cleaning out?

[MaksNana]

I TOTALY AGREE WITH THE OTHERS,,,, HOPEFULLY YOU ARE SEEING AN ENT,, USEALLY THE CF CLINICS WORK TOGETHER WITH ENT'S, AND GI DOCTORS...MY GRANDBABY HAD SINUS SURGERY 2 YRS AGO. SHE HAD BAD POLYPS, AND HAD ADNOIDS REMOVED AND THE CLEAN OUT....SHE STILL HAS ALOT OF INFECTIONS, BUT THE ENT SAID BECAUSE OF THE MUCOUS BEING SO THICK SHE WILL HAVE LOT'S OF INFECTIONS AND THERE'S NO REASON TO DO A 'CLEAN OUT', INLESS SHE HAS BAD POLYP'S AND COMPLETE BLOCKAGE AGAIN....BECAUSE, THE MUCOUS IS GOING TO ALWAYS BE THERE,,,NO MATTER HOW MANY TIMES YOU JUST DO A 'CLEAN OUT'....

A CT SCAN IS THE BEST TEST TO DETERMINE WHAT TO DO.THEY SAY MAKAILYN HAS 'SINUS DISEASE', WHICH IS PART OF HER CF... I KNOW IT MAY SOUND LIKE NO BIG DEAL,,, BUT IT IS ALOT OF WORK WITH SINUS FLUSHES,, THE GAGGING AT NIGHT BECAUSE THE DRAINAGE IS TO THICK IT CAN'T COME OUT OF HER NOSTRILS,SO IT DRAINS DOWN THE BACK OF HER THROAT, AND SHE COUGHS AND RUBBLES WHEN SHE'S ASLEEP...HER EYES ARE ALWAYS PUFFY,,AND SOMETIMES SHE LOOKS LIKE SHE HAS BLACK EYES, AND SHE COMPLAINS ABOUT HEADACHES ETC....
JUST PLEASE MAKE SURE YOU HAVE A CF TEAM THAT WORKS WITH AN ENT TEAM....
OH, MAKAILYN WAS 5YRS OLD WHEN SHE HAD THE SURGERY...I HOPE THIS HAS HELP SOME ,,,PLEASE KEEP US POSTED....

 

[MaksNana]

I TOTALY AGREE WITH THE OTHERS,,,, HOPEFULLY YOU ARE SEEING AN ENT,, USEALLY THE CF CLINICS WORK TOGETHER WITH ENT'S, AND GI DOCTORS...MY GRANDBABY HAD SINUS SURGERY 2 YRS AGO. SHE HAD BAD POLYPS, AND HAD ADNOIDS REMOVED AND THE CLEAN OUT....SHE STILL HAS ALOT OF INFECTIONS, BUT THE ENT SAID BECAUSE OF THE MUCOUS BEING SO THICK SHE WILL HAVE LOT'S OF INFECTIONS AND THERE'S NO REASON TO DO A 'CLEAN OUT', INLESS SHE HAS BAD POLYP'S AND COMPLETE BLOCKAGE AGAIN....BECAUSE, THE MUCOUS IS GOING TO ALWAYS BE THERE,,,NO MATTER HOW MANY TIMES YOU JUST DO A 'CLEAN OUT'....

A CT SCAN IS THE BEST TEST TO DETERMINE WHAT TO DO.THEY SAY MAKAILYN HAS 'SINUS DISEASE', WHICH IS PART OF HER CF... I KNOW IT MAY SOUND LIKE NO BIG DEAL,,, BUT IT IS ALOT OF WORK WITH SINUS FLUSHES,, THE GAGGING AT NIGHT BECAUSE THE DRAINAGE IS TO THICK IT CAN'T COME OUT OF HER NOSTRILS,SO IT DRAINS DOWN THE BACK OF HER THROAT, AND SHE COUGHS AND RUBBLES WHEN SHE'S ASLEEP...HER EYES ARE ALWAYS PUFFY,,AND SOMETIMES SHE LOOKS LIKE SHE HAS BLACK EYES, AND SHE COMPLAINS ABOUT HEADACHES ETC....
JUST PLEASE MAKE SURE YOU HAVE A CF TEAM THAT WORKS WITH AN ENT TEAM....
OH, MAKAILYN WAS 5YRS OLD WHEN SHE HAD THE SURGERY...I HOPE THIS HAS HELP SOME ,,,PLEASE KEEP US POSTED....

