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CF in the family
- Thread starter yori78
- Start date
T
tammykrumrey
Guest
Lisa,
I have two daughters, and a nephew, who all have CF. I do not keep my girls away from each other, only away from their cousin.
Some books/doctors may tell you to have the siblings do their CPT and nebs in seperate rooms, but I just find that too difficult. My kids both want me to sit with them while doing treatments, and I can't be in two rooms at one time. They are only 18 months apart, and how do you keep two little kids away from each other? Not possible, at least when they were little. Even now, they are each others favorite playmate (even though the argue a lot<img src="i/expressions/face-icon-small-smile.gif" border="0">)
I had always assumed that what one would culture, the other would too. But that has not been the case. When they were little, they both would catch things like strep throat at the same time. But maybe that would be because I would catch them drinking out of the wrong cups or taking their sisters binkies<img src="i/expressions/face-icon-small-smile.gif" border="0"> and plopping it in their own mouths! Now that they are older, they know not to drink or eat after the other one. If they are coughing, they know how important it is to stay away from their sister.
Hannah started culturing PA about two years ago (has since had almost a year of clear cultures of PA) and I thought that Kayla would absolutely start culturing it. That worried me a lot, especially b/c Kayla seems to have more lung issues than Hannah. But, she never has cultured it (knock on wood). Both girls culture MRSA and Staph, but only one the PA. I will not say that it is not growing deep in there and not showing up, but as of now, there are no signs of it.
There are many parents on this forum that have many children with CF, and you will probably get many different ideas on this. But, for us, our CF doctor has never told me to keep my girls away from one another. Only a distance from their cousin with CF.
By the way, Toby is a real doll<img src="i/expressions/face-icon-small-smile.gif" border="0">
I have two daughters, and a nephew, who all have CF. I do not keep my girls away from each other, only away from their cousin.
Some books/doctors may tell you to have the siblings do their CPT and nebs in seperate rooms, but I just find that too difficult. My kids both want me to sit with them while doing treatments, and I can't be in two rooms at one time. They are only 18 months apart, and how do you keep two little kids away from each other? Not possible, at least when they were little. Even now, they are each others favorite playmate (even though the argue a lot<img src="i/expressions/face-icon-small-smile.gif" border="0">)
I had always assumed that what one would culture, the other would too. But that has not been the case. When they were little, they both would catch things like strep throat at the same time. But maybe that would be because I would catch them drinking out of the wrong cups or taking their sisters binkies<img src="i/expressions/face-icon-small-smile.gif" border="0"> and plopping it in their own mouths! Now that they are older, they know not to drink or eat after the other one. If they are coughing, they know how important it is to stay away from their sister.
Hannah started culturing PA about two years ago (has since had almost a year of clear cultures of PA) and I thought that Kayla would absolutely start culturing it. That worried me a lot, especially b/c Kayla seems to have more lung issues than Hannah. But, she never has cultured it (knock on wood). Both girls culture MRSA and Staph, but only one the PA. I will not say that it is not growing deep in there and not showing up, but as of now, there are no signs of it.
There are many parents on this forum that have many children with CF, and you will probably get many different ideas on this. But, for us, our CF doctor has never told me to keep my girls away from one another. Only a distance from their cousin with CF.
By the way, Toby is a real doll<img src="i/expressions/face-icon-small-smile.gif" border="0">
T
tammykrumrey
Guest
Lisa,
I have two daughters, and a nephew, who all have CF. I do not keep my girls away from each other, only away from their cousin.
Some books/doctors may tell you to have the siblings do their CPT and nebs in seperate rooms, but I just find that too difficult. My kids both want me to sit with them while doing treatments, and I can't be in two rooms at one time. They are only 18 months apart, and how do you keep two little kids away from each other? Not possible, at least when they were little. Even now, they are each others favorite playmate (even though the argue a lot<img src="i/expressions/face-icon-small-smile.gif" border="0">)
I had always assumed that what one would culture, the other would too. But that has not been the case. When they were little, they both would catch things like strep throat at the same time. But maybe that would be because I would catch them drinking out of the wrong cups or taking their sisters binkies<img src="i/expressions/face-icon-small-smile.gif" border="0"> and plopping it in their own mouths! Now that they are older, they know not to drink or eat after the other one. If they are coughing, they know how important it is to stay away from their sister.
