Coughing and can't catch his breath

thefrogprincess

New member
Get on the phone with Lori or Dee and tell them you are coming in sooner, period. If they won't accomidate you go to the ER at UW. It is unaccetable that they won't see him sooner! I never ask for anything there, I just tell them what I want and they don't fight me.
 

thefrogprincess

New member
Get on the phone with Lori or Dee and tell them you are coming in sooner, period. If they won't accomidate you go to the ER at UW. It is unaccetable that they won't see him sooner! I never ask for anything there, I just tell them what I want and they don't fight me.
 

thefrogprincess

New member
Get on the phone with Lori or Dee and tell them you are coming in sooner, period. If they won't accomidate you go to the ER at UW. It is unaccetable that they won't see him sooner! I never ask for anything there, I just tell them what I want and they don't fight me.
 

thefrogprincess

New member
Get on the phone with Lori or Dee and tell them you are coming in sooner, period. If they won't accomidate you go to the ER at UW. It is unaccetable that they won't see him sooner! I never ask for anything there, I just tell them what I want and they don't fight me.
 

thefrogprincess

New member
Get on the phone with Lori or Dee and tell them you are coming in sooner, period. If they won't accomidate you go to the ER at UW. It is unaccetable that they won't see him sooner! I never ask for anything there, I just tell them what I want and they don't fight me.
 
M

marcijo

Guest
I agree-get on the phone tomorrow morning with the CF nurse and have them make room for him! I can't remember who the new nurse is (after Gwen left, I miss Gwen!!)...but they should be able to help you if he is sick! Good luck-and let us know what happens.
 
M

marcijo

Guest
I agree-get on the phone tomorrow morning with the CF nurse and have them make room for him! I can't remember who the new nurse is (after Gwen left, I miss Gwen!!)...but they should be able to help you if he is sick! Good luck-and let us know what happens.
 
M

marcijo

Guest
I agree-get on the phone tomorrow morning with the CF nurse and have them make room for him! I can't remember who the new nurse is (after Gwen left, I miss Gwen!!)...but they should be able to help you if he is sick! Good luck-and let us know what happens.
 
M

marcijo

Guest
I agree-get on the phone tomorrow morning with the CF nurse and have them make room for him! I can't remember who the new nurse is (after Gwen left, I miss Gwen!!)...but they should be able to help you if he is sick! Good luck-and let us know what happens.
 
M

marcijo

Guest
I agree-get on the phone tomorrow morning with the CF nurse and have them make room for him! I can't remember who the new nurse is (after Gwen left, I miss Gwen!!)...but they should be able to help you if he is sick! Good luck-and let us know what happens.
 

Faust

New member
I just recently had my first real strong "REAL" bleed in about 2 months. I thought I had been making real progress, and I had been. And then, for no explanation, BOOM. Bleed time. Previously, I had been having splotches and streaks of blood in my sputum (for the time I mentioned). I told myself I would never let bleeds go unchecked, like I did before when I dealt with them in my own way. I call up the clinic, tell his assistant what is up, she asks me if I have a fever, I tell her I feel fine accept for the bleed, and I haven't heard back from them. Great doctor, good people, but us CF's know, unless something is extremely bad, there mostly isn't anything they can do for us. Mark knows when that is. I can only imagine how run down he is with being a dad for several toddlers. Mark will call the docs when he realizes he absolutely has to. Until then, I would respect his wishes.
 

Faust

New member
I just recently had my first real strong "REAL" bleed in about 2 months. I thought I had been making real progress, and I had been. And then, for no explanation, BOOM. Bleed time. Previously, I had been having splotches and streaks of blood in my sputum (for the time I mentioned). I told myself I would never let bleeds go unchecked, like I did before when I dealt with them in my own way. I call up the clinic, tell his assistant what is up, she asks me if I have a fever, I tell her I feel fine accept for the bleed, and I haven't heard back from them. Great doctor, good people, but us CF's know, unless something is extremely bad, there mostly isn't anything they can do for us. Mark knows when that is. I can only imagine how run down he is with being a dad for several toddlers. Mark will call the docs when he realizes he absolutely has to. Until then, I would respect his wishes.
 

Faust

New member
I just recently had my first real strong "REAL" bleed in about 2 months. I thought I had been making real progress, and I had been. And then, for no explanation, BOOM. Bleed time. Previously, I had been having splotches and streaks of blood in my sputum (for the time I mentioned). I told myself I would never let bleeds go unchecked, like I did before when I dealt with them in my own way. I call up the clinic, tell his assistant what is up, she asks me if I have a fever, I tell her I feel fine accept for the bleed, and I haven't heard back from them. Great doctor, good people, but us CF's know, unless something is extremely bad, there mostly isn't anything they can do for us. Mark knows when that is. I can only imagine how run down he is with being a dad for several toddlers. Mark will call the docs when he realizes he absolutely has to. Until then, I would respect his wishes.
 

