lilaonholiday
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Chemo
- Thread starter lilaonholiday
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lilaonholiday
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lilaonholiday
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lilaonholiday
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<P>Posted too early!</P>
<P>I've been offered Chemotherapy in the hope of possibly extending my life. There are some risks involved, one is lowering immunity and will therefore put me at risk of infection. Has anyone with CF gone through Chemo? If so I wondered if you might be able to share your thoughts about this treatment. Many thanks</P>
<P> </P>
<P>I've been offered Chemotherapy in the hope of possibly extending my life. There are some risks involved, one is lowering immunity and will therefore put me at risk of infection. Has anyone with CF gone through Chemo? If so I wondered if you might be able to share your thoughts about this treatment. Many thanks</P>
<P> </P>
lilaonholiday
New member
<P>Posted too early!</P>
<P>I've been offered Chemotherapy in the hope of possibly extending my life. There are some risks involved, one is lowering immunity and will therefore put me at risk of infection. Has anyone with CF gone throughChemo? If so I wondered if you might be able to share your thoughts about this treatment. Many thanks</P>
<P></P>
<P>I've been offered Chemotherapy in the hope of possibly extending my life. There are some risks involved, one is lowering immunity and will therefore put me at risk of infection. Has anyone with CF gone throughChemo? If so I wondered if you might be able to share your thoughts about this treatment. Many thanks</P>
<P></P>
lilaonholiday
New member
<P>Posted too early!</P>
<P>I've been offered Chemotherapy in the hope of possibly extending my life. There are some risks involved, one is lowering immunity and will therefore put me at risk of infection. Has anyone with CF gone throughChemo? If so I wondered if you might be able to share your thoughts about this treatment. Many thanks</P>
<P></P>
<P>I've been offered Chemotherapy in the hope of possibly extending my life. There are some risks involved, one is lowering immunity and will therefore put me at risk of infection. Has anyone with CF gone throughChemo? If so I wondered if you might be able to share your thoughts about this treatment. Many thanks</P>
<P></P>
JennifersHope
New member
I have not and I don't know anyone who has but I wanted to reiterate to you that I am praying for you. I understand the risk of lowering your immune system and allowing your other infections to take over or grow more. Hopefully someone will have some answers for you.
I hope you have a great support system and are surrounded by a lot of love
I hope you have a great support system and are surrounded by a lot of love
JennifersHope
New member
I have not and I don't know anyone who has but I wanted to reiterate to you that I am praying for you. I understand the risk of lowering your immune system and allowing your other infections to take over or grow more. Hopefully someone will have some answers for you.
I hope you have a great support system and are surrounded by a lot of love
I hope you have a great support system and are surrounded by a lot of love
JennifersHope
New member
I have not and I don't know anyone who has but I wanted to reiterate to you that I am praying for you. I understand the risk of lowering your immune system and allowing your other infections to take over or grow more. Hopefully someone will have some answers for you.
<br />
<br />I hope you have a great support system and are surrounded by a lot of love
<br />
<br />I hope you have a great support system and are surrounded by a lot of love
I am in a different situation than you but I will most likely have chemo in about 2 months I think.
I am 5 years post double lungtransplant and have/had adenocarcinoma in my new lungs.
They removed the upper right lobe where there was a tumour of 3.2cm, it was poorly differentiated, it was aggressive.
The tumour was close to my trachea and there was only a 6mm gap between where they could cut during surgery and where the tumour cells were.
Because of this and how aggressive the tumour is/was, they want to treat it aggressive. I had the surgery 3 weeks ago and will start radiation therapy this next Wednesday, every workday for 25 times.
The plan is to also do chemotherapy after radiation, but only when they think my body can handle that.
They are talking about 2 or 3 rounds and a lower dose than normal. My immune system is already compromised post transplant and my lungfunction isn't that high.