Hannah started culturing PA about two years ago (has since had almost a year of clear cultures of PA) and I thought that Kayla would absolutely start culturing it. That worried me a lot, especially b/c Kayla seems to have more lung issues than Hannah. But, she never has cultured it (knock on wood). Both girls culture MRSA and Staph, but only one the PA. I will not say that it is not growing deep in there and not showing up, but as of now, there are no signs of it.
There are many parents on this forum that have many children with CF, and you will probably get many different ideas on this. But, for us, our CF doctor has never told me to keep my girls away from one another. Only a distance from their cousin with CF.
By the way, Toby is a real doll<img src="i/expressions/face-icon-small-smile.gif" border="0">
I have two daughters, and a nephew, who all have CF. I do not keep my girls away from each other, only away from their cousin.
Some books/doctors may tell you to have the siblings do their CPT and nebs in seperate rooms, but I just find that too difficult. My kids both want me to sit with them while doing treatments, and I can't be in two rooms at one time. They are only 18 months apart, and how do you keep two little kids away from each other? Not possible, at least when they were little. Even now, they are each others favorite playmate (even though the argue a lot<img src="i/expressions/face-icon-small-smile.gif" border="0">)
I had always assumed that what one would culture, the other would too. But that has not been the case. When they were little, they both would catch things like strep throat at the same time. But maybe that would be because I would catch them drinking out of the wrong cups or taking their sisters binkies<img src="i/expressions/face-icon-small-smile.gif" border="0"> and plopping it in their own mouths! Now that they are older, they know not to drink or eat after the other one. If they are coughing, they know how important it is to stay away from their sister.
Hannah started culturing PA about two years ago (has since had almost a year of clear cultures of PA) and I thought that Kayla would absolutely start culturing it. That worried me a lot, especially b/c Kayla seems to have more lung issues than Hannah. But, she never has cultured it (knock on wood). Both girls culture MRSA and Staph, but only one the PA. I will not say that it is not growing deep in there and not showing up, but as of now, there are no signs of it.
There are many parents on this forum that have many children with CF, and you will probably get many different ideas on this. But, for us, our CF doctor has never told me to keep my girls away from one another. Only a distance from their cousin with CF.
By the way, Toby is a real doll<img src="i/expressions/face-icon-small-smile.gif" border="0">
T
tammykrumrey
Guest
Lisa,
I have two daughters, and a nephew, who all have CF. I do not keep my girls away from each other, only away from their cousin.
Some books/doctors may tell you to have the siblings do their CPT and nebs in seperate rooms, but I just find that too difficult. My kids both want me to sit with them while doing treatments, and I can't be in two rooms at one time. They are only 18 months apart, and how do you keep two little kids away from each other? Not possible, at least when they were little. Even now, they are each others favorite playmate (even though the argue a lot<img src="i/expressions/face-icon-small-smile.gif" border="0">)
I had always assumed that what one would culture, the other would too. But that has not been the case. When they were little, they both would catch things like strep throat at the same time. But maybe that would be because I would catch them drinking out of the wrong cups or taking their sisters binkies<img src="i/expressions/face-icon-small-smile.gif" border="0"> and plopping it in their own mouths! Now that they are older, they know not to drink or eat after the other one. If they are coughing, they know how important it is to stay away from their sister.
Hannah started culturing PA about two years ago (has since had almost a year of clear cultures of PA) and I thought that Kayla would absolutely start culturing it. That worried me a lot, especially b/c Kayla seems to have more lung issues than Hannah. But, she never has cultured it (knock on wood). Both girls culture MRSA and Staph, but only one the PA. I will not say that it is not growing deep in there and not showing up, but as of now, there are no signs of it.
There are many parents on this forum that have many children with CF, and you will probably get many different ideas on this. But, for us, our CF doctor has never told me to keep my girls away from one another. Only a distance from their cousin with CF.
