Coughing and can't catch his breath

J

julie

New member
I"m really concerned about Mark right now. It's been a tough 6 weeks for us, I got sick first then two the boys, then Mark then Cassie. We were all on the mend about 2 weeks later and then the kids got sick again, the Mark and then me. Ryland is on ear infection #5 (I don't think they've ever really cleared up) and Tristan is on ear infection #2.

I am finally feeling better, as are all the kids. However Mark still has this really nasty awful cough.

He normally coughs a fair amount, usually having a lot of sputum to spit out. However, he is coughing more, louder and for longer stretches and told me tonight that he is having a hard time catching his breath. The cough actaully makes me cringe because of how it sounds (sounds like it must hurt a lot!)

He saw a non CF doctor a few weeks ago and was given Cipro because he was culturing Pseudo. and Staph (normal for him)

He's scheduled for the CF clinic on the 11th of Feb and we can't get in before that.... What do you recommend we do. I've suggested to him we go see the doctor, but he keeps saying they aren't going to do anything for him and it's a waste of time.

I'm feeling a little frustrated that he doesn't want to take any action, but I'm also worried about him and wonder if you all have any suggestions? He is using his albuterol a lot more too (puffer, not nebulizer).

Thanks....
 
J

julie

New member
I"m really concerned about Mark right now. It's been a tough 6 weeks for us, I got sick first then two the boys, then Mark then Cassie. We were all on the mend about 2 weeks later and then the kids got sick again, the Mark and then me. Ryland is on ear infection #5 (I don't think they've ever really cleared up) and Tristan is on ear infection #2.

I am finally feeling better, as are all the kids. However Mark still has this really nasty awful cough.

He normally coughs a fair amount, usually having a lot of sputum to spit out. However, he is coughing more, louder and for longer stretches and told me tonight that he is having a hard time catching his breath. The cough actaully makes me cringe because of how it sounds (sounds like it must hurt a lot!)

He saw a non CF doctor a few weeks ago and was given Cipro because he was culturing Pseudo. and Staph (normal for him)

He's scheduled for the CF clinic on the 11th of Feb and we can't get in before that.... What do you recommend we do. I've suggested to him we go see the doctor, but he keeps saying they aren't going to do anything for him and it's a waste of time.

I'm feeling a little frustrated that he doesn't want to take any action, but I'm also worried about him and wonder if you all have any suggestions? He is using his albuterol a lot more too (puffer, not nebulizer).

Thanks....
 
J

julie

New member
I"m really concerned about Mark right now. It's been a tough 6 weeks for us, I got sick first then two the boys, then Mark then Cassie. We were all on the mend about 2 weeks later and then the kids got sick again, the Mark and then me. Ryland is on ear infection #5 (I don't think they've ever really cleared up) and Tristan is on ear infection #2.

I am finally feeling better, as are all the kids. However Mark still has this really nasty awful cough.

He normally coughs a fair amount, usually having a lot of sputum to spit out. However, he is coughing more, louder and for longer stretches and told me tonight that he is having a hard time catching his breath. The cough actaully makes me cringe because of how it sounds (sounds like it must hurt a lot!)

He saw a non CF doctor a few weeks ago and was given Cipro because he was culturing Pseudo. and Staph (normal for him)

He's scheduled for the CF clinic on the 11th of Feb and we can't get in before that.... What do you recommend we do. I've suggested to him we go see the doctor, but he keeps saying they aren't going to do anything for him and it's a waste of time.

I'm feeling a little frustrated that he doesn't want to take any action, but I'm also worried about him and wonder if you all have any suggestions? He is using his albuterol a lot more too (puffer, not nebulizer).

Thanks....
 
J

julie

New member
I"m really concerned about Mark right now. It's been a tough 6 weeks for us, I got sick first then two the boys, then Mark then Cassie. We were all on the mend about 2 weeks later and then the kids got sick again, the Mark and then me. Ryland is on ear infection #5 (I don't think they've ever really cleared up) and Tristan is on ear infection #2.

I am finally feeling better, as are all the kids. However Mark still has this really nasty awful cough.

