CF Male's fertialty issues Please Help!!

Nikolle

New member
no he would have told me. Our Mother passed away a couple of years ago. and I am basically the only family he has. He and his girlfriend have only been together a couple of months. and I am afraid that she didn't realize the complications he would have in getting her pregnant.. I think she might have allready been pregnant. I don't know though. I just need him to have her tested for some of the testing they do on the fetus when she is able to. I guess we will know then. He has all the cf mutations. I am not sure the right wording but I know he has the stomache and the lungs. he is going on the transplant list in a couple of months. they had to get his weight and stamina up first.
 

Nikolle

New member
no he would have told me. Our Mother passed away a couple of years ago. and I am basically the only family he has. He and his girlfriend have only been together a couple of months. and I am afraid that she didn't realize the complications he would have in getting her pregnant.. I think she might have allready been pregnant. I don't know though. I just need him to have her tested for some of the testing they do on the fetus when she is able to. I guess we will know then. He has all the cf mutations. I am not sure the right wording but I know he has the stomache and the lungs. he is going on the transplant list in a couple of months. they had to get his weight and stamina up first.
 

Nikolle

New member
no he would have told me. Our Mother passed away a couple of years ago. and I am basically the only family he has. He and his girlfriend have only been together a couple of months. and I am afraid that she didn't realize the complications he would have in getting her pregnant.. I think she might have allready been pregnant. I don't know though. I just need him to have her tested for some of the testing they do on the fetus when she is able to. I guess we will know then. He has all the cf mutations. I am not sure the right wording but I know he has the stomache and the lungs. he is going on the transplant list in a couple of months. they had to get his weight and stamina up first.
 

Nikolle

New member
no he would have told me. Our Mother passed away a couple of years ago. and I am basically the only family he has. He and his girlfriend have only been together a couple of months. and I am afraid that she didn't realize the complications he would have in getting her pregnant.. I think she might have allready been pregnant. I don't know though. I just need him to have her tested for some of the testing they do on the fetus when she is able to. I guess we will know then. He has all the cf mutations. I am not sure the right wording but I know he has the stomache and the lungs. he is going on the transplant list in a couple of months. they had to get his weight and stamina up first.
 

Nikolle

New member
no he would have told me. Our Mother passed away a couple of years ago. and I am basically the only family he has. He and his girlfriend have only been together a couple of months. and I am afraid that she didn't realize the complications he would have in getting her pregnant.. I think she might have allready been pregnant. I don't know though. I just need him to have her tested for some of the testing they do on the fetus when she is able to. I guess we will know then. He has all the cf mutations. I am not sure the right wording but I know he has the stomache and the lungs. he is going on the transplant list in a couple of months. they had to get his weight and stamina up first.
 

UsualSuspect

New member
Nikolle,

Another thing to remember is that virtually every state automatically screens for CF at birth. 2 of the 3 states that don't (Texas and Connecticut) are supposed to start doing so later this year. They don't have for every single mutation, but I believe the panel is 25 or so. It's rare, but there have been a few false negatives. Any screening that comes back positive is followed up with the 25 or so CF mutation panel. So there's a good chance you'll be able to find that out automatically because the screening should be positive even if the baby is only a carrier. If you don't know already, I would try to find out what known mutations your brother has. Here's the link for what each state does per the CF Foundation:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/GetInvolved/Advocate/NewbornScreening/#What_states_do_newborn_screening_for_CF?
">http://www.cff.org/GetInvolved...orn_screening_for_CF?
</a>
Simply click on the state your brother is in.
 

UsualSuspect

New member
Nikolle,

Another thing to remember is that virtually every state automatically screens for CF at birth. 2 of the 3 states that don't (Texas and Connecticut) are supposed to start doing so later this year. They don't have for every single mutation, but I believe the panel is 25 or so. It's rare, but there have been a few false negatives. Any screening that comes back positive is followed up with the 25 or so CF mutation panel. So there's a good chance you'll be able to find that out automatically because the screening should be positive even if the baby is only a carrier. If you don't know already, I would try to find out what known mutations your brother has. Here's the link for what each state does per the CF Foundation:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/GetInvolved/Advocate/NewbornScreening/#What_states_do_newborn_screening_for_CF?
">http://www.cff.org/GetInvolved...orn_screening_for_CF?
</a>
Simply click on the state your brother is in.
 