By the way, Toby is a real doll<img src="i/expressions/face-icon-small-smile.gif" border="0">
I have two daughters, and a nephew, who all have CF. I do not keep my girls away from each other, only away from their cousin.
Some books/doctors may tell you to have the siblings do their CPT and nebs in seperate rooms, but I just find that too difficult. My kids both want me to sit with them while doing treatments, and I can't be in two rooms at one time. They are only 18 months apart, and how do you keep two little kids away from each other? Not possible, at least when they were little. Even now, they are each others favorite playmate (even though the argue a lot<img src="i/expressions/face-icon-small-smile.gif" border="0">)
I had always assumed that what one would culture, the other would too. But that has not been the case. When they were little, they both would catch things like strep throat at the same time. But maybe that would be because I would catch them drinking out of the wrong cups or taking their sisters binkies<img src="i/expressions/face-icon-small-smile.gif" border="0"> and plopping it in their own mouths! Now that they are older, they know not to drink or eat after the other one. If they are coughing, they know how important it is to stay away from their sister.
Hannah started culturing PA about two years ago (has since had almost a year of clear cultures of PA) and I thought that Kayla would absolutely start culturing it. That worried me a lot, especially b/c Kayla seems to have more lung issues than Hannah. But, she never has cultured it (knock on wood). Both girls culture MRSA and Staph, but only one the PA. I will not say that it is not growing deep in there and not showing up, but as of now, there are no signs of it.
There are many parents on this forum that have many children with CF, and you will probably get many different ideas on this. But, for us, our CF doctor has never told me to keep my girls away from one another. Only a distance from their cousin with CF.
By the way, Toby is a real doll<img src="i/expressions/face-icon-small-smile.gif" border="0">
T
tammykrumrey
Guest
Lisa,
I have two daughters, and a nephew, who all have CF. I do not keep my girls away from each other, only away from their cousin.
Some books/doctors may tell you to have the siblings do their CPT and nebs in seperate rooms, but I just find that too difficult. My kids both want me to sit with them while doing treatments, and I can't be in two rooms at one time. They are only 18 months apart, and how do you keep two little kids away from each other? Not possible, at least when they were little. Even now, they are each others favorite playmate (even though the argue a lot<img src="i/expressions/face-icon-small-smile.gif" border="0">)
I had always assumed that what one would culture, the other would too. But that has not been the case. When they were little, they both would catch things like strep throat at the same time. But maybe that would be because I would catch them drinking out of the wrong cups or taking their sisters binkies<img src="i/expressions/face-icon-small-smile.gif" border="0"> and plopping it in their own mouths! Now that they are older, they know not to drink or eat after the other one. If they are coughing, they know how important it is to stay away from their sister.
Hannah started culturing PA about two years ago (has since had almost a year of clear cultures of PA) and I thought that Kayla would absolutely start culturing it. That worried me a lot, especially b/c Kayla seems to have more lung issues than Hannah. But, she never has cultured it (knock on wood). Both girls culture MRSA and Staph, but only one the PA. I will not say that it is not growing deep in there and not showing up, but as of now, there are no signs of it.
There are many parents on this forum that have many children with CF, and you will probably get many different ideas on this. But, for us, our CF doctor has never told me to keep my girls away from one another. Only a distance from their cousin with CF.
By the way, Toby is a real doll<img src="i/expressions/face-icon-small-smile.gif" border="0">
I have two daughters, and a nephew, who all have CF. I do not keep my girls away from each other, only away from their cousin.
Some books/doctors may tell you to have the siblings do their CPT and nebs in seperate rooms, but I just find that too difficult. My kids both want me to sit with them while doing treatments, and I can't be in two rooms at one time. They are only 18 months apart, and how do you keep two little kids away from each other? Not possible, at least when they were little. Even now, they are each others favorite playmate (even though the argue a lot<img src="i/expressions/face-icon-small-smile.gif" border="0">)
I had always assumed that what one would culture, the other would too. But that has not been the case. When they were little, they both would catch things like strep throat at the same time. But maybe that would be because I would catch them drinking out of the wrong cups or taking their sisters binkies<img src="i/expressions/face-icon-small-smile.gif" border="0"> and plopping it in their own mouths! Now that they are older, they know not to drink or eat after the other one. If they are coughing, they know how important it is to stay away from their sister.
