My main concern is the big bad -- cepacia! And it concerns me that people who have it, still attend CF events. And it concerns me that my CF clinic doesn't take the risk seriously. They claim they've never had a patient at their clinic with cepacia. Claimed they have never had a patient under their care with cepacia. But they're constantly bringing in new patients, so who would know until AFTER a clinic appointment, after tests are conducted that maybe someone sitting in the waiting room has it. Liza
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CF children having to be confinded to hospital rooms
- Thread starter anonymous
- Start date
My main concern is the big bad -- cepacia! And it concerns me that people who have it, still attend CF events. And it concerns me that my CF clinic doesn't take the risk seriously. They claim they've never had a patient at their clinic with cepacia. Claimed they have never had a patient under their care with cepacia. But they're constantly bringing in new patients, so who would know until AFTER a clinic appointment, after tests are conducted that maybe someone sitting in the waiting room has it. Liza
THANK YOU ALL YOU HAVE BEEN GREAT TO CHAT WITH I AM FEELING ALOT BETTER ABOUT EVERYTHING!!!<img src="i/expressions/face-icon-small-happy.gif" border="0">
I AM SURE GREATFUL FOR YOUR WILLINGNESS TO GIVE ME YOUR INPUT SOMETIMES YOU JUST NEED SOMEONE ELSE'S INSIGHT ON THINGS..
I AM SURE GREATFUL FOR YOUR WILLINGNESS TO GIVE ME YOUR INPUT SOMETIMES YOU JUST NEED SOMEONE ELSE'S INSIGHT ON THINGS..
THANK YOU ALL YOU HAVE BEEN GREAT TO CHAT WITH I AM FEELING ALOT BETTER ABOUT EVERYTHING!!!<img src="i/expressions/face-icon-small-happy.gif" border="0">
I AM SURE GREATFUL FOR YOUR WILLINGNESS TO GIVE ME YOUR INPUT SOMETIMES YOU JUST NEED SOMEONE ELSE'S INSIGHT ON THINGS..
I AM SURE GREATFUL FOR YOUR WILLINGNESS TO GIVE ME YOUR INPUT SOMETIMES YOU JUST NEED SOMEONE ELSE'S INSIGHT ON THINGS..
ahhh, cross infection rules gone mad, once again. i think that confining everyone to a room and not even letting them out to get food etc is ridiculous. yeah yeah before you all go nuts at me hear me out. its only necessary to isolate people who have the nasty bugs for starters. for young children, perhaps it is a good idea to confine them to their rooms, but once they get older and can understand hygeine and respect each others personal space i see absolutely no problem in letting them out of their rooms. this business of making everyone gown and mask up when they want to leave there room is stupid too. is everyone going to gown up everywhere now? i want to go down to the shops, OOPS gotta put a mask on. just doesnt work, does it? its also been proven that a regular mask does nothing in protecting the person. it only stops and 'infected' person from spreading their bugs. so the only people who would ever need the masks are the ones with cepacia and mrsa. and lastly, can everyone answer where we are most likely to catch bugs?? YES THE STAFF. thankyou. what is the point in going to extremes when a nurse, doctor, cleaner, kitchen worker walks into your room unmasked, ungowned, ungloved and goes and touches you without washing their hands first!?! no point at all!
i think it is VERY unhealthy to confine everyone to their room like that. the more a hospital stay is turned into a living hell the more people are going to refuse to go in. i know when i was young i never really resisted going into hospital. but if we had crazy rules like that i know that my mum would have to drag me in.
common sense. say it with me everybody. common sense!
i think it is VERY unhealthy to confine everyone to their room like that. the more a hospital stay is turned into a living hell the more people are going to refuse to go in. i know when i was young i never really resisted going into hospital. but if we had crazy rules like that i know that my mum would have to drag me in.
common sense. say it with me everybody. common sense!
