CF in the family

pjspiegle · Jul 10, 2008

We have a cousin with CF, Nathan is about a year older. We have had ONE family BBQ together and both boys stayed outside, wore masks, and avoided one another like the plague.

They both hated it because both my cousin and I worried the entire time and had no fun. We decided it just wasn't worth doing that anymore.

It is a personal decision and being in her shoes, I would advise that the family be supportive of her decision. Since they are so far apart in age, it may work better but it might be worse too. There is a 3 foot rule plus a mask rule at the hospital for CFers that I would for sure make sure that they did follow, but trust me, the mask part is horrid for them, especially at a family BBQ.

It really isn't worth the risk. If one is healthy and the other isn't, everyone would feel aweful if the other caught something from the other and their health declined because of it.

I think that if I were in your shoes, I would support my sister in law and avoid making her feel any worse than she already does about the situation.

pjspiegle · Jul 10, 2008

We have a cousin with CF, Nathan is about a year older. We have had ONE family BBQ together and both boys stayed outside, wore masks, and avoided one another like the plague.

They both hated it because both my cousin and I worried the entire time and had no fun. We decided it just wasn't worth doing that anymore.

It is a personal decision and being in her shoes, I would advise that the family be supportive of her decision. Since they are so far apart in age, it may work better but it might be worse too. There is a 3 foot rule plus a mask rule at the hospital for CFers that I would for sure make sure that they did follow, but trust me, the mask part is horrid for them, especially at a family BBQ.

It really isn't worth the risk. If one is healthy and the other isn't, everyone would feel aweful if the other caught something from the other and their health declined because of it.

I think that if I were in your shoes, I would support my sister in law and avoid making her feel any worse than she already does about the situation.

pjspiegle · Jul 10, 2008

We have a cousin with CF, Nathan is about a year older. We have had ONE family BBQ together and both boys stayed outside, wore masks, and avoided one another like the plague.

They both hated it because both my cousin and I worried the entire time and had no fun. We decided it just wasn't worth doing that anymore.

It is a personal decision and being in her shoes, I would advise that the family be supportive of her decision. Since they are so far apart in age, it may work better but it might be worse too. There is a 3 foot rule plus a mask rule at the hospital for CFers that I would for sure make sure that they did follow, but trust me, the mask part is horrid for them, especially at a family BBQ.

It really isn't worth the risk. If one is healthy and the other isn't, everyone would feel aweful if the other caught something from the other and their health declined because of it.

I think that if I were in your shoes, I would support my sister in law and avoid making her feel any worse than she already does about the situation.

pjspiegle · Jul 10, 2008

We have a cousin with CF, Nathan is about a year older. We have had ONE family BBQ together and both boys stayed outside, wore masks, and avoided one another like the plague.

They both hated it because both my cousin and I worried the entire time and had no fun. We decided it just wasn't worth doing that anymore.

It is a personal decision and being in her shoes, I would advise that the family be supportive of her decision. Since they are so far apart in age, it may work better but it might be worse too. There is a 3 foot rule plus a mask rule at the hospital for CFers that I would for sure make sure that they did follow, but trust me, the mask part is horrid for them, especially at a family BBQ.

It really isn't worth the risk. If one is healthy and the other isn't, everyone would feel aweful if the other caught something from the other and their health declined because of it.

I think that if I were in your shoes, I would support my sister in law and avoid making her feel any worse than she already does about the situation.

pjspiegle · Jul 10, 2008

We have a cousin with CF, Nathan is about a year older. We have had ONE family BBQ together and both boys stayed outside, wore masks, and avoided one another like the plague.
 
 They both hated it because both my cousin and I worried the entire time and had no fun. We decided it just wasn't worth doing that anymore.
 
 It is a personal decision and being in her shoes, I would advise that the family be supportive of her decision. Since they are so far apart in age, it may work better but it might be worse too. There is a 3 foot rule plus a mask rule at the hospital for CFers that I would for sure make sure that they did follow, but trust me, the mask part is horrid for them, especially at a family BBQ.
 
