I will definately keep her in my prayers.
In our case, CF is most definately a family disease too! The worry of all the kids can really get you down. When Dalton was so sick a few months ago (FEV has come up to 49% <img src="i/expressions/face-icon-small-smile.gif" border="0"> from the 30s), I think I cried for days because I was just so darned worried.
I do 'get it' as you mentioned, but I am not sure that all our family gets it as much as I do. I do because of Kayla and Hannah. But even before I had my own kids, I was always learning everything I could about CF and my nephews health. Constantly asking my sister questions about what things meant.
Please keep us updated on her progress.