Hannah started culturing PA about two years ago (has since had almost a year of clear cultures of PA) and I thought that Kayla would absolutely start culturing it. That worried me a lot, especially b/c Kayla seems to have more lung issues than Hannah. But, she never has cultured it (knock on wood). Both girls culture MRSA and Staph, but only one the PA. I will not say that it is not growing deep in there and not showing up, but as of now, there are no signs of it.
There are many parents on this forum that have many children with CF, and you will probably get many different ideas on this. But, for us, our CF doctor has never told me to keep my girls away from one another. Only a distance from their cousin with CF.
By the way, Toby is a real doll<img src="i/expressions/face-icon-small-smile.gif" border="0">
T
tammykrumrey
Guest
Lisa,
<br />I have two daughters, and a nephew, who all have CF. I do not keep my girls away from each other, only away from their cousin.
<br />
<br />Some books/doctors may tell you to have the siblings do their CPT and nebs in seperate rooms, but I just find that too difficult. My kids both want me to sit with them while doing treatments, and I can't be in two rooms at one time. They are only 18 months apart, and how do you keep two little kids away from each other? Not possible, at least when they were little. Even now, they are each others favorite playmate (even though the argue a lot<img src="i/expressions/face-icon-small-smile.gif" border="0">)
<br />
<br />I had always assumed that what one would culture, the other would too. But that has not been the case. When they were little, they both would catch things like strep throat at the same time. But maybe that would be because I would catch them drinking out of the wrong cups or taking their sisters binkies<img src="i/expressions/face-icon-small-smile.gif" border="0"> and plopping it in their own mouths! Now that they are older, they know not to drink or eat after the other one. If they are coughing, they know how important it is to stay away from their sister.
<br />
<br />Hannah started culturing PA about two years ago (has since had almost a year of clear cultures of PA) and I thought that Kayla would absolutely start culturing it. That worried me a lot, especially b/c Kayla seems to have more lung issues than Hannah. But, she never has cultured it (knock on wood). Both girls culture MRSA and Staph, but only one the PA. I will not say that it is not growing deep in there and not showing up, but as of now, there are no signs of it.
<br />
<br />There are many parents on this forum that have many children with CF, and you will probably get many different ideas on this. But, for us, our CF doctor has never told me to keep my girls away from one another. Only a distance from their cousin with CF.
<br />
<br />By the way, Toby is a real doll<img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />I have two daughters, and a nephew, who all have CF. I do not keep my girls away from each other, only away from their cousin.
<br />
<br />Some books/doctors may tell you to have the siblings do their CPT and nebs in seperate rooms, but I just find that too difficult. My kids both want me to sit with them while doing treatments, and I can't be in two rooms at one time. They are only 18 months apart, and how do you keep two little kids away from each other? Not possible, at least when they were little. Even now, they are each others favorite playmate (even though the argue a lot<img src="i/expressions/face-icon-small-smile.gif" border="0">)
<br />
<br />I had always assumed that what one would culture, the other would too. But that has not been the case. When they were little, they both would catch things like strep throat at the same time. But maybe that would be because I would catch them drinking out of the wrong cups or taking their sisters binkies<img src="i/expressions/face-icon-small-smile.gif" border="0"> and plopping it in their own mouths! Now that they are older, they know not to drink or eat after the other one. If they are coughing, they know how important it is to stay away from their sister.
<br />
<br />Hannah started culturing PA about two years ago (has since had almost a year of clear cultures of PA) and I thought that Kayla would absolutely start culturing it. That worried me a lot, especially b/c Kayla seems to have more lung issues than Hannah. But, she never has cultured it (knock on wood). Both girls culture MRSA and Staph, but only one the PA. I will not say that it is not growing deep in there and not showing up, but as of now, there are no signs of it.
<br />
<br />There are many parents on this forum that have many children with CF, and you will probably get many different ideas on this. But, for us, our CF doctor has never told me to keep my girls away from one another. Only a distance from their cousin with CF.