He normally coughs a fair amount, usually having a lot of sputum to spit out. However, he is coughing more, louder and for longer stretches and told me tonight that he is having a hard time catching his breath. The cough actaully makes me cringe because of how it sounds (sounds like it must hurt a lot!)

He saw a non CF doctor a few weeks ago and was given Cipro because he was culturing Pseudo. and Staph (normal for him)

He's scheduled for the CF clinic on the 11th of Feb and we can't get in before that.... What do you recommend we do. I've suggested to him we go see the doctor, but he keeps saying they aren't going to do anything for him and it's a waste of time.

I'm feeling a little frustrated that he doesn't want to take any action, but I'm also worried about him and wonder if you all have any suggestions? He is using his albuterol a lot more too (puffer, not nebulizer).

Thanks....
 
J

julie

New member
I"m really concerned about Mark right now. It's been a tough 6 weeks for us, I got sick first then two the boys, then Mark then Cassie. We were all on the mend about 2 weeks later and then the kids got sick again, the Mark and then me. Ryland is on ear infection #5 (I don't think they've ever really cleared up) and Tristan is on ear infection #2.

I am finally feeling better, as are all the kids. However Mark still has this really nasty awful cough.

He normally coughs a fair amount, usually having a lot of sputum to spit out. However, he is coughing more, louder and for longer stretches and told me tonight that he is having a hard time catching his breath. The cough actaully makes me cringe because of how it sounds (sounds like it must hurt a lot!)

He saw a non CF doctor a few weeks ago and was given Cipro because he was culturing Pseudo. and Staph (normal for him)

He's scheduled for the CF clinic on the 11th of Feb and we can't get in before that.... What do you recommend we do. I've suggested to him we go see the doctor, but he keeps saying they aren't going to do anything for him and it's a waste of time.

I'm feeling a little frustrated that he doesn't want to take any action, but I'm also worried about him and wonder if you all have any suggestions? He is using his albuterol a lot more too (puffer, not nebulizer).

Thanks....
 
S

Sevenstars

New member
Is he short of breath or sick in other ways? When I get really sick, I always feel so much better when I go into the hospital and get some O2 (can't get it covered at home) and some IV fluids. If its just a cough, you might try just some normal cough remedies... like chloroseptic cough drops, tea with honey and lemon, stuff like that. Steamy hot showers can sometimes help you feel better, even if it doesn't *actually* help the cough. If he knows his body and isn't worried about it, I would say don't press it. Just help him feel better however you can, and ask what he thinks would help, if anything. Hope he and the kids feel better soon!

Oh, if he will agree to it, you might try having the doctor call in something for him. Maybe another med, or something for his nose/throat to make them feel better?
 
S

Sevenstars

New member
Is he short of breath or sick in other ways? When I get really sick, I always feel so much better when I go into the hospital and get some O2 (can't get it covered at home) and some IV fluids. If its just a cough, you might try just some normal cough remedies... like chloroseptic cough drops, tea with honey and lemon, stuff like that. Steamy hot showers can sometimes help you feel better, even if it doesn't *actually* help the cough. If he knows his body and isn't worried about it, I would say don't press it. Just help him feel better however you can, and ask what he thinks would help, if anything. Hope he and the kids feel better soon!

Oh, if he will agree to it, you might try having the doctor call in something for him. Maybe another med, or something for his nose/throat to make them feel better?
 
S

Sevenstars

New member
Is he short of breath or sick in other ways? When I get really sick, I always feel so much better when I go into the hospital and get some O2 (can't get it covered at home) and some IV fluids. If its just a cough, you might try just some normal cough remedies... like chloroseptic cough drops, tea with honey and lemon, stuff like that. Steamy hot showers can sometimes help you feel better, even if it doesn't *actually* help the cough. If he knows his body and isn't worried about it, I would say don't press it. Just help him feel better however you can, and ask what he thinks would help, if anything. Hope he and the kids feel better soon!

Oh, if he will agree to it, you might try having the doctor call in something for him. Maybe another med, or something for his nose/throat to make them feel better?
 
