussion I know would follow.
Long story short, you're right, Wanderlost. An attentive CF team is not a requirement. However, for those who may teeter on the edge of mild and moderate disease progression, having an attentive and knowlegable CF Team or other healthcare specialist familiar with high-risk pregnancies, is just one piece of the overall picture.
lightNlife
New member
Odds of a Successful Pregnancy
<div class="FTQUOTE"><begin quote>Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary,</end quote>
This is an excellent point that you bring up. You're right that there are some CF docs who have no clue about how to deal with the pregnancy thing. I've always been seen by top notch CF Care Teams, so it's easy for me to forget that some people don't have the most cutting edge info and treatments at their disposal.
When I got pregnant (as the result of sexual assault) I asked my docs to lay it on the line for me and tell me what it would take to get me through the pregnancy safely. I had a LONG list of questions in my journal that they answered for me. Even though I was not in good health at the time, my CF Team was committed to making sure that I was as safe as possible. I know their motivation was not to have a successful CF pregnancy on their records, but to make sure that I was not further harmed by being pregnant--afterall, being assaulted was already harmful enough.
CF or no CF, when it comes to pregnancy, timing is everything. It's just more of an issue for CFers. Women who are in a mild enough stage of CF, like your situation have the good fortune to be able to seize the opportunity to become pregnant. But still, do so wisely.
Health is only one part of that opportunity though. I don't think it is wise for women who are not in a committed (i.e. married) relationship to aim to get pregnant just to take advantage of their good health. There are SO many factors that should be considered. I don't want to get into the moral and social ramifications of any of that here though--I simply don't have the stamina for the heated discussion I know would follow.
Long story short, you're right, Wanderlost. An attentive CF team is not a requirement. However, for those who may teeter on the edge of mild and moderate disease progression, having an attentive and knowlegable CF Team or other healthcare specialist familiar with high-risk pregnancies, is just one piece of the overall picture.
<div class="FTQUOTE"><begin quote>Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary,</end quote>
This is an excellent point that you bring up. You're right that there are some CF docs who have no clue about how to deal with the pregnancy thing. I've always been seen by top notch CF Care Teams, so it's easy for me to forget that some people don't have the most cutting edge info and treatments at their disposal.
When I got pregnant (as the result of sexual assault) I asked my docs to lay it on the line for me and tell me what it would take to get me through the pregnancy safely. I had a LONG list of questions in my journal that they answered for me. Even though I was not in good health at the time, my CF Team was committed to making sure that I was as safe as possible. I know their motivation was not to have a successful CF pregnancy on their records, but to make sure that I was not further harmed by being pregnant--afterall, being assaulted was already harmful enough.
CF or no CF, when it comes to pregnancy, timing is everything. It's just more of an issue for CFers. Women who are in a mild enough stage of CF, like your situation have the good fortune to be able to seize the opportunity to become pregnant. But still, do so wisely.
Health is only one part of that opportunity though. I don't think it is wise for women who are not in a committed (i.e. married) relationship to aim to get pregnant just to take advantage of their good health. There are SO many factors that should be considered. I don't want to get into the moral and social ramifications of any of that here though--I simply don't have the stamina for the heated discussion I know would follow.
Long story short, you're right, Wanderlost. An attentive CF team is not a requirement. However, for those who may teeter on the edge of mild and moderate disease progression, having an attentive and knowlegable CF Team or other healthcare specialist familiar with high-risk pregnancies, is just one piece of the overall picture.
lightNlife
New member
Odds of a Successful Pregnancy
<div class="FTQUOTE"><begin quote>Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary,</end quote>
This is an excellent point that you bring up. You're right that there are some CF docs who have no clue about how to deal with the pregnancy thing. I've always been seen by top notch CF Care Teams, so it's easy for me to forget that some people don't have the most cutting edge info and treatments at their disposal.
