CF Care in other countries question

S

Sevenstars

New member
There was an identical topic to this one that I found, but it didn't answer my questions and it went way, way offtopic. So, if you want to spew your dissertation on why socialized/single payer healthcare is evil/stupid/bad, please do so elsewhere.

My questions are basically how such a system would work here in the US, and how it would apply to people with CF.

Take my situation for example. I do not work, just like many others with CF. I receive SSI (government disability benefits) here in the US, which is about 630$ a month. I am on state health insurance (free) which is "ok" I guess, but I have problems getting many medications approved. I am also only allowed to see certain doctors etc.

So I suppose my question to Canadians (and people in the UK/France/etc) with CF are mainly around working and getting all your meds. Do you still have to pay taxes? Are you able to afford everything? What meds do you have to pay for, if any? Are you still able to get help similar to my SSI if you are unable to work? What is considered an "elective" surgery? - I mean, can you get a mediport right away if you need one? Fix a hernia? Sinus surgery?

Basically I am wondering how someone in my situation - single, not working, on government support, no private insurance - would make ends meet. I do not have frivolous expenditures, I only pay for my apartment, internet, meds and food each month. I don't even have cable TV. <img src="">

Again, please try to stay ontopic. The pros and cons of this system have been regurgitated too many times already, I just wish to know the facts from people that are IN the system now. Thanks much. <img src="">
 
S

Sevenstars

New member
There was an identical topic to this one that I found, but it didn't answer my questions and it went way, way offtopic. So, if you want to spew your dissertation on why socialized/single payer healthcare is evil/stupid/bad, please do so elsewhere.

My questions are basically how such a system would work here in the US, and how it would apply to people with CF.

Take my situation for example. I do not work, just like many others with CF. I receive SSI (government disability benefits) here in the US, which is about 630$ a month. I am on state health insurance (free) which is "ok" I guess, but I have problems getting many medications approved. I am also only allowed to see certain doctors etc.

So I suppose my question to Canadians (and people in the UK/France/etc) with CF are mainly around working and getting all your meds. Do you still have to pay taxes? Are you able to afford everything? What meds do you have to pay for, if any? Are you still able to get help similar to my SSI if you are unable to work? What is considered an "elective" surgery? - I mean, can you get a mediport right away if you need one? Fix a hernia? Sinus surgery?

Basically I am wondering how someone in my situation - single, not working, on government support, no private insurance - would make ends meet. I do not have frivolous expenditures, I only pay for my apartment, internet, meds and food each month. I don't even have cable TV. <img src="">

Again, please try to stay ontopic. The pros and cons of this system have been regurgitated too many times already, I just wish to know the facts from people that are IN the system now. Thanks much. <img src="">
 
S

Sevenstars

New member
There was an identical topic to this one that I found, but it didn't answer my questions and it went way, way offtopic. So, if you want to spew your dissertation on why socialized/single payer healthcare is evil/stupid/bad, please do so elsewhere.

My questions are basically how such a system would work here in the US, and how it would apply to people with CF.

Take my situation for example. I do not work, just like many others with CF. I receive SSI (government disability benefits) here in the US, which is about 630$ a month. I am on state health insurance (free) which is "ok" I guess, but I have problems getting many medications approved. I am also only allowed to see certain doctors etc.

So I suppose my question to Canadians (and people in the UK/France/etc) with CF are mainly around working and getting all your meds. Do you still have to pay taxes? Are you able to afford everything? What meds do you have to pay for, if any? Are you still able to get help similar to my SSI if you are unable to work? What is considered an "elective" surgery? - I mean, can you get a mediport right away if you need one? Fix a hernia? Sinus surgery?

Basically I am wondering how someone in my situation - single, not working, on government support, no private insurance - would make ends meet. I do not have frivolous expenditures, I only pay for my apartment, internet, meds and food each month. I don't even have cable TV. <img src="">

Again, please try to stay ontopic. The pros and cons of this system have been regurgitated too many times already, I just wish to know the facts from people that are IN the system now. Thanks much. <img src="">
 
S

Sevenstars

New member
There was an identical topic to this one that I found, but it didn't answer my questions and it went way, way offtopic. So, if you want to spew your dissertation on why socialized/single payer healthcare is evil/stupid/bad, please do so elsewhere.