<br />
<br />By the way, Toby is a real doll<img src="i/expressions/face-icon-small-smile.gif" border="0">
<b>With regards to siblings with CF:</b>
My story is similar to Tammy's. Our clinic said that it is usually assumed that siblings will end up culturing the same bugs eventually, but not always. So far this has never happened to us.
Our daughter has cultured Staph, MRSA and PA at different times over the years and our son has never cultured anything, ever.
Of course we are a little different than most too, because our kids were older when diagnosed. They used to share food and drinks growing up, until our son was 18 years old and diagnosed...then we were more careful. Now that they are older, both doing treatments and living in different houses holds they are not together most of the time, but when our daughter came to visit for 2 weeks we didn't do anything any differently then when they were growing up - only now her brother has started treatments too -- they both did their treatments whenever and wherever they wanted but we just made sure to keep their neb cups completely separate.
<b>To the original poster</b> - I wanted to ask...do you have any idea about the status of the teenager with CF? Do you know if he treats with the same clinic as the baby? I know that when my daughter wanted to meet another teenager with CF we all talked about it (all 4 parents, the doctor and the nurse) and although the doctor couldn't share with us what the other teen had cultured (we already knew because she shared it with us) he gave us advise based on what we already knew (both girls had a one time cultured PA but had both been clear of it for a year or more). It would seem like if everyone gave permission to share culture results then you might be able to make a more informed/detailed decision too - if it is scary bad stuff the teenager is culturing then she should follow the original advice and keep them apart, but if they find out this kid is and always has been clear of everything except say maybe staph or something then maybe you could consider brief outdoor meeting with precautions. Also as the baby gets older, don't forget about the option of getting to know each other through the magic of the internet -- web cams, emails and pictures can bridge the gap too.
My story is similar to Tammy's. Our clinic said that it is usually assumed that siblings will end up culturing the same bugs eventually, but not always. So far this has never happened to us.
Our daughter has cultured Staph, MRSA and PA at different times over the years and our son has never cultured anything, ever.
Of course we are a little different than most too, because our kids were older when diagnosed. They used to share food and drinks growing up, until our son was 18 years old and diagnosed...then we were more careful. Now that they are older, both doing treatments and living in different houses holds they are not together most of the time, but when our daughter came to visit for 2 weeks we didn't do anything any differently then when they were growing up - only now her brother has started treatments too -- they both did their treatments whenever and wherever they wanted but we just made sure to keep their neb cups completely separate.
<b>To the original poster</b> - I wanted to ask...do you have any idea about the status of the teenager with CF? Do you know if he treats with the same clinic as the baby? I know that when my daughter wanted to meet another teenager with CF we all talked about it (all 4 parents, the doctor and the nurse) and although the doctor couldn't share with us what the other teen had cultured (we already knew because she shared it with us) he gave us advise based on what we already knew (both girls had a one time cultured PA but had both been clear of it for a year or more). It would seem like if everyone gave permission to share culture results then you might be able to make a more informed/detailed decision too - if it is scary bad stuff the teenager is culturing then she should follow the original advice and keep them apart, but if they find out this kid is and always has been clear of everything except say maybe staph or something then maybe you could consider brief outdoor meeting with precautions. Also as the baby gets older, don't forget about the option of getting to know each other through the magic of the internet -- web cams, emails and pictures can bridge the gap too.
<b>With regards to siblings with CF:</b>
My story is similar to Tammy's. Our clinic said that it is usually assumed that siblings will end up culturing the same bugs eventually, but not always. So far this has never happened to us.
Our daughter has cultured Staph, MRSA and PA at different times over the years and our son has never cultured anything, ever.
Of course we are a little different than most too, because our kids were older when diagnosed. They used to share food and drinks growing up, until our son was 18 years old and diagnosed...then we were more careful. Now that they are older, both doing treatments and living in different houses holds they are not together most of the time, but when our daughter came to visit for 2 weeks we didn't do anything any differently then when they were growing up - only now her brother has started treatments too -- they both did their treatments whenever and wherever they wanted but we just made sure to keep their neb cups completely separate.