When I got pregnant (as the result of sexual assault) I asked my docs to lay it on the line for me and tell me what it would take to get me through the pregnancy safely. I had a LONG list of questions in my journal that they answered for me. Even though I was not in good health at the time, my CF Team was committed to making sure that I was as safe as possible. I know their motivation was not to have a successful CF pregnancy on their records, but to make sure that I was not further harmed by being pregnant--afterall, being assaulted was already harmful enough.
CF or no CF, when it comes to pregnancy, timing is everything. It's just more of an issue for CFers. Women who are in a mild enough stage of CF, like your situation have the good fortune to be able to seize the opportunity to become pregnant. But still, do so wisely.
Health is only one part of that opportunity though. I don't think it is wise for women who are not in a committed (i.e. married) relationship to aim to get pregnant just to take advantage of their good health. There are SO many factors that should be considered. I don't want to get into the moral and social ramifications of any of that here though--I simply don't have the stamina for the heated discussion I know would follow.
Long story short, you're right, Wanderlost. An attentive CF team is not a requirement. However, for those who may teeter on the edge of mild and moderate disease progression, having an attentive and knowlegable CF Team or other healthcare specialist familiar with high-risk pregnancies, is just one piece of the overall picture.
<div class="FTQUOTE"><begin quote>Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary,</end quote>
This is an excellent point that you bring up. You're right that there are some CF docs who have no clue about how to deal with the pregnancy thing. I've always been seen by top notch CF Care Teams, so it's easy for me to forget that some people don't have the most cutting edge info and treatments at their disposal.
When I got pregnant (as the result of sexual assault) I asked my docs to lay it on the line for me and tell me what it would take to get me through the pregnancy safely. I had a LONG list of questions in my journal that they answered for me. Even though I was not in good health at the time, my CF Team was committed to making sure that I was as safe as possible. I know their motivation was not to have a successful CF pregnancy on their records, but to make sure that I was not further harmed by being pregnant--afterall, being assaulted was already harmful enough.
CF or no CF, when it comes to pregnancy, timing is everything. It's just more of an issue for CFers. Women who are in a mild enough stage of CF, like your situation have the good fortune to be able to seize the opportunity to become pregnant. But still, do so wisely.
Health is only one part of that opportunity though. I don't think it is wise for women who are not in a committed (i.e. married) relationship to aim to get pregnant just to take advantage of their good health. There are SO many factors that should be considered. I don't want to get into the moral and social ramifications of any of that here though--I simply don't have the stamina for the heated discussion I know would follow.
Long story short, you're right, Wanderlost. An attentive CF team is not a requirement. However, for those who may teeter on the edge of mild and moderate disease progression, having an attentive and knowlegable CF Team or other healthcare specialist familiar with high-risk pregnancies, is just one piece of the overall picture.
wanderlost
New member
Odds of a Successful Pregnancy
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
<div class="FTQUOTE"><begin quote>Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary,</end quote></div>
This is an excellent point that you bring up. You're right that there are some CF docs who have no clue about how to deal with the pregnancy thing. I've always been seen by top notch CF Care Teams, so it's easy for me to forget that some people don't have the most cutting edge info and treatments at their disposal.
When I got pregnant (as the result of sexual assault) I asked my docs to lay it on the line for me and tell me what it would take to get me through the pregnancy safely. I had a LONG list of questions in my journal that they answered for me. Even though I was not in good health at the time, my CF Team was committed to making sure that I was as safe as possible. I know their motivation was not to have a successful CF pregnancy on their records, but to make sure that I was not further harmed by being pregnant--afterall, being assaulted was already harmful enough.
CF or no CF, when it comes to pregnancy, timing is everything. It's just more of an issue for CFers. Women who are in a mild enough stage of CF, like your situation have the good fortune to be able to seize the opportunity to become pregnant. But still, do so wisely.
Health is only one part of that opportunity though. I don't think it is wise for women who are not in a committed (i.e. married) relationship to aim to get pregnant just to take advantage of their good health. There are SO many factors that should be considered. I don't want to get into the moral and social ramifications of any of that here though--I simply don't have the stamina for the heated discussion I know would follow.