 It really isn't worth the risk. If one is healthy and the other isn't, everyone would feel aweful if the other caught something from the other and their health declined because of it.
 
 I think that if I were in your shoes, I would support my sister in law and avoid making her feel any worse than she already does about the situation.

tammykrumrey · Jul 10, 2008

I have two daughters who both have CF, and so does my nephew. My girls are 10 and almost 9 and my nephew is 17. Our kids do not have any close contact! The last time they sat within 10 feet of one another was 8 years ago, when my nephew started culturing a bacteria that is very hard to get rid of and I will not risk my girls health. My nephew doesn't want them to catch it either.

When my girls were first born, I was not aware of the cross infection problems that I now know of. I may had been more careful back then had I known (although we didn't know Kayla had CF for her first 14 months, and we were around my nephew ALL the time!)

Our kids all see the same CF doctor, and he says to keep the three feet rule. We prefer much more.

At first my sister and I never let our kids go to the same place at the same time. Little kids do not understand how to keep distances from one another and the consequences of it all.

It broke my parents hearts (there is only my sister and I...no other siblings...) and my mom would cry for hours about not being able to have her children and grandchildren together anymore, although she completely understood, it still made her sad. As a matter of fact, I think I cried for months, my sister and I are very close, not to mention that my nephew is also my godson, and I love him very much, but nothing is worth risking my kids health over.

Now that the kids are older, we will go to the same places, but with strict rules. They do great together in staying apart.

tammykrumrey · Jul 10, 2008

I have two daughters who both have CF, and so does my nephew. My girls are 10 and almost 9 and my nephew is 17. Our kids do not have any close contact! The last time they sat within 10 feet of one another was 8 years ago, when my nephew started culturing a bacteria that is very hard to get rid of and I will not risk my girls health. My nephew doesn't want them to catch it either.

When my girls were first born, I was not aware of the cross infection problems that I now know of. I may had been more careful back then had I known (although we didn't know Kayla had CF for her first 14 months, and we were around my nephew ALL the time!)

Our kids all see the same CF doctor, and he says to keep the three feet rule. We prefer much more.

At first my sister and I never let our kids go to the same place at the same time. Little kids do not understand how to keep distances from one another and the consequences of it all.

It broke my parents hearts (there is only my sister and I...no other siblings...) and my mom would cry for hours about not being able to have her children and grandchildren together anymore, although she completely understood, it still made her sad. As a matter of fact, I think I cried for months, my sister and I are very close, not to mention that my nephew is also my godson, and I love him very much, but nothing is worth risking my kids health over.

Now that the kids are older, we will go to the same places, but with strict rules. They do great together in staying apart.

tammykrumrey · Jul 10, 2008

I have two daughters who both have CF, and so does my nephew. My girls are 10 and almost 9 and my nephew is 17. Our kids do not have any close contact! The last time they sat within 10 feet of one another was 8 years ago, when my nephew started culturing a bacteria that is very hard to get rid of and I will not risk my girls health. My nephew doesn't want them to catch it either.

When my girls were first born, I was not aware of the cross infection problems that I now know of. I may had been more careful back then had I known (although we didn't know Kayla had CF for her first 14 months, and we were around my nephew ALL the time!)

Our kids all see the same CF doctor, and he says to keep the three feet rule. We prefer much more.

At first my sister and I never let our kids go to the same place at the same time. Little kids do not understand how to keep distances from one another and the consequences of it all.

It broke my parents hearts (there is only my sister and I...no other siblings...) and my mom would cry for hours about not being able to have her children and grandchildren together anymore, although she completely understood, it still made her sad. As a matter of fact, I think I cried for months, my sister and I are very close, not to mention that my nephew is also my godson, and I love him very much, but nothing is worth risking my kids health over.

Now that the kids are older, we will go to the same places, but with strict rules. They do great together in staying apart.

tammykrumrey · Jul 10, 2008

I have two daughters who both have CF, and so does my nephew. My girls are 10 and almost 9 and my nephew is 17. Our kids do not have any close contact! The last time they sat within 10 feet of one another was 8 years ago, when my nephew started culturing a bacteria that is very hard to get rid of and I will not risk my girls health. My nephew doesn't want them to catch it either.

