cf is merciful

Emily65Roses

New member
We should start calling CF "You Know Who" and death "He Who Must Not Be Named" !!!!!

I love nerdy comparisons. <img src="i/expressions/heart.gif" border="0">
 

Emily65Roses

New member
We should start calling CF "You Know Who" and death "He Who Must Not Be Named" !!!!!

I love nerdy comparisons. <img src="i/expressions/heart.gif" border="0">
 

Scarlett81

New member
Every single person that has posted is exaggerating what I said.

I'm not saying to never talk about it, to call it some ridiculous Harry Potter unmentionable name, or to deny it and hold it in.

I do and have dealt with my Cf, I've discussed it openly here on this site with everyone, I've gone to therapy for years to openly discuss it. But the way of life, or path I am talking about is merely different than the one you are talking about. I'm not saying to hold it in-I'm only talking about people that feel the need to discuss it and dwell on it every single day-and I don't care what you say, that isn't healthy. I'm not talking about any of you in particular, but I have come across some cfers that are obviously obsessed with this, and its not healthy.

And Emily and Lilith-like you mentioned that just b/c you are the type that embraces it and jokes about it that doesn't make you sucidal or negative-That point is well taken. Remember everyone that in turn, people like me that don't have the same approach in dealing with this illness aren't in a dream world or not facing reality or in denial.

This is only a difference of mind set. I don't think anyone should have to feel that they have to belong to the negative or the positive club.

As to Rami's initial issue, to be honest I do disagree with his statement. In life I feel that it is all relative. Someone with my background for example, a person that went through the same exact things as me with my parents leaving me and me going through the foster system could be really messed up for the rest of their life and have tons of problems. I was able to handle it better than most fortunately. It all depends on how you look at it. To be honest-I'd rather have cf than be blind, but I know my husband and family would disagree strongly. There are people I see at the mall-parapalegics (sp) and severely crippled or retarded people and I do think to myself, it could be worse. At least I am independant and can live most of my life caring for myself.
But I would not call Cf a kind or easier hand of cards by NO means.
I do respect Rami's words however and his expressions. He was not making a statement to tell others how to feel or view cf, he was expressing his thoughts. And I do agree with some of his feelings.
 

Scarlett81

New member
Every single person that has posted is exaggerating what I said.

I'm not saying to never talk about it, to call it some ridiculous Harry Potter unmentionable name, or to deny it and hold it in.

I do and have dealt with my Cf, I've discussed it openly here on this site with everyone, I've gone to therapy for years to openly discuss it. But the way of life, or path I am talking about is merely different than the one you are talking about. I'm not saying to hold it in-I'm only talking about people that feel the need to discuss it and dwell on it every single day-and I don't care what you say, that isn't healthy. I'm not talking about any of you in particular, but I have come across some cfers that are obviously obsessed with this, and its not healthy.

And Emily and Lilith-like you mentioned that just b/c you are the type that embraces it and jokes about it that doesn't make you sucidal or negative-That point is well taken. Remember everyone that in turn, people like me that don't have the same approach in dealing with this illness aren't in a dream world or not facing reality or in denial.

This is only a difference of mind set. I don't think anyone should have to feel that they have to belong to the negative or the positive club.

As to Rami's initial issue, to be honest I do disagree with his statement. In life I feel that it is all relative. Someone with my background for example, a person that went through the same exact things as me with my parents leaving me and me going through the foster system could be really messed up for the rest of their life and have tons of problems. I was able to handle it better than most fortunately. It all depends on how you look at it. To be honest-I'd rather have cf than be blind, but I know my husband and family would disagree strongly. There are people I see at the mall-parapalegics (sp) and severely crippled or retarded people and I do think to myself, it could be worse. At least I am independant and can live most of my life caring for myself.
But I would not call Cf a kind or easier hand of cards by NO means.
I do respect Rami's words however and his expressions. He was not making a statement to tell others how to feel or view cf, he was expressing his thoughts. And I do agree with some of his feelings.
 

Scarlett81

New member
Every single person that has posted is exaggerating what I said.

I'm not saying to never talk about it, to call it some ridiculous Harry Potter unmentionable name, or to deny it and hold it in.

