CF children in school

fly30 · Mar 19, 2010

Hi, i have had many issues with my childs eating from the day she was born. It takes her almost an hour to finish a simple meal. Anyway, at school she was eating with all the children in the playground, but was taking way too long and never got to the office till the end of lunch (which is 5o mins) way too long.

Now we have changed her routine, and she is sitting in hte office all alone eating her lunch. She is still taking all of lunch, but the staff think its easier for them to manage her eating and enzymes if she sits in the office.

My concern is that she misses out on playing with her friends outside, and is kind of alientated <img src="i/expressions/face-icon-small-sad.gif" border="0"> although we want to do whats best for her health. She has had quiet a lot of GI issues ever since starting shcool, due to the change in enzyme routines.

So my question is.......for those of you who have young children in school, how does their school deal with their eating lunch and enzymes?

Would love to have some ideas and tips in dealing with this issue.

thankyou

fly30 · Mar 19, 2010

Hi, i have had many issues with my childs eating from the day she was born. It takes her almost an hour to finish a simple meal. Anyway, at school she was eating with all the children in the playground, but was taking way too long and never got to the office till the end of lunch (which is 5o mins) way too long.

Now we have changed her routine, and she is sitting in hte office all alone eating her lunch. She is still taking all of lunch, but the staff think its easier for them to manage her eating and enzymes if she sits in the office.

My concern is that she misses out on playing with her friends outside, and is kind of alientated <img src="i/expressions/face-icon-small-sad.gif" border="0"> although we want to do whats best for her health. She has had quiet a lot of GI issues ever since starting shcool, due to the change in enzyme routines.

So my question is.......for those of you who have young children in school, how does their school deal with their eating lunch and enzymes?

Would love to have some ideas and tips in dealing with this issue.

thankyou

fly30 · Mar 19, 2010

Hi, i have had many issues with my childs eating from the day she was born. It takes her almost an hour to finish a simple meal. Anyway, at school she was eating with all the children in the playground, but was taking way too long and never got to the office till the end of lunch (which is 5o mins) way too long.

Now we have changed her routine, and she is sitting in hte office all alone eating her lunch. She is still taking all of lunch, but the staff think its easier for them to manage her eating and enzymes if she sits in the office.

My concern is that she misses out on playing with her friends outside, and is kind of alientated <img src="i/expressions/face-icon-small-sad.gif" border="0"> although we want to do whats best for her health. She has had quiet a lot of GI issues ever since starting shcool, due to the change in enzyme routines.

So my question is.......for those of you who have young children in school, how does their school deal with their eating lunch and enzymes?

Would love to have some ideas and tips in dealing with this issue.

thankyou

fly30 · Mar 19, 2010

Hi, i have had many issues with my childs eating from the day she was born. It takes her almost an hour to finish a simple meal. Anyway, at school she was eating with all the children in the playground, but was taking way too long and never got to the office till the end of lunch (which is 5o mins) way too long.

Now we have changed her routine, and she is sitting in hte office all alone eating her lunch. She is still taking all of lunch, but the staff think its easier for them to manage her eating and enzymes if she sits in the office.

My concern is that she misses out on playing with her friends outside, and is kind of alientated <img src="i/expressions/face-icon-small-sad.gif" border="0"> although we want to do whats best for her health. She has had quiet a lot of GI issues ever since starting shcool, due to the change in enzyme routines.

So my question is.......for those of you who have young children in school, how does their school deal with their eating lunch and enzymes?

Would love to have some ideas and tips in dealing with this issue.

thankyou

fly30 · Mar 19, 2010

Hi, i have had many issues with my childs eating from the day she was born. It takes her almost an hour to finish a simple meal. Anyway, at school she was eating with all the children in the playground, but was taking way too long and never got to the office till the end of lunch (which is 5o mins) way too long.
 
 Now we have changed her routine, and she is sitting in hte office all alone eating her lunch. She is still taking all of lunch, but the staff think its easier for them to manage her eating and enzymes if she sits in the office.
 