Long story short, you're right, Wanderlost. An attentive CF team is not a requirement. However, for those who may teeter on the edge of mild and moderate disease progression, having an attentive and knowlegable CF Team or other healthcare specialist familiar with high-risk pregnancies, is just one piece of the overall picture.</end quote></div>
Lauren, I am so, so sorry that that happened to you.
I agree completely with all that you've said here.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
<div class="FTQUOTE"><begin quote>Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary,</end quote></div>
This is an excellent point that you bring up. You're right that there are some CF docs who have no clue about how to deal with the pregnancy thing. I've always been seen by top notch CF Care Teams, so it's easy for me to forget that some people don't have the most cutting edge info and treatments at their disposal.
When I got pregnant (as the result of sexual assault) I asked my docs to lay it on the line for me and tell me what it would take to get me through the pregnancy safely. I had a LONG list of questions in my journal that they answered for me. Even though I was not in good health at the time, my CF Team was committed to making sure that I was as safe as possible. I know their motivation was not to have a successful CF pregnancy on their records, but to make sure that I was not further harmed by being pregnant--afterall, being assaulted was already harmful enough.
CF or no CF, when it comes to pregnancy, timing is everything. It's just more of an issue for CFers. Women who are in a mild enough stage of CF, like your situation have the good fortune to be able to seize the opportunity to become pregnant. But still, do so wisely.
Health is only one part of that opportunity though. I don't think it is wise for women who are not in a committed (i.e. married) relationship to aim to get pregnant just to take advantage of their good health. There are SO many factors that should be considered. I don't want to get into the moral and social ramifications of any of that here though--I simply don't have the stamina for the heated discussion I know would follow.
Long story short, you're right, Wanderlost. An attentive CF team is not a requirement. However, for those who may teeter on the edge of mild and moderate disease progression, having an attentive and knowlegable CF Team or other healthcare specialist familiar with high-risk pregnancies, is just one piece of the overall picture.</end quote></div>
Lauren, I am so, so sorry that that happened to you.
I agree completely with all that you've said here.
wanderlost
New member
Odds of a Successful Pregnancy
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
<div class="FTQUOTE"><begin quote>Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary,</end quote></div>
This is an excellent point that you bring up. You're right that there are some CF docs who have no clue about how to deal with the pregnancy thing. I've always been seen by top notch CF Care Teams, so it's easy for me to forget that some people don't have the most cutting edge info and treatments at their disposal.
When I got pregnant (as the result of sexual assault) I asked my docs to lay it on the line for me and tell me what it would take to get me through the pregnancy safely. I had a LONG list of questions in my journal that they answered for me. Even though I was not in good health at the time, my CF Team was committed to making sure that I was as safe as possible. I know their motivation was not to have a successful CF pregnancy on their records, but to make sure that I was not further harmed by being pregnant--afterall, being assaulted was already harmful enough.
CF or no CF, when it comes to pregnancy, timing is everything. It's just more of an issue for CFers. Women who are in a mild enough stage of CF, like your situation have the good fortune to be able to seize the opportunity to become pregnant. But still, do so wisely.
Health is only one part of that opportunity though. I don't think it is wise for women who are not in a committed (i.e. married) relationship to aim to get pregnant just to take advantage of their good health. There are SO many factors that should be considered. I don't want to get into the moral and social ramifications of any of that here though--I simply don't have the stamina for the heated discussion I know would follow.
Long story short, you're right, Wanderlost. An attentive CF team is not a requirement. However, for those who may teeter on the edge of mild and moderate disease progression, having an attentive and knowlegable CF Team or other healthcare specialist familiar with high-risk pregnancies, is just one piece of the overall picture.</end quote></div>
Lauren, I am so, so sorry that that happened to you.
