Hi, I just wanted to say that my daughter was followed at Lucille Packard Children's by the adult team after relocating to the Palo Alto area while waiting for a double lung transplant.
We/she received exceptional care from the CF team. They were all extremely wonderful, understanding and caring.
Urgent care was received in a timely manner. Calls were returned within an acceptable amount of time. I'd say within about 2hrs. if not sooner. They'd always let us know that they received the call, if I'd left a detailed message with most of what they needed to know, they'd call to let us know they were working on it/contacting the doc. etc.
I/we found them to be aggressive in their treatment and care.
Since we/my daughter, were there waiting for transplant all our appts. seemed to be of the urgent matter and never did we just have a routine appt. Although we did have regularly scheduled appts.
The RT was wonderful as were the nurses, CF coordinator and clinic staff in general.
Since leaving the CF clinic, I have heard that the adult clinic is now seen in the Stanford chest clinic. I don't know if that is for sure, just what I heard. Since we aren't supposed to name docs. really, I will just say we/my daughter, was followed by Dr. M and he was absolutely wonderful. She had also seen two different peds. CF docs. One female and one male. One thing we really liked about the female doc was (and it was an urgent appt.) that she really listened to Anna and her thoughts on what was going on with her. Too many times a new doc doesn't LISTEN to the patient. The patient many times knows their body alot better than a new doctor and she believed this to be true. The other peds. doc, a male, was great as well. He even checked in on Anna when he heard she was admitted and asked about her after she received her transplant cause he'd heard she got her call.
If we ever moved to the bay area we would certainly go back to Lucille Packard/Stanford CF clinic.
We/she received exceptional care from the CF team. They were all extremely wonderful, understanding and caring.
Urgent care was received in a timely manner. Calls were returned within an acceptable amount of time. I'd say within about 2hrs. if not sooner. They'd always let us know that they received the call, if I'd left a detailed message with most of what they needed to know, they'd call to let us know they were working on it/contacting the doc. etc.
I/we found them to be aggressive in their treatment and care.
Since we/my daughter, were there waiting for transplant all our appts. seemed to be of the urgent matter and never did we just have a routine appt. Although we did have regularly scheduled appts.
The RT was wonderful as were the nurses, CF coordinator and clinic staff in general.
Since leaving the CF clinic, I have heard that the adult clinic is now seen in the Stanford chest clinic. I don't know if that is for sure, just what I heard. Since we aren't supposed to name docs. really, I will just say we/my daughter, was followed by Dr. M and he was absolutely wonderful. She had also seen two different peds. CF docs. One female and one male. One thing we really liked about the female doc was (and it was an urgent appt.) that she really listened to Anna and her thoughts on what was going on with her. Too many times a new doc doesn't LISTEN to the patient. The patient many times knows their body alot better than a new doctor and she believed this to be true. The other peds. doc, a male, was great as well. He even checked in on Anna when he heard she was admitted and asked about her after she received her transplant cause he'd heard she got her call.
If we ever moved to the bay area we would certainly go back to Lucille Packard/Stanford CF clinic.