ahhh, cross infection rules gone mad, once again. i think that confining everyone to a room and not even letting them out to get food etc is ridiculous. yeah yeah before you all go nuts at me hear me out. its only necessary to isolate people who have the nasty bugs for starters. for young children, perhaps it is a good idea to confine them to their rooms, but once they get older and can understand hygeine and respect each others personal space i see absolutely no problem in letting them out of their rooms. this business of making everyone gown and mask up when they want to leave there room is stupid too. is everyone going to gown up everywhere now? i want to go down to the shops, OOPS gotta put a mask on. just doesnt work, does it? its also been proven that a regular mask does nothing in protecting the person. it only stops and 'infected' person from spreading their bugs. so the only people who would ever need the masks are the ones with cepacia and mrsa. and lastly, can everyone answer where we are most likely to catch bugs?? YES THE STAFF. thankyou. what is the point in going to extremes when a nurse, doctor, cleaner, kitchen worker walks into your room unmasked, ungowned, ungloved and goes and touches you without washing their hands first!?! no point at all!
i think it is VERY unhealthy to confine everyone to their room like that. the more a hospital stay is turned into a living hell the more people are going to refuse to go in. i know when i was young i never really resisted going into hospital. but if we had crazy rules like that i know that my mum would have to drag me in.
common sense. say it with me everybody. common sense!
i think it is VERY unhealthy to confine everyone to their room like that. the more a hospital stay is turned into a living hell the more people are going to refuse to go in. i know when i was young i never really resisted going into hospital. but if we had crazy rules like that i know that my mum would have to drag me in.
common sense. say it with me everybody. common sense!
I agree with kybert, I Know the hospital is not as clean as we all would like it to be! and sick people go there because they our sick, but as kybert sayed people who have thoughs types of infection that are a real danger should be confind to a room that will lower the risk of others getting them by alot.. the older CFers have walked the halls of there hospital for year and going to play room activities.. and personaly we have NEVER contacted any infections in the hospital, i believe some exstra percautions could be taken granted but i believe they have gone over board. anyways most people who our coming out of there rooms to take walks and going to activities are feeling better and are heading home in the next few days, you don't see people roaming the halls throwing up and running fevers people that sick stay in there room they don't feel like leaving there rooms and you see many cancer patients out in the halls and these infections our dangerous for them as well after cemo. there at even more risk but i don't see them setting the same rules for them!! come on We can not treat our children like they belong in a bubble because we our affaid!!! they need breaks from there rooms every now and then and away from there rooms were they get poked and prided at by doctors and nurses and thypist, IV team, surgical teams and more, it is hard for these kids to have to go though this crap they deserve the right to go to a play room activity as long as there is no other CF child there. or to go get a meal from the Cafe. or visit the gift shop. I am not saying everyone is wrong we should be percauses but lets not go over board with this..it's just not right
I agree with kybert, I Know the hospital is not as clean as we all would like it to be! and sick people go there because they our sick, but as kybert sayed people who have thoughs types of infection that are a real danger should be confind to a room that will lower the risk of others getting them by alot.. the older CFers have walked the halls of there hospital for year and going to play room activities.. and personaly we have NEVER contacted any infections in the hospital, i believe some exstra percautions could be taken granted but i believe they have gone over board. anyways most people who our coming out of there rooms to take walks and going to activities are feeling better and are heading home in the next few days, you don't see people roaming the halls throwing up and running fevers people that sick stay in there room they don't feel like leaving there rooms and you see many cancer patients out in the halls and these infections our dangerous for them as well after cemo. there at even more risk but i don't see them setting the same rules for them!! come on We can not treat our children like they belong in a bubble because we our affaid!!! they need breaks from there rooms every now and then and away from there rooms were they get poked and prided at by doctors and nurses and thypist, IV team, surgical teams and more, it is hard for these kids to have to go though this crap they deserve the right to go to a play room activity as long as there is no other CF child there. or to go get a meal from the Cafe. or visit the gift shop. I am not saying everyone is wrong we should be percauses but lets not go over board with this..it's just not right
JennifersHope
New member
The thing that makes me nuts is this... I feel way more comfortable going to the hospital I work at for treatment for many reasons but for one is BECAUSE NO OTHER CFERS REALLY GO THERE AND IF THEY DO THEY ARE ALWAYS, ALWAYS, ALWAYS, PUT ON A DIFFERENT FLOOR.