My questions are basically how such a system would work here in the US, and how it would apply to people with CF.

Take my situation for example. I do not work, just like many others with CF. I receive SSI (government disability benefits) here in the US, which is about 630$ a month. I am on state health insurance (free) which is "ok" I guess, but I have problems getting many medications approved. I am also only allowed to see certain doctors etc.

So I suppose my question to Canadians (and people in the UK/France/etc) with CF are mainly around working and getting all your meds. Do you still have to pay taxes? Are you able to afford everything? What meds do you have to pay for, if any? Are you still able to get help similar to my SSI if you are unable to work? What is considered an "elective" surgery? - I mean, can you get a mediport right away if you need one? Fix a hernia? Sinus surgery?

Basically I am wondering how someone in my situation - single, not working, on government support, no private insurance - would make ends meet. I do not have frivolous expenditures, I only pay for my apartment, internet, meds and food each month. I don't even have cable TV. <img src="">

Again, please try to stay ontopic. The pros and cons of this system have been regurgitated too many times already, I just wish to know the facts from people that are IN the system now. Thanks much. <img src="">
 
S

Sevenstars

New member
There was an identical topic to this one that I found, but it didn't answer my questions and it went way, way offtopic. So, if you want to spew your dissertation on why socialized/single payer healthcare is evil/stupid/bad, please do so elsewhere.
<br />
<br />My questions are basically how such a system would work here in the US, and how it would apply to people with CF.
<br />
<br />Take my situation for example. I do not work, just like many others with CF. I receive SSI (government disability benefits) here in the US, which is about 630$ a month. I am on state health insurance (free) which is "ok" I guess, but I have problems getting many medications approved. I am also only allowed to see certain doctors etc.
<br />
<br />So I suppose my question to Canadians (and people in the UK/France/etc) with CF are mainly around working and getting all your meds. Do you still have to pay taxes? Are you able to afford everything? What meds do you have to pay for, if any? Are you still able to get help similar to my SSI if you are unable to work? What is considered an "elective" surgery? - I mean, can you get a mediport right away if you need one? Fix a hernia? Sinus surgery?
<br />
<br />Basically I am wondering how someone in my situation - single, not working, on government support, no private insurance - would make ends meet. I do not have frivolous expenditures, I only pay for my apartment, internet, meds and food each month. I don't even have cable TV. <img src="">
<br />
<br />Again, please try to stay ontopic. The pros and cons of this system have been regurgitated too many times already, I just wish to know the facts from people that are IN the system now. Thanks much. <img src="">
<br />
<br />
 
A

alegris

Guest
CF Care in Canada questions

Hi,

Don't know how much help I'll be, but here goes:

I currently work full time so I don't know anything about disability benefits. So I obviously pay taxes because I'm working.

All my CF meds (exceptions below) are covered regardless if I have a health plan or not (which I do have through work). What is not covered for me is Symbicort (for asthma) which my work plan covers. Tobramycin (injectable form, but for inhalation) is covered, but Tobi is not yet approved for coverage so my work plan has to cover that one as well.

I don't have a port so I don't know if there would be a waiting list... but if it's necessary surgery, I think it would be done ASAP. I work with a guy who had a hernia and his surgery was scheduled for the day after they discovered it. When I was a kid, I had a complete intestinal obstruction and had surgery the day I came in with it, as another example. And of course, you don't have to pay for any of these procedures here (and don't need additional health insurance to cover it either).

And those are the facts (as I know them)! Sorry I don't have any info on disability and gov't assistance.
 
A

alegris

Guest
CF Care in Canada questions

Hi,

Don't know how much help I'll be, but here goes:

I currently work full time so I don't know anything about disability benefits. So I obviously pay taxes because I'm working.