When my girls were first born, I was not aware of the cross infection problems that I now know of. I may had been more careful back then had I known (although we didn't know Kayla had CF for her first 14 months, and we were around my nephew ALL the time!)

Our kids all see the same CF doctor, and he says to keep the three feet rule. We prefer much more.

At first my sister and I never let our kids go to the same place at the same time. Little kids do not understand how to keep distances from one another and the consequences of it all.

It broke my parents hearts (there is only my sister and I...no other siblings...) and my mom would cry for hours about not being able to have her children and grandchildren together anymore, although she completely understood, it still made her sad. As a matter of fact, I think I cried for months, my sister and I are very close, not to mention that my nephew is also my godson, and I love him very much, but nothing is worth risking my kids health over.

Now that the kids are older, we will go to the same places, but with strict rules. They do great together in staying apart.

tammykrumrey · Jul 10, 2008

I have two daughters who both have CF, and so does my nephew. My girls are 10 and almost 9 and my nephew is 17. Our kids do not have any close contact! The last time they sat within 10 feet of one another was 8 years ago, when my nephew started culturing a bacteria that is very hard to get rid of and I will not risk my girls health. My nephew doesn't want them to catch it either.
 
 When my girls were first born, I was not aware of the cross infection problems that I now know of. I may had been more careful back then had I known (although we didn't know Kayla had CF for her first 14 months, and we were around my nephew ALL the time!)
 
 Our kids all see the same CF doctor, and he says to keep the three feet rule. We prefer much more.
 
 At first my sister and I never let our kids go to the same place at the same time. Little kids do not understand how to keep distances from one another and the consequences of it all.
 
 It broke my parents hearts (there is only my sister and I...no other siblings...) and my mom would cry for hours about not being able to have her children and grandchildren together anymore, although she completely understood, it still made her sad. As a matter of fact, I think I cried for months, my sister and I are very close, not to mention that my nephew is also my godson, and I love him very much, but nothing is worth risking my kids health over.
 
 Now that the kids are older, we will go to the same places, but with strict rules. They do great together in staying apart.

zeeannie · Jul 11, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: JazzysMom

They/you could start with finding out what, if any, bacteria each of them culture. From there decisions could be made? Just a thought!</end quote></div>

I agree. If they're both culturing the same bacteria, there's no more risk than being anywhere else. However, I would still be generous with gels and the three foot rule, which shouldn't be a big deal due to the difference in ages. Then, I would make a deal to inform the other ASAP if another bacteria is cultured, then abstain from joint events. Even as I write this tho I have a vague feeling of reservation anyway. Sometimes one rule doesn't apply to every situation and you've got to adapt and change as the needs dictate.

Sheesh. Not a real definitive opinion, ay?

zeeannie · Jul 11, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: JazzysMom

They/you could start with finding out what, if any, bacteria each of them culture. From there decisions could be made? Just a thought!</end quote></div>

I agree. If they're both culturing the same bacteria, there's no more risk than being anywhere else. However, I would still be generous with gels and the three foot rule, which shouldn't be a big deal due to the difference in ages. Then, I would make a deal to inform the other ASAP if another bacteria is cultured, then abstain from joint events. Even as I write this tho I have a vague feeling of reservation anyway. Sometimes one rule doesn't apply to every situation and you've got to adapt and change as the needs dictate.

Sheesh. Not a real definitive opinion, ay?

zeeannie · Jul 11, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: JazzysMom

They/you could start with finding out what, if any, bacteria each of them culture. From there decisions could be made? Just a thought!</end quote></div>

I agree. If they're both culturing the same bacteria, there's no more risk than being anywhere else. However, I would still be generous with gels and the three foot rule, which shouldn't be a big deal due to the difference in ages. Then, I would make a deal to inform the other ASAP if another bacteria is cultured, then abstain from joint events. Even as I write this tho I have a vague feeling of reservation anyway. Sometimes one rule doesn't apply to every situation and you've got to adapt and change as the needs dictate.