 My concern is that she misses out on playing with her friends outside, and is kind of alientated <img src="i/expressions/face-icon-small-sad.gif" border="0"> although we want to do whats best for her health. She has had quiet a lot of GI issues ever since starting shcool, due to the change in enzyme routines.
 
 So my question is.......for those of you who have young children in school, how does their school deal with their eating lunch and enzymes?
 
 Would love to have some ideas and tips in dealing with this issue.
 
 thankyou

Stillgoing · Mar 19, 2010

My daughter, 9, goes to the office at the beginning of lunch for her enzymes then goes to the lunch tables to eat with her friends. Yes, she takes forever to eat, and with the socializing that goes on at lunch she eats even more slowly. I just try to make up for it with a big snack after school. I don't want her to miss out on time with her friends.

Stillgoing · Mar 19, 2010

My daughter, 9, goes to the office at the beginning of lunch for her enzymes then goes to the lunch tables to eat with her friends. Yes, she takes forever to eat, and with the socializing that goes on at lunch she eats even more slowly. I just try to make up for it with a big snack after school. I don't want her to miss out on time with her friends.

Stillgoing · Mar 19, 2010

My daughter, 9, goes to the office at the beginning of lunch for her enzymes then goes to the lunch tables to eat with her friends. Yes, she takes forever to eat, and with the socializing that goes on at lunch she eats even more slowly. I just try to make up for it with a big snack after school. I don't want her to miss out on time with her friends.

Stillgoing · Mar 19, 2010

My daughter, 9, goes to the office at the beginning of lunch for her enzymes then goes to the lunch tables to eat with her friends. Yes, she takes forever to eat, and with the socializing that goes on at lunch she eats even more slowly. I just try to make up for it with a big snack after school. I don't want her to miss out on time with her friends.

Stillgoing · Mar 19, 2010

My daughter, 9, goes to the office at the beginning of lunch for her enzymes then goes to the lunch tables to eat with her friends. Yes, she takes forever to eat, and with the socializing that goes on at lunch she eats even more slowly. I just try to make up for it with a big snack after school. I don't want her to miss out on time with her friends.

stringbean · Mar 19, 2010

We dealt with exactly that issue last year. My daughter's class had lunch at 10:30, which was WAY too early and she wasn't hungry -- some days she didn't eat anything at all. When we went to the nutritionist's appointment, we found that she had dropped almost two pounds and she was concerned about the enyzmes that K was getting. The nurse gave her 3 enzymes no matter what. The nutritionist called the school nurse and told her that she has to dispense enyzmes according to how much K ate. What I didn't realize until a few months later is that the solution for the nurse was to have K eat her lunch in the nurse's office.

I was dropping something off and saw my daughter sitting alone at a table while sick or injured kids strolled in and out, parents were there, the principal came in -- it was a madhouse. I demanded they make some changes. They let K invite a friend, but no one wanted to join her in the sick room (no kidding!)

I told the school that I wanted her out of there, but the nurse refused. I called our gastro doctor at nine and by lunch that day, he had the department social worker call me and then the nurse to explain to her that having a kid eating among the sick is just a tiny bit illegal.

The next day K was allowed to eat in the classroom after the class was back from the ridiculously early lunch and recess. She sat with the other kids and had a light snack or ate nothing during the regularly scheduled lunch. And since she was eating in the classroom, she got to eat when she was hungry -- that was a huge help in getting her to eat everything I sent.

This year, the class goes to lunch at noon -- and we have a new and wonderful nurse. K is allowed to self-medicate. I have a weekly pill box in her lunchbox with the three enzymes she needs and I pack another couple in with her snack. It is SO much easier skipping the nurses office altogether. The school is okay with it because even if another kid grabbed and swallowed her pills, no harm would come to him.