<b>To the original poster</b> - I wanted to ask...do you have any idea about the status of the teenager with CF? Do you know if he treats with the same clinic as the baby? I know that when my daughter wanted to meet another teenager with CF we all talked about it (all 4 parents, the doctor and the nurse) and although the doctor couldn't share with us what the other teen had cultured (we already knew because she shared it with us) he gave us advise based on what we already knew (both girls had a one time cultured PA but had both been clear of it for a year or more). It would seem like if everyone gave permission to share culture results then you might be able to make a more informed/detailed decision too - if it is scary bad stuff the teenager is culturing then she should follow the original advice and keep them apart, but if they find out this kid is and always has been clear of everything except say maybe staph or something then maybe you could consider brief outdoor meeting with precautions. Also as the baby gets older, don't forget about the option of getting to know each other through the magic of the internet -- web cams, emails and pictures can bridge the gap too.
My story is similar to Tammy's. Our clinic said that it is usually assumed that siblings will end up culturing the same bugs eventually, but not always. So far this has never happened to us.
Our daughter has cultured Staph, MRSA and PA at different times over the years and our son has never cultured anything, ever.
Of course we are a little different than most too, because our kids were older when diagnosed. They used to share food and drinks growing up, until our son was 18 years old and diagnosed...then we were more careful. Now that they are older, both doing treatments and living in different houses holds they are not together most of the time, but when our daughter came to visit for 2 weeks we didn't do anything any differently then when they were growing up - only now her brother has started treatments too -- they both did their treatments whenever and wherever they wanted but we just made sure to keep their neb cups completely separate.
<b>To the original poster</b> - I wanted to ask...do you have any idea about the status of the teenager with CF? Do you know if he treats with the same clinic as the baby? I know that when my daughter wanted to meet another teenager with CF we all talked about it (all 4 parents, the doctor and the nurse) and although the doctor couldn't share with us what the other teen had cultured (we already knew because she shared it with us) he gave us advise based on what we already knew (both girls had a one time cultured PA but had both been clear of it for a year or more). It would seem like if everyone gave permission to share culture results then you might be able to make a more informed/detailed decision too - if it is scary bad stuff the teenager is culturing then she should follow the original advice and keep them apart, but if they find out this kid is and always has been clear of everything except say maybe staph or something then maybe you could consider brief outdoor meeting with precautions. Also as the baby gets older, don't forget about the option of getting to know each other through the magic of the internet -- web cams, emails and pictures can bridge the gap too.
<b>With regards to siblings with CF:</b>
My story is similar to Tammy's. Our clinic said that it is usually assumed that siblings will end up culturing the same bugs eventually, but not always. So far this has never happened to us.
Our daughter has cultured Staph, MRSA and PA at different times over the years and our son has never cultured anything, ever.
Of course we are a little different than most too, because our kids were older when diagnosed. They used to share food and drinks growing up, until our son was 18 years old and diagnosed...then we were more careful. Now that they are older, both doing treatments and living in different houses holds they are not together most of the time, but when our daughter came to visit for 2 weeks we didn't do anything any differently then when they were growing up - only now her brother has started treatments too -- they both did their treatments whenever and wherever they wanted but we just made sure to keep their neb cups completely separate.
<b>To the original poster</b> - I wanted to ask...do you have any idea about the status of the teenager with CF? Do you know if he treats with the same clinic as the baby? I know that when my daughter wanted to meet another teenager with CF we all talked about it (all 4 parents, the doctor and the nurse) and although the doctor couldn't share with us what the other teen had cultured (we already knew because she shared it with us) he gave us advise based on what we already knew (both girls had a one time cultured PA but had both been clear of it for a year or more). It would seem like if everyone gave permission to share culture results then you might be able to make a more informed/detailed decision too - if it is scary bad stuff the teenager is culturing then she should follow the original advice and keep them apart, but if they find out this kid is and always has been clear of everything except say maybe staph or something then maybe you could consider brief outdoor meeting with precautions. Also as the baby gets older, don't forget about the option of getting to know each other through the magic of the internet -- web cams, emails and pictures can bridge the gap too.
