How can they say that when they don't have a clue what CF entails? This isn't the type of disease where you pop a pill and go on your merry way....From the time we wake up until the time we fall asleep, CF is ever present with all of the treatments, the coughing, shortness of breath, pills, blood sugar checks, pain meds for CFRA etc....I wish that person could walk in your shoes for a day to fully understand why CF would be on your mind a good part of the day. We have to be hyper vigilant as far as catching bugs go, I sometimes get criticized for screening family functions for snotty nosed, coughing people so that I can avoid them. They don't seem to understand that a simple cold can easily turn into a very serious infection landing me in a hospital for weeks on end.
As much as I hate to say it, CF does take up so much of my day....I do try to do things that don't remind me of CF, but even that can be difficult. A simple walk with my dog can prove to be difficult, I am out enjoying the crisp, autumn air but at the same time, I struggle after a block. I do read alot, watch movies, etc...do things that won't tax me too much and I enjoy them. I try to pace myself so that I don't feel so exhausted. Multi tasking is important so that I am able to do as much non CF things in my day as possible. I have often said to my sister that I wish that I could have just one day where I don't have to think about CF, it's treatments, it's side effects etc...and just feel great. What I could do in that blessed day if that were to ever come true....the time that would be freed up to just do anything <img src="i/expressions/face-icon-small-smile.gif" border="0">
Hang in there, people like that may never understand the full impact that CF has on our lives unless they've been there up close and personal. Take time out for yourself, do things that are relaxing and not so physically demanding if you are short of breath etc so you can enjoy it.
Hugs, Jenn 39 w/CF