Good luck with this. It was incredibly frustrating to me and my daughter. The social worker at the hospital was invaluable in resolving this for us.

stringbean · Mar 19, 2010

We dealt with exactly that issue last year. My daughter's class had lunch at 10:30, which was WAY too early and she wasn't hungry -- some days she didn't eat anything at all. When we went to the nutritionist's appointment, we found that she had dropped almost two pounds and she was concerned about the enyzmes that K was getting. The nurse gave her 3 enzymes no matter what. The nutritionist called the school nurse and told her that she has to dispense enyzmes according to how much K ate. What I didn't realize until a few months later is that the solution for the nurse was to have K eat her lunch in the nurse's office.

I was dropping something off and saw my daughter sitting alone at a table while sick or injured kids strolled in and out, parents were there, the principal came in -- it was a madhouse. I demanded they make some changes. They let K invite a friend, but no one wanted to join her in the sick room (no kidding!)

I told the school that I wanted her out of there, but the nurse refused. I called our gastro doctor at nine and by lunch that day, he had the department social worker call me and then the nurse to explain to her that having a kid eating among the sick is just a tiny bit illegal.

The next day K was allowed to eat in the classroom after the class was back from the ridiculously early lunch and recess. She sat with the other kids and had a light snack or ate nothing during the regularly scheduled lunch. And since she was eating in the classroom, she got to eat when she was hungry -- that was a huge help in getting her to eat everything I sent.

This year, the class goes to lunch at noon -- and we have a new and wonderful nurse. K is allowed to self-medicate. I have a weekly pill box in her lunchbox with the three enzymes she needs and I pack another couple in with her snack. It is SO much easier skipping the nurses office altogether. The school is okay with it because even if another kid grabbed and swallowed her pills, no harm would come to him.

Good luck with this. It was incredibly frustrating to me and my daughter. The social worker at the hospital was invaluable in resolving this for us.

stringbean · Mar 19, 2010

We dealt with exactly that issue last year. My daughter's class had lunch at 10:30, which was WAY too early and she wasn't hungry -- some days she didn't eat anything at all. When we went to the nutritionist's appointment, we found that she had dropped almost two pounds and she was concerned about the enyzmes that K was getting. The nurse gave her 3 enzymes no matter what. The nutritionist called the school nurse and told her that she has to dispense enyzmes according to how much K ate. What I didn't realize until a few months later is that the solution for the nurse was to have K eat her lunch in the nurse's office.

I was dropping something off and saw my daughter sitting alone at a table while sick or injured kids strolled in and out, parents were there, the principal came in -- it was a madhouse. I demanded they make some changes. They let K invite a friend, but no one wanted to join her in the sick room (no kidding!)

I told the school that I wanted her out of there, but the nurse refused. I called our gastro doctor at nine and by lunch that day, he had the department social worker call me and then the nurse to explain to her that having a kid eating among the sick is just a tiny bit illegal.

The next day K was allowed to eat in the classroom after the class was back from the ridiculously early lunch and recess. She sat with the other kids and had a light snack or ate nothing during the regularly scheduled lunch. And since she was eating in the classroom, she got to eat when she was hungry -- that was a huge help in getting her to eat everything I sent.

This year, the class goes to lunch at noon -- and we have a new and wonderful nurse. K is allowed to self-medicate. I have a weekly pill box in her lunchbox with the three enzymes she needs and I pack another couple in with her snack. It is SO much easier skipping the nurses office altogether. The school is okay with it because even if another kid grabbed and swallowed her pills, no harm would come to him.

Good luck with this. It was incredibly frustrating to me and my daughter. The social worker at the hospital was invaluable in resolving this for us.

stringbean · Mar 19, 2010

We dealt with exactly that issue last year. My daughter's class had lunch at 10:30, which was WAY too early and she wasn't hungry -- some days she didn't eat anything at all. When we went to the nutritionist's appointment, we found that she had dropped almost two pounds and she was concerned about the enyzmes that K was getting. The nurse gave her 3 enzymes no matter what. The nutritionist called the school nurse and told her that she has to dispense enyzmes according to how much K ate. What I didn't realize until a few months later is that the solution for the nurse was to have K eat her lunch in the nurse's office.