The cancer had spread to two lymph nodes but they were in the right lung and therefor were my donor's. During transplant they cut the lymph system and that is why the cancer could not spread through these lymph nodes.
It was also close to a large bloodvessel but a PETscan doesn't show metastasen anywhere outside my right lung.
There is a small spot of something in the right lower lobe. They tried to get that out during the surgery but there were too many adhesions and the risk of heavy bleeding was too high. This is only a small spot and it only comes up in CTscans and not in a PETscan. For now they are going to monitor it and see if it grows or not.
For now we can just hope everything is gone already. And when not that radiation and chemo will help with the rest.
Thinking of you.
I am 5 years post double lungtransplant and have/had adenocarcinoma in my new lungs.
They removed the upper right lobe where there was a tumour of 3.2cm, it was poorly differentiated, it was aggressive.
The tumour was close to my trachea and there was only a 6mm gap between where they could cut during surgery and where the tumour cells were.
Because of this and how aggressive the tumour is/was, they want to treat it aggressive. I had the surgery 3 weeks ago and will start radiation therapy this next Wednesday, every workday for 25 times.
The plan is to also do chemotherapy after radiation, but only when they think my body can handle that.
They are talking about 2 or 3 rounds and a lower dose than normal. My immune system is already compromised post transplant and my lungfunction isn't that high.
The cancer had spread to two lymph nodes but they were in the right lung and therefor were my donor's. During transplant they cut the lymph system and that is why the cancer could not spread through these lymph nodes.
It was also close to a large bloodvessel but a PETscan doesn't show metastasen anywhere outside my right lung.
There is a small spot of something in the right lower lobe. They tried to get that out during the surgery but there were too many adhesions and the risk of heavy bleeding was too high. This is only a small spot and it only comes up in CTscans and not in a PETscan. For now they are going to monitor it and see if it grows or not.
For now we can just hope everything is gone already. And when not that radiation and chemo will help with the rest.
Thinking of you.
I am in a different situation than you but I will most likely have chemo in about 2 months I think.
I am 5 years post double lungtransplant and have/had adenocarcinoma in my new lungs.
They removed the upper right lobe where there was a tumour of 3.2cm, it was poorly differentiated, it was aggressive.
The tumour was close to my trachea and there was only a 6mm gap between where they could cut during surgery and where the tumour cells were.
Because of this and how aggressive the tumour is/was, they want to treat it aggressive. I had the surgery 3 weeks ago and will start radiation therapy this next Wednesday, every workday for 25 times.
The plan is to also do chemotherapy after radiation, but only when they think my body can handle that.
They are talking about 2 or 3 rounds and a lower dose than normal. My immune system is already compromised post transplant and my lungfunction isn't that high.
The cancer had spread to two lymph nodes but they were in the right lung and therefor were my donor's. During transplant they cut the lymph system and that is why the cancer could not spread through these lymph nodes.
It was also close to a large bloodvessel but a PETscan doesn't show metastasen anywhere outside my right lung.
There is a small spot of something in the right lower lobe. They tried to get that out during the surgery but there were too many adhesions and the risk of heavy bleeding was too high. This is only a small spot and it only comes up in CTscans and not in a PETscan. For now they are going to monitor it and see if it grows or not.
For now we can just hope everything is gone already. And when not that radiation and chemo will help with the rest.
Thinking of you.
I am 5 years post double lungtransplant and have/had adenocarcinoma in my new lungs.
They removed the upper right lobe where there was a tumour of 3.2cm, it was poorly differentiated, it was aggressive.
The tumour was close to my trachea and there was only a 6mm gap between where they could cut during surgery and where the tumour cells were.
Because of this and how aggressive the tumour is/was, they want to treat it aggressive. I had the surgery 3 weeks ago and will start radiation therapy this next Wednesday, every workday for 25 times.
The plan is to also do chemotherapy after radiation, but only when they think my body can handle that.
They are talking about 2 or 3 rounds and a lower dose than normal. My immune system is already compromised post transplant and my lungfunction isn't that high.