S

Sevenstars

New member
Is he short of breath or sick in other ways? When I get really sick, I always feel so much better when I go into the hospital and get some O2 (can't get it covered at home) and some IV fluids. If its just a cough, you might try just some normal cough remedies... like chloroseptic cough drops, tea with honey and lemon, stuff like that. Steamy hot showers can sometimes help you feel better, even if it doesn't *actually* help the cough. If he knows his body and isn't worried about it, I would say don't press it. Just help him feel better however you can, and ask what he thinks would help, if anything. Hope he and the kids feel better soon!

Oh, if he will agree to it, you might try having the doctor call in something for him. Maybe another med, or something for his nose/throat to make them feel better?
 
S

Sevenstars

New member
Is he short of breath or sick in other ways? When I get really sick, I always feel so much better when I go into the hospital and get some O2 (can't get it covered at home) and some IV fluids. If its just a cough, you might try just some normal cough remedies... like chloroseptic cough drops, tea with honey and lemon, stuff like that. Steamy hot showers can sometimes help you feel better, even if it doesn't *actually* help the cough. If he knows his body and isn't worried about it, I would say don't press it. Just help him feel better however you can, and ask what he thinks would help, if anything. Hope he and the kids feel better soon!

Oh, if he will agree to it, you might try having the doctor call in something for him. Maybe another med, or something for his nose/throat to make them feel better?
 
A

AnD

New member
I'm a bit confused as to why they can't see him at clinic if he is sick? My cf doctor came to clinic on a nonclinic day to look at a spot of phlebitis on my leg, so I didn't have to go to the emergency room and get breathed on there. I was surprised (but a good surprised, of course), since he is very busy; but, even as busy as he is, he managed to squeeze out a few minutes for me.

All this is IMHO of course, but it sounds like he needs to get in to see his cf doctor before you do end up in the emergency room.

I'd call them, let them know he is sick, tell them (again?) what all is going on and insist that they see him. At Children's, they would always work us in at clinic if we were sick, and admit us through clinic as an emergency exacerbation to avoid the ER too.

I hope he's feeling better really soon- maybe the nebbed albuterol would help more (it does me) if he is where he can have access to it?
 
A

AnD

New member
I'm a bit confused as to why they can't see him at clinic if he is sick? My cf doctor came to clinic on a nonclinic day to look at a spot of phlebitis on my leg, so I didn't have to go to the emergency room and get breathed on there. I was surprised (but a good surprised, of course), since he is very busy; but, even as busy as he is, he managed to squeeze out a few minutes for me.

All this is IMHO of course, but it sounds like he needs to get in to see his cf doctor before you do end up in the emergency room.

I'd call them, let them know he is sick, tell them (again?) what all is going on and insist that they see him. At Children's, they would always work us in at clinic if we were sick, and admit us through clinic as an emergency exacerbation to avoid the ER too.

I hope he's feeling better really soon- maybe the nebbed albuterol would help more (it does me) if he is where he can have access to it?
 
A

AnD

New member
I'm a bit confused as to why they can't see him at clinic if he is sick? My cf doctor came to clinic on a nonclinic day to look at a spot of phlebitis on my leg, so I didn't have to go to the emergency room and get breathed on there. I was surprised (but a good surprised, of course), since he is very busy; but, even as busy as he is, he managed to squeeze out a few minutes for me.

All this is IMHO of course, but it sounds like he needs to get in to see his cf doctor before you do end up in the emergency room.

I'd call them, let them know he is sick, tell them (again?) what all is going on and insist that they see him. At Children's, they would always work us in at clinic if we were sick, and admit us through clinic as an emergency exacerbation to avoid the ER too.

I hope he's feeling better really soon- maybe the nebbed albuterol would help more (it does me) if he is where he can have access to it?
 
A

AnD

New member
I'm a bit confused as to why they can't see him at clinic if he is sick? My cf doctor came to clinic on a nonclinic day to look at a spot of phlebitis on my leg, so I didn't have to go to the emergency room and get breathed on there. I was surprised (but a good surprised, of course), since he is very busy; but, even as busy as he is, he managed to squeeze out a few minutes for me.

All this is IMHO of course, but it sounds like he needs to get in to see his cf doctor before you do end up in the emergency room.

I'd call them, let them know he is sick, tell them (again?) what all is going on and insist that they see him. At Children's, they would always work us in at clinic if we were sick, and admit us through clinic as an emergency exacerbation to avoid the ER too.