I was dropping something off and saw my daughter sitting alone at a table while sick or injured kids strolled in and out, parents were there, the principal came in -- it was a madhouse. I demanded they make some changes. They let K invite a friend, but no one wanted to join her in the sick room (no kidding!)

I told the school that I wanted her out of there, but the nurse refused. I called our gastro doctor at nine and by lunch that day, he had the department social worker call me and then the nurse to explain to her that having a kid eating among the sick is just a tiny bit illegal.

The next day K was allowed to eat in the classroom after the class was back from the ridiculously early lunch and recess. She sat with the other kids and had a light snack or ate nothing during the regularly scheduled lunch. And since she was eating in the classroom, she got to eat when she was hungry -- that was a huge help in getting her to eat everything I sent.

This year, the class goes to lunch at noon -- and we have a new and wonderful nurse. K is allowed to self-medicate. I have a weekly pill box in her lunchbox with the three enzymes she needs and I pack another couple in with her snack. It is SO much easier skipping the nurses office altogether. The school is okay with it because even if another kid grabbed and swallowed her pills, no harm would come to him.

Good luck with this. It was incredibly frustrating to me and my daughter. The social worker at the hospital was invaluable in resolving this for us.

stringbean · Mar 19, 2010

We dealt with exactly that issue last year. My daughter's class had lunch at 10:30, which was WAY too early and she wasn't hungry -- some days she didn't eat anything at all. When we went to the nutritionist's appointment, we found that she had dropped almost two pounds and she was concerned about the enyzmes that K was getting. The nurse gave her 3 enzymes no matter what. The nutritionist called the school nurse and told her that she has to dispense enyzmes according to how much K ate. What I didn't realize until a few months later is that the solution for the nurse was to have K eat her lunch in the nurse's office.
 
 I was dropping something off and saw my daughter sitting alone at a table while sick or injured kids strolled in and out, parents were there, the principal came in -- it was a madhouse. I demanded they make some changes. They let K invite a friend, but no one wanted to join her in the sick room (no kidding!)
 
 I told the school that I wanted her out of there, but the nurse refused. I called our gastro doctor at nine and by lunch that day, he had the department social worker call me and then the nurse to explain to her that having a kid eating among the sick is just a tiny bit illegal.
 
 The next day K was allowed to eat in the classroom after the class was back from the ridiculously early lunch and recess. She sat with the other kids and had a light snack or ate nothing during the regularly scheduled lunch. And since she was eating in the classroom, she got to eat when she was hungry -- that was a huge help in getting her to eat everything I sent.
 
 This year, the class goes to lunch at noon -- and we have a new and wonderful nurse. K is allowed to self-medicate. I have a weekly pill box in her lunchbox with the three enzymes she needs and I pack another couple in with her snack. It is SO much easier skipping the nurses office altogether. The school is okay with it because even if another kid grabbed and swallowed her pills, no harm would come to him.
 
 Good luck with this. It was incredibly frustrating to me and my daughter. The social worker at the hospital was invaluable in resolving this for us.

kayers3 · Mar 20, 2010

Hi. I was always a really good eater when I was a kid, so that part wasn't so much of a problem. I always had to go to the nurse to get my enzymes and then I met the class in the cafeteria for lunch. We also had a snack time later in the day as we had lunch really early. You maybe could talk to the teacher about allowing a snack time later as well if that doesn't happen in the classroom. I don't know exactly what you pack for lunch but is there any way to decrease the amount without losing the calories? Then she wouldn't have to finish as much.