I do and have dealt with my Cf, I've discussed it openly here on this site with everyone, I've gone to therapy for years to openly discuss it. But the way of life, or path I am talking about is merely different than the one you are talking about. I'm not saying to hold it in-I'm only talking about people that feel the need to discuss it and dwell on it every single day-and I don't care what you say, that isn't healthy. I'm not talking about any of you in particular, but I have come across some cfers that are obviously obsessed with this, and its not healthy.

And Emily and Lilith-like you mentioned that just b/c you are the type that embraces it and jokes about it that doesn't make you sucidal or negative-That point is well taken. Remember everyone that in turn, people like me that don't have the same approach in dealing with this illness aren't in a dream world or not facing reality or in denial.

This is only a difference of mind set. I don't think anyone should have to feel that they have to belong to the negative or the positive club.

As to Rami's initial issue, to be honest I do disagree with his statement. In life I feel that it is all relative. Someone with my background for example, a person that went through the same exact things as me with my parents leaving me and me going through the foster system could be really messed up for the rest of their life and have tons of problems. I was able to handle it better than most fortunately. It all depends on how you look at it. To be honest-I'd rather have cf than be blind, but I know my husband and family would disagree strongly. There are people I see at the mall-parapalegics (sp) and severely crippled or retarded people and I do think to myself, it could be worse. At least I am independant and can live most of my life caring for myself.
But I would not call Cf a kind or easier hand of cards by NO means.
I do respect Rami's words however and his expressions. He was not making a statement to tell others how to feel or view cf, he was expressing his thoughts. And I do agree with some of his feelings.
 

Emily65Roses

New member
I just really like the nerdy comparison. I LIVE for Harry Potter.

As for sunshine rainbow people... I was never big into making fun of people that do that until I got called down 100,000 times for being a SUICIDAL NEGATIVE BOO-HOOER. I personally don't care that much if people are in denial (as long as innocent children aren't involved and being lied to, because that's not their fault)... I just feel I have to defend myself because people that hold that viewpoint tend to jump up my @ss. I got sick of it. And if I do say so myself, I have every right.

People with sunny glittery dispositions regarding their impending deaths tend to get a lot more pats on the back and support than people who know what's coming and laugh at it. And I think it sucks.
 

Emily65Roses

New member
I just really like the nerdy comparison. I LIVE for Harry Potter.

As for sunshine rainbow people... I was never big into making fun of people that do that until I got called down 100,000 times for being a SUICIDAL NEGATIVE BOO-HOOER. I personally don't care that much if people are in denial (as long as innocent children aren't involved and being lied to, because that's not their fault)... I just feel I have to defend myself because people that hold that viewpoint tend to jump up my @ss. I got sick of it. And if I do say so myself, I have every right.

People with sunny glittery dispositions regarding their impending deaths tend to get a lot more pats on the back and support than people who know what's coming and laugh at it. And I think it sucks.
 

Emily65Roses

New member
I just really like the nerdy comparison. I LIVE for Harry Potter.

As for sunshine rainbow people... I was never big into making fun of people that do that until I got called down 100,000 times for being a SUICIDAL NEGATIVE BOO-HOOER. I personally don't care that much if people are in denial (as long as innocent children aren't involved and being lied to, because that's not their fault)... I just feel I have to defend myself because people that hold that viewpoint tend to jump up my @ss. I got sick of it. And if I do say so myself, I have every right.

People with sunny glittery dispositions regarding their impending deaths tend to get a lot more pats on the back and support than people who know what's coming and laugh at it. And I think it sucks.
 

lightNlife

New member
Speaking as someone who very nearly died last month, (no exaggeration) talking about death doesn't phase me. It doesn't overwhelm me and it doesn't depress me. It just IS. By the same token I'm not going to do the

At the very least, be practical about it. Make sure you have a living will or advanced medical directive. It's a good to have on hand...you know...in case you're hit by a bus or something.
 

lightNlife

New member
Speaking as someone who very nearly died last month, (no exaggeration) talking about death doesn't phase me. It doesn't overwhelm me and it doesn't depress me. It just IS. By the same token I'm not going to do the

At the very least, be practical about it. Make sure you have a living will or advanced medical directive. It's a good to have on hand...you know...in case you're hit by a bus or something.
 

lightNlife

New member
Speaking as someone who very nearly died last month, (no exaggeration) talking about death doesn't phase me. It doesn't overwhelm me and it doesn't depress me. It just IS. By the same token I'm not going to do the

At the very least, be practical about it. Make sure you have a living will or advanced medical directive. It's a good to have on hand...you know...in case you're hit by a bus or something.
 

