B
ByGrace
Guest
My son is 8 years old and was just diagnosed with a "mild case" (according to the Dr) of CF. He has one Delta F508 and a 5T allele (I didn't get results for a TG). They only tested for 32 mutations and did not do a sweat test so we're being sent to a geneticist for further testing and will hopefully have some more information soon. His only symptom is severe constipation and it was on a long-shot that the doctor even tested him for CF. We're also being sent to a pediatric gastroenterologist to help with the constipation. My question is, do I need to ask to also be referred to a CF clinic? Our nearest clinic is 4 hours away and I don't want to waste my time or the doctor's if it isn't necessary. <br>