The cancer had spread to two lymph nodes but they were in the right lung and therefor were my donor's. During transplant they cut the lymph system and that is why the cancer could not spread through these lymph nodes.
It was also close to a large bloodvessel but a PETscan doesn't show metastasen anywhere outside my right lung.
There is a small spot of something in the right lower lobe. They tried to get that out during the surgery but there were too many adhesions and the risk of heavy bleeding was too high. This is only a small spot and it only comes up in CTscans and not in a PETscan. For now they are going to monitor it and see if it grows or not.
For now we can just hope everything is gone already. And when not that radiation and chemo will help with the rest.
Thinking of you.
I am in a different situation than you but I will most likely have chemo in about 2 months I think.
<br />
<br />I am 5 years post double lungtransplant and have/had adenocarcinoma in my new lungs.
<br />They removed the upper right lobe where there was a tumour of 3.2cm, it was poorly differentiated, it was aggressive.
<br />The tumour was close to my trachea and there was only a 6mm gap between where they could cut during surgery and where the tumour cells were.
<br />Because of this and how aggressive the tumour is/was, they want to treat it aggressive. I had the surgery 3 weeks ago and will start radiation therapy this next Wednesday, every workday for 25 times.
<br />
<br />The plan is to also do chemotherapy after radiation, but only when they think my body can handle that.
<br />They are talking about 2 or 3 rounds and a lower dose than normal. My immune system is already compromised post transplant and my lungfunction isn't that high.
<br />
<br />The cancer had spread to two lymph nodes but they were in the right lung and therefor were my donor's. During transplant they cut the lymph system and that is why the cancer could not spread through these lymph nodes.
<br />It was also close to a large bloodvessel but a PETscan doesn't show metastasen anywhere outside my right lung.
<br />
<br />There is a small spot of something in the right lower lobe. They tried to get that out during the surgery but there were too many adhesions and the risk of heavy bleeding was too high. This is only a small spot and it only comes up in CTscans and not in a PETscan. For now they are going to monitor it and see if it grows or not.
<br />
<br />For now we can just hope everything is gone already. And when not that radiation and chemo will help with the rest.
<br />
<br />Thinking of you.
<br />
<br />I am 5 years post double lungtransplant and have/had adenocarcinoma in my new lungs.
<br />They removed the upper right lobe where there was a tumour of 3.2cm, it was poorly differentiated, it was aggressive.
<br />The tumour was close to my trachea and there was only a 6mm gap between where they could cut during surgery and where the tumour cells were.
<br />Because of this and how aggressive the tumour is/was, they want to treat it aggressive. I had the surgery 3 weeks ago and will start radiation therapy this next Wednesday, every workday for 25 times.
<br />
<br />The plan is to also do chemotherapy after radiation, but only when they think my body can handle that.
<br />They are talking about 2 or 3 rounds and a lower dose than normal. My immune system is already compromised post transplant and my lungfunction isn't that high.
<br />
<br />The cancer had spread to two lymph nodes but they were in the right lung and therefor were my donor's. During transplant they cut the lymph system and that is why the cancer could not spread through these lymph nodes.
<br />It was also close to a large bloodvessel but a PETscan doesn't show metastasen anywhere outside my right lung.
<br />
<br />There is a small spot of something in the right lower lobe. They tried to get that out during the surgery but there were too many adhesions and the risk of heavy bleeding was too high. This is only a small spot and it only comes up in CTscans and not in a PETscan. For now they are going to monitor it and see if it grows or not.
<br />
<br />For now we can just hope everything is gone already. And when not that radiation and chemo will help with the rest.
<br />
<br />Thinking of you.