At any rate, the main reason I'm writing is for food for thought for the future. In elementary school the nurse was always awesome about immediately giving my medicine so I could get back to eat. However when I got to middle school this became a BIG problem. I had to go to the front office to pick up my medicine and it was always crazy busy and I usually ended up waiting around for anywhere from 5-15 minutes before I got my medicine - a BIG problem when we only had 20 minutes to eat. I ended up missing lunch or most of it at least once a week. Because it was a public school it was not permitted for me to carry my own medicine - it didn't matter that I had CF. (I'm REALLY surprised that one school is allowing the kids to carry her own, that's fantastic! ) My mom checked everything trying to find a way around that and couldn't find anything. (I don't know if things are still the same or if it depends maybe on the state). Anyway, I ended up hiding my medicine in my lunch and just taking it on the sly all through middle and high school so I didn't have to miss lunch time. The principal noticed that I stopped "needing" medicine and actually called about it and my mom made up something about how I took medicine immediately after school so it was fine. Anyway I just wanted ya'll to be aware of a possibility of the future so you can maybe start looking into that as your kids get older. I really preferred just having the medicine on me - no one ever noticed that I was taking it and I didn't have to leave all my friends to go get medicine - especially important when I was in middle school. <img src="i/expressions/face-icon-small-smile.gif" border="0">

kayers3 · Mar 20, 2010

Hi. I was always a really good eater when I was a kid, so that part wasn't so much of a problem. I always had to go to the nurse to get my enzymes and then I met the class in the cafeteria for lunch. We also had a snack time later in the day as we had lunch really early. You maybe could talk to the teacher about allowing a snack time later as well if that doesn't happen in the classroom. I don't know exactly what you pack for lunch but is there any way to decrease the amount without losing the calories? Then she wouldn't have to finish as much.

At any rate, the main reason I'm writing is for food for thought for the future. In elementary school the nurse was always awesome about immediately giving my medicine so I could get back to eat. However when I got to middle school this became a BIG problem. I had to go to the front office to pick up my medicine and it was always crazy busy and I usually ended up waiting around for anywhere from 5-15 minutes before I got my medicine - a BIG problem when we only had 20 minutes to eat. I ended up missing lunch or most of it at least once a week. Because it was a public school it was not permitted for me to carry my own medicine - it didn't matter that I had CF. (I'm REALLY surprised that one school is allowing the kids to carry her own, that's fantastic! ) My mom checked everything trying to find a way around that and couldn't find anything. (I don't know if things are still the same or if it depends maybe on the state). Anyway, I ended up hiding my medicine in my lunch and just taking it on the sly all through middle and high school so I didn't have to miss lunch time. The principal noticed that I stopped "needing" medicine and actually called about it and my mom made up something about how I took medicine immediately after school so it was fine. Anyway I just wanted ya'll to be aware of a possibility of the future so you can maybe start looking into that as your kids get older. I really preferred just having the medicine on me - no one ever noticed that I was taking it and I didn't have to leave all my friends to go get medicine - especially important when I was in middle school. <img src="i/expressions/face-icon-small-smile.gif" border="0">

kayers3 · Mar 20, 2010

Hi. I was always a really good eater when I was a kid, so that part wasn't so much of a problem. I always had to go to the nurse to get my enzymes and then I met the class in the cafeteria for lunch. We also had a snack time later in the day as we had lunch really early. You maybe could talk to the teacher about allowing a snack time later as well if that doesn't happen in the classroom. I don't know exactly what you pack for lunch but is there any way to decrease the amount without losing the calories? Then she wouldn't have to finish as much.

At any rate, the main reason I'm writing is for food for thought for the future. In elementary school the nurse was always awesome about immediately giving my medicine so I could get back to eat. However when I got to middle school this became a BIG problem. I had to go to the front office to pick up my medicine and it was always crazy busy and I usually ended up waiting around for anywhere from 5-15 minutes before I got my medicine - a BIG problem when we only had 20 minutes to eat. I ended up missing lunch or most of it at least once a week. Because it was a public school it was not permitted for me to carry my own medicine - it didn't matter that I had CF. (I'm REALLY surprised that one school is allowing the kids to carry her own, that's fantastic! ) My mom checked everything trying to find a way around that and couldn't find anything. (I don't know if things are still the same or if it depends maybe on the state). Anyway, I ended up hiding my medicine in my lunch and just taking it on the sly all through middle and high school so I didn't have to miss lunch time. The principal noticed that I stopped "needing" medicine and actually called about it and my mom made up something about how I took medicine immediately after school so it was fine. Anyway I just wanted ya'll to be aware of a possibility of the future so you can maybe start looking into that as your kids get older. I really preferred just having the medicine on me - no one ever noticed that I was taking it and I didn't have to leave all my friends to go get medicine - especially important when I was in middle school. <img src="i/expressions/face-icon-small-smile.gif" border="0">