UsualSuspect

New member
Nikolle,

Another thing to remember is that virtually every state automatically screens for CF at birth. 2 of the 3 states that don't (Texas and Connecticut) are supposed to start doing so later this year. They don't have for every single mutation, but I believe the panel is 25 or so. It's rare, but there have been a few false negatives. Any screening that comes back positive is followed up with the 25 or so CF mutation panel. So there's a good chance you'll be able to find that out automatically because the screening should be positive even if the baby is only a carrier. If you don't know already, I would try to find out what known mutations your brother has. Here's the link for what each state does per the CF Foundation:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/GetInvolved/Advocate/NewbornScreening/#What_states_do_newborn_screening_for_CF?
">http://www.cff.org/GetInvolved...orn_screening_for_CF?
</a>
Simply click on the state your brother is in.
 

UsualSuspect

New member
Nikolle,

Another thing to remember is that virtually every state automatically screens for CF at birth. 2 of the 3 states that don't (Texas and Connecticut) are supposed to start doing so later this year. They don't have for every single mutation, but I believe the panel is 25 or so. It's rare, but there have been a few false negatives. Any screening that comes back positive is followed up with the 25 or so CF mutation panel. So there's a good chance you'll be able to find that out automatically because the screening should be positive even if the baby is only a carrier. If you don't know already, I would try to find out what known mutations your brother has. Here's the link for what each state does per the CF Foundation:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/GetInvolved/Advocate/NewbornScreening/#What_states_do_newborn_screening_for_CF?
">http://www.cff.org/GetInvolved...orn_screening_for_CF?
</a>
Simply click on the state your brother is in.
 

UsualSuspect

New member
Nikolle,
<br />
<br />Another thing to remember is that virtually every state automatically screens for CF at birth. 2 of the 3 states that don't (Texas and Connecticut) are supposed to start doing so later this year. They don't have for every single mutation, but I believe the panel is 25 or so. It's rare, but there have been a few false negatives. Any screening that comes back positive is followed up with the 25 or so CF mutation panel. So there's a good chance you'll be able to find that out automatically because the screening should be positive even if the baby is only a carrier. If you don't know already, I would try to find out what known mutations your brother has. Here's the link for what each state does per the CF Foundation:
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/GetInvolved/Advocate/NewbornScreening/#What_states_do_newborn_screening_for_CF?
">http://www.cff.org/GetInvolved...orn_screening_for_CF?
</a><br />
<br />Simply click on the state your brother is in.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Nikolle</b></i>

you mentioned ambry genetics.. how do I go about finding answers to my questions on that site

Go to the FAMILY section & the 2nd thread from the top is a thread just for Steve, our Ambry Rep


Just FYI....here is a site that one of our members created that deals with the CF men & the issues of fertility. Just for reference.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosismaleinfertility.com/">http://www.cysticfibrosismaleinfertility.com/</a>
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Nikolle</b></i>

you mentioned ambry genetics.. how do I go about finding answers to my questions on that site

Go to the FAMILY section & the 2nd thread from the top is a thread just for Steve, our Ambry Rep


Just FYI....here is a site that one of our members created that deals with the CF men & the issues of fertility. Just for reference.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosismaleinfertility.com/">http://www.cysticfibrosismaleinfertility.com/</a>
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Nikolle</b></i>

you mentioned ambry genetics.. how do I go about finding answers to my questions on that site

Go to the FAMILY section & the 2nd thread from the top is a thread just for Steve, our Ambry Rep


Just FYI....here is a site that one of our members created that deals with the CF men & the issues of fertility. Just for reference.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosismaleinfertility.com/">http://www.cysticfibrosismaleinfertility.com/</a>
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Nikolle</b></i>

you mentioned ambry genetics.. how do I go about finding answers to my questions on that site

Go to the FAMILY section & the 2nd thread from the top is a thread just for Steve, our Ambry Rep


Just FYI....here is a site that one of our members created that deals with the CF men & the issues of fertility. Just for reference.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosismaleinfertility.com/">http://www.cysticfibrosismaleinfertility.com/</a>
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Nikolle</b></i>
<br />
<br />you mentioned ambry genetics.. how do I go about finding answers to my questions on that site
<br />
<br />Go to the FAMILY section & the 2nd thread from the top is a thread just for Steve, our Ambry Rep
<br />
<br />
<br />Just FYI....here is a site that one of our members created that deals with the CF men & the issues of fertility. Just for reference.
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosismaleinfertility.com/">http://www.cysticfibrosismaleinfertility.com/</a>
 
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