All my CF meds (exceptions below) are covered regardless if I have a health plan or not (which I do have through work). What is not covered for me is Symbicort (for asthma) which my work plan covers. Tobramycin (injectable form, but for inhalation) is covered, but Tobi is not yet approved for coverage so my work plan has to cover that one as well.

I don't have a port so I don't know if there would be a waiting list... but if it's necessary surgery, I think it would be done ASAP. I work with a guy who had a hernia and his surgery was scheduled for the day after they discovered it. When I was a kid, I had a complete intestinal obstruction and had surgery the day I came in with it, as another example. And of course, you don't have to pay for any of these procedures here (and don't need additional health insurance to cover it either).

And those are the facts (as I know them)! Sorry I don't have any info on disability and gov't assistance.
 
A

alegris

Guest
CF Care in Canada questions

Hi,

Don't know how much help I'll be, but here goes:

I currently work full time so I don't know anything about disability benefits. So I obviously pay taxes because I'm working.

All my CF meds (exceptions below) are covered regardless if I have a health plan or not (which I do have through work). What is not covered for me is Symbicort (for asthma) which my work plan covers. Tobramycin (injectable form, but for inhalation) is covered, but Tobi is not yet approved for coverage so my work plan has to cover that one as well.

I don't have a port so I don't know if there would be a waiting list... but if it's necessary surgery, I think it would be done ASAP. I work with a guy who had a hernia and his surgery was scheduled for the day after they discovered it. When I was a kid, I had a complete intestinal obstruction and had surgery the day I came in with it, as another example. And of course, you don't have to pay for any of these procedures here (and don't need additional health insurance to cover it either).

And those are the facts (as I know them)! Sorry I don't have any info on disability and gov't assistance.
 
A

alegris

Guest
CF Care in Canada questions

Hi,

Don't know how much help I'll be, but here goes:

I currently work full time so I don't know anything about disability benefits. So I obviously pay taxes because I'm working.

All my CF meds (exceptions below) are covered regardless if I have a health plan or not (which I do have through work). What is not covered for me is Symbicort (for asthma) which my work plan covers. Tobramycin (injectable form, but for inhalation) is covered, but Tobi is not yet approved for coverage so my work plan has to cover that one as well.

I don't have a port so I don't know if there would be a waiting list... but if it's necessary surgery, I think it would be done ASAP. I work with a guy who had a hernia and his surgery was scheduled for the day after they discovered it. When I was a kid, I had a complete intestinal obstruction and had surgery the day I came in with it, as another example. And of course, you don't have to pay for any of these procedures here (and don't need additional health insurance to cover it either).

And those are the facts (as I know them)! Sorry I don't have any info on disability and gov't assistance.
 
A

alegris

Guest
CF Care in Canada questions

Hi,
<br />
<br />Don't know how much help I'll be, but here goes:
<br />
<br />I currently work full time so I don't know anything about disability benefits. So I obviously pay taxes because I'm working.
<br />
<br />All my CF meds (exceptions below) are covered regardless if I have a health plan or not (which I do have through work). What is not covered for me is Symbicort (for asthma) which my work plan covers. Tobramycin (injectable form, but for inhalation) is covered, but Tobi is not yet approved for coverage so my work plan has to cover that one as well.
<br />
<br />I don't have a port so I don't know if there would be a waiting list... but if it's necessary surgery, I think it would be done ASAP. I work with a guy who had a hernia and his surgery was scheduled for the day after they discovered it. When I was a kid, I had a complete intestinal obstruction and had surgery the day I came in with it, as another example. And of course, you don't have to pay for any of these procedures here (and don't need additional health insurance to cover it either).
<br />
<br />And those are the facts (as I know them)! Sorry I don't have any info on disability and gov't assistance.
 
S

Sevenstars

New member
Changed topic title to be more accurate. So many views and no responses ; ; I guess I scared off all the debaters.

Thanks for the input Adrienne. I've actually read a few times that TOBI seems to be the main drug not covered in other countries. Kind of weird since it's such a staple for us! But it's pretty expensive I suppose. I haven't taken it in a really long time anyway... I've been on Colistin instead.