kayers3 · Mar 20, 2010

Hi. I was always a really good eater when I was a kid, so that part wasn't so much of a problem. I always had to go to the nurse to get my enzymes and then I met the class in the cafeteria for lunch. We also had a snack time later in the day as we had lunch really early. You maybe could talk to the teacher about allowing a snack time later as well if that doesn't happen in the classroom. I don't know exactly what you pack for lunch but is there any way to decrease the amount without losing the calories? Then she wouldn't have to finish as much.

At any rate, the main reason I'm writing is for food for thought for the future. In elementary school the nurse was always awesome about immediately giving my medicine so I could get back to eat. However when I got to middle school this became a BIG problem. I had to go to the front office to pick up my medicine and it was always crazy busy and I usually ended up waiting around for anywhere from 5-15 minutes before I got my medicine - a BIG problem when we only had 20 minutes to eat. I ended up missing lunch or most of it at least once a week. Because it was a public school it was not permitted for me to carry my own medicine - it didn't matter that I had CF. (I'm REALLY surprised that one school is allowing the kids to carry her own, that's fantastic! ) My mom checked everything trying to find a way around that and couldn't find anything. (I don't know if things are still the same or if it depends maybe on the state). Anyway, I ended up hiding my medicine in my lunch and just taking it on the sly all through middle and high school so I didn't have to miss lunch time. The principal noticed that I stopped "needing" medicine and actually called about it and my mom made up something about how I took medicine immediately after school so it was fine. Anyway I just wanted ya'll to be aware of a possibility of the future so you can maybe start looking into that as your kids get older. I really preferred just having the medicine on me - no one ever noticed that I was taking it and I didn't have to leave all my friends to go get medicine - especially important when I was in middle school. <img src="i/expressions/face-icon-small-smile.gif" border="0">

kayers3 · Mar 20, 2010

Hi. I was always a really good eater when I was a kid, so that part wasn't so much of a problem. I always had to go to the nurse to get my enzymes and then I met the class in the cafeteria for lunch. We also had a snack time later in the day as we had lunch really early. You maybe could talk to the teacher about allowing a snack time later as well if that doesn't happen in the classroom. I don't know exactly what you pack for lunch but is there any way to decrease the amount without losing the calories? Then she wouldn't have to finish as much.
 
 At any rate, the main reason I'm writing is for food for thought for the future. In elementary school the nurse was always awesome about immediately giving my medicine so I could get back to eat. However when I got to middle school this became a BIG problem. I had to go to the front office to pick up my medicine and it was always crazy busy and I usually ended up waiting around for anywhere from 5-15 minutes before I got my medicine - a BIG problem when we only had 20 minutes to eat. I ended up missing lunch or most of it at least once a week. Because it was a public school it was not permitted for me to carry my own medicine - it didn't matter that I had CF. (I'm REALLY surprised that one school is allowing the kids to carry her own, that's fantastic! ) My mom checked everything trying to find a way around that and couldn't find anything. (I don't know if things are still the same or if it depends maybe on the state). Anyway, I ended up hiding my medicine in my lunch and just taking it on the sly all through middle and high school so I didn't have to miss lunch time. The principal noticed that I stopped "needing" medicine and actually called about it and my mom made up something about how I took medicine immediately after school so it was fine. Anyway I just wanted ya'll to be aware of a possibility of the future so you can maybe start looking into that as your kids get older. I really preferred just having the medicine on me - no one ever noticed that I was taking it and I didn't have to leave all my friends to go get medicine - especially important when I was in middle school. <img src="i/expressions/face-icon-small-smile.gif" border="0">

CF children in school

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