Sheesh. Not a real definitive opinion, ay?

zeeannie · Jul 11, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: JazzysMom

They/you could start with finding out what, if any, bacteria each of them culture. From there decisions could be made? Just a thought!</end quote>

I agree. If they're both culturing the same bacteria, there's no more risk than being anywhere else. However, I would still be generous with gels and the three foot rule, which shouldn't be a big deal due to the difference in ages. Then, I would make a deal to inform the other ASAP if another bacteria is cultured, then abstain from joint events. Even as I write this tho I have a vague feeling of reservation anyway. Sometimes one rule doesn't apply to every situation and you've got to adapt and change as the needs dictate.

Sheesh. Not a real definitive opinion, ay?

zeeannie · Jul 11, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: JazzysMom
 
 
 They/you could start with finding out what, if any, bacteria each of them culture. From there decisions could be made? Just a thought!</end quote>
 
 
 I agree. If they're both culturing the same bacteria, there's no more risk than being anywhere else. However, I would still be generous with gels and the three foot rule, which shouldn't be a big deal due to the difference in ages. Then, I would make a deal to inform the other ASAP if another bacteria is cultured, then abstain from joint events. Even as I write this tho I have a vague feeling of reservation anyway. Sometimes one rule doesn't apply to every situation and you've got to adapt and change as the needs dictate.
 
 Sheesh. Not a real definitive opinion, ay?

NoExcuses · Jul 11, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: zeeannie

If they're both culturing the same bacteria, there's no more risk than being anywhere else. </end quote></div>

actually not true.

even if you have the same bacteria you can acquire a different strain which can set up shop. I have 4 strains of PA. Each with different sensitivities, etc.

which leads to my next point. each strain of a bacteria has different sensitivities. so even if two people have the same bacteria, one could be pan-resistant to all anti-biotics and one could be pan-sensitive.

there's much more to the story than just the names of the bugs you culture.....

NoExcuses · Jul 11, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: zeeannie

If they're both culturing the same bacteria, there's no more risk than being anywhere else. </end quote></div>

actually not true.

even if you have the same bacteria you can acquire a different strain which can set up shop. I have 4 strains of PA. Each with different sensitivities, etc.

which leads to my next point. each strain of a bacteria has different sensitivities. so even if two people have the same bacteria, one could be pan-resistant to all anti-biotics and one could be pan-sensitive.

there's much more to the story than just the names of the bugs you culture.....

NoExcuses · Jul 11, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: zeeannie

If they're both culturing the same bacteria, there's no more risk than being anywhere else. </end quote></div>

actually not true.

even if you have the same bacteria you can acquire a different strain which can set up shop. I have 4 strains of PA. Each with different sensitivities, etc.

which leads to my next point. each strain of a bacteria has different sensitivities. so even if two people have the same bacteria, one could be pan-resistant to all anti-biotics and one could be pan-sensitive.

there's much more to the story than just the names of the bugs you culture.....

NoExcuses · Jul 11, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: zeeannie

If they're both culturing the same bacteria, there's no more risk than being anywhere else. </end quote>

actually not true.

even if you have the same bacteria you can acquire a different strain which can set up shop. I have 4 strains of PA. Each with different sensitivities, etc.

which leads to my next point. each strain of a bacteria has different sensitivities. so even if two people have the same bacteria, one could be pan-resistant to all anti-biotics and one could be pan-sensitive.

there's much more to the story than just the names of the bugs you culture.....

NoExcuses · Jul 11, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: zeeannie
 
 
 
 If they're both culturing the same bacteria, there's no more risk than being anywhere else. </end quote>
 
 
 actually not true.
 
 even if you have the same bacteria you can acquire a different strain which can set up shop. I have 4 strains of PA. Each with different sensitivities, etc.
 
 which leads to my next point. each strain of a bacteria has different sensitivities. so even if two people have the same bacteria, one could be pan-resistant to all anti-biotics and one could be pan-sensitive.
 
 there's much more to the story than just the names of the bugs you culture.....

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