Hey Karen, I was on 5FU for my chemo treatment. I did pretty well at first. Then I was hospitalized for a bowel obstruction (I think do to some med issues related to over combatting diarrhea and/or scaring of the bowel from radiation). After that I got a bit gunky and was on and off Tobi for a while to help keep the lungs clear. For me the worst part of the chemo/radiation phase was the radiation and also the bowel obstruction episode. My lungs actually did amazingly well. Radiation made me REALLY tired. The 5FU chemo is supposed to be one of the easiest chemos. I'm not sure what they will be using for you. My 5FU was administered on a 24 hour continuous for 5 days a week. I also had radiation 5 days a week. Let me know if you have other questions and I'll do my best to try to remember. I will send my email via PM. Peace, Steph
Hey Karen, I was on 5FU for my chemo treatment. I did pretty well at first. Then I was hospitalized for a bowel obstruction (I think do to some med issues related to over combatting diarrhea and/or scaring of the bowel from radiation). After that I got a bit gunky and was on and off Tobi for a while to help keep the lungs clear. For me the worst part of the chemo/radiation phase was the radiation and also the bowel obstruction episode. My lungs actually did amazingly well. Radiation made me REALLY tired. The 5FU chemo is supposed to be one of the easiest chemos. I'm not sure what they will be using for you. My 5FU was administered on a 24 hour continuous for 5 days a week. I also had radiation 5 days a week. Let me know if you have other questions and I'll do my best to try to remember. I will send my email via PM. Peace, Steph
Hey Karen, <BR><BR>I was on 5FU for my chemo treatment. I did pretty well at first. Then I was hospitalized for a bowel obstruction (I think do to some med issues related to over combatting diarrhea and/or scaring of the bowel from radiation). After that I got a bit gunky and was on and off Tobi for a while to help keep the lungs clear. <BR><BR>For me the worst part of the chemo/radiation phase was the radiation and also the bowel obstruction episode. My lungs actually did amazingly well. Radiation made me REALLY tired. The 5FU chemo is supposed to be one of the easiest chemos. I'm not sure what they will be using for you. My 5FU was administered on a 24 hour continuous for 5 days a week. I also had radiation 5 days a week. <BR><BR>Let me know if you have other questions and I'll do my best to try to remember. I will send my email via PM. <BR><BR>Peace, <BR>Steph
lilaonholiday
New member
Thank-you everyone for your information and prayers. I've had a bit of a rough time for the past few days as had surgery to open up a stricture in my bowel, but then developed a blockage. I've been laid out pretty much and my lungs are suffering for it. I'm on 6 antibiotics though, 2 i.v's, 2 nebbed and 2 oral, as well as all the other stuff, so I'm going to try and get them as clear as possible over the oncoming week. I have another appointment with the chemo specialist tomorrow, so will hopefully find out more about what to expect etc. The idea isn't quite as scary as when it was initially raised, but they did say I could breeze through it, or it could be really awful last time i went. It might be sensible to try it and see how I go.
Thoughts and prayers go out to you all, particularly Marjolein. Really hope all goes as well as possible for you.
Much love
Karen
Thoughts and prayers go out to you all, particularly Marjolein. Really hope all goes as well as possible for you.
Much love
Karen
lilaonholiday
New member
Thank-you everyone for your information and prayers. I've had a bit of a rough time for the past few days as had surgery to open up a stricture in my bowel, but then developed a blockage. I've been laid out pretty much and my lungs are suffering for it. I'm on 6 antibiotics though, 2 i.v's, 2 nebbed and 2 oral, as well as all the other stuff, so I'm going to try and get them as clear as possible over the oncoming week. I have another appointment with the chemo specialist tomorrow, so will hopefully find out more about what to expect etc. The idea isn't quite as scary as when it was initially raised, but they did say I could breeze through it, or it could be really awful last time i went. It might be sensible to try it and see how I go.
Thoughts and prayers go out to you all, particularly Marjolein. Really hope all goes as well as possible for you.
Much love
Karen
Thoughts and prayers go out to you all, particularly Marjolein. Really hope all goes as well as possible for you.
Much love
Karen