 

[MaksNana]

I TOTALY AGREE WITH THE OTHERS,,,, HOPEFULLY YOU ARE SEEING AN ENT,, USEALLY THE CF CLINICS WORK TOGETHER WITH ENT'S, AND GI DOCTORS...MY GRANDBABY HAD SINUS SURGERY 2 YRS AGO. SHE HAD BAD POLYPS, AND HAD ADNOIDS REMOVED AND THE CLEAN OUT....SHE STILL HAS ALOT OF INFECTIONS, BUT THE ENT SAID BECAUSE OF THE MUCOUS BEING SO THICK SHE WILL HAVE LOT'S OF INFECTIONS AND THERE'S NO REASON TO DO A 'CLEAN OUT', INLESS SHE HAS BAD POLYP'S AND COMPLETE BLOCKAGE AGAIN....BECAUSE, THE MUCOUS IS GOING TO ALWAYS BE THERE,,,NO MATTER HOW MANY TIMES YOU JUST DO A 'CLEAN OUT'....

A CT SCAN IS THE BEST TEST TO DETERMINE WHAT TO DO.THEY SAY MAKAILYN HAS 'SINUS DISEASE', WHICH IS PART OF HER CF... I KNOW IT MAY SOUND LIKE NO BIG DEAL,,, BUT IT IS ALOT OF WORK WITH SINUS FLUSHES,, THE GAGGING AT NIGHT BECAUSE THE DRAINAGE IS TO THICK IT CAN'T COME OUT OF HER NOSTRILS,SO IT DRAINS DOWN THE BACK OF HER THROAT, AND SHE COUGHS AND RUBBLES WHEN SHE'S ASLEEP...HER EYES ARE ALWAYS PUFFY,,AND SOMETIMES SHE LOOKS LIKE SHE HAS BLACK EYES, AND SHE COMPLAINS ABOUT HEADACHES ETC....
JUST PLEASE MAKE SURE YOU HAVE A CF TEAM THAT WORKS WITH AN ENT TEAM....
OH, MAKAILYN WAS 5YRS OLD WHEN SHE HAD THE SURGERY...I HOPE THIS HAS HELP SOME ,,,PLEASE KEEP US POSTED....

 

[MaksNana]

I TOTALY AGREE WITH THE OTHERS,,,, HOPEFULLY YOU ARE SEEING AN ENT,, USEALLY THE CF CLINICS WORK TOGETHER WITH ENT'S, AND GI DOCTORS...MY GRANDBABY HAD SINUS SURGERY 2 YRS AGO. SHE HAD BAD POLYPS, AND HAD ADNOIDS REMOVED AND THE CLEAN OUT....SHE STILL HAS ALOT OF INFECTIONS, BUT THE ENT SAID BECAUSE OF THE MUCOUS BEING SO THICK SHE WILL HAVE LOT'S OF INFECTIONS AND THERE'S NO REASON TO DO A 'CLEAN OUT', INLESS SHE HAS BAD POLYP'S AND COMPLETE BLOCKAGE AGAIN....BECAUSE, THE MUCOUS IS GOING TO ALWAYS BE THERE,,,NO MATTER HOW MANY TIMES YOU JUST DO A 'CLEAN OUT'....

A CT SCAN IS THE BEST TEST TO DETERMINE WHAT TO DO.THEY SAY MAKAILYN HAS 'SINUS DISEASE', WHICH IS PART OF HER CF... I KNOW IT MAY SOUND LIKE NO BIG DEAL,,, BUT IT IS ALOT OF WORK WITH SINUS FLUSHES,, THE GAGGING AT NIGHT BECAUSE THE DRAINAGE IS TO THICK IT CAN'T COME OUT OF HER NOSTRILS,SO IT DRAINS DOWN THE BACK OF HER THROAT, AND SHE COUGHS AND RUBBLES WHEN SHE'S ASLEEP...HER EYES ARE ALWAYS PUFFY,,AND SOMETIMES SHE LOOKS LIKE SHE HAS BLACK EYES, AND SHE COMPLAINS ABOUT HEADACHES ETC....
JUST PLEASE MAKE SURE YOU HAVE A CF TEAM THAT WORKS WITH AN ENT TEAM....
OH, MAKAILYN WAS 5YRS OLD WHEN SHE HAD THE SURGERY...I HOPE THIS HAS HELP SOME ,,,PLEASE KEEP US POSTED....