Scarlett81

New member
Interesting....they can't call you a suicidal negative boo-hoer (which I do legitimately think is wrong), but you can call them sunshine rainbow people.


?
 

Scarlett81

New member
Interesting....they can't call you a suicidal negative boo-hoer (which I do legitimately think is wrong), but you can call them sunshine rainbow people.


?
 

Scarlett81

New member
Interesting....they can't call you a suicidal negative boo-hoer (which I do legitimately think is wrong), but you can call them sunshine rainbow people.


?
 

Emily65Roses

New member
That's what I was saying. I didn't care enough to call them sunshine rainbow people until people crawled up my @ss about being a suicidal negative boo-hooer. Since then my patience kinda went out the window.

And just to clarify publicly for Christian or anyone else. My innocent children comment had nothing to do with Christian. I've simply known families who lied to their kids and said they had asthma. Kids found out in high school and resented their parents. That story sticks in my head because it makes me livid. That's all. *shrug*
 

Emily65Roses

New member
That's what I was saying. I didn't care enough to call them sunshine rainbow people until people crawled up my @ss about being a suicidal negative boo-hooer. Since then my patience kinda went out the window.

And just to clarify publicly for Christian or anyone else. My innocent children comment had nothing to do with Christian. I've simply known families who lied to their kids and said they had asthma. Kids found out in high school and resented their parents. That story sticks in my head because it makes me livid. That's all. *shrug*
 

Emily65Roses

New member
That's what I was saying. I didn't care enough to call them sunshine rainbow people until people crawled up my @ss about being a suicidal negative boo-hooer. Since then my patience kinda went out the window.

And just to clarify publicly for Christian or anyone else. My innocent children comment had nothing to do with Christian. I've simply known families who lied to their kids and said they had asthma. Kids found out in high school and resented their parents. That story sticks in my head because it makes me livid. That's all. *shrug*
 
the bottem line is that people only know what they feel. if someone is deaf and they think it's the worst thing or one of the world things that can happen, then more then likely that's the worst thing that's happened to them. just because we don't think it's one of the worst things doesn't change that person's perception of it.


years ago when i was pretty healthy i used to say to myself, if i could have my hearing loss or CF cured which one would i want? at the time i honestly didn't know what i would do. but now it's obvious, but at that time i hadn't gone through anything bad yet. but when you get older and experience life and CF gets a hold of you, you look back and say "just exactly how far was my head up my butt?" we only feel what we know. i don't know about anyone else here but i'm glad i'm able to live long enough to see those stupid thoughts i once had.
 
the bottem line is that people only know what they feel. if someone is deaf and they think it's the worst thing or one of the world things that can happen, then more then likely that's the worst thing that's happened to them. just because we don't think it's one of the worst things doesn't change that person's perception of it.


years ago when i was pretty healthy i used to say to myself, if i could have my hearing loss or CF cured which one would i want? at the time i honestly didn't know what i would do. but now it's obvious, but at that time i hadn't gone through anything bad yet. but when you get older and experience life and CF gets a hold of you, you look back and say "just exactly how far was my head up my butt?" we only feel what we know. i don't know about anyone else here but i'm glad i'm able to live long enough to see those stupid thoughts i once had.
 
the bottem line is that people only know what they feel. if someone is deaf and they think it's the worst thing or one of the world things that can happen, then more then likely that's the worst thing that's happened to them. just because we don't think it's one of the worst things doesn't change that person's perception of it.


years ago when i was pretty healthy i used to say to myself, if i could have my hearing loss or CF cured which one would i want? at the time i honestly didn't know what i would do. but now it's obvious, but at that time i hadn't gone through anything bad yet. but when you get older and experience life and CF gets a hold of you, you look back and say "just exactly how far was my head up my butt?" we only feel what we know. i don't know about anyone else here but i'm glad i'm able to live long enough to see those stupid thoughts i once had.
 
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