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CF camps
- Thread starter anonymous
- Start date
I
IG
Guest
I personally when I went to Camp Onkoi Benek loved it. Back then I wouldn´t have traded it for the world.
Shortly after my last camp stay I was diagnosed with having MRSA. While it? not a positive ´you got it from there´ I believe it is where I got it from.
I personally would not attend one if my life depended on it (actually it does, so I wouldn´t). I believe personal contact between CFers is essential, I know MANY people with CF in person (my boyfriend has it [yes I am post tx]) and wouldn´t trade it for the world. But a group as large as it takes to fill a camp... it? just too dangerous..
Shortly after my last camp stay I was diagnosed with having MRSA. While it? not a positive ´you got it from there´ I believe it is where I got it from.
I personally would not attend one if my life depended on it (actually it does, so I wouldn´t). I believe personal contact between CFers is essential, I know MANY people with CF in person (my boyfriend has it [yes I am post tx]) and wouldn´t trade it for the world. But a group as large as it takes to fill a camp... it? just too dangerous..
I went to a cf camp in high school - it was a lot of fun, and I learned a lot about cf. If I had the chance to back now, I wouldn't for two reasons: the first would be the contamination issue. Yes, the fear of catching something, but also that I would pass something on that I didn't know I had.
The second would be that as a adult, I would rather use the vacation time for something more fun (for lack of a better word). You don't see a lot of adult camps for a reason. Conferences are fine, and I do go to those in my area.
--Wallflower
The second would be that as a adult, I would rather use the vacation time for something more fun (for lack of a better word). You don't see a lot of adult camps for a reason. Conferences are fine, and I do go to those in my area.
--Wallflower
candice- i went to onkoi benek too...if you go <a target=_blank class=ftalternatingbarlinklarge href="http://not-sick-enough.livejournal.com/profile">here</a> i have a picture, i think you're sitting, wearing the white shirt with a blue design on it? i am standing next to you wearing a tye dyed shirt.
i hope the link worked.
maggie
i hope the link worked.
maggie
I
IG
Guest
Oh my ... that was a long time ago.
But yup that is me.
<img src="i/expressions/face-icon-small-smile.gif" border="0">
But yup that is me.
<img src="i/expressions/face-icon-small-smile.gif" border="0">
If CF people (regardless of age) just had normal social contact, there is extremely low chances of anything happening, unless one of them directly coughed in your face and sprayed you with their funk...Even then unless any of it hit a mucous membrane or you breathed in when they did it, theres low chance you would get their bugs. Say if there was some form of adult get together at some hotel or something, where we would eat and have some drinks and talk, i'd go if I had the time. Of course if someone is extremely sick and coughing like mad and the like, please stay home.
I went to a CF Camp for about 14 years. Once cepacia became a big issue they started holding seperate camps. It wasn't until about 6 years ago that they stopped camp, even then we continued for a few years to meet once a year for a day at an amusement park. It was great and I feel it was very beneficial for my life. I would definetly still go if they had it. I don't go through life scared of what might happen. I could just as easily die in a car accident as catch something from another CFer.
-Ann 26 w/cf
-Ann 26 w/cf
Scarlett81
New member
I've avoided this particular thread cause I'm a teeny tired of debates, but just giving my opinion. Would I love to meet other Cfers face to face?-yes. I saw "one" last month on cepacia day-the only day I can visit the clinic. And just accidently running into one was like seeing an alien. It's like -ohhhhhhh-what species are you?!
But I personally couldn't stand myself for risking giving someone cepacia. I know the extra worry having cepaica has caused my life. It's just another shot of worry to living with CF. And I'm sorry-but till you have it-you have no clue.
It throws a whole wrench into the disease. For example-if it wasn't for my cepacia-there's a very high chance I'd be able to safely get pregnant.
And-my contact with other CFers is here. And its enough for me. I'm grateful for it. I don't think about the what if-I just try to happy that I at least have this!
But I personally couldn't stand myself for risking giving someone cepacia. I know the extra worry having cepaica has caused my life. It's just another shot of worry to living with CF. And I'm sorry-but till you have it-you have no clue.
It throws a whole wrench into the disease. For example-if it wasn't for my cepacia-there's a very high chance I'd be able to safely get pregnant.
And-my contact with other CFers is here. And its enough for me. I'm grateful for it. I don't think about the what if-I just try to happy that I at least have this!
letsrockcfem
New member
Whoa I went to Onkoi Benek too. What year did you guys go? I was there in 89 and maybe 91...? Who were your counselors? I think I'm a little older than you guys but we could've been there the same years.
The blone lady in the picture with you guys is who I had to dress up as one year at the talent show.
Whoa that is crazy! I loved CF camp!
Em
The blone lady in the picture with you guys is who I had to dress up as one year at the talent show.
Whoa that is crazy! I loved CF camp!
Em
Emily-
I was only there 95 and 96, the last two years...my couselors were julie and sue.