 

[MaksNana]

I TOTALY AGREE WITH THE OTHERS,,,, HOPEFULLY YOU ARE SEEING AN ENT,, USEALLY THE CF CLINICS WORK TOGETHER WITH ENT'S, AND GI DOCTORS...MY GRANDBABY HAD SINUS SURGERY 2 YRS AGO. SHE HAD BAD POLYPS, AND HAD ADNOIDS REMOVED AND THE CLEAN OUT....SHE STILL HAS ALOT OF INFECTIONS, BUT THE ENT SAID BECAUSE OF THE MUCOUS BEING SO THICK SHE WILL HAVE LOT'S OF INFECTIONS AND THERE'S NO REASON TO DO A 'CLEAN OUT', INLESS SHE HAS BAD POLYP'S AND COMPLETE BLOCKAGE AGAIN....BECAUSE, THE MUCOUS IS GOING TO ALWAYS BE THERE,,,NO MATTER HOW MANY TIMES YOU JUST DO A 'CLEAN OUT'....
<br />
<br />A CT SCAN IS THE BEST TEST TO DETERMINE WHAT TO DO.THEY SAY MAKAILYN HAS 'SINUS DISEASE', WHICH IS PART OF HER CF... I KNOW IT MAY SOUND LIKE NO BIG DEAL,,, BUT IT IS ALOT OF WORK WITH SINUS FLUSHES,, THE GAGGING AT NIGHT BECAUSE THE DRAINAGE IS TO THICK IT CAN'T COME OUT OF HER NOSTRILS,SO IT DRAINS DOWN THE BACK OF HER THROAT, AND SHE COUGHS AND RUBBLES WHEN SHE'S ASLEEP...HER EYES ARE ALWAYS PUFFY,,AND SOMETIMES SHE LOOKS LIKE SHE HAS BLACK EYES, AND SHE COMPLAINS ABOUT HEADACHES ETC....
<br />JUST PLEASE MAKE SURE YOU HAVE A CF TEAM THAT WORKS WITH AN ENT TEAM....
<br />OH, MAKAILYN WAS 5YRS OLD WHEN SHE HAD THE SURGERY...I HOPE THIS HAS HELP SOME ,,,PLEASE KEEP US POSTED....

 

[shea14]

We are doing it right now. We are actually (finally) about to start at home IV's. We do what they say but the CF doesn't care!! He did not have to have a clean out until three years old (he is now six). then it was every four to six months and has progressed to two weeks on and two weeks off. I have no idea why. The bacteria really like him and do not want to leave I guess. I have a friend who's son used to be in every time we were, and then he just went a year with no clean outs. It happens, and it is not because of anything you did or did not do. I would say over a year is great!!!!!!

 

[shea14]

We are doing it right now. We are actually (finally) about to start at home IV's. We do what they say but the CF doesn't care!! He did not have to have a clean out until three years old (he is now six). then it was every four to six months and has progressed to two weeks on and two weeks off. I have no idea why. The bacteria really like him and do not want to leave I guess. I have a friend who's son used to be in every time we were, and then he just went a year with no clean outs. It happens, and it is not because of anything you did or did not do. I would say over a year is great!!!!!!

 

[shea14]

We are doing it right now. We are actually (finally) about to start at home IV's. We do what they say but the CF doesn't care!! He did not have to have a clean out until three years old (he is now six). then it was every four to six months and has progressed to two weeks on and two weeks off. I have no idea why. The bacteria really like him and do not want to leave I guess. I have a friend who's son used to be in every time we were, and then he just went a year with no clean outs. It happens, and it is not because of anything you did or did not do. I would say over a year is great!!!!!!

 

[shea14]

We are doing it right now. We are actually (finally) about to start at home IV's. We do what they say but the CF doesn't care!! He did not have to have a clean out until three years old (he is now six). then it was every four to six months and has progressed to two weeks on and two weeks off. I have no idea why. The bacteria really like him and do not want to leave I guess. I have a friend who's son used to be in every time we were, and then he just went a year with no clean outs. It happens, and it is not because of anything you did or did not do. I would say over a year is great!!!!!!

 

[shea14]

We are doing it right now. We are actually (finally) about to start at home IV's. We do what they say but the CF doesn't care!! He did not have to have a clean out until three years old (he is now six). then it was every four to six months and has progressed to two weeks on and two weeks off. I have no idea why. The bacteria really like him and do not want to leave I guess. I have a friend who's son used to be in every time we were, and then he just went a year with no clean outs. It happens, and it is not because of anything you did or did not do. I would say over a year is great!!!!!!