Cf and Transplants

Transplantmommy

New member
As the rest have said...the CF is not gone, it is just not in the lungs anymore (although, just like any other person, it is still possible to get pneumonia and whatever). In my case, the CF is also no longer in the liver since I got a liver transplant too.

As for your other questions...I no longer take breathing treatments or do CPT. I still take enzymes and a bunch of other medications (like the anti-rejection meds, prednisone, and an antibiotic). The CF will never get into the donor lungs but there are other things that can go wrong (like rejection and infection). Those are now my main worries along with cancer (caused by meds or too much sun) or my kidney's failing.
 

Transplantmommy

New member
As the rest have said...the CF is not gone, it is just not in the lungs anymore (although, just like any other person, it is still possible to get pneumonia and whatever). In my case, the CF is also no longer in the liver since I got a liver transplant too.

As for your other questions...I no longer take breathing treatments or do CPT. I still take enzymes and a bunch of other medications (like the anti-rejection meds, prednisone, and an antibiotic). The CF will never get into the donor lungs but there are other things that can go wrong (like rejection and infection). Those are now my main worries along with cancer (caused by meds or too much sun) or my kidney's failing.
 

Transplantmommy

New member
As the rest have said...the CF is not gone, it is just not in the lungs anymore (although, just like any other person, it is still possible to get pneumonia and whatever). In my case, the CF is also no longer in the liver since I got a liver transplant too.

As for your other questions...I no longer take breathing treatments or do CPT. I still take enzymes and a bunch of other medications (like the anti-rejection meds, prednisone, and an antibiotic). The CF will never get into the donor lungs but there are other things that can go wrong (like rejection and infection). Those are now my main worries along with cancer (caused by meds or too much sun) or my kidney's failing.
 

Transplantmommy

New member
As the rest have said...the CF is not gone, it is just not in the lungs anymore (although, just like any other person, it is still possible to get pneumonia and whatever). In my case, the CF is also no longer in the liver since I got a liver transplant too.

As for your other questions...I no longer take breathing treatments or do CPT. I still take enzymes and a bunch of other medications (like the anti-rejection meds, prednisone, and an antibiotic). The CF will never get into the donor lungs but there are other things that can go wrong (like rejection and infection). Those are now my main worries along with cancer (caused by meds or too much sun) or my kidney's failing.
 

Transplantmommy

New member
As the rest have said...the CF is not gone, it is just not in the lungs anymore (although, just like any other person, it is still possible to get pneumonia and whatever). In my case, the CF is also no longer in the liver since I got a liver transplant too.
<br />
<br />As for your other questions...I no longer take breathing treatments or do CPT. I still take enzymes and a bunch of other medications (like the anti-rejection meds, prednisone, and an antibiotic). The CF will never get into the donor lungs but there are other things that can go wrong (like rejection and infection). Those are now my main worries along with cancer (caused by meds or too much sun) or my kidney's failing.
 

soderick

New member
After a transplant, do you have to keep worrying about rejection, or are you able to stop taking anti-rejection meds after a certain amount of time?
 

soderick

New member
After a transplant, do you have to keep worrying about rejection, or are you able to stop taking anti-rejection meds after a certain amount of time?
 

soderick

New member
After a transplant, do you have to keep worrying about rejection, or are you able to stop taking anti-rejection meds after a certain amount of time?
 

soderick

New member
After a transplant, do you have to keep worrying about rejection, or are you able to stop taking anti-rejection meds after a certain amount of time?
 

soderick

New member
After a transplant, do you have to keep worrying about rejection, or are you able to stop taking anti-rejection meds after a certain amount of time?
 
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