gimtermain
New member
Hello,
The only reason I am posting this--and I know I should just get tested but I have no insurance right now--is because I was initially diagnosed with CF as a child.
When I was born, my parents did not think I was going to live.. I had difficulty breathing, growing, maintaining healthy weight and was just overall very sick for the first year of my life. I was kept at Children's hospital in St. Paul and fed a constant dose of steroids to maintain my health. The point is, I have a history of being chronically ill.
I was tested for cf as a baby and one of the tests were positive, the first one I got. I have not looked into obtaining those reports yet as my symptoms have just returned. The second exam that was given a couple months later was negative.
During the first two years of my life, I was unable to be active.. I could not play or do any normal activity like walking and moving around. According to my parents I was sickly.. obviously I don't remember much.
I dealt with asthma for a majority of my adolesence, but was very active in high school in sports and having little trouble running or maintaining an active lifestyle. I never really recall any severe respiratory or digestive problems... until about 2 years ago.
Two years ago during my junior year in college (I am 23 right now) I had intense digestive problems, a strong bloating feeling in my stomach, and just an overall loss of apetite, loss of energy et cetera. I never really thought of it much nor made a connection to my struggles as a baby.
Since October of 2009 - Today I have been dealing with the most chronic ans severe digestive and respiratory problems one could imagine. My symptoms include:
1. painful gallbladder - it is localised on my gall bladder especially after eating fatty foods.
2. loose stools that have been persistant and chronic since October. Sometimes they seem to be normal, othertimes they are skinny and very loose. More ofen than not they are loose.
3. During a week in August 2010 (just about a month ago) I felt like I was having an asthma attack for literally the entire week. I felt constricted under my sternum, as if I was suffocating and could not cough up any sort of phlegm.
4. When I go jogging, my chest feels like it will explode and I produce copious amounts of clear, frothy, spit that is nearly constant.
5. My chest is in pain. Literally, for days at a time--some days beter than others--my chest throbs in pain and feels like a bacterial infection... don't ask me why I think that its bacterial, just feels like it.. there are certain spots where the pain radiates.
6. I don't have an involuntary cough, nor do I really cough up any green phlegm.. it is mainly a constant feeling of constricted airways with an uproductive, self-induced cough to clear my lungs.
7. My windpipe feels constantly like there are bacterial colonies in certain areas. I know not else how to describe it... there are just certain spots that radiate this weird pain that feels dryish and tingly sort of.
8. Acid reflux - I have had acid reflux daily for since october really.
9. Overall pain in my body. I have been literally sick for two years, and I was an otherwise healthy athletic person prior.
The most concerning thing for me right now is that my chest has remained in a constant, dull pain just below my sternum, radiating throughout my chest area. Moreover, I had a week's worth of an "asthma attack symptom" where I could hardly breathe. For a week, no joke. This is not psychosomatic, my symptoms are chronic and very real and very difficult to bear.
Again, the only reason I post on this forum is because I was diagnosed as a child initially with CF via a sweat test, only to later be re-tested and tested negative. I would have not thought anything of anything had I remained healthy. But as I type this now, my lungs are in pain, a dull, radiating pain that feels like some sort of infection, and my digestive system has been a wreck for a year now, even with healthy eating habits. I am going to get a test as soon as I get insurance in November, but in the meantime, I was wondering if anybody else who has been diagnosed with CF has had symptoms like these or any advice? Again, I only ask here beacuse I was intially diagnosed with cf.
Sorry for the long post, and thanks in advance for anybody's input.
The only reason I am posting this--and I know I should just get tested but I have no insurance right now--is because I was initially diagnosed with CF as a child.
When I was born, my parents did not think I was going to live.. I had difficulty breathing, growing, maintaining healthy weight and was just overall very sick for the first year of my life. I was kept at Children's hospital in St. Paul and fed a constant dose of steroids to maintain my health. The point is, I have a history of being chronically ill.
I was tested for cf as a baby and one of the tests were positive, the first one I got. I have not looked into obtaining those reports yet as my symptoms have just returned. The second exam that was given a couple months later was negative.
During the first two years of my life, I was unable to be active.. I could not play or do any normal activity like walking and moving around. According to my parents I was sickly.. obviously I don't remember much.
I dealt with asthma for a majority of my adolesence, but was very active in high school in sports and having little trouble running or maintaining an active lifestyle. I never really recall any severe respiratory or digestive problems... until about 2 years ago.
Two years ago during my junior year in college (I am 23 right now) I had intense digestive problems, a strong bloating feeling in my stomach, and just an overall loss of apetite, loss of energy et cetera. I never really thought of it much nor made a connection to my struggles as a baby.
Since October of 2009 - Today I have been dealing with the most chronic ans severe digestive and respiratory problems one could imagine. My symptoms include:
1. painful gallbladder - it is localised on my gall bladder especially after eating fatty foods.
2. loose stools that have been persistant and chronic since October. Sometimes they seem to be normal, othertimes they are skinny and very loose. More ofen than not they are loose.
3. During a week in August 2010 (just about a month ago) I felt like I was having an asthma attack for literally the entire week. I felt constricted under my sternum, as if I was suffocating and could not cough up any sort of phlegm.
4. When I go jogging, my chest feels like it will explode and I produce copious amounts of clear, frothy, spit that is nearly constant.
5. My chest is in pain. Literally, for days at a time--some days beter than others--my chest throbs in pain and feels like a bacterial infection... don't ask me why I think that its bacterial, just feels like it.. there are certain spots where the pain radiates.
6. I don't have an involuntary cough, nor do I really cough up any green phlegm.. it is mainly a constant feeling of constricted airways with an uproductive, self-induced cough to clear my lungs.
7. My windpipe feels constantly like there are bacterial colonies in certain areas. I know not else how to describe it... there are just certain spots that radiate this weird pain that feels dryish and tingly sort of.
8. Acid reflux - I have had acid reflux daily for since october really.
9. Overall pain in my body. I have been literally sick for two years, and I was an otherwise healthy athletic person prior.
The most concerning thing for me right now is that my chest has remained in a constant, dull pain just below my sternum, radiating throughout my chest area. Moreover, I had a week's worth of an "asthma attack symptom" where I could hardly breathe. For a week, no joke. This is not psychosomatic, my symptoms are chronic and very real and very difficult to bear.
Again, the only reason I post on this forum is because I was diagnosed as a child initially with CF via a sweat test, only to later be re-tested and tested negative. I would have not thought anything of anything had I remained healthy. But as I type this now, my lungs are in pain, a dull, radiating pain that feels like some sort of infection, and my digestive system has been a wreck for a year now, even with healthy eating habits. I am going to get a test as soon as I get insurance in November, but in the meantime, I was wondering if anybody else who has been diagnosed with CF has had symptoms like these or any advice? Again, I only ask here beacuse I was intially diagnosed with cf.
Sorry for the long post, and thanks in advance for anybody's input.