I have been to the hospital as an inpatient where my CF center is and they are wonderful, but I had patients that had CF right next to me.. in the next room.. To me, this doesn't make the best sense, except that the nurses are better trained to deal with CF patients on that floor. To me, it would make more sense to spread CF ers out on all different floors as much as possible, there are many, many people in the hospital without conatagious diseases.... I think all CFers should have their own room, and also be put as far away as possible from other CFers....
Hospitals do have a lot of germs, however, if you are careful and smart you can be safe.. I work in a hospital, I am very careful and I of course don't really take care of patients with any resp. illness at all, or even in question and I wear a mask, and I have never gotten sick from them...except the one time I took care of a patient with MRSA as a nurse intern.. and that was in a totally different department then where I normally work....
Jennifer
I have been to the hospital as an inpatient where my CF center is and they are wonderful, but I had patients that had CF right next to me.. in the next room.. To me, this doesn't make the best sense, except that the nurses are better trained to deal with CF patients on that floor. To me, it would make more sense to spread CF ers out on all different floors as much as possible, there are many, many people in the hospital without conatagious diseases.... I think all CFers should have their own room, and also be put as far away as possible from other CFers....
Hospitals do have a lot of germs, however, if you are careful and smart you can be safe.. I work in a hospital, I am very careful and I of course don't really take care of patients with any resp. illness at all, or even in question and I wear a mask, and I have never gotten sick from them...except the one time I took care of a patient with MRSA as a nurse intern.. and that was in a totally different department then where I normally work....
Jennifer
JennifersHope
New member
The thing that makes me nuts is this... I feel way more comfortable going to the hospital I work at for treatment for many reasons but for one is BECAUSE NO OTHER CFERS REALLY GO THERE AND IF THEY DO THEY ARE ALWAYS, ALWAYS, ALWAYS, PUT ON A DIFFERENT FLOOR.
I have been to the hospital as an inpatient where my CF center is and they are wonderful, but I had patients that had CF right next to me.. in the next room.. To me, this doesn't make the best sense, except that the nurses are better trained to deal with CF patients on that floor. To me, it would make more sense to spread CF ers out on all different floors as much as possible, there are many, many people in the hospital without conatagious diseases.... I think all CFers should have their own room, and also be put as far away as possible from other CFers....
Hospitals do have a lot of germs, however, if you are careful and smart you can be safe.. I work in a hospital, I am very careful and I of course don't really take care of patients with any resp. illness at all, or even in question and I wear a mask, and I have never gotten sick from them...except the one time I took care of a patient with MRSA as a nurse intern.. and that was in a totally different department then where I normally work....
Jennifer
I have been to the hospital as an inpatient where my CF center is and they are wonderful, but I had patients that had CF right next to me.. in the next room.. To me, this doesn't make the best sense, except that the nurses are better trained to deal with CF patients on that floor. To me, it would make more sense to spread CF ers out on all different floors as much as possible, there are many, many people in the hospital without conatagious diseases.... I think all CFers should have their own room, and also be put as far away as possible from other CFers....
Hospitals do have a lot of germs, however, if you are careful and smart you can be safe.. I work in a hospital, I am very careful and I of course don't really take care of patients with any resp. illness at all, or even in question and I wear a mask, and I have never gotten sick from them...except the one time I took care of a patient with MRSA as a nurse intern.. and that was in a totally different department then where I normally work....