My story is similar to Tammy's. Our clinic said that it is usually assumed that siblings will end up culturing the same bugs eventually, but not always. So far this has never happened to us.
Our daughter has cultured Staph, MRSA and PA at different times over the years and our son has never cultured anything, ever.
Of course we are a little different than most too, because our kids were older when diagnosed. They used to share food and drinks growing up, until our son was 18 years old and diagnosed...then we were more careful. Now that they are older, both doing treatments and living in different houses holds they are not together most of the time, but when our daughter came to visit for 2 weeks we didn't do anything any differently then when they were growing up - only now her brother has started treatments too -- they both did their treatments whenever and wherever they wanted but we just made sure to keep their neb cups completely separate.
<b>To the original poster</b> - I wanted to ask...do you have any idea about the status of the teenager with CF? Do you know if he treats with the same clinic as the baby? I know that when my daughter wanted to meet another teenager with CF we all talked about it (all 4 parents, the doctor and the nurse) and although the doctor couldn't share with us what the other teen had cultured (we already knew because she shared it with us) he gave us advise based on what we already knew (both girls had a one time cultured PA but had both been clear of it for a year or more). It would seem like if everyone gave permission to share culture results then you might be able to make a more informed/detailed decision too - if it is scary bad stuff the teenager is culturing then she should follow the original advice and keep them apart, but if they find out this kid is and always has been clear of everything except say maybe staph or something then maybe you could consider brief outdoor meeting with precautions. Also as the baby gets older, don't forget about the option of getting to know each other through the magic of the internet -- web cams, emails and pictures can bridge the gap too.
<b>With regards to siblings with CF:</b>
My story is similar to Tammy's. Our clinic said that it is usually assumed that siblings will end up culturing the same bugs eventually, but not always. So far this has never happened to us.
Our daughter has cultured Staph, MRSA and PA at different times over the years and our son has never cultured anything, ever.
Of course we are a little different than most too, because our kids were older when diagnosed. They used to share food and drinks growing up, until our son was 18 years old and diagnosed...then we were more careful. Now that they are older, both doing treatments and living in different houses holds they are not together most of the time, but when our daughter came to visit for 2 weeks we didn't do anything any differently then when they were growing up - only now her brother has started treatments too -- they both did their treatments whenever and wherever they wanted but we just made sure to keep their neb cups completely separate.
<b>To the original poster</b> - I wanted to ask...do you have any idea about the status of the teenager with CF? Do you know if he treats with the same clinic as the baby? I know that when my daughter wanted to meet another teenager with CF we all talked about it (all 4 parents, the doctor and the nurse) and although the doctor couldn't share with us what the other teen had cultured (we already knew because she shared it with us) he gave us advise based on what we already knew (both girls had a one time cultured PA but had both been clear of it for a year or more). It would seem like if everyone gave permission to share culture results then you might be able to make a more informed/detailed decision too - if it is scary bad stuff the teenager is culturing then she should follow the original advice and keep them apart, but if they find out this kid is and always has been clear of everything except say maybe staph or something then maybe you could consider brief outdoor meeting with precautions. Also as the baby gets older, don't forget about the option of getting to know each other through the magic of the internet -- web cams, emails and pictures can bridge the gap too.
My story is similar to Tammy's. Our clinic said that it is usually assumed that siblings will end up culturing the same bugs eventually, but not always. So far this has never happened to us.
Our daughter has cultured Staph, MRSA and PA at different times over the years and our son has never cultured anything, ever.
Of course we are a little different than most too, because our kids were older when diagnosed. They used to share food and drinks growing up, until our son was 18 years old and diagnosed...then we were more careful. Now that they are older, both doing treatments and living in different houses holds they are not together most of the time, but when our daughter came to visit for 2 weeks we didn't do anything any differently then when they were growing up - only now her brother has started treatments too -- they both did their treatments whenever and wherever they wanted but we just made sure to keep their neb cups completely separate.
