CF's in California

C

cfbigbrother

New member
I am curious about the different CF centers in California. We live in central california, and it is about the same distance for us to go to 6 different centers. We just relocated to this area and are looking for a new center. With our insurance we should be able to choose where we would like to go. We have heard about the centers in Fresno, Stanford, Long Beach, and San Diego. But are curious about people who actually go to those centers.

The things we are most wondering about are:
How aggressive are the doctors with managing your disease?
How good are the doctors/nurses about getting back to you when there is a problem?
How proactive is the team?
How do you feel the quality of the team is overall?
How easy is it to get an appointment?
HOw well does the clinic run?
HOw do you like the hospital?
Does your clinic do tune ups?
Do you feel that your clinic is cutting edge?
Is there anything else we should know in choosing a clinic?

I am interested in both the adult and pediatic clinics, my sister who will be moving in with us soon is an adult with CF and my daughter who is 1 has CF.

Thanks
 
C

cfbigbrother

New member
I am curious about the different CF centers in California. We live in central california, and it is about the same distance for us to go to 6 different centers. We just relocated to this area and are looking for a new center. With our insurance we should be able to choose where we would like to go. We have heard about the centers in Fresno, Stanford, Long Beach, and San Diego. But are curious about people who actually go to those centers.

The things we are most wondering about are:
How aggressive are the doctors with managing your disease?
How good are the doctors/nurses about getting back to you when there is a problem?
How proactive is the team?
How do you feel the quality of the team is overall?
How easy is it to get an appointment?
HOw well does the clinic run?
HOw do you like the hospital?
Does your clinic do tune ups?
Do you feel that your clinic is cutting edge?
Is there anything else we should know in choosing a clinic?

I am interested in both the adult and pediatic clinics, my sister who will be moving in with us soon is an adult with CF and my daughter who is 1 has CF.

Thanks
 
C

cfbigbrother

New member
I am curious about the different CF centers in California. We live in central california, and it is about the same distance for us to go to 6 different centers. We just relocated to this area and are looking for a new center. With our insurance we should be able to choose where we would like to go. We have heard about the centers in Fresno, Stanford, Long Beach, and San Diego. But are curious about people who actually go to those centers.

The things we are most wondering about are:
How aggressive are the doctors with managing your disease?
How good are the doctors/nurses about getting back to you when there is a problem?
How proactive is the team?
How do you feel the quality of the team is overall?
How easy is it to get an appointment?
HOw well does the clinic run?
HOw do you like the hospital?
Does your clinic do tune ups?
Do you feel that your clinic is cutting edge?
Is there anything else we should know in choosing a clinic?

I am interested in both the adult and pediatic clinics, my sister who will be moving in with us soon is an adult with CF and my daughter who is 1 has CF.

Thanks
 
C

cfbigbrother

New member
I am curious about the different CF centers in California. We live in central california, and it is about the same distance for us to go to 6 different centers. We just relocated to this area and are looking for a new center. With our insurance we should be able to choose where we would like to go. We have heard about the centers in Fresno, Stanford, Long Beach, and San Diego. But are curious about people who actually go to those centers.

The things we are most wondering about are:
How aggressive are the doctors with managing your disease?
How good are the doctors/nurses about getting back to you when there is a problem?
How proactive is the team?
How do you feel the quality of the team is overall?
How easy is it to get an appointment?
HOw well does the clinic run?
HOw do you like the hospital?
Does your clinic do tune ups?
Do you feel that your clinic is cutting edge?
Is there anything else we should know in choosing a clinic?

I am interested in both the adult and pediatic clinics, my sister who will be moving in with us soon is an adult with CF and my daughter who is 1 has CF.

Thanks
 
C

cfbigbrother

New member
I am curious about the different CF centers in California. We live in central california, and it is about the same distance for us to go to 6 different centers. We just relocated to this area and are looking for a new center. With our insurance we should be able to choose where we would like to go. We have heard about the centers in Fresno, Stanford, Long Beach, and San Diego. But are curious about people who actually go to those centers.
<br />
<br />The things we are most wondering about are:
<br />How aggressive are the doctors with managing your disease?
<br />How good are the doctors/nurses about getting back to you when there is a problem?
<br />How proactive is the team?
<br />How do you feel the quality of the team is overall?
<br />How easy is it to get an appointment?
<br />HOw well does the clinic run?
<br />HOw do you like the hospital?
<br />Does your clinic do tune ups?
<br />Do you feel that your clinic is cutting edge?
<br />Is there anything else we should know in choosing a clinic?
<br />
<br />I am interested in both the adult and pediatic clinics, my sister who will be moving in with us soon is an adult with CF and my daughter who is 1 has CF.
<br />
<br />Thanks
<br />
<br />
 
J

jdubbs

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/CareCenterNetwork/CareCenterData/
">http://www.cff.org/treatments/...twork/CareCenterData/
</a>
Check out this link. If you're starting from scratch it might be a good source of information. It gives you stats comparing outcomes across centers.
 
J

jdubbs

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/CareCenterNetwork/CareCenterData/
">http://www.cff.org/treatments/...twork/CareCenterData/
</a>
Check out this link. If you're starting from scratch it might be a good source of information. It gives you stats comparing outcomes across centers.
 
J

jdubbs

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/CareCenterNetwork/CareCenterData/
">http://www.cff.org/treatments/...twork/CareCenterData/
</a>
Check out this link. If you're starting from scratch it might be a good source of information. It gives you stats comparing outcomes across centers.
 
J

jdubbs

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/CareCenterNetwork/CareCenterData/
">http://www.cff.org/treatments/...twork/CareCenterData/
</a>
Check out this link. If you're starting from scratch it might be a good source of information. It gives you stats comparing outcomes across centers.
 
J

jdubbs

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/treatments/CareCenterNetwork/CareCenterData/
">http://www.cff.org/treatments/...twork/CareCenterData/
</a><br />
<br />Check out this link. If you're starting from scratch it might be a good source of information. It gives you stats comparing outcomes across centers.
 
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