I hope he's feeling better really soon- maybe the nebbed albuterol would help more (it does me) if he is where he can have access to it?
 
A

AnD

New member
I'm a bit confused as to why they can't see him at clinic if he is sick? My cf doctor came to clinic on a nonclinic day to look at a spot of phlebitis on my leg, so I didn't have to go to the emergency room and get breathed on there. I was surprised (but a good surprised, of course), since he is very busy; but, even as busy as he is, he managed to squeeze out a few minutes for me.

All this is IMHO of course, but it sounds like he needs to get in to see his cf doctor before you do end up in the emergency room.

I'd call them, let them know he is sick, tell them (again?) what all is going on and insist that they see him. At Children's, they would always work us in at clinic if we were sick, and admit us through clinic as an emergency exacerbation to avoid the ER too.

I hope he's feeling better really soon- maybe the nebbed albuterol would help more (it does me) if he is where he can have access to it?
 
W

welshwitch

Guest
Is he on Pulmozyme? Not sure if it would help, but I used to get a really bad cough once every 6 months or so....I started doing Pulmozyme once a day and haven't had a bad cough since (aside from the normal CF stuff.)

For me, it's a really soothing medicine that really opens up my lungs and gives them some much needed moisture, and breaks up the usual CF spudum and makes it easier to cough up.

For me (and I'm not sure if your husband does this) I have a tendancy to ignore my cough and just go to work because I don't FEEL THAT sick, per se....but I don't really get better unless I take a break and rest. Rest is DEFINITELY a must for a cough that refuses to quit!

Hope he feels better!
 
W

welshwitch

Guest
Is he on Pulmozyme? Not sure if it would help, but I used to get a really bad cough once every 6 months or so....I started doing Pulmozyme once a day and haven't had a bad cough since (aside from the normal CF stuff.)

For me, it's a really soothing medicine that really opens up my lungs and gives them some much needed moisture, and breaks up the usual CF spudum and makes it easier to cough up.

For me (and I'm not sure if your husband does this) I have a tendancy to ignore my cough and just go to work because I don't FEEL THAT sick, per se....but I don't really get better unless I take a break and rest. Rest is DEFINITELY a must for a cough that refuses to quit!

Hope he feels better!
 
W

welshwitch

Guest
Is he on Pulmozyme? Not sure if it would help, but I used to get a really bad cough once every 6 months or so....I started doing Pulmozyme once a day and haven't had a bad cough since (aside from the normal CF stuff.)

For me, it's a really soothing medicine that really opens up my lungs and gives them some much needed moisture, and breaks up the usual CF spudum and makes it easier to cough up.

For me (and I'm not sure if your husband does this) I have a tendancy to ignore my cough and just go to work because I don't FEEL THAT sick, per se....but I don't really get better unless I take a break and rest. Rest is DEFINITELY a must for a cough that refuses to quit!

Hope he feels better!
 
W

welshwitch

Guest
Is he on Pulmozyme? Not sure if it would help, but I used to get a really bad cough once every 6 months or so....I started doing Pulmozyme once a day and haven't had a bad cough since (aside from the normal CF stuff.)

For me, it's a really soothing medicine that really opens up my lungs and gives them some much needed moisture, and breaks up the usual CF spudum and makes it easier to cough up.

For me (and I'm not sure if your husband does this) I have a tendancy to ignore my cough and just go to work because I don't FEEL THAT sick, per se....but I don't really get better unless I take a break and rest. Rest is DEFINITELY a must for a cough that refuses to quit!

Hope he feels better!
 
W

welshwitch

Guest
Is he on Pulmozyme? Not sure if it would help, but I used to get a really bad cough once every 6 months or so....I started doing Pulmozyme once a day and haven't had a bad cough since (aside from the normal CF stuff.)

For me, it's a really soothing medicine that really opens up my lungs and gives them some much needed moisture, and breaks up the usual CF spudum and makes it easier to cough up.

For me (and I'm not sure if your husband does this) I have a tendancy to ignore my cough and just go to work because I don't FEEL THAT sick, per se....but I don't really get better unless I take a break and rest. Rest is DEFINITELY a must for a cough that refuses to quit!

Hope he feels better!
 
You must log in or register to reply here.
Top