Faust

New member
I just recently had my first real strong "REAL" bleed in about 2 months. I thought I had been making real progress, and I had been. And then, for no explanation, BOOM. Bleed time. Previously, I had been having splotches and streaks of blood in my sputum (for the time I mentioned). I told myself I would never let bleeds go unchecked, like I did before when I dealt with them in my own way. I call up the clinic, tell his assistant what is up, she asks me if I have a fever, I tell her I feel fine accept for the bleed, and I haven't heard back from them. Great doctor, good people, but us CF's know, unless something is extremely bad, there mostly isn't anything they can do for us. Mark knows when that is. I can only imagine how run down he is with being a dad for several toddlers. Mark will call the docs when he realizes he absolutely has to. Until then, I would respect his wishes.
 

Faust

New member
I just recently had my first real strong "REAL" bleed in about 2 months. I thought I had been making real progress, and I had been. And then, for no explanation, BOOM. Bleed time. Previously, I had been having splotches and streaks of blood in my sputum (for the time I mentioned). I told myself I would never let bleeds go unchecked, like I did before when I dealt with them in my own way. I call up the clinic, tell his assistant what is up, she asks me if I have a fever, I tell her I feel fine accept for the bleed, and I haven't heard back from them. Great doctor, good people, but us CF's know, unless something is extremely bad, there mostly isn't anything they can do for us. Mark knows when that is. I can only imagine how run down he is with being a dad for several toddlers. Mark will call the docs when he realizes he absolutely has to. Until then, I would respect his wishes.
 

bittyhorse23

New member
Glad to see you are feeling better Julie <img src="i/expressions/face-icon-small-smile.gif" border="0">

This is a tough one. You want to call the DR and make them see him earlier but at the same time he knows his body so it could wait untill the 11th. BUT would wait to help you get fully recovered from your surgery before going in? Does he think he will be admitted and not want to leave you with the triplets alone, so soon after the surgery? He may know his body but maybe he is trying to wait and he knows somehting else is up? I don't him so I am not sure if he would jepordize his health or not. Just some thoughts from me is all.

<img src="i/expressions/heart.gif" border="0">
 

bittyhorse23

New member
Glad to see you are feeling better Julie <img src="i/expressions/face-icon-small-smile.gif" border="0">

This is a tough one. You want to call the DR and make them see him earlier but at the same time he knows his body so it could wait untill the 11th. BUT would wait to help you get fully recovered from your surgery before going in? Does he think he will be admitted and not want to leave you with the triplets alone, so soon after the surgery? He may know his body but maybe he is trying to wait and he knows somehting else is up? I don't him so I am not sure if he would jepordize his health or not. Just some thoughts from me is all.

<img src="i/expressions/heart.gif" border="0">
 

bittyhorse23

New member
Glad to see you are feeling better Julie <img src="i/expressions/face-icon-small-smile.gif" border="0">

This is a tough one. You want to call the DR and make them see him earlier but at the same time he knows his body so it could wait untill the 11th. BUT would wait to help you get fully recovered from your surgery before going in? Does he think he will be admitted and not want to leave you with the triplets alone, so soon after the surgery? He may know his body but maybe he is trying to wait and he knows somehting else is up? I don't him so I am not sure if he would jepordize his health or not. Just some thoughts from me is all.

<img src="i/expressions/heart.gif" border="0">
 

bittyhorse23

New member
Glad to see you are feeling better Julie <img src="i/expressions/face-icon-small-smile.gif" border="0">

This is a tough one. You want to call the DR and make them see him earlier but at the same time he knows his body so it could wait untill the 11th. BUT would wait to help you get fully recovered from your surgery before going in? Does he think he will be admitted and not want to leave you with the triplets alone, so soon after the surgery? He may know his body but maybe he is trying to wait and he knows somehting else is up? I don't him so I am not sure if he would jepordize his health or not. Just some thoughts from me is all.

<img src="i/expressions/heart.gif" border="0">
 

bittyhorse23

New member
Glad to see you are feeling better Julie <img src="i/expressions/face-icon-small-smile.gif" border="0">

This is a tough one. You want to call the DR and make them see him earlier but at the same time he knows his body so it could wait untill the 11th. BUT would wait to help you get fully recovered from your surgery before going in? Does he think he will be admitted and not want to leave you with the triplets alone, so soon after the surgery? He may know his body but maybe he is trying to wait and he knows somehting else is up? I don't him so I am not sure if he would jepordize his health or not. Just some thoughts from me is all.

<img src="i/expressions/heart.gif" border="0">
 
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