Jennifer
I think staying in your room is not a bad idea. My son got mrsa dr says that because he was admitted so many times and at first was able to go to the play room. My daughter has never been admitted, but cultured mrsa dr says she proubly got it from her brother. Now when we are admitted we are on isloation and we put on a mask to leave the room for tests. I don't like the video games in the cf waiting room. It is hard to tell the kids no. We just went to clinic last week and guess what my son has a cough and today the cf center said his throat culture came back mrsa which I knew but with something new called serratia. He is being put on ceptra. I think masks are a good idea. My son tested positive for Psedamonas 2 times. Once was after our make a wish trip to give kids the world, and Disney.
I feel better now that we are more isloated. We don't need anything else.
Mother of 2 w/cf and one w/o cf
I feel better now that we are more isloated. We don't need anything else.
Mother of 2 w/cf and one w/o cf
I think staying in your room is not a bad idea. My son got mrsa dr says that because he was admitted so many times and at first was able to go to the play room. My daughter has never been admitted, but cultured mrsa dr says she proubly got it from her brother. Now when we are admitted we are on isloation and we put on a mask to leave the room for tests. I don't like the video games in the cf waiting room. It is hard to tell the kids no. We just went to clinic last week and guess what my son has a cough and today the cf center said his throat culture came back mrsa which I knew but with something new called serratia. He is being put on ceptra. I think masks are a good idea. My son tested positive for Psedamonas 2 times. Once was after our make a wish trip to give kids the world, and Disney.
I feel better now that we are more isloated. We don't need anything else.
Mother of 2 w/cf and one w/o cf
I feel better now that we are more isloated. We don't need anything else.
Mother of 2 w/cf and one w/o cf
I raised the issue of hygiene in my daughters CF Clinic which she attends every 2 months. Basically since she has PA, I suffered extreme anxiety about cross-infection. In her Clinic, in the Waiting Room there are toys - I won't let my daughter touch them cos I am so afraid of cross infection? What do you guys think. Am I over-reacting or 2what?!
Charlotte
Charlotte
I raised the issue of hygiene in my daughters CF Clinic which she attends every 2 months. Basically since she has PA, I suffered extreme anxiety about cross-infection. In her Clinic, in the Waiting Room there are toys - I won't let my daughter touch them cos I am so afraid of cross infection? What do you guys think. Am I over-reacting or 2what?!
Charlotte
Charlotte
We go to a CF clinic that has a waiting room with toys. We're given a choice as to whether or not we want a private room or want to sit in the waiting room. We opt for the private room. We're supposed to arrive, get assigned a room, where we stay for the duration of our stay unless we have labs or xrays. Last summer, we arrived and hung out in the hallway for 45 minutes before we walked out. The waiting room is so small -- elbow to elbow with patients. Scares the heck out of me.
I assumed it was because we went to a local, nonaccredited CF clinic that they were lax in terms of germ protocol, until I met a person who took her toddler to U of MN and let her play in the community playroom at the CF clinic all day until someone informed her that CFers shouldn't be interacting.
I assumed it was because we went to a local, nonaccredited CF clinic that they were lax in terms of germ protocol, until I met a person who took her toddler to U of MN and let her play in the community playroom at the CF clinic all day until someone informed her that CFers shouldn't be interacting.
We go to a CF clinic that has a waiting room with toys. We're given a choice as to whether or not we want a private room or want to sit in the waiting room. We opt for the private room. We're supposed to arrive, get assigned a room, where we stay for the duration of our stay unless we have labs or xrays. Last summer, we arrived and hung out in the hallway for 45 minutes before we walked out. The waiting room is so small -- elbow to elbow with patients. Scares the heck out of me.
I assumed it was because we went to a local, nonaccredited CF clinic that they were lax in terms of germ protocol, until I met a person who took her toddler to U of MN and let her play in the community playroom at the CF clinic all day until someone informed her that CFers shouldn't be interacting.
I assumed it was because we went to a local, nonaccredited CF clinic that they were lax in terms of germ protocol, until I met a person who took her toddler to U of MN and let her play in the community playroom at the CF clinic all day until someone informed her that CFers shouldn't be interacting.