Hopefully some more replies - Emily/Faust/anyone that has knowledge here is welcome even though you guys are in the US. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

Sevenstars

New member
Changed topic title to be more accurate. So many views and no responses ; ; I guess I scared off all the debaters.

Thanks for the input Adrienne. I've actually read a few times that TOBI seems to be the main drug not covered in other countries. Kind of weird since it's such a staple for us! But it's pretty expensive I suppose. I haven't taken it in a really long time anyway... I've been on Colistin instead.

Hopefully some more replies - Emily/Faust/anyone that has knowledge here is welcome even though you guys are in the US. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

Sevenstars

New member
Changed topic title to be more accurate. So many views and no responses ; ; I guess I scared off all the debaters.

Thanks for the input Adrienne. I've actually read a few times that TOBI seems to be the main drug not covered in other countries. Kind of weird since it's such a staple for us! But it's pretty expensive I suppose. I haven't taken it in a really long time anyway... I've been on Colistin instead.

Hopefully some more replies - Emily/Faust/anyone that has knowledge here is welcome even though you guys are in the US. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

Sevenstars

New member
Changed topic title to be more accurate. So many views and no responses ; ; I guess I scared off all the debaters.

Thanks for the input Adrienne. I've actually read a few times that TOBI seems to be the main drug not covered in other countries. Kind of weird since it's such a staple for us! But it's pretty expensive I suppose. I haven't taken it in a really long time anyway... I've been on Colistin instead.

Hopefully some more replies - Emily/Faust/anyone that has knowledge here is welcome even though you guys are in the US. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

Sevenstars

New member
Changed topic title to be more accurate. So many views and no responses ; ; I guess I scared off all the debaters.
<br />
<br />Thanks for the input Adrienne. I've actually read a few times that TOBI seems to be the main drug not covered in other countries. Kind of weird since it's such a staple for us! But it's pretty expensive I suppose. I haven't taken it in a really long time anyway... I've been on Colistin instead.
<br />
<br />Hopefully some more replies - Emily/Faust/anyone that has knowledge here is welcome even though you guys are in the US. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
F

Faust

New member
I have no experience with other countries health care systems. Ender is in Canada, and would be happy to fill you in I'm sure. This topic is extremely political now, and we have beaten it way beyond dead horse status (opinion wise anyways). Some are for a social responsibly paid into system that takes care of it's citizens, and others are fine with what we have now. Usually allegiances go hand in hand with being red or blue politically.
 
F

Faust

New member
I have no experience with other countries health care systems. Ender is in Canada, and would be happy to fill you in I'm sure. This topic is extremely political now, and we have beaten it way beyond dead horse status (opinion wise anyways). Some are for a social responsibly paid into system that takes care of it's citizens, and others are fine with what we have now. Usually allegiances go hand in hand with being red or blue politically.
 
F

Faust

New member
I have no experience with other countries health care systems. Ender is in Canada, and would be happy to fill you in I'm sure. This topic is extremely political now, and we have beaten it way beyond dead horse status (opinion wise anyways). Some are for a social responsibly paid into system that takes care of it's citizens, and others are fine with what we have now. Usually allegiances go hand in hand with being red or blue politically.
 
F

Faust

New member
I have no experience with other countries health care systems. Ender is in Canada, and would be happy to fill you in I'm sure. This topic is extremely political now, and we have beaten it way beyond dead horse status (opinion wise anyways). Some are for a social responsibly paid into system that takes care of it's citizens, and others are fine with what we have now. Usually allegiances go hand in hand with being red or blue politically.
 
F

Faust

New member
I have no experience with other countries health care systems. Ender is in Canada, and would be happy to fill you in I'm sure. This topic is extremely political now, and we have beaten it way beyond dead horse status (opinion wise anyways). Some are for a social responsibly paid into system that takes care of it's citizens, and others are fine with what we have now. Usually allegiances go hand in hand with being red or blue politically.
<br />
<br />
 
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