<b>To the original poster</b> - I wanted to ask...do you have any idea about the status of the teenager with CF? Do you know if he treats with the same clinic as the baby? I know that when my daughter wanted to meet another teenager with CF we all talked about it (all 4 parents, the doctor and the nurse) and although the doctor couldn't share with us what the other teen had cultured (we already knew because she shared it with us) he gave us advise based on what we already knew (both girls had a one time cultured PA but had both been clear of it for a year or more). It would seem like if everyone gave permission to share culture results then you might be able to make a more informed/detailed decision too - if it is scary bad stuff the teenager is culturing then she should follow the original advice and keep them apart, but if they find out this kid is and always has been clear of everything except say maybe staph or something then maybe you could consider brief outdoor meeting with precautions. Also as the baby gets older, don't forget about the option of getting to know each other through the magic of the internet -- web cams, emails and pictures can bridge the gap too.
<b>With regards to siblings with CF:</b>
<br />My story is similar to Tammy's. Our clinic said that it is usually assumed that siblings will end up culturing the same bugs eventually, but not always. So far this has never happened to us.
<br />
<br />Our daughter has cultured Staph, MRSA and PA at different times over the years and our son has never cultured anything, ever.
<br />
<br />Of course we are a little different than most too, because our kids were older when diagnosed. They used to share food and drinks growing up, until our son was 18 years old and diagnosed...then we were more careful. Now that they are older, both doing treatments and living in different houses holds they are not together most of the time, but when our daughter came to visit for 2 weeks we didn't do anything any differently then when they were growing up - only now her brother has started treatments too -- they both did their treatments whenever and wherever they wanted but we just made sure to keep their neb cups completely separate.
<br />
<br /><b>To the original poster</b> - I wanted to ask...do you have any idea about the status of the teenager with CF? Do you know if he treats with the same clinic as the baby? I know that when my daughter wanted to meet another teenager with CF we all talked about it (all 4 parents, the doctor and the nurse) and although the doctor couldn't share with us what the other teen had cultured (we already knew because she shared it with us) he gave us advise based on what we already knew (both girls had a one time cultured PA but had both been clear of it for a year or more). It would seem like if everyone gave permission to share culture results then you might be able to make a more informed/detailed decision too - if it is scary bad stuff the teenager is culturing then she should follow the original advice and keep them apart, but if they find out this kid is and always has been clear of everything except say maybe staph or something then maybe you could consider brief outdoor meeting with precautions. Also as the baby gets older, don't forget about the option of getting to know each other through the magic of the internet -- web cams, emails and pictures can bridge the gap too.
<br />My story is similar to Tammy's. Our clinic said that it is usually assumed that siblings will end up culturing the same bugs eventually, but not always. So far this has never happened to us.
<br />
<br />Our daughter has cultured Staph, MRSA and PA at different times over the years and our son has never cultured anything, ever.
<br />
<br />Of course we are a little different than most too, because our kids were older when diagnosed. They used to share food and drinks growing up, until our son was 18 years old and diagnosed...then we were more careful. Now that they are older, both doing treatments and living in different houses holds they are not together most of the time, but when our daughter came to visit for 2 weeks we didn't do anything any differently then when they were growing up - only now her brother has started treatments too -- they both did their treatments whenever and wherever they wanted but we just made sure to keep their neb cups completely separate.
<br />
<br /><b>To the original poster</b> - I wanted to ask...do you have any idea about the status of the teenager with CF? Do you know if he treats with the same clinic as the baby? I know that when my daughter wanted to meet another teenager with CF we all talked about it (all 4 parents, the doctor and the nurse) and although the doctor couldn't share with us what the other teen had cultured (we already knew because she shared it with us) he gave us advise based on what we already knew (both girls had a one time cultured PA but had both been clear of it for a year or more). It would seem like if everyone gave permission to share culture results then you might be able to make a more informed/detailed decision too - if it is scary bad stuff the teenager is culturing then she should follow the original advice and keep them apart, but if they find out this kid is and always has been clear of everything except say maybe staph or something then maybe you could consider brief outdoor meeting with precautions. Also as the baby gets older, don't forget about the option of getting to know each other through the magic of the internet -- web cams, emails and pictures can bridge the gap too.