I agree completely with all that you've said here.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
<div class="FTQUOTE"><begin quote>Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary,</end quote></div>
This is an excellent point that you bring up. You're right that there are some CF docs who have no clue about how to deal with the pregnancy thing. I've always been seen by top notch CF Care Teams, so it's easy for me to forget that some people don't have the most cutting edge info and treatments at their disposal.
When I got pregnant (as the result of sexual assault) I asked my docs to lay it on the line for me and tell me what it would take to get me through the pregnancy safely. I had a LONG list of questions in my journal that they answered for me. Even though I was not in good health at the time, my CF Team was committed to making sure that I was as safe as possible. I know their motivation was not to have a successful CF pregnancy on their records, but to make sure that I was not further harmed by being pregnant--afterall, being assaulted was already harmful enough.
CF or no CF, when it comes to pregnancy, timing is everything. It's just more of an issue for CFers. Women who are in a mild enough stage of CF, like your situation have the good fortune to be able to seize the opportunity to become pregnant. But still, do so wisely.
Health is only one part of that opportunity though. I don't think it is wise for women who are not in a committed (i.e. married) relationship to aim to get pregnant just to take advantage of their good health. There are SO many factors that should be considered. I don't want to get into the moral and social ramifications of any of that here though--I simply don't have the stamina for the heated discussion I know would follow.
Long story short, you're right, Wanderlost. An attentive CF team is not a requirement. However, for those who may teeter on the edge of mild and moderate disease progression, having an attentive and knowlegable CF Team or other healthcare specialist familiar with high-risk pregnancies, is just one piece of the overall picture.</end quote></div>
Lauren, I am so, so sorry that that happened to you.
I agree completely with all that you've said here.
wanderlost
New member
Odds of a Successful Pregnancy
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
<div class="FTQUOTE"><begin quote>Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary,</end quote></div>
This is an excellent point that you bring up. You're right that there are some CF docs who have no clue about how to deal with the pregnancy thing. I've always been seen by top notch CF Care Teams, so it's easy for me to forget that some people don't have the most cutting edge info and treatments at their disposal.
When I got pregnant (as the result of sexual assault) I asked my docs to lay it on the line for me and tell me what it would take to get me through the pregnancy safely. I had a LONG list of questions in my journal that they answered for me. Even though I was not in good health at the time, my CF Team was committed to making sure that I was as safe as possible. I know their motivation was not to have a successful CF pregnancy on their records, but to make sure that I was not further harmed by being pregnant--afterall, being assaulted was already harmful enough.
CF or no CF, when it comes to pregnancy, timing is everything. It's just more of an issue for CFers. Women who are in a mild enough stage of CF, like your situation have the good fortune to be able to seize the opportunity to become pregnant. But still, do so wisely.
Health is only one part of that opportunity though. I don't think it is wise for women who are not in a committed (i.e. married) relationship to aim to get pregnant just to take advantage of their good health. There are SO many factors that should be considered. I don't want to get into the moral and social ramifications of any of that here though--I simply don't have the stamina for the heated discussion I know would follow.
Long story short, you're right, Wanderlost. An attentive CF team is not a requirement. However, for those who may teeter on the edge of mild and moderate disease progression, having an attentive and knowlegable CF Team or other healthcare specialist familiar with high-risk pregnancies, is just one piece of the overall picture.</end quote></div>
Lauren, I am so, so sorry that that happened to you.
I agree completely with all that you've said here.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
<div class="FTQUOTE"><begin quote>Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary,</end quote></div>
This is an excellent point that you bring up. You're right that there are some CF docs who have no clue about how to deal with the pregnancy thing. I've always been seen by top notch CF Care Teams, so it's easy for me to forget that some people don't have the most cutting edge info and treatments at their disposal.
When I got pregnant (as the result of sexual assault) I asked my docs to lay it on the line for me and tell me what it would take to get me through the pregnancy safely. I had a LONG list of questions in my journal that they answered for me. Even though I was not in good health at the time, my CF Team was committed to making sure that I was as safe as possible. I know their motivation was not to have a successful CF pregnancy on their records, but to make sure that I was not further harmed by being pregnant--afterall, being assaulted was already harmful enough.
