CF children having to be confinded to hospital rooms

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anonymous

New member
We don't let DS touch anything in the waiting room. I register him and then we stand off in a hallway and after we walked out of the clinic last year, they get us into a room asap. He's not allowed to play with the community toys. He stays in the room with us, we bring along toys, puzzles, coloring books and a dvd player with some dvds, as well as juice and snacks. Boring, but better safe than sorry.

Liza
 
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anonymous

New member
We don't let DS touch anything in the waiting room. I register him and then we stand off in a hallway and after we walked out of the clinic last year, they get us into a room asap. He's not allowed to play with the community toys. He stays in the room with us, we bring along toys, puzzles, coloring books and a dvd player with some dvds, as well as juice and snacks. Boring, but better safe than sorry.

Liza
 
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anonymous

New member
PS how old is your son if you don't mind me asking? Just curious?

Charlotte<img src="i/expressions/oxygen.gif" border="0">
 
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anonymous

New member
PS how old is your son if you don't mind me asking? Just curious?

Charlotte<img src="i/expressions/oxygen.gif" border="0">
 
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anonymous

New member
Is there 1 day that goes by when you don't think about CF? Some days I think I'm going mad, but everyone convinces me that I'm not and that I am perfectly normal and it is just cos I love my daughter so much and just want the best for her?

Charlotte<img src="i/expressions/oxygen.gif" border="0">
 
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anonymous

New member
Is there 1 day that goes by when you don't think about CF? Some days I think I'm going mad, but everyone convinces me that I'm not and that I am perfectly normal and it is just cos I love my daughter so much and just want the best for her?

Charlotte<img src="i/expressions/oxygen.gif" border="0">
 
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thelizardqueen

New member
It takes a while, but eventually CF becomes extremely common place in your life. There are days that I don't think about it at all. CF I find, as I learn more about it, etc, it doesn't become that dark cloud in my life. However, since I started coming to this forum, CF had gone onto the front burner of my life, and I am more diligent then ever in taking control of my health.
 
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thelizardqueen

New member
It takes a while, but eventually CF becomes extremely common place in your life. There are days that I don't think about it at all. CF I find, as I learn more about it, etc, it doesn't become that dark cloud in my life. However, since I started coming to this forum, CF had gone onto the front burner of my life, and I am more diligent then ever in taking control of my health.
 
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anonymous

New member
Sounds promising - I just can't seem to stop worrying at the moment though? I know I should take each day at a time, but I can't stop worrying about the future. Basically, I am just a worrier!
 
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anonymous

New member
Sounds promising - I just can't seem to stop worrying at the moment though? I know I should take each day at a time, but I can't stop worrying about the future. Basically, I am just a worrier!
 
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anonymous

New member
I'm a worrier, too! But one of the best pieces of advice I got was when DS was first diagnosed -- don't dwell on CF -- only allow yourself 15 minutes a day maximum to feel sorry for yourself, dwell on his diagnosis.... Enjoy your child! It's easier said than done. The first year I was terrified DS was going to end up back in the hospital with a bowel obstruction or be sick all the time and in an out of the hospital. I still worry about him picking up a nasty bug. When he gets sick with an ear infection, has a fever, gets a cough I lose all self confidence. But there's more to DS than CF. Especially right now when we're trying to focus on potty training. Apparently day care is the only place he can use the potty. Home is where he yells, mommy, change my diaper! Toddlers <img src="i/expressions/face-icon-small-smile.gif" border="0"> Liza
 
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anonymous

New member
I'm a worrier, too! But one of the best pieces of advice I got was when DS was first diagnosed -- don't dwell on CF -- only allow yourself 15 minutes a day maximum to feel sorry for yourself, dwell on his diagnosis.... Enjoy your child! It's easier said than done. The first year I was terrified DS was going to end up back in the hospital with a bowel obstruction or be sick all the time and in an out of the hospital. I still worry about him picking up a nasty bug. When he gets sick with an ear infection, has a fever, gets a cough I lose all self confidence. But there's more to DS than CF. Especially right now when we're trying to focus on potty training. Apparently day care is the only place he can use the potty. Home is where he yells, mommy, change my diaper! Toddlers <img src="i/expressions/face-icon-small-smile.gif" border="0"> Liza
 
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anonymous

New member
I just wanted to comment on people stating that CF patients are put on a different floor in the hospital. I was not diagnosed until I was 35 years old - I had been in the hospital 4 times over the course of my life not knowing that I had CF. So - I was around others that did not have CF (that I know of). I guess my point is that you don't always know what you have; or others for that fact. I know that many of you do not allow your children to play with the toys at the CF clinic - but, do you let them touch anything out in public? You never know what someone has or what they have touched. As long as we have good hygiene and wash our hands - we are doing the best we can to protect ourselves.
 
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anonymous

New member
I just wanted to comment on people stating that CF patients are put on a different floor in the hospital. I was not diagnosed until I was 35 years old - I had been in the hospital 4 times over the course of my life not knowing that I had CF. So - I was around others that did not have CF (that I know of). I guess my point is that you don't always know what you have; or others for that fact. I know that many of you do not allow your children to play with the toys at the CF clinic - but, do you let them touch anything out in public? You never know what someone has or what they have touched. As long as we have good hygiene and wash our hands - we are doing the best we can to protect ourselves.
 
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