That's so cool that you were there! I look for people from camp all the time- I feel like everyone dropped off the face of the earth.
Anyways good to hear from another camper!
Maggie
18w/cf
aim-eatm0regreens
I was only there 95 and 96, the last two years...my couselors were julie and sue.
That's so cool that you were there! I look for people from camp all the time- I feel like everyone dropped off the face of the earth.
Anyways good to hear from another camper!
Maggie
18w/cf
aim-eatm0regreens
I
IG
Guest
Eh, I stopped wearing hand me downs a while ago. Not to mention raiding my grandmother's cool shirt collection.
I believe I was at that camp for 93, 95, and 96? Maybe it was 94. I don't remember really I was so young. Buuuuut.. I did, until recently, have the t-shirt for '95.. so I'm positive I was there in 95. Everything else is flexible though.
My counselors were Julie and Sue at one point as well, and I know I had a Maggie in my group. I have a ton of pics.. back in Texas, naturally. I can't go through them... which is a pity.
I believe I was at that camp for 93, 95, and 96? Maybe it was 94. I don't remember really I was so young. Buuuuut.. I did, until recently, have the t-shirt for '95.. so I'm positive I was there in 95. Everything else is flexible though.
My counselors were Julie and Sue at one point as well, and I know I had a Maggie in my group. I have a ton of pics.. back in Texas, naturally. I can't go through them... which is a pity.
I think everyone should heed the warnings about cross infections, if not for the sake of yourself then for others, escpially children.
As a person with cf I don't think it is a good idea. Now as a mother to a child without cf I would not intentionally go against science and experts and put my child in a poitenally harmful situation, if my child did have cf. Children with cf now have so much hope for the future it would be ashame to take it from them.
As a person with cf I don't think it is a good idea. Now as a mother to a child without cf I would not intentionally go against science and experts and put my child in a poitenally harmful situation, if my child did have cf. Children with cf now have so much hope for the future it would be ashame to take it from them.
I think everyone should heed the warnings about cross infections, if not for the sake of yourself then for others, escpially children.
As a person with cf I don't think it is a good idea. Now as a mother to a child without cf I would not intentionally go against science and experts and put my child in a poitenally harmful situation, if my child did have cf. Children with cf now have so much hope for the future it would be ashame to take it from them.
As a person with cf I don't think it is a good idea. Now as a mother to a child without cf I would not intentionally go against science and experts and put my child in a poitenally harmful situation, if my child did have cf. Children with cf now have so much hope for the future it would be ashame to take it from them.
I think everyone should heed the warnings about cross infections, if not for the sake of yourself then for others, escpially children.
As a person with cf I don't think it is a good idea. Now as a mother to a child without cf I would not intentionally go against science and experts and put my child in a poitenally harmful situation, if my child did have cf. Children with cf now have so much hope for the future it would be ashame to take it from them.
As a person with cf I don't think it is a good idea. Now as a mother to a child without cf I would not intentionally go against science and experts and put my child in a poitenally harmful situation, if my child did have cf. Children with cf now have so much hope for the future it would be ashame to take it from them.
I think everyone should heed the warnings about cross infections, if not for the sake of yourself then for others, escpially children.
As a person with cf I don't think it is a good idea. Now as a mother to a child without cf I would not intentionally go against science and experts and put my child in a poitenally harmful situation, if my child did have cf. Children with cf now have so much hope for the future it would be ashame to take it from them.
As a person with cf I don't think it is a good idea. Now as a mother to a child without cf I would not intentionally go against science and experts and put my child in a poitenally harmful situation, if my child did have cf. Children with cf now have so much hope for the future it would be ashame to take it from them.
I think everyone should heed the warnings about cross infections, if not for the sake of yourself then for others, escpially children.
As a person with cf I don't think it is a good idea. Now as a mother to a child without cf I would not intentionally go against science and experts and put my child in a poitenally harmful situation, if my child did have cf. Children with cf now have so much hope for the future it would be ashame to take it from them.
As a person with cf I don't think it is a good idea. Now as a mother to a child without cf I would not intentionally go against science and experts and put my child in a poitenally harmful situation, if my child did have cf. Children with cf now have so much hope for the future it would be ashame to take it from them.
Emily65Roses
New member
That's fine. But as an adult, if everyone involved understands the risks, and are still willing to spend time together, I think that's fine. I grew up around CFers and I wouldn't give it up (just use common sense, don't lick each other, etc.) just so the CFF can cover its ass. Keep in mind that it's just as easy to get a nasty bug in the hospital as it is to get it from another CFer. And we're all in the hospital often enough.
Emily65Roses
New member
That's fine. But as an adult, if everyone involved understands the risks, and are still willing to spend time together, I think that's fine. I grew up around CFers and I wouldn't give it up (just use common sense, don't lick each other, etc.) just so the CFF can cover its ass. Keep in mind that it's just as easy to get a nasty bug in the hospital as it is to get it from another CFer. And we're all in the hospital often enough.