CF or no CF, when it comes to pregnancy, timing is everything. It's just more of an issue for CFers. Women who are in a mild enough stage of CF, like your situation have the good fortune to be able to seize the opportunity to become pregnant. But still, do so wisely.
Health is only one part of that opportunity though. I don't think it is wise for women who are not in a committed (i.e. married) relationship to aim to get pregnant just to take advantage of their good health. There are SO many factors that should be considered. I don't want to get into the moral and social ramifications of any of that here though--I simply don't have the stamina for the heated discussion I know would follow.
Long story short, you're right, Wanderlost. An attentive CF team is not a requirement. However, for those who may teeter on the edge of mild and moderate disease progression, having an attentive and knowlegable CF Team or other healthcare specialist familiar with high-risk pregnancies, is just one piece of the overall picture.</end quote></div>
Lauren, I am so, so sorry that that happened to you.
I agree completely with all that you've said here.
wanderlost
New member
Odds of a Successful Pregnancy
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
<div class="FTQUOTE"><begin quote>Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary,</end quote>
This is an excellent point that you bring up. You're right that there are some CF docs who have no clue about how to deal with the pregnancy thing. I've always been seen by top notch CF Care Teams, so it's easy for me to forget that some people don't have the most cutting edge info and treatments at their disposal.
When I got pregnant (as the result of sexual assault) I asked my docs to lay it on the line for me and tell me what it would take to get me through the pregnancy safely. I had a LONG list of questions in my journal that they answered for me. Even though I was not in good health at the time, my CF Team was committed to making sure that I was as safe as possible. I know their motivation was not to have a successful CF pregnancy on their records, but to make sure that I was not further harmed by being pregnant--afterall, being assaulted was already harmful enough.
CF or no CF, when it comes to pregnancy, timing is everything. It's just more of an issue for CFers. Women who are in a mild enough stage of CF, like your situation have the good fortune to be able to seize the opportunity to become pregnant. But still, do so wisely.
Health is only one part of that opportunity though. I don't think it is wise for women who are not in a committed (i.e. married) relationship to aim to get pregnant just to take advantage of their good health. There are SO many factors that should be considered. I don't want to get into the moral and social ramifications of any of that here though--I simply don't have the stamina for the heated discussion I know would follow.
Long story short, you're right, Wanderlost. An attentive CF team is not a requirement. However, for those who may teeter on the edge of mild and moderate disease progression, having an attentive and knowlegable CF Team or other healthcare specialist familiar with high-risk pregnancies, is just one piece of the overall picture.</end quote>
Lauren, I am so, so sorry that that happened to you.
I agree completely with all that you've said here.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
<div class="FTQUOTE"><begin quote>Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary,</end quote>
This is an excellent point that you bring up. You're right that there are some CF docs who have no clue about how to deal with the pregnancy thing. I've always been seen by top notch CF Care Teams, so it's easy for me to forget that some people don't have the most cutting edge info and treatments at their disposal.
When I got pregnant (as the result of sexual assault) I asked my docs to lay it on the line for me and tell me what it would take to get me through the pregnancy safely. I had a LONG list of questions in my journal that they answered for me. Even though I was not in good health at the time, my CF Team was committed to making sure that I was as safe as possible. I know their motivation was not to have a successful CF pregnancy on their records, but to make sure that I was not further harmed by being pregnant--afterall, being assaulted was already harmful enough.
CF or no CF, when it comes to pregnancy, timing is everything. It's just more of an issue for CFers. Women who are in a mild enough stage of CF, like your situation have the good fortune to be able to seize the opportunity to become pregnant. But still, do so wisely.
Health is only one part of that opportunity though. I don't think it is wise for women who are not in a committed (i.e. married) relationship to aim to get pregnant just to take advantage of their good health. There are SO many factors that should be considered. I don't want to get into the moral and social ramifications of any of that here though--I simply don't have the stamina for the heated discussion I know would follow.
Long story short, you're right, Wanderlost. An attentive CF team is not a requirement. However, for those who may teeter on the edge of mild and moderate disease progression, having an attentive and knowlegable CF Team or other healthcare specialist familiar with high-risk pregnancies, is just one piece of the overall picture.</end quote>
Lauren, I am so, so sorry that that happened to you.
I agree completely with all that you've said here.
wanderlost
New member
Odds of a Successful Pregnancy
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
<div class="FTQUOTE"><begin quote>Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary,</end quote>
This is an excellent point that you bring up. You're right that there are some CF docs who have no clue about how to deal with the pregnancy thing. I've always been seen by top notch CF Care Teams, so it's easy for me to forget that some people don't have the most cutting edge info and treatments at their disposal.
When I got pregnant (as the result of sexual assault) I asked my docs to lay it on the line for me and tell me what it would take to get me through the pregnancy safely. I had a LONG list of questions in my journal that they answered for me. Even though I was not in good health at the time, my CF Team was committed to making sure that I was as safe as possible. I know their motivation was not to have a successful CF pregnancy on their records, but to make sure that I was not further harmed by being pregnant--afterall, being assaulted was already harmful enough.
CF or no CF, when it comes to pregnancy, timing is everything. It's just more of an issue for CFers. Women who are in a mild enough stage of CF, like your situation have the good fortune to be able to seize the opportunity to become pregnant. But still, do so wisely.
Health is only one part of that opportunity though. I don't think it is wise for women who are not in a committed (i.e. married) relationship to aim to get pregnant just to take advantage of their good health. There are SO many factors that should be considered. I don't want to get into the moral and social ramifications of any of that here though--I simply don't have the stamina for the heated discussion I know would follow.
Long story short, you're right, Wanderlost. An attentive CF team is not a requirement. However, for those who may teeter on the edge of mild and moderate disease progression, having an attentive and knowlegable CF Team or other healthcare specialist familiar with high-risk pregnancies, is just one piece of the overall picture.</end quote>
Lauren, I am so, so sorry that that happened to you.
I agree completely with all that you've said here.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lightNlife</b></i>
<div class="FTQUOTE"><begin quote>Now this is purely my opinion here - I know many women rely greatly on their Cf docs, OBs, etc. but I disagree that for some of us (those healthy enough to think about having babies), an attentive Cf team is necessary,</end quote>
This is an excellent point that you bring up. You're right that there are some CF docs who have no clue about how to deal with the pregnancy thing. I've always been seen by top notch CF Care Teams, so it's easy for me to forget that some people don't have the most cutting edge info and treatments at their disposal.
When I got pregnant (as the result of sexual assault) I asked my docs to lay it on the line for me and tell me what it would take to get me through the pregnancy safely. I had a LONG list of questions in my journal that they answered for me. Even though I was not in good health at the time, my CF Team was committed to making sure that I was as safe as possible. I know their motivation was not to have a successful CF pregnancy on their records, but to make sure that I was not further harmed by being pregnant--afterall, being assaulted was already harmful enough.
CF or no CF, when it comes to pregnancy, timing is everything. It's just more of an issue for CFers. Women who are in a mild enough stage of CF, like your situation have the good fortune to be able to seize the opportunity to become pregnant. But still, do so wisely.
Health is only one part of that opportunity though. I don't think it is wise for women who are not in a committed (i.e. married) relationship to aim to get pregnant just to take advantage of their good health. There are SO many factors that should be considered. I don't want to get into the moral and social ramifications of any of that here though--I simply don't have the stamina for the heated discussion I know would follow.
Long story short, you're right, Wanderlost. An attentive CF team is not a requirement. However, for those who may teeter on the edge of mild and moderate disease progression, having an attentive and knowlegable CF Team or other healthcare specialist familiar with high-risk pregnancies, is just one piece of the overall picture.</end quote>
Lauren, I am so, so sorry that that happened